Hi, I have changed my username, incase anyone has recognised us from details previously and I want to keep my next steps close to home, not sure who to trust in this SEN world :-)
I could do with some views of others experiences,
Child is nearly 6, ASD diagnosed at 4.5, told to look at PDA for guidance as it they couldn't diagnose in county. Undiagnosed ADHD, SPD. HIghly non-compliant personality, strong demand avoidance. Child always in trouble at school, suspensions etc, aggressive alot. Struggles to learn at school doesnt want to but is clever enough to.
Have a EP report done at home, OT report, sensory diet to follow. Currently rewording the EHCP to strengthen it. School cant meet needs. LA say they should meet needs. Tribunal set for a long long way off. School is doing alot, alot more than most would and 1 to 1, I don't think they could do much more, they might be missing something, but thats not a magic cure.
Even if we win a tribunal, it doesn't mean there is a special school that can meet needs and there is also the case of waiting lists and child not getting in for a year or two. I am aware of the impact on childs mental health for the next few year, being at school, getting into trouble, guilt, shame etc.
As I can't work now, we have discussed him being home educated from end of April time, keep advocating until tribunal and they have a space somewhere suitable for him. I would rather he wasn't waiting in majnstream while his mental health is damaged and hopefully in 2 years he will get in somewhere. By end of April, we will have more updated evidence and any extra views from the LA have been given, just incase anything changes and then we could make our final decision. Tbh I don't know how well home ed will work for us, he wouldnt be getting as dysregulated so our routine should be easier, but then I can;t just be in the house all day, every day stuck, if he refuses to go anywhere. Or may just get aggressive all the time, although that should lessen hopefully. School holidays are sometimes hell, although two weeks isnt enough recover is it, hard to judge.
The problem is with this Wellbeing bill coming in, early Spring, I worry if I wait until April, I might never get him out, then be told to take him in every day, year 1, year 2 and not have a choice, I feel my hand is being pushed, quicker than I wanted.
I have a teacher meeting Friday to discuss current situation (his teacher did comment, something like, it cant go on like this, something has to change....for him and them). I have someone coming to see us next week to do an assessment and help regulate his nervous system and the family (that may never work if hes at school 5 days a week) I will take both their points into this equation. The special school we want is going to see him at his mainstream school to do a report for evidence in the tribunal, which may happen before my cut off point, or not. We have arranged a private Ed Psych to go to his school end of April. We were then going to take this all on board and if the LA did nothing rom that evidence, then take him out early May. But we now no longer have that time.
We need to make a decision in the next 2 weeks I think. Hes not going to get in a special school anytime soon, im sure, no matter what the evidence, so I just feel I need to take him out, before this bill come in to force, but still on the fence.
Thanks so much if you managed to read this far, but I feel sick with this decision, family can't help as they would just say, you have to trust the process, LA etc. I do not, the stories I have read, and sometimes everyone agreeing that a child needs a special school but the LA still enforcing mainstream. I think I know my decision but feel so upset at such a change in my sons life and removing him from all his friends (even though he would get new ones)
If the Ed Psych can't do a assessment at school then how do we produce that as evidence....and does the evidence really, honestly, matter if the LA are just ignoring it anyway and forcing kids into mainstream, waiting for these special ASD units which may come at some point.
If he was home ed, and if the special school say he wouldnt fit in there either, sen betweener, then i guess i would fight for a forest school a few times a week to give me a break.
I know what my gut tells me for his safeguarding and learning, but what if i make a big mistake, its such a big scary decision, i talked to him this morning and he only feels really happy at playtimes in school (he will other times too but not as much). Then how do i get more evidence, would i even have a chance of getting him in a special school later down the line. This bill has pushed me to make a move before i am quite ready.