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SEN

Here you'll find advice from parents and teachers on special needs education.

Worried about my boy - Aspergers

95 replies

Worriedaboutboy · 27/08/2017 09:07

Posting for traffic....sorry.

So last week I was out in the park with my friend and her four kids and my two. DS1 is three in October and I have a 6 month old baby. Friend is a SENCO. kids were all playing on some apparatus. My boy was joining in here and there but then at one point he starting walking around the swings etc in his own world. He was talking to himself and pretending to play at something. I was watching him and flippantly said "think he's got some of...............in him." (I used the name of a mutual friend who's boy has Aspergers). She looked back at me and I knew she wanted to say more. So I asked her to be honest and she said she'd thought same. She then said she'd seen him flapping him arms in excitement over something once and that he struggles to address her and other friend by first names. She said he goes through me to ask her for things, if we're at their house for example.

I've been a little wary as I have a cousin who has Aspergers and I'm a teacher so sometimes more heightened to theses things. Other "things" that might suggest it are - lining up his trucks and cars when he plays with them, he never says goodbye or waves to people preferring to just smile goodbye, potty training is ongoing and not easy, disliking me sing (but could be my voice), lack of confidence in new settings and needs me to hold his hand while he takes it all in, likes being at home although he's fine when we do go out.

Don't wanna drip feed but can't think of anything else.

I've just put these things down to confidence and shyness. Husband and I are sociable but we're reserved in a way and like to take our surroundings in. He seems ok in other ways, likes books, loves a good puzzle, plays with variety of toys and if we do go to new places, once he's warmed up and settled in, he's fine. SENCO friend said he often needs to check in with me if we're out and about.

Should I be worried or is SENCO friend just seeing things and adding it all up wrong?!

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Worriedaboutboy · 28/08/2017 18:34

It's so hard isn't it Going. DS has a high temp and seems to be coming down with something so not sure he'll be in nursery tomorrow. All this is causing me high levels of anxiety and I was already going to see GP about my mood and mental health before all this. I take AD'S and feel I may need an increase.

Spoke to friend again and she said that if he is on the spectrum, it's very marginal and that he seems highly intelligent. She says verbally he is very good but just doesn't speak much outside the confines of me and husband. She says he uses us as his spokesperson.

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Oncewaswho · 28/08/2017 18:45

With the greatest respect, your friend really shouldn't be saying these things. It is unlikely she is qualified to diagnose and even if she was there's far more to it than just knowing a child well. However she is obviously well meaning and wants to help. I take it he's not going to be going to her school?

I know it all causes more anxiety, but you really are doing the right thing by considering the possibility of him having SENs, so many parents either don't realise or don't want to know, it is a hard thing to accept. You don't need to do anything right now, but when you feel the time is right, talk to the professionals.

Hope he feels better soon. Flowers

Worriedaboutboy · 28/08/2017 18:58

Thanks once, friend is a primary senco so she knows her stuff but she's pulled up two to three behaviours and clung onto them. So now I'm thinking back over the last few months and remembering things from here and there and now wondering if it's all related.

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Worriedaboutboy · 28/08/2017 19:01

She said that at a birthday party a few weeks ago all he did was play with some lego. But in all fairness the party was chaos, loads of kids, merry adults and yeah he did play with some lego. But I did also see him mixing with his friends. We also went away a few weeks back and he was in a new environment visiting friends and family. It was noisy and pretty full-on and I did expect tears but he walked in, sussed stuff out for 5-10 minutes then sat down and played with the other kids.

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GoingRogue · 28/08/2017 19:25

Sometimes I think we see what we want to see. When I was in the height of worrying, everything that could be a trait seemed to appear, because I had a heightened awareness. Started comparing him to other children I know who are on the spectrum.

My dh just did that online test and it came out "low risk". We think our 3.5yo just isn't a "people person", so in a party he just plays with his brother or us because we're safe and easy (all dh's family are like that, but NT). He still loves his buggy, so when we go to busy places he is in that. We try to coax him out gently but he doesn't want to meet new people and make an effort...because he's 3, I think. At preschool he prefers to play by himself, but if another child approaches him he'll play alongside (and now with) them. He's just happy being by himself, but they say he's "really coming out of his shell" now. It all just took time.

Oncewaswho · 28/08/2017 19:34

I should clarify really, about your friend. It's great that she has been able to share with you a few things that might be causes for concern, so many of my friends sought to reassure me that there was nothing to worry about, they meant well but it didn't do us any favours really. What I don't think she should be saying is that it's mild or otherwise, she really can't judge that. FWIW i thought my DS would be mild, but he was way over the diagnostic cut-off, which shocked me. However it doesn't change a thing about him, he's still my gorgeous, kind, loving DS.

TwistedReach · 28/08/2017 23:25

Going the difference in you and your husband's scores and the seeing what you want (or are anxious) about seeing is part of why the CHAT is really not a standalone assessment- it is only a screening. It's really good that your nursery are looking out for your ds too. Obviously provision varies across the country, but if you are worried, there is no harm also talking to your gp/ health visitor.

Worriedaboutboy · 29/08/2017 04:24

Can't sleep. Been awake since 3....

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MrsOverTheRoad · 29/08/2017 04:48

Flowers My DD had many of the traits you mention, including the not liking to say goodbye or dirty hands.

She was very, very articulate and spoke at 10 months old...very able to communicate and was fully understandable by 15 months...it was this which stopped me looking for any diagnoses.

She wouldn't show off her speaking skills though out of the house and until she was about 6, her school had no idea how articulate she was.

How are your son's verbal skills?

DD is 13 now, bright, popular, sociable and intellgent...still articulate, no suspicion of ASD at all.

Worriedaboutboy · 29/08/2017 05:04

Verbal skills are very good but only around me and DH. He cam count up to ten forwards and backwards, talk in sentences, finishes off end of lines of books, fill in missing words, picks up words very fast.....I feel sick with worry.

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MrsOverTheRoad · 29/08/2017 05:07

Does he play imaginatively? Pretend one thing is another? For example making a washing basket into a boat to sit in, or something into a cup to drink out of?

Does he play imaginative games with you or your DH? Tea parties with bears or "school" with his toys?

TatterdemalionAspie · 29/08/2017 12:00

Why are you 'sick with worry', exactly, worried? If your boy does have an autism spectrum condition, he will still be the wonderful little boy that you know and love, with all his quirks and uniqueness - some of which may be related to an ASC, and some not. If he does not have an ASC, then he will still have his challenges to overcome in life, as do we all. He will still be at risk of being bullied, of having mental health problems, of not fulfilling his potential in some way, or of his life not panning out quite how you'd hoped. Just as every child is, regardless of autism! None or some of those things may happen, just as with every child, and you will deal with them as and if they do happen.

Nobody on here can tell you whether your boy is autistic. If you have concerns, flag them up to a professional, and keep flagging them up. They may be something, they may be nothing. Nothing about what you've said screams autism to me (in my limited, personal experience), but if you have a feeling that he might be, then listen to that intuition and keep an eye on him. I had a feeling from very early on that DD had Asperger's. I hummed and hahed for years about whether to get her assessed, and posted a couple of threads on here trying to figure it out, too. I was given really good advice... to stop fretting about it and just get her assessed! Grin I did, and she was diagnosed with Asperger's aged 9. The more I read about it, and about how it often presents quite differently in girls (and some boys), the more things fell into place for me. Eventually I asked to be assessed myself, and was diagnosed with Asperger's too. There was nothing to be 'worried sick' about - it has given us greater self knowledge and tools for understanding ourselves. Smile

Incidentally, early, precocious speech can be a feature in Asperger's, whereas delayed speech is more associated with other ASCs. My DD, though, was quite delayed with her speech, yet still diagnosed with Asperger's. Once out of toddlerhood, though, she became very articulate. I'm just trying to illustrate that thses things are complex, and a good clinician looks at the whole pattern of presentation, not just certain features. The imaginative play thing threw me for quite a while, too - she always had a very rich imaginative world, and would play (usually alone) for hours with her toys in imaginative scenarios. The 'lack of imagination' impairment refers to social imagination, not necessarily the kind of imagination you use in play, or in writing fiction (DD's special interest is writing fantasy fiction; since the age of 8, she has been a prolific and talented writer). She is also very articulate, polite and communicates well. Doesn't mean she doesn't have AS!

Understanding and imagining what others were feeling in a social situation, however, was a lot more challenging for her, as was reading the reactions and body language of other children - that is the social imagination part.

If you want to know more, I'd recommend Tony Atwood's book 'Asperger's Syndrome'. The clinician who diagnosed DD referred to it as their 'bible' (mainly in terms of diagnosing girls).

Fobber · 29/08/2017 12:03

Great message from TatterdemalionAspie!

TatterdemalionAspie · 29/08/2017 12:03

Tony Attwood's book on Asperger's: www.amazon.co.uk/dp/B0050IY61G/?tag=mumsnetforum-21

TatterdemalionAspie · 29/08/2017 12:05

Thanks Fobber!

Worriedaboutboy · 29/08/2017 13:43

Thanks tatter. I feel "sick with worry" as I've got a lot on my plate right now and I'm struggling. I totally know that he'll still be my gorgeous boy with or without ASD. I love him to bits and he is the apple of my eye. I guess I don't want life to ve any harder than it already can be. As a secondary Teacher I see kids further down the line and know that life can be hard, as it can for NT kids. My cousin has Aspergers and learning difficulties and he's struggling right now so at the moment I see a lot of his day to day barriers. Please don't for a minute think that I think a diagnosis of ASD is done sort of end of the world scenario. I've just been through a fair amount recently and my mind was feeling pretty scrambled with it all.

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TatterdemalionAspie · 29/08/2017 16:14

I totally get that, worried - none of us want life to be harder than necessary for our children. When DD was diagnosed, even though I was totally expecting it and felt relieved in many ways, it still felt like a bit of a smack in the face - I was reeling for a while with all the implications of it. There are definitely challenges that come along with an ASC, I just think that it is what it is - however much you worry about it isn't going to change who he is, or how you deal with any challenges that come along. Easy for me to say, but as a fellow worrier, I know it's harder to put into practice. Wink

I took DD out of school aged 8, when she stopped being happy at school and started to struggle (not academically, more with the environment and how she was able to cope). I home educated her for 3 years, and then in Y7 she started at Interhigh, which is a fully online secondary. She has thrived there, and I think online schooling is particularly useful for kids on the spectrum; it eliminates a lot of the sensory overwhelm that is a problem in school and allows them to just focus on the school work during class times (not that there isn't plenty of chat going on in the chat boxes!) and socialise at their own pace out of 'school'. It doesn't suit everyone, of course, but I'm just trying to illustrate that there are many potential paths to get where you want to be, and I know of quite a few kids with ASD who struggled in the mainstream school system, who have flourished outside of it.

Besides, which, your DS is not necessarily on the ASD spectrum, and may love school, whether he is or he isn't! Grin

Worriedaboutboy · 29/08/2017 17:14

Thanks Tatter, just feeding baby, will try and reply later. Actually have the book you mentioned already so will dust it off. Did you have any potty training issues?

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TatterdemalionAspie · 30/08/2017 09:49

She was quite late out of nappies, but I didn't push the issue earlier because I couldn't be doing with clearing up accidents etc. so preferred to wait until she seemed really ready. She was three and a half, iirc, because she was starting nursery in the Sept and I thought 'blimey, better get on with this!'. Grin I think I suggested it to her a few times before (using the loo) and got a firm refusal, but once I said 'right, no more nappies in the day - you're using the loo and that's it', she took to it very quickly with only one or two accidents. Same as with the talking, really - late to do it but once she did she was fine.

Night time was a different thing altogether, though, because she's always been an incredibly deep sleeper and the need to go just didn't wake her up (nor did smoke alarms, thunder storms or anything else! Shock) She was in nappies at night until at least 5 and had occasional night time accidents for longer. I'm a bit hazy on the ages, sorry - seems like a long time ago now! Grin

Worriedaboutboy · 30/08/2017 14:50

We're struggling but are too far into the process to go backwards. He's about 70% dry at nursery but lots if accidents at home. Not sure why. Wish I'd left it. How did you feel when you first had inkling that DD was different?

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