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Here you'll find advice from parents and teachers on special needs education.

Lots of problems with 5 year old DS - Can anyone help?

5 replies

AngryFeet · 01/03/2012 11:21

Reposted from Primary Education as everyone said I would get good advice here :)

www.mumsnet.com/Talk/primary/1418253-DS-5-is-becoming-the-weird-kid-of-the-class-I-just-dont-know-what-to-do?msgid=30364703#30364703

OP posts:
OP posts:
Fulhamup · 01/03/2012 11:32

Some of the things you describe in your original OP are suggestive of ASD (particularly the hand-flapping) but as you also point out he does not have a typical ASD presentation. However, autism operates along many different dimensions - it's a hypercube, not a spectrum so talking about autistic sprectrum disorder is not very helpful.

You suggest that he is not very well socially motivated. Do you think he wants to make friends with other children? Does he actively seek out their company? Does he want to play in parallel with them? This is a key component.

I would suggest trying to get your LA's Children's Services department to give him an Ed Psy assessment. This might be difficult as he is not clear cut. If you have the budget perhaps think about a private assessment.

This must be a huge worry and I am very sympathetic, I have family experience of autism. The really fantastic news is that he is verbal. the lack of speech and language is the most debilitating thing about autism.

Finally, take heart, my nephew was diagnosed aged 2, no speech and a typical presentation. He is now in mainstream school aged 10, his learning is normal and has effectively been cured of autism. He would no longer clear the hurdle for a diagnosis. Children can 'grow out of it'.

AngryFeet · 01/03/2012 11:40

Thanks Fulhamup. I have been expressing worries for a while to my family but they are all quite dismissive (he is fine, he will grow out of it, it is his personality) but none of them are seeing the issues at school so it is easy for them to say I guess.

I would have no idea how to go about contacting Childrens Services (do I go through the GP?). Looking on Google I can't see where to find them (I am in Croydon, Surrey). And who would I be looking for if I were to go private.

Sorry for asking such possibly stupid questions but this is very new to me :)

Thank you for your help :)

OP posts:
Fulhamup · 01/03/2012 11:58

Here is a link to your local authority's page for getting advice on Special Needs
www.croydon.gov.uk/education/special-educational-needs/senassess
Give them a call.

Also make an appointment with your GP and also get your Health Visitor to come over. Be firm with your GP and ask for a referral to your local hospital's (the Mayday?) child development/ neurodisability clinic. There should be an autism specialist.

Trust your instincts, not your family's. If he does grow out of it, great. But if he needs help, the sooner the better

AttilaTheMeerkat · 01/03/2012 14:51

AngryFeet

I would also suggest you post this in the forum entitled Special Needs:Children (you can see this on the MN home page about two thirds of the way down the forums listings) as that part of the site receives far more daily traffic than this forum does. This forum is a bit remote.

Trying to get a EP assessment is a good aim but they are as rare as hen's teeth; you may well have a fight to convince your DS's school that he needs to be seen by such a person. DO fight for him to be seen by an EP as this will be useful if you apply for a statement from this LEA. Bear in mind too that many teachers have no real training either when it comes to special needs let alone recognising any one particular condition.

I would ask your GP to refer your son to a developmental paediatrician as this person would be helpful to see. HV is of no use or benefit here; you need to see the GP initially and insist that your son is referred onto the specialists.

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