Active discussions

Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

Talk
Site stuff

Join our Innovation Panel to try new features early and help make Mumsnet better.

Original poster

Dwelling for those who are impacted by the effects disabilities.

58 replies

candykane25 · 01/09/2016 16:20

Thank you Purpledaisy I'm back on the mobile site, thank you for your help!
I've cried today because my support plan has been cocked up for months meaning I am lacking vital support and the SW (who has been changed 3 times in one year) is talking in riddles rather than answering a simple question.
The constant battles, refusals, barriers - people generally have no Idea how a disability can affect every aspect of daily life, day in, day out. I'm actually sick of having to be bolshy and assertive to get the suppor the law says I should have. Im on the ninja thread and it's nice there, therefore... should we start a little thread to support each other and maybe enjoy it along the way?
The ninjas have a barn, the swearies have a cave, we could have our own dwelling as a safe place?

OP posts:
Original poster
candykane25 · 01/09/2016 20:32

Poster she's been so excited for so long. I blame Topsy and bloody Tim with their new school shoes :)

OP posts:
Jasonandyawegunorts · 01/09/2016 20:44

Good luck to your dd for tommorow candy

PolterGoose · 01/09/2016 20:45

This reply has been deleted

Message withdrawn at poster's request.

Original poster
candykane25 · 01/09/2016 22:05

Thank you Jason.
Polter I will be a soppy puddle tomorrow!

OP posts:
PausingFlatly · 01/09/2016 23:31

All best to you both for tomorrow, then!

NotCitrus · 02/09/2016 10:35

Aw... Best wishes Kandy! My dd starts next week but she's been at the school nursery and dragged along with big brother as long as she can remember. I can't wait -this last week of hols is really taking it out of me. Summoning the energy to scrap the kids off the TV isn't happening...

NotCitrus · 02/09/2016 10:38

Question: have people seen the new TfL "please may I have a seat - I have an invisible disability" badges. Trying to decide if I should get one. Thing is, when I feel bolshy enough to wear such a thing, I'm capable of adking, and I can't easily unpin it. Thoughts?

Original poster
candykane25 · 02/09/2016 11:11

I've heard of them for the London Underground. Is it a badge? I thought it was a pass.
Befire I had my guide dog I would sit in the priority seat and just not care what people thought. If there was someone struggling more than me and I felt able to move, I would give up my seat. But... I didn't use public transport very much despite not being able to drive. I just avoided it.
Now I have a visible sign (CandyDog) I use the bus all the time.

OP posts:
Original poster
candykane25 · 02/09/2016 11:11

And... Tv is educational :)

OP posts:
PolterGoose · 02/09/2016 11:24

This reply has been deleted

Message withdrawn at poster's request.

AnnieOnnieMouse · 02/09/2016 11:34

Hello Candy, I saw this thread - hadn't realised at first it was you who started it!
I agree that we could do with our own little space for us, the adults with the problems. I am slowly coming to terms with disabilities that are fairly mild in the scheme of things, but still a nuisance. I would not have considered that I fitted under the label of SN either, but don't mind really.
I do have kids, but they are grown and flown.
If you do start a thread somewhere out of the way, do please give me a nudge in the barn.

Samcro · 02/09/2016 11:56

candy nice idea for a thread, can't join in as im not disabled. but a carer to an adult disabled child, but good luck with it.

Original poster
candykane25 · 02/09/2016 15:13

Well it's for those impacted by disability so as a carer I would have said you were impacted.
I chose the words carefully so as not to exclude.

OP posts:
Original poster
candykane25 · 02/09/2016 15:20

Hi Annie! Will do.

OP posts:
CandyMcJingles · 02/09/2016 16:23

Due to IT issues with resetting my password, MN have reactivated a pre Jeffrey HackerGate account and closed my CandyKane one. So it's still me :D

PolterGoose · 02/09/2016 18:25

This reply has been deleted

Message withdrawn at poster's request.

Jasonandyawegunorts · 02/09/2016 18:25

Welcome back Candy.

CandyMcJingles · 02/09/2016 21:26

Thanks Jason.

So I clocked up in another thread, my fault entirely. Ive said sorry and hope not to repeat such behaviour.

NoHaudinMaWheest · 02/09/2016 21:51

polter that sounds like a good solution.

CandyMcJingles · 02/09/2016 21:56

I second or third that suggestion Polter.

I do think there needs to be a safe space thread where it's not about debates or who's right or wrong but just general chatter. Despite all the differences, there are common themes and generally I think only others impacted by disability can get it.

Anyway.
Tonight's supper is horlicks and hot buttered toast for all >!tray is over there. Extra soft pillows stacked up bused them.

ToadsJustFellFromTheSky · 02/09/2016 22:06

A board called 'SN and Disability: Adults' would cover all the bases. They could just re-name the MNers with SNs board...

I honestly mean this in the nicest way possible, but I think that's a really horrible idea.

PolterGoose · 02/09/2016 22:07

This reply has been deleted

Message withdrawn at poster's request.

ToadsJustFellFromTheSky · 02/09/2016 22:08

And I was trying to be tactful there but it didn't work Blush.

They should keeps Mumsnetters with SN as it is imo (I don't really mind the name either) but they should have an SN: Adults topic too.

CandyMcJingles · 02/09/2016 22:09

Ok.
I'll go to the SN board and start a thread entitled Safe Space which is just for general chit chat.
If it works it works and it doesn't, never mind.

PolterGoose · 02/09/2016 22:10

This reply has been deleted

Message withdrawn at poster's request.