I read that thread earlier. I have just re-read it to make sure I haven't missed anything. I'm not sure what point your friends in your inbox were making?
For clarity, I only posted twice, once with a suggestion, then a quick follow up saying 'stupid me, I didn't read the thread...'
I have just read every single post. I can't see a single one where there was bullying behaviour. I can't judge the posts which were deleted, of course, but there seem to be equal deleted posts between yourself and another poster, so it seems tit for tat.
Re. the namechanging poster, come on. It was a bit daft to change names by one digit and one piece of clothing then expect people to realise you want to be incognito! If you want to be incognito, change your name significantly.
Your first post on that thread was to say 'I don't think you should be doing a campaign because even if you do, no one will grasp what our life is like and we'll still be outsiders'. You went on to tell the other SN posters that they couldn't possibly have a life like you do.
I am sure, beyond doubt, that your life with your DS is extremely challenging. I am sure, beyond doubt, that it must hurt all the more because you had the triple test and were deemed low risk for DS, then went on to have a DS with DS that is at the extreme end of severity. I am sure beyond doubt that you feel isolated and that you are against the world.
That doesn't give you the right to tell everyone else that they don't have it hard, or that they can't struggle, and you can't claim that it's misinterpretation by other people when you actually type the words in a post.
No one bullied you on that thread. People bent over backwards to discuss it with you. They expressed concern for you. They asked you time and time again what would support you.
If your friends have issues with MNSN, perhaps they should be bold enough to address them themselves? I can't see why you have to front it for them.