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See all MNHQ comments on this thread

The media furore of the last few days

203 replies

JustineMumsnet · 22/01/2011 22:44

Hi all,

Wanted to post about the extraordinary press coverage of the Riven story over the last few days as there's been a bit of speculation about what happened and not all of it accurate.

It's a fact that for the press to get excited about an issue they need a human interest angle (with pictures). Riven's post on Mumsnet was ideal but when it came to engagement with the media, Riven's clear intention throughout was to raise the issue of respite care for all and to shy away from her own story. Of course the press pretty much ignored her because if it hadn't had a dramatic personal angle there would have been no story - it simply wouldn't have made the papers. If Riven hadn't already met David Cameron, it wouldn't have made the front page. It was a perfect storm of a story for a press looking for human interest, evidence of cuts causing hardship and a David Cameron angle to boot.

The extent of our own involvement was to pass on the enormous number of media requests of which, as far as I know, Riven only actually responded to only 2 or 3 and one of those (the Mirror) was because they doorstepped her. I also suggested and drafted her statement post the Mirror piece as she was upset the morning after that they'd skewed what she said to turn it into an NHS cuts story. Once it had appeared in the Guardian and the Mirror as front page news it was lifted plus picture by almost every other broadcaster/paper.

The press found out about the story both because there are plenty of journalists who are MNetters and because Twitter and Facebook were alight with it - and as it turned out, the story was exactly what the media was looking for.

For the record we think Riven and those who got behind her to make a noise about carers should feel proud of what they've achieved in the last few days. I've got no doubt that the Government will tread more carefully around provision of care for those with SN than they did before as a direct result of their action. The feedback we've had from the major charities involved is that they've never had so much press interest in the issue and that they are thrilled that it has at last entered the public consciousness. We've also had tonnes of emails from carers thanking Riven/MNetters for raising the issue.

The intention of this post is to give a clearer understanding of how things evolved and were played out. Please feel free to discuss the issues raised here but we will delete posts that pick over Riven's personal situation because we really don't think that's on given the bombardment she's been under the last few days.

OP posts:
belledechocchipcookie · 23/01/2011 11:15

I really do hope Riven and her family are well and they are now getting the support/will be getting very soon the support that they need.

To be honest, this has been happening to families like Rivens for years and has nothing to do with local authority cuts. I've been told of families sitting in the reception of social services here and refusing to leave as they have been refused support for a severly disabled child. One child I cared for was too large to be carried upstairs by his mother and social services wouldn't help them, meaning he was sleeping downstairs and his mother slept on the floor next to him! This was in 2005. Childrens services and those for the elderly are always underfunded and are the first affected when there are cuts. I don't blame the current government as they don't tell the Local Authorities where to make the cuts but I do think that they should ring fence some of the funds that they give to them because it will be spent elsewhere. Derby city council for example is spending millions renovating the council house while staff are losing their jobs and services are being slashed. Rediculous!

lenak · 23/01/2011 11:24

While the last few days must have been incredibly stressful for Riven at a time of already heightened stress, I am sure when all of the personal attention dies down, she will realise that what has occured will have long term positive affects.

Although she probably didn't realise how it would all explode, she is not stupid and some part of her must have known her existing 'Dave' connection could lead to this getting into the national press - even if it wasn't a concious intention at the time.

Justine is quite right when she says the media want a personal angle, but it is not just the media, it is the public at large who generally have very little understanding of these issues - they understand them much better if they can relate them to a 'face'. Concepts and ideas without that are much more abstract and feed into the "well it doesn't affect me so I don't care attitude". If they can relate it to a person they have much more understanding or at least inclination to empathy.

The front page interest in all of this will die down - but it has given charities some much needed ammunition to enable them to push their campaigns into the spotlight. Once they have public attention, it is much easier to keep the interest up. It is generating the interest in the first place that is the problem and this episode has helped to achieve that very difficult feat. Riven was in a unique position to do that. She was the one who said that she wanted the issue to be about all carers and the charities will make sure it is. I really do hope that, with hindsight, she comes to see all of this in a positive light.

Either way, my thoughts are with her, her beautiful daughter and the rest of the family for what they do on a daily basis. It cannot be easy and I admire her and all of the other parents with seriously disabled children for doing what they do because they have very little choice - I'm not sure I could do it!

------------

As for the funding for carers - the carers grant was ringfenced up until this year and it was substantial - the real criminal fact is that most councils massively underspent their carers grant, despite the number of people desperate for a break.

If anyone is particularly interested in this (and has a blog or something they want to write about it on) I suggest that you write to a number of councils in your local vacinity with a freedom of information request asking questions like:

What services are provided for carers. How much do they cost?

Over the last four years, what percentage of your carers grant did you spend on respite?

What proportion of carers on your books were provided with respite in the last four years (giving figures for each year)?

What is the average hours of respite each carer gets?

I know you would be very shocked at the answers!

lisad123isasnuttyasaboxoffrogs · 23/01/2011 11:25

i remember more than once walking into our main offices and finding someone sitting there refusing to move and sadly it always the rule of "those that shout louder"! :(

SS always believe that if you arent shouting for it, you cant need it that bad Hmm
my sister has had the 6 hours she got taken away from her, she has 2 disabled children and her husband has left. She is now a single mum on her own, with 4 children, 2 who are effected by CP and she gets nothing :( life is pretty sucky for all carers

ReclaimingMyInnerPeachy · 23/01/2011 11:33

How manyc arers are on SSD books? I am not; the boys are but SSD amde it practically impossible for me to even apply for a crers assessment. I did get summer scheme funded but think we might not use that this summer on the simple basis of
lack of car (just died today) V ten mile drive to schme and no bus

lenak · 23/01/2011 11:41

There are stats available (for carers of adults anyway - not sure about children's) - however, if you are a regular and substantial carer a carers assessment is your right by law - councils have a statutory responsibility for assess you if you request it (Carers (Recognition & Services) Act 1995 and Carers & Disabled Children's Act 2000)

herbietea · 23/01/2011 11:43

This reply has been deleted

Message withdrawn

lisad123isasnuttyasaboxoffrogs · 23/01/2011 11:44

well I can tell you that even with caring for 2 girls with autism and dh with his cancer we arent considered bad enough to need help from ss :(

HandDivedScallopsrgreat · 23/01/2011 11:48

Thanks MNHQ for your clarification and glad that Riven and family are coping. I was worried about them. I hope that this does raise awareness for carers as it has been a very long time overdue.

Toughasoldboots · 23/01/2011 11:48

This reply has been deleted

Message withdrawn at poster's request.

lisad123isasnuttyasaboxoffrogs · 23/01/2011 11:52

your right herbietea, maybe it hadnt been R but another not well known poster it may be have been different, but the thing is we all are aware of R and her family and the media too because she met DC, but its just how it was.
When I post im pretty sure it doesnt have the same impact as other who have been here longer and spend more time than me here, but who am i to begrudge someone support who needs it.
Also Adult care and childrens services budgets are completely seperate.

loopylou6 · 23/01/2011 11:56

I hope that R is coping with all the attention, but I do think she has to realise if she wants the extra help she has to welcome the extra attention iyswim?.

I am curious to know if our help has resulted in any positive news for her, and tbh I think she could of sent a small message to us throu

gh mnhq

lisad123isasnuttyasaboxoffrogs · 23/01/2011 12:00

i have permission to tell you, she has been given 3 extra hours a week so that DD can have a bath midweek as well and this is until April. And was not stolen from anyone elses care package.

JustineMumsnet · 23/01/2011 12:02

@lenak

While the last few days must have been incredibly stressful for Riven at a time of already heightened stress, I am sure when all of the personal attention dies down, she will realise that what has occured will have long term positive affects.

Although she probably didn't realise how it would all explode, she is not stupid and some part of her must have known her existing 'Dave' connection could lead to this getting into the national press - even if it wasn't a concious intention at the time.

Justine is quite right when she says the media want a personal angle, but it is not just the media, it is the public at large who generally have very little understanding of these issues - they understand them much better if they can relate them to a 'face'. Concepts and ideas without that are much more abstract and feed into the "well it doesn't affect me so I don't care attitude". If they can relate it to a person they have much more understanding or at least inclination to empathy.

The front page interest in all of this will die down - but it has given charities some much needed ammunition to enable them to push their campaigns into the spotlight. Once they have public attention, it is much easier to keep the interest up. It is generating the interest in the first place that is the problem and this episode has helped to achieve that very difficult feat. Riven was in a unique position to do that. She was the one who said that she wanted the issue to be about all carers and the charities will make sure it is. I really do hope that, with hindsight, she comes to see all of this in a positive light.

Either way, my thoughts are with her, her beautiful daughter and the rest of the family for what they do on a daily basis. It cannot be easy and I admire her and all of the other parents with seriously disabled children for doing what they do because they have very little choice - I'm not sure I could do it!

------------

As for the funding for carers - the carers grant was ringfenced up until this year and it was substantial - the real criminal fact is that most councils massively underspent their carers grant, despite the number of people desperate for a break.

If anyone is particularly interested in this (and has a blog or something they want to write about it on) I suggest that you write to a number of councils in your local vacinity with a freedom of information request asking questions like:

What services are provided for carers. How much do they cost?

Over the last four years, what percentage of your carers grant did you spend on respite?

What proportion of carers on your books were provided with respite in the last four years (giving figures for each year)?

What is the average hours of respite each carer gets?

I know you would be very shocked at the answers!

Great post Lenak - and yes you're right it's not just the press who crave personal stories, the public do and without them there's no way they'll empathise.

OP posts:
not1not2 · 23/01/2011 12:02

(lisad123 sorry to hear sparkly is having problems I hadn't seen her around on here for ages and have been wondering about her, it was the same for misdee but then I saw she'd had ds.......-I think of misdee every time I see mould on a pushchair for some reason!)

herbietea · 23/01/2011 12:04

This reply has been deleted

Message withdrawn

Georgimama · 23/01/2011 12:04

Herbie, if you are having similar problems to Riven then I can only suggest a similar approach: contact your MP, barrack your local councillor, write to Number 10, contact the local paper. Make a nuisance of yourself to people with the ability to effect change until it's easier for them to help you than ignore you. It's the only thing that really works.

lisad123isasnuttyasaboxoffrogs · 23/01/2011 12:05

not1not2, she hasnt been on here for a while, she has a lot to deal with right now and misdee is doing well, with her new DS who is soo beutiful. LOL @ mouldy pushchair, that I understand.

Georgimama · 23/01/2011 12:09

I don't believe that Riven didn't know what she was doing either, she posted that she was on X Board and Y committee on many occasions, so she knows how the system works. It doesn't sit right with me that another family is either, go to lose all, or some, of their respite, or not even start getting any respite in order to keep Riven happy. There is not a bottomless pit of money so everyone can get what they want.

That's not Riven's problem. She is concerned with her child's needs.

herbietea · 23/01/2011 12:13

This reply has been deleted

Message withdrawn

JustineMumsnet · 23/01/2011 12:14

@herbietea

FFS I din't make a personal attack on her. I posted what she had said to me. It is nearly 3 years to late to delete her attack Justine, but thanks anyway!

Sorry but we don't clock every post - you need to report personal attacks to be sure we see them.

@herbietea

It is such a shame that MN create a furore, yet we can't debate it, unless we completely agree with everything that has been done.

You can debate it and clearly you can disagree. You can say you think all this has done more harm than good as you have done. I just don't happen to agree.

@herbietea

Riven did know what she was doing, she is on enough boards with the hospitals, councils etc to know how the system works. I just feel sorry for the person who is going to lose part, or all of their respite so that Riven and her family can have theirs increased.

It's this kind of statement that we think is unfair. You don't know what Riven's knew or didn't know and I very much doubt she or anyone thought things would get the level of exposure that they did (I certainly didn't) Nor do you know that someone else is going to lose care and obviously that suggestion is quite hurtful. All we are saying is that, given how stressful the last week must have been for Riven, we're going to delete this kind of speculation.

OP posts:
jennyanydotsatall · 23/01/2011 12:14

This reply has been deleted

Message deleted by Mumsnet.

saintlydamemrsturnip · 23/01/2011 12:18

Thanks lenak for the suggested questions. I'm a carer to a severely disabled boy and I know that our council are looking at everyone's care package and trying to reduce them all. Several of my friend's have been kept in tears and all are having to fight to keep their care packages. I've had my initial phone call and am waiting for the meeeting but want to prepare myself well for it.

I think I will write to the council, or if not (also have 3 jobs which I have to fit around having no out of school childcare for ds1) will ask those questions at my meeting.

saintlydamemrsturnip · 23/01/2011 12:25

That another family will lose their respite argument is ridiculous. And exactly what the lea tried to argue with me when I was sorting out my son's statement. I told them to tell me who would lose their support so I could fight for them to 'oh that's confidential' so I said fine and went back t getting the support my son needed to be safe. It was basic services and if their budget wasn't big enough then that was their issue to take up with central govt not mine.

They just try anything on - if the mayors office doesn't get painted to pay for my respite I don't care tbh. If I can no longer cope my son will end up costing them 250k plus a year in resi care. They can afford to put enough support in place to prevent family breakdown

jennyanydotsatall · 23/01/2011 12:25

First let's examine what the experts say - what the dedicated charity says:

"I can't stress enough how significant today has been. Certainly since I have been working at EDCM, these critical issues for families with disabled children have never had such sustained media attention.
We hope that it will result in a high volume of people taking our action to challenge local authorities, and will signficiantly increase the political will to act to address issues for disabled children."

Wow! That looks like the incidental effect has been a huge boost for the campaign to protect all services for disability...

That looks to me like something that would help STOP other people losing support.

Clearly though the informed opinion of experts won't STOP some people persuing others to further their own vendettas...

.

lostinwales · 23/01/2011 12:29

The number of new people on the SN board who are so pleased to have found it warms my heart. I hope R can lurk at some point and 'meet' the people who have found support there through her story.