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Private ADHD referral - School & Trust won't complete forms

80 replies

Fluffycloudsfloatinginthesky · 27/02/2025 11:25

Anyone been through this. School agree referral to Cahms is warranted however completely refuse to complete forms for a private assessment - it's also trust policy.

I think I need to get SEN lawyer involved but anyone been through this scenario and got any advice.

Basis for this is that they cannot guarantee their qualifications.

Apparently it doesn't matter if CAMHS will accept their diagnosis . It also doesn't matter that they are actually the lead for local NHS trust most of the week, if the forms come on a private day they won't be completed.

They have apparently never had anyone go private in the entire trust and if they fill the forms for me they have to do for anyone else and they cannot be sure they would guarantee the credibility of the provider.

I have already done a private mental health assessment for which they wrote a letter and in that assessment her scoring was above the adhd thresholds (also dad has it)

OP posts:
CarefulN0w · 08/03/2025 13:49

To put this in context, the OP is at the stage of trying to get a diagnosis. The purpose of the school report is to establish if the difficulties are present in a second setting (required for diagnosis) and to provide additional information. When diagnosis is equivocal, it can be helpful for an assessor to do a direct observation in school, but most of the time it isn't necessary - and is an additional expense. Now that the OP's school has agreed to complete the relevant information, the OP can wait for them to do so and liaise with her provider about completing the other elements.

Once the diagnostic outcome is known, the EHCP can be reviewed in light of information and recommendations.

Wishyouwerehere50 · 08/03/2025 13:53

Fluffycloudsfloatinginthesky · 08/03/2025 13:26

@Wishyouwerehere50

I know that's why it confuses me to much. They keep saying diagnosis doesn't matter they support on symptoms but that doesn't help if actually she needs meds.

You are doing great here OP because many mum's are so understandably defeated they just dip out entirely.

Because this all feels so contradictory, I would really be mindful that all they say they are doing, they actually are. And how regularly, and how long for, and when will they review it etc etc.

You probably need to step away for a few weeks from this and switch off. That's how we usually cope with all this.

Maybe in a few weeks just think if they are doing what they tell you and how will you feel confident they will keep doing it.

The whole IEP discussion and highlighting legal obligations is how you get that certainty.

But do all this another day I advise. Because you have already done step one. You're starting to see they can and will be difficult when they want to.

Wishyouwerehere50 · 08/03/2025 14:07

CarefulN0w · 08/03/2025 13:49

To put this in context, the OP is at the stage of trying to get a diagnosis. The purpose of the school report is to establish if the difficulties are present in a second setting (required for diagnosis) and to provide additional information. When diagnosis is equivocal, it can be helpful for an assessor to do a direct observation in school, but most of the time it isn't necessary - and is an additional expense. Now that the OP's school has agreed to complete the relevant information, the OP can wait for them to do so and liaise with her provider about completing the other elements.

Once the diagnostic outcome is known, the EHCP can be reviewed in light of information and recommendations.

Apologies, I may be getting this wrong. My understanding is that there is no EHCP? Nowhere anything near it?

The information used in a diagnostic assessment is useful in that it can be used for stage 2 - getting help in school that reflects real need, not what school says is the need.

So far OP is just being told ' we have a crib sheet ' how to handle her. Wtf is that? What we need is a document ( IEPor EHCP after diagnosis will help) that says......

These are the needs
This is what we are doing in response
This is how often
This is when we will review it

Getting an observation in as part of the diagnosis assessment will kill this bird with one stone potentially too. That's all I am saying. For example, I used the observation as part of the diagnosis process only in the next stage. ' hi school, look at this information here. Is this need reflected in what you're doing to help. It isn't entirely so let's look at that IEP now where you will have to prove it and do it properly.'

This here above that I outline ( need and actions) - that's called an IEP and is the pre cursor to an EHCP application should OP need it.

IEP often gets you want you need with proof they're doing what they tell her they are doing right now.

They're telling OP all this stuff is happening. I'm sure a fair deal is. But with this other exceptionally contradictory behaviour I call bullshit on alot of that help and their ' crib sheet' of shit.

I'm sure they are really well meaning some of these school SEN people but this is her daughter's life and they will be doing the basics. They also aren't going to be experts in this stuff. Parents and outside professionals usually are the experts.

FluffyDashhound · 08/03/2025 19:27

Just email ed psych report and tell private company they won't do it
But your gp won't do shared care of private. I would go on adhd right to chose and ask GP to refer to quickest one the school will do the forms as its nhs then. And if you wish to be seen quicker u get your referral and then pay get seen quicker and when they send the shared care gp will take it on as they referred on nhs. I've done this for my dd aged 15. For my 10 year old cahms was ages to wait we waited 3 years and then I paid adhd 360 who started meds and gave diagnosis and then cahms have since taken her on for meds management and they will do shared care with gp

FluffyDashhound · 08/03/2025 19:30

In your situation sorry just read. Get referred to cahms (for shared care purposes) and go private as well. They will do the snap form for the nhs and you will be involved so use this form but private don't def need this form as you can send ed psych

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