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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Possibly autistic & ADHD kids, DH can't cope

113 replies

BMIwoes · 10/04/2023 12:23

Sorry this is long. We've been together 18 years and mostly v happy. Have 2 sons, age 10 and 11. 11 Yr old has had problems with emotional regulation for a long time and it's getting worse. His new secondary school (Yr 7) suspect he may have v high functioning autism and have been masking, but now can't manage it anymore as he gets older and life is more complicated. We're on CAMHS waiting list. DS2 is also on wait list for ADHD assessment.

Me and DH work full time, mostly from home. He earns more than me but we both have good income. DH more than pulls his weight at home, I'd say its truly 50/50. He's supportive of my career (I'm much more senior than him but lower paid industry). We don't have money worries thankfully.

Prior to Covid we had a lot of support from PIL, who would look after our boys for a few days every 6-8 weeks. Post covid they are of course older, and our eldest is harder to manage, so they can only manage 1 boy at a time and much less often. This is of course fine, but I only now realise how important that regular break was for us and especially DH to decompress from the stress of managing DS1.

The problem is DH struggles so much to cope with the kids and its making all of us miserable. He is constantly irritable, snappy and joyless. He doesn't want to do anything with the kids although happy to take them to and from things. Every day feels like he is just trying to endure it until they go to bed. It leaves me in the position of being the 'nice one' which of course makes things worse and more imbalanced. Holidays are particularly bad as DH gets so overwhelmed after 2-3 days and then sinks into misery. I feel like I'm trying to manage everyone's emotions all the time and it's exhausting. DH hates the fact that DS is so rigid and yet he is also very rigid and so they clash constantly.

I suspect DH may also be neurodivergent, and possibly me as well. Some of the things that we have in common is we both get easily overestimated, need a lot of time alone to decompress and can be very obsessive about our respective interests. I'm a lot more emotionally articulate than DH and will prioritise alone time as I know if I don't I can't function. DH will stay up super late to have time alone but then is exhausted next day and so more irritable. He's no good at identifying and saying what he needs. I feel resentful that he doesn't seem able or willing to make an effort to help himself so he can be less miserable. He resents me because he thinks I'm being selfish. We're both exhausted. It's horrible. I want to help him but he gets defensive and angry if I try tp talk to him abput it. We're all miserable. I don't know what to do.

We see a child psychotherapist to help us deal with DS1, and are registered for a non-violent resistance parenting course soon which I think may help us with the kids. But DH is so down about everything it feels like anything we try is fighting a losing battle.

On the face of it we have a good life - good jobs, nice home etc etc. But it feels like cracks are appearing and I'm powerless to stop them

OP posts:
Jellycats4life · 12/04/2023 21:35

You’re not alone OP. I have two diagnosed autistic kids, and recently went private for a diagnosis myself. I’m positive that DH is autistic too but he has zero interest in admitting it to himself. It’s always the fathers who refuse to engage, in my experience.

It’s tough. I understand that DH needs alone time as much as I do, but I resent him checking out of family life (a MN cliche) over weekends by disappearing upstairs to read in the bedroom. He can read downstairs, you know?

One weekend I was ill with Covid and in bed, so he shut himself away in the 7yo’s bedroom instead. I’ll never forget that. Curled up on a kid’s bed because he couldn’t bear to watch a football match on his iPad in the same room as his kids.

I also see him losing his rag with the kids and expecting them to be quick and spontaneous (as if!) and think to myself “how do you not know by now that this doesn’t work with them?” But he still, far too often, will expect them to conform to neurotypical standards. Because he hasn’t taken the time to understand autism like I have.

I’m now going to read through this thread and see what good advice you’ve been given.

Phineyj · 14/04/2023 13:56

Hello again, fellow travellers.

Just wanted to report that we've won our appeal against refusal to assess for EHCP.

There are very few people in my real life who will appreciate just how much effort this took so I thought I'd tell you guys.

:)

medianewbie · 15/04/2023 07:43

This reply has been deleted

The OP has privacy concerns and so we've agreed to take this down.

I'd second ALL of this. Great advice 👍

MissHavershamReturns · 15/04/2023 07:48

@Phineyj I’m so delighted for you!!! A massive achievement and now you will just keep going and then one day you will hopefully be holding that EHCP in your hands.

You are doing an amazing job keeping everything together. Hope you are really proud of yourself !

Phineyj · 15/04/2023 09:41

Aw thanks @MissHavershamReturns. My best friend (who lives in another country), once she'd understood what I was up against, said, oh, you'll win: this is paperwork. You're good at paperwork :) I am really pleased but was just saying to DH this morning that no-one outside this whole SEN merry-go-round gets the lengths you have to go to to get even a teeny bit of progress.

Equalbutdifferent · 15/04/2023 11:53

Phineyj · 15/04/2023 09:41

Aw thanks @MissHavershamReturns. My best friend (who lives in another country), once she'd understood what I was up against, said, oh, you'll win: this is paperwork. You're good at paperwork :) I am really pleased but was just saying to DH this morning that no-one outside this whole SEN merry-go-round gets the lengths you have to go to to get even a teeny bit of progress.

Well done @PPhineyj! At risk of being a Debbie Downer every bloomin' step on this path is time consuming and painful. I have a draft plan in my hands and honestly wonder if I'd've been better not to have started. It excludes evidence of some significant needs, it includes things DTeen has expressly said they don't want as they find them demeaning, it has outcomes written as demands of DTeen, and it makes no reference to them fulfilling their potential. It was received at week 23 and is now having to be rewritten and reissued as they accidentally left family views out. Appeal looks inevitable. Feel like writing to MP, Children's Commissioner and National Audit Office, in addition to Director of CS as it just atrocious administratively given the thrust of the SEN CoP and significantly adds to the stress that families who really need support are placed in under.

Equalbutdifferent · 15/04/2023 11:55

Sorry to wander off topic. Just needed to vent...

Phineyj · 15/04/2023 12:55

Oh I agree, I'm not expecting the actual EHCP (should one eventually transpire) to be of any practical use whatever, and if it is, that'd be an unexpected bonus.

I'm in a slightly unusual position in that I'm expecting DD to attend the school where I teach and I know that with that magic piece of paper colleagues will be regularly reminded to take her needs into account to the extent they can. Without it, they won't.

I'm sorry your teenager finds having one demeaning :( How depressing for you after all that effort.

Equalbutdifferent · 15/04/2023 13:01

Thanks @Phineyj - it's not having one that is the problem, it's that the draft includes things they have said they expressly don't want.

Phineyj · 15/04/2023 13:15

Good thing it's a draft. Although I know getting these things rewritten is hard. Are you allowed to rewrite sections? How does it work?

As DD is only 10, I am hoping not to have to consult her other than in a fairly general way. For one thing, it's going to be tricky to figure out what to ask for at secondary when she's currently at primary.

I'm not surprised you feel ranty...the bureaucracy is ridiculous...

Branchingout2000 · 15/04/2023 14:53

We used this NVR book a few years ago. We also had some sessions with a member of the CAMHS term who was their NVR specialist- the book was more helpful.

A Non-Violent Resistance Approach with Children in Distress: A Guide for Parents and Professionals amzn.eu/d/7Mf8AEk

Gufo · 15/04/2023 20:25

@bunhead1979 thank you for your post - I needed to see that today! This whole thread is making me feel better about our ND household and given great tips on how to make it work. Was close to running away earlier so very timely too!

bunhead1979 · 15/04/2023 20:41

Gufo · 15/04/2023 20:25

@bunhead1979 thank you for your post - I needed to see that today! This whole thread is making me feel better about our ND household and given great tips on how to make it work. Was close to running away earlier so very timely too!

Totally relate to wanting to run away! Good luck, be kind to yourself x

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