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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Has anyone ever been in a relationship for a while then discovered partner is autistic?

41 replies

Sukiandme · 29/08/2022 05:10

I've been seeing someone for 2 years. We hoped to buy a house together soon but things have been going wrong, and this has been getting more frequent the closer we've got. I say closer, I've struggled to get to know her or feel close to her.

In that time a few things have happened that I've found upsetting, involving her being very dismissive of my feelings. She's turned her phone off and gone to bed if I wanted to talk about anything to do with us for example. I developed a physical condition (partially caused by her) which requires her input to help fix, and she refuses to engage with it, we were actually discharged from the treatment because of her refusing which really upsets me as It's me who has to live with it.

She once walked back from an event her friend was hosting, letting me and some others get a lift(not far, and not enough room for all of us). Nice of her of course but I then learned that we weren't going back to hers, everyone was going for a drink at her neighbours. I waited for her to arrive and then got a text saying she'd gone home and gone to bed.

She's done various things that have upset me, but when I try to talk to her about any of it she shuts down. Sometimes I get a mesg afterwards explaining or saying she's sorry but she doesn't know why she behaved like that.

She also doesn't appear to want to know me at all. Says she loves me but if you asked her any manner of things about me I doubt she'd know.

Anyway it came to a bit of a head and she addressed it-said she really does understand why she should have behaved differently and doesn't understand why she didn't. She did some googling and everything pointed toward autism.

The last time I saw her I noticed it more. I found her quite rude to me. At one point I was trying to talk to her about something and she just ignored me. I stopped trying, and went to read a book. She noticed I wasn't happy and I said I'd found her rude for ignoring me and she said I was just annoying her so she didn't say anything because I'd then shut up.

My best friend is autistic. I supported him through his diagnosis and I understand him and who he is. I spoke to him and explained some of what had been going on and he's certain she is autistic from what I've said. He said as an autistic person she won't want to know things about me that an allistic person would. She knows enough to know she loves me already.

He said she won't see that her behaviour is upsetting until It's explained, she won't understand it even when it is.

As for the condition I have, to her, (he says) it's something that caused a problem so to someone with autism, it's best avoided. There will be a 'mental block' there.

He said he struggles in his relationship for similar reasons (in fairness, I did know most of this and have even helped him with it in the past as his wife is lovely), but that he knows he's autistic so he works on it and works out how to manage it for his relationship-my gf won't know. It hasn't been mentioned since the first time she looked things up.

Of course I know that people with autism aren't a homogenous group, and I am sure some people may say 'I'm autistic but I wouldn't ignore someone/dismiss their feelings/ turn my phone off' but there must be similarities for autism to be a 'thing' at all.

I am heartbroken really. For her and for me. For her because she's so lovely, and I know that if she does seek a diagnosis (or even if she doesn't but just explores it herself) she'll have a lot of unpicking to do, will have been masking who she is all of her life, and it'll be upsetting for her. I will obviously support her through it.

For me, because although I now understand why our relationship has had so many problems, and it is a relief that she cannot help it rather than she doesn't care about me, I just don't think it can work long-term. I was already thinking along these lines due to her treatment of me ,but I had a glimmer of hope for change and now I know that's impossible. I am so sad. I wish I'd have realised this early on, and looking back some signs were there (sensory issues and tendencies to want everything done orderly and regimented) but none of those mean much, It's only when I've looked at the whole picture now and It's clear.

Please don't get me wrong, I am obviously not against anyone with autism at all, I love my friend like a brother and I know other people who have autism too who I hold in high regard, I just don't think I can be in a romantic relationship with someone who has autism. It isn't working, clearly. I will be perpetually heartbroken.

How can I support her through it?

And has this happened to anyone else, did you find a way to make it work?

Gf has no idea how I am feeling. She doesn't know that I've realised over the last few days that there's such a high probability, rather than it just being 'Hmm maybe I am that'.

My friend said to tell her over text as she'll find it more difficult to process any other way, that I am sure she is autistic and that I will support her. I don't know.

OP posts:
ClaryFairchild · 29/08/2022 05:45

I believe my ex was. We were married for almost 30 years so I guess in some ways we managed to make it work, but that's because I turned a blind eye to a lot of crap that I shouldn't have, and the resulting catastrophic events caused our break up and caused me to lose everything financially.

Looking back I see it a lot more, and I see some of the traits in my mother which is why I guess I didn't spot it at the time because it was my 'norm'.

I also suspect I have ADD and apparently it's a common enough pairing for couples.

Sukiandme · 29/08/2022 05:53

Thank you for responding. I am sorry to hear that. I really hear you on the putting up with things you shouldn't have. I've already rescinded a lot of my needs and wants in this relationship. I've almost forgotten what some of them are. :(

OP posts:
Whoareyoumyfriend · 29/08/2022 05:55

My husband. We've been married 7 years and I had my diagnosis last week.

Whoareyoumyfriend · 29/08/2022 05:57

Being with someone who is autistic doesn't mean you have to give up your needs and wants. My husband does have to keep strong boundaries though.

StrictlyAFemaleFemale · 29/08/2022 05:59

I think autism is a red herring. I think she just doesn't care very much at all.

Gingerkittykat · 29/08/2022 06:02

Armchair diagnosis by looking at a few Google pages and asking your autistic friend does not mean that she actually is autistic. Do you really think texting her to give her a diagnosis will be helpful?

You can either try and keep the relationship going and be very direct about your needs and feelings and see how she responds or realise you are incompatible and split up.

Sukiandme · 29/08/2022 06:04

Whoareyoumyfriend · 29/08/2022 05:57

Being with someone who is autistic doesn't mean you have to give up your needs and wants. My husband does have to keep strong boundaries though.

I hope your diagnosis is beneficial for you!

That gives me a bit of hope. I have just spent so much time upset and if this is to continue, I just can't. It isn't right. I also (shallow perhaps) don't want a relationship without intimacy, which I am constantly met with excuses about. I feel rejected and undesirable. I didn't specify this in my OP but the medical aspect, is to do with damage that occurred during sex and now It's a taboo subject.

OP posts:
Sukiandme · 29/08/2022 06:07

Gingerkittykat · 29/08/2022 06:02

Armchair diagnosis by looking at a few Google pages and asking your autistic friend does not mean that she actually is autistic. Do you really think texting her to give her a diagnosis will be helpful?

You can either try and keep the relationship going and be very direct about your needs and feelings and see how she responds or realise you are incompatible and split up.

I hear what you're saying but I am certain. I'd be so so surprised if she wasn't. She thinks she is. Things she's told me from her past, it all makes so much sense. My friend is an avid reader and has explored autism inside out. I gave him a lot of detail. She doesn't respond to me at all about needs and feelings. Shuts down, at least 95% of the time I would say. She won't talk to me.

OP posts:
locke360 · 29/08/2022 06:08

My ex was lovely but there was just some lacking social awareness that I found really difficult. I don't know if he was autistic or not and to be honest the label doesn't really matter.

It's not like your partner would get a diagnosis and you'd suddenly go 'oh well in that case I can't be with you'... you really just look at the person as a whole and how her behaviours impact you. It actually doesn't matter whether or not she is autistic, it matters what she does and how you feel about it.

It sounds like you are finding the relationship very difficult and what you have described are things that are just to do with her as a person and the way she is/ views the world. That is not going to change. Even with a lot of therapy and a diagnosis, she'll still be who she is - she might have a better understanding of herself, but her core self will remain what it is.

If it's not working for you then you probably do need to end it for both your sakes. I realised my relationship with my ex, although I loved him deeply, was just not serving either of us. We weren't aligned and we didn't properly understand each other. He is now in another relationship with someone who understands his quirks better than I ever did, and we're both a lot happier. Sometimes breaking up is the right thing to do.

Sukiandme · 29/08/2022 06:09

StrictlyAFemaleFemale · 29/08/2022 05:59

I think autism is a red herring. I think she just doesn't care very much at all.

Why do you think that please? Obviously I hope you're wrong.

She does become upset on the odd occasion I have managed to get through to her how I've felt when she's done/not done certain things. Mostly I am met with blankness, but now and again. It seems she's more upset that she didn't understand these things weren't right, or were uncaring or would hurt.

OP posts:
GreengrocerFriend · 29/08/2022 06:18

My ex was diagnosed at age 38 when we'd been together 18 months.
He had an extremely sporadic work history, I think caused by both the ASD and how he was raised. So that made it hard to ever go anywhere or do anything as there was no money. I was always, always worried about him, as he lacked life skills. I felt maternal, not ideal for the sex life.

He also had trouble listening to me and I don't think he really knew anything about me.

I think it also runs in my family and that I have some of the traits at a lower level.

ArmWrestlingWithChasNDave · 29/08/2022 06:20

This is ridiculous. A session on Google and a chat with your autistic friend and you've diagnosed your girlfriend with 100% certainty. Why do we bother training doctors?

Let go of this silly notion and focus on the actual problems in your relationship without seeing them through a lens of fake autism. What do you want to change?

Sukiandme · 29/08/2022 06:26

ArmWrestlingWithChasNDave · 29/08/2022 06:20

This is ridiculous. A session on Google and a chat with your autistic friend and you've diagnosed your girlfriend with 100% certainty. Why do we bother training doctors?

Let go of this silly notion and focus on the actual problems in your relationship without seeing them through a lens of fake autism. What do you want to change?

As I have said, I want to know how to support her through it, and if anyone has had a similar situation and managed to make it work.

With respect, I don't think it is common for anyone to seek a doctor for a diagnosis without having a pretty good idea first, from themselves or someone else. And this is where I am.

OP posts:
locke360 · 29/08/2022 06:27

ArmWrestlingWithChasNDave · 29/08/2022 06:20

This is ridiculous. A session on Google and a chat with your autistic friend and you've diagnosed your girlfriend with 100% certainty. Why do we bother training doctors?

Let go of this silly notion and focus on the actual problems in your relationship without seeing them through a lens of fake autism. What do you want to change?

Harsh but also some truth in this.

You do seem hung up on the diagnosis.

You should try to let that go because her behaviour is her behaviour. It doesn't matter if it's 'autistic' behaviour or not.

Look at that, rather than trying to label her.

Sukiandme · 29/08/2022 06:29

@locke360 thank you for the detailed response. I do have a thought that I am going to have to end it. I find her behaviour very upsetting, but It's more so because it seems she really isn't aware at the time and shuts down so often if I try to discuss it. On the odd occasion she will, she becomes very upset (which makes me feel guilty).

I won't leave her to explore it alone unless she wants that. I will support her through it, which is why I was hoping someone would have had a lived experience they wouldn't mind sharing.

OP posts:
locke360 · 29/08/2022 06:34

Sukiandme · 29/08/2022 06:26

As I have said, I want to know how to support her through it, and if anyone has had a similar situation and managed to make it work.

With respect, I don't think it is common for anyone to seek a doctor for a diagnosis without having a pretty good idea first, from themselves or someone else. And this is where I am.

It's unclear whether you are wanting advice on ending a relationship, or advice on supporting your girlfriend with exploring a potential autism diagnosis.

In order to do the latter, you kind of have to have decided you're going to stay with her. The advice is going to be different depending on whether you are staying in the relationship or not.

Not to mention the main question being does she actually want 'supporting through it'? Is she even questioning any of this herself? If not then it's not really your place to support her through it. She has to be the one who wants to explore it - if she is happy then leave her be.

I think what you really want to do is 'fix' these behaviour traits so that you can be happier in your relationship - but that is just not going to happen. Even if she does decide she wants to explore it, even if she gets a diagnosis, and even if she gets lots of therapy, she is still going to be who she is.

So the most important question for you to think about is whether you want to stay in the relationship - whether she has autism or not is really irrelevant to that.

locke360 · 29/08/2022 06:40

Sukiandme · 29/08/2022 06:29

@locke360 thank you for the detailed response. I do have a thought that I am going to have to end it. I find her behaviour very upsetting, but It's more so because it seems she really isn't aware at the time and shuts down so often if I try to discuss it. On the odd occasion she will, she becomes very upset (which makes me feel guilty).

I won't leave her to explore it alone unless she wants that. I will support her through it, which is why I was hoping someone would have had a lived experience they wouldn't mind sharing.

You're thinking about breaking up with her but you also want to 'support her through it'. That doesn't make sense.

You need to either break up with her or not break up with her.

If you want to break up with her and then still support her, that is going to be an incredibly confusing dynamic.

WhatNoRaisins · 29/08/2022 06:42

I think that you need to be realistic about how much you can help an support her through this. As PP have said she may not feel there's anything to be supported through. If she does want support it may be better coming from someone more objective and without an agenda. In any case support isn't going to change her core traits.

Sukiandme · 29/08/2022 06:43

locke360 · 29/08/2022 06:34

It's unclear whether you are wanting advice on ending a relationship, or advice on supporting your girlfriend with exploring a potential autism diagnosis.

In order to do the latter, you kind of have to have decided you're going to stay with her. The advice is going to be different depending on whether you are staying in the relationship or not.

Not to mention the main question being does she actually want 'supporting through it'? Is she even questioning any of this herself? If not then it's not really your place to support her through it. She has to be the one who wants to explore it - if she is happy then leave her be.

I think what you really want to do is 'fix' these behaviour traits so that you can be happier in your relationship - but that is just not going to happen. Even if she does decide she wants to explore it, even if she gets a diagnosis, and even if she gets lots of therapy, she is still going to be who she is.

So the most important question for you to think about is whether you want to stay in the relationship - whether she has autism or not is really irrelevant to that.

Mostly with how I can support as I said. Yes she has. Some time ago, before she thought about autism, she was looking at seeing a counsellor to explore her behaviours as she couldn't understand herself. In the end she couldn't go through with it, and said she only would talk to me. She hasn't as yet though. I can't really encourage her to as if I do she shuts down. I tell her to come to me if she needs but that I cannot 'be' her counsellor, (it is my actual job!) I can only support.

I know I can't fix any behaviours. As I said in my OP I just feel at the moment that I can't be in a relationship with someone who has autism and I was already considering ending it due to the things that have happened.

OP posts:
locke360 · 29/08/2022 06:50

Sukiandme · 29/08/2022 06:43

Mostly with how I can support as I said. Yes she has. Some time ago, before she thought about autism, she was looking at seeing a counsellor to explore her behaviours as she couldn't understand herself. In the end she couldn't go through with it, and said she only would talk to me. She hasn't as yet though. I can't really encourage her to as if I do she shuts down. I tell her to come to me if she needs but that I cannot 'be' her counsellor, (it is my actual job!) I can only support.

I know I can't fix any behaviours. As I said in my OP I just feel at the moment that I can't be in a relationship with someone who has autism and I was already considering ending it due to the things that have happened.

That makes sense. So if she were to be more amenable and open to seeking help, would you be more likely to want to stay with her?

If not, I don't think you should go opening that can of worms and start encouraging her to explore it again. I think you should just break up with her.

If there is a chance you would want to stay with her if she sought help, then you need to have that honest conversation about how much it's affecting you. You need to lay it out clearly that, if the relationship is going to have a chance of surviving, this is what you need her to do.

Mumdiva99 · 29/08/2022 06:56

Your post is all about you. It comes across that you are not actually that compatible.

"In that time a few things have happened that I've found upsetting, involving her being very dismissive of my feelings. She's turned her phone off and gone to bed if I wanted to talk about anything to do with us for example. I developed a physical condition (partially caused by her) which requires her input to help fix, and she refuses to engage with it, we were actually discharged from the treatment because of her refusing which really upsets me as It's me who has to live with it."

Turning her phone off because you want to discuss stuff.....you are a councillor....your natural style is to discuss things to the nth degree. She doesn't want to. Why are you right snd she's wrong? You're mad she shut you up. Just as you were mad she ignored you when you wanted to discuss feelings.

And I can't see why you are making her responsible for your medical treatment. That isn't fair. I've never heard of nhs discharging a patient because the girlfriend won't engage. So either your problem was being managed by a talking therapy- which isn't medical.....and is something you chose. Or something else is going on. But you are unfair blaming your health on her.

What about her and what she wants?

locke360 · 29/08/2022 06:56

The reason I say this is because, by encouraging her to explore it you are putting yourself in the position of someone who is going to be there for her and support her with that.

You should only bring it up if you are going to be there. And remember you are her boyfriend not her friend. You can't easily transition from one to the other when there are so many feelings caught up in this.

To open up the subject, placing yourself in the position of supportive partner, and then break up with her anyway would be cruel.

This isn't going to work with you breaking up with her but being a 'friend' to support her through a potential diagnosis. If that's your plan then maybe consider why you are feeling the need to put yourself in that role? Are you feeling guilty perhaps?

If so, you shouldn't. If the relationship is not working for you then the kindest thing to do, for both of you, is to end it cleanly and allow her to get any support she needs without your involvement (which will just be confusing!)

PermanentTemporary · 29/08/2022 06:57

I'm another who thinks the diagnosis is beside the by, though i guess you mean you can't be in a relationship with someone who behaves like this, and if she behaves like this due to neurodiversity she can't change. I'm not sure that's true, in that she's unlikely to change fundamentally in any case.

I'd be more interested in why you feel so overwhelmingly sad about finding out that you probably will do better out of this relationship. But that might be my own issues...

ArmWrestlingWithChasNDave · 29/08/2022 07:22

As I have said, I want to know how to support her through it, and if anyone has had a similar situation and managed to make it work.

Support her through what? Another Google search?

What situation? Has anybody else armchair-diagnosed a partner with autism and reframed their entire relationship around it? Probably, but I wouldn't take advice from such a person.

Iknowthis1 · 29/08/2022 07:31

It doesn't matter whether she has autism or not. She is treating you very badly. You deserve better. This relationship is not good for you.

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