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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Has anyone ever been in a relationship for a while then discovered partner is autistic?

41 replies

Sukiandme · 29/08/2022 05:10

I've been seeing someone for 2 years. We hoped to buy a house together soon but things have been going wrong, and this has been getting more frequent the closer we've got. I say closer, I've struggled to get to know her or feel close to her.

In that time a few things have happened that I've found upsetting, involving her being very dismissive of my feelings. She's turned her phone off and gone to bed if I wanted to talk about anything to do with us for example. I developed a physical condition (partially caused by her) which requires her input to help fix, and she refuses to engage with it, we were actually discharged from the treatment because of her refusing which really upsets me as It's me who has to live with it.

She once walked back from an event her friend was hosting, letting me and some others get a lift(not far, and not enough room for all of us). Nice of her of course but I then learned that we weren't going back to hers, everyone was going for a drink at her neighbours. I waited for her to arrive and then got a text saying she'd gone home and gone to bed.

She's done various things that have upset me, but when I try to talk to her about any of it she shuts down. Sometimes I get a mesg afterwards explaining or saying she's sorry but she doesn't know why she behaved like that.

She also doesn't appear to want to know me at all. Says she loves me but if you asked her any manner of things about me I doubt she'd know.

Anyway it came to a bit of a head and she addressed it-said she really does understand why she should have behaved differently and doesn't understand why she didn't. She did some googling and everything pointed toward autism.

The last time I saw her I noticed it more. I found her quite rude to me. At one point I was trying to talk to her about something and she just ignored me. I stopped trying, and went to read a book. She noticed I wasn't happy and I said I'd found her rude for ignoring me and she said I was just annoying her so she didn't say anything because I'd then shut up.

My best friend is autistic. I supported him through his diagnosis and I understand him and who he is. I spoke to him and explained some of what had been going on and he's certain she is autistic from what I've said. He said as an autistic person she won't want to know things about me that an allistic person would. She knows enough to know she loves me already.

He said she won't see that her behaviour is upsetting until It's explained, she won't understand it even when it is.

As for the condition I have, to her, (he says) it's something that caused a problem so to someone with autism, it's best avoided. There will be a 'mental block' there.

He said he struggles in his relationship for similar reasons (in fairness, I did know most of this and have even helped him with it in the past as his wife is lovely), but that he knows he's autistic so he works on it and works out how to manage it for his relationship-my gf won't know. It hasn't been mentioned since the first time she looked things up.

Of course I know that people with autism aren't a homogenous group, and I am sure some people may say 'I'm autistic but I wouldn't ignore someone/dismiss their feelings/ turn my phone off' but there must be similarities for autism to be a 'thing' at all.

I am heartbroken really. For her and for me. For her because she's so lovely, and I know that if she does seek a diagnosis (or even if she doesn't but just explores it herself) she'll have a lot of unpicking to do, will have been masking who she is all of her life, and it'll be upsetting for her. I will obviously support her through it.

For me, because although I now understand why our relationship has had so many problems, and it is a relief that she cannot help it rather than she doesn't care about me, I just don't think it can work long-term. I was already thinking along these lines due to her treatment of me ,but I had a glimmer of hope for change and now I know that's impossible. I am so sad. I wish I'd have realised this early on, and looking back some signs were there (sensory issues and tendencies to want everything done orderly and regimented) but none of those mean much, It's only when I've looked at the whole picture now and It's clear.

Please don't get me wrong, I am obviously not against anyone with autism at all, I love my friend like a brother and I know other people who have autism too who I hold in high regard, I just don't think I can be in a romantic relationship with someone who has autism. It isn't working, clearly. I will be perpetually heartbroken.

How can I support her through it?

And has this happened to anyone else, did you find a way to make it work?

Gf has no idea how I am feeling. She doesn't know that I've realised over the last few days that there's such a high probability, rather than it just being 'Hmm maybe I am that'.

My friend said to tell her over text as she'll find it more difficult to process any other way, that I am sure she is autistic and that I will support her. I don't know.

OP posts:
Fladdermus · 29/08/2022 07:32

It actually makes no difference whether she is autistic or not. You're not happy in your relationship and that won't change with diagnosis. She'll continue to be who she is. So if you don't like who she is you need to move on rather than launching a crusade to change her.

ClaryFairchild · 29/08/2022 07:33

I think a diagnosis can help because to GET the diagnosis as an adult the person has shown a willingness to work out that is going on. That willingness would usually also include working on the relationship to see how BOTH of you can work together, instead of "I'm alright, I'm happy as I am" and not caring about the happiness of the partner.

In my ex's case it was highlighted as a possibility during therapy after an extreme mental breakdown - diagnosis pretty much impossible because of his numerous additional conditions after the breakdown.

Almostthere1 · 29/08/2022 07:58

Yes, my newish partner of several months. He received his diagnosis two weeks ago but I suspected it for some time before.
Its only after he started feeling more relaxed in the relationship (after the initial honeymoon period when I think he tried - consciously or unconsciously- to hide some traits) that it became more apparent. We socialised quite a bit in the beginning; now he’s telling me he doesn’t really feel the need to be with people. We made spontaneous travelling decisions; he now says he feels anxious and overwhelmed when things are not planned through. He doesn’t really understand his emotions, nor has a need to understand them. We used to talk a lot; he now prefers to spend hours researching whatever subject plays on his mind.
I feel sad really, like I’ve lost the person and the relationship I thought I had. I’m coming to terms with the reality and wondering if this is the right relationship for both of us.

Just like the others said - it’s not about the diagnosis itself but it’s about how it presents in your partner and whether you can accept them as they are.

usernamenotaccepted · 29/08/2022 07:59

I am autistic. The problem is not autism. The problem is that this relationship isn't working, and diagnosis doesn't change anything except maybe placing greater pressure to change on the person with the 'problem'.

Autism appears to be the new 'narcissism' on MN.

ClaryFairchild · 29/08/2022 08:01

@Almostthere1 - in your partner's case it was him pretending to be someone he wasn't. Masking in public is one thing, but he has created a totally different persona.

usernamenotaccepted · 29/08/2022 08:01

Almostthere1 · 29/08/2022 07:58

Yes, my newish partner of several months. He received his diagnosis two weeks ago but I suspected it for some time before.
Its only after he started feeling more relaxed in the relationship (after the initial honeymoon period when I think he tried - consciously or unconsciously- to hide some traits) that it became more apparent. We socialised quite a bit in the beginning; now he’s telling me he doesn’t really feel the need to be with people. We made spontaneous travelling decisions; he now says he feels anxious and overwhelmed when things are not planned through. He doesn’t really understand his emotions, nor has a need to understand them. We used to talk a lot; he now prefers to spend hours researching whatever subject plays on his mind.
I feel sad really, like I’ve lost the person and the relationship I thought I had. I’m coming to terms with the reality and wondering if this is the right relationship for both of us.

Just like the others said - it’s not about the diagnosis itself but it’s about how it presents in your partner and whether you can accept them as they are.

Yes, this is what I meant but couldn't find the words for.

Except my comment about autism being everywhere the explanation for everything that goes awry, still stands.

Sukiandme · 29/08/2022 17:19

(I am female, for anyone who's addressed me as her boyfriend).

@locke360 yes definitely. She doesn't understand herself at all. It's come to light during our relationship and she's been questionig herself a lot, which is why I think exploring it would help her, and
in turn help us.

She does know how much it is affecting me but I don't mention it often. I am met with silence much of the time if I do

@Mumdiva99
She caused the injury I have. The professional dealing with it wanted her in on the advice and wanted her involved in the treatment plan. I am not being unfiar to want her to want to help and feeling like she doesn't care because she doesn't want to turn up. I have a plan to help deal with it, but she has to be involved with that and she hasn't wanted to be. She just avoids it.

You not having heard of it doesn't mean It's untrue.

Apart from when I've directly told her I am upset (which she's never known without being told it) she's always happy with the way things are.

@locke360 I know what you're saying. We broke up within the first year and became closer than ever (she opened up to me more when we weren't together). She also has nobody else. I have a feeling if we did break up and she was wanting to look further into things, it would occur again. But of course this would all be up to her. I don't know if I feel guilty at the moment. Not
sure I should, I just feel very sad.

@PermanentTemporary I am more so sad that I have a sad relationship history anyway, and I just didn't want for things to be wrong again with this one. I was hoping this would be my last. Her history is similar.

@Iknowthis1 this1 she really doesn't seem to recognise when she's done things wrong to me, and does them repeatedly.

@ClaryFairchild l that is my thinking but more so that I really think it will help her unpick her past and work out who she is. She's not self aware at all and it has affected her life and relationships a lot. And as to what you've said to @Almostthere1 here1, my partner has done this too-I really don't think she knows who she is at all, and she's agreed with this. It must be so hard and makes me so sad.

@Almostthere1 that is sad. I hope you work it out for the best. It's not something that has a solution really, and the question is do we learn to adapt or do we decide it just isn't for us, I suppose.

Thank you for the responses all. I posted under a different username about something that had happened, some time back and I got more or less a unanimous verdict of 'LTB' and how awful she was. The 'net is a strange place at times.

Hope you've all had a great weekend.

OP posts:
StrictlyAFemaleFemale · 29/08/2022 18:36

In that time a few things have happened that I've found upsetting, involving her being very dismissive of my feelings. How so? People with autism (pwa) quite often have more empathy than NTs. Dismissing feelings is an abusive trait.

She's turned her phone off and gone to bed if I wanted to talk about anything to do with us for example. Stonewalling, abusive.

I developed a physical condition (partially caused by her) which requires her input to help fix, and she refuses to engage with it, we were actually discharged from the treatment because of her refusing which really upsets me as It's me who has to live with it. Abusive.

She once walked back from an event her friend was hosting, letting me and some others get a lift(not far, and not enough room for all of us). Nice of her of course but I then learned that we weren't going back to hers, everyone was going for a drink at her neighbours. I waited for her to arrive and then got a text saying she'd gone home and gone to bed. Ok this could be autism - having had enough of socialising, but could also be trying to make you look silly in front of others, could be trying to punish you, both abusive.

She's done various things that have upset me, but when I try to talk to her about any of it she shuts down. Sometimes I get a mesg afterwards explaining or saying she's sorry but she doesn't know why she behaved like that. She doesnt care about your feelings, abusive. Not taking responsibility for her actions.

She also doesn't appear to want to know me at all. Says she loves me but if you asked her any manner of things about me I doubt she'd know. Self centered.

Anyway it came to a bit of a head and she addressed it-said she really does understand why she should have behaved differently and doesn't understand why she didn't. Keeping you sweet to prolong the cycle of abuse. I believe it's called hoovering.
She did some googling and everything pointed toward autism. Hmm. Those online questionnaires are pretty easy to fix. And if she's autistic, then thats a reason she cant possibly change her behaviour, so you'll just have to put up with it, or you dont really love her, do you?

The last time I saw her I noticed it more. I found her quite rude to me. At one point I was trying to talk to her about something and she just ignored me. I stopped trying, and went to read a book. She noticed I wasn't happy and I said I'd found her rude for ignoring me and she said I was just annoying her so she didn't say anything because I'd then shut up. Stonewalling, abusive. Blaming you for her actions, abusive.

My best friend is autistic. I supported him through his diagnosis and I understand him and who he is. I spoke to him and explained some of what had been going on and he's certain she is autistic from what I've said. He said as an autistic person she won't want to know things about me that an allistic person would. She knows enough to know she loves me already. Not buying this. True, she might be more interested in other aspects of your personality, but she just sounds thoroughly uninterested.

He said she won't see that her behaviour is upsetting until It's explained, she won't understand it even when it is. Also true of some autistics, but also a trait of narcisism. Interesting use og 'wont' rather than cant dont you think?

As for the condition I have, to her, (he says) it's something that caused a problem so to someone with autism, it's best avoided. There will be a 'mental block' there. I dont understand what this could be, but of all the PWA I know, they would never intentionally inflict suffering on someone they love, and would be GUTTED to think that they were responsible for doing so.

He said he struggles in his relationship for similar reasons (in fairness, I did know most of this and have even helped him with it in the past as his wife is lovely), but that he knows he's autistic so he works on it and works out how to manage it for his relationship-my gf won't know. It hasn't been mentioned since the first time she looked things up. Ok so he has enough self awareness to figure this stuff out, and she isnt interested in changing anything, despite your pleas.

Of course I know that people with autism aren't a homogenous group, and I am sure some people may say 'I'm autistic but I wouldn't ignore someone/dismiss their feelings/ turn my phone off' but there must be similarities for autism to be a 'thing' at all. Yes the triad of autism is a thing, but frankly I'm not seeing it from what you've put.

I am heartbroken really. For her and for me. For her because she's so lovely, and I know that if she does seek a diagnosis (or even if she doesn't but just explores it herself) she'll have a lot of unpicking to do, will have been masking who she is all of her life, and it'll be upsetting for her. I will obviously support her through it. Why? You are not a therapy dog, it is not your responsibility to rescue her. She doesnt sound lovely - maybe she was in the beginning, that's called love bombing, also an abusive tactic to reel you in. She is not interested in pursuing diagnosis or changing in anyway shape or form, or she would be on a waiting list for assessment, and reading a fuck ton of books. You are flogging a dead horse.

For me, because although I now understand why our relationship has had so many problems, and it is a relief that she cannot help it rather than she doesn't care about me, I just don't think it can work long-term. I'm with you on that. I was already thinking along these lines due to her treatment of me ,but I had a glimmer of hope for change and now I know that's impossible. I am so sad. I wish I'd have realised this early on, and looking back some signs were there (sensory issues and tendencies to want everything done orderly and regimented) but none of those mean much, It's only when I've looked at the whole picture now and It's clear. Hmm I see a bit more autism there, but that could be lots of things. But why do you want to stay in a relationship that's had lots of problems?

Please don't get me wrong, I am obviously not against anyone with autism at all, got it, but you sound a bit misguided tbh I love my friend like a brother and I know other people who have autism too who I hold in high regard, I just don't think I can be in a romantic relationship with someone who has autism. or fucking bitchism It isn't working, clearly. I will be perpetually heartbroken. Honestly you sound genuinely lovely, and loving, so I really hope this isn't true.

How can I support her through it? You can't, youve already told us that she refuses to engage.

And has this happened to anyone else, did you find a way to make it work?

Gf has no idea how I am feeling. She doesn't know that I've realised over the last few days that there's such a high probability, rather than it just being 'Hmm maybe I am that'. I just think it's a hoovering technique. It very quickly becomes 'oh I cant do abc because I have autism so you have to xyz. A very convienient get out clause. Oh I cant be held responsible for my actions because I have autism.

My friend said to tell her over text as she'll find it more difficult to process any other way, possibly true, but youve already had discussions, so why bother? that I am sure she is autistic and that I will support her. Youre not a clinical psychologist, so you cant know, and supporting her isnt your job. I don't know. For the love of god, leave this awful relationship and find someone who loves you. Yes relationships have ups and downs but there shouldnt be problem after problem after problem in the first 2 years! This should be honeymoon period!

daretodenim · 29/08/2022 18:48

OP, you're not compatible.

End of story.

If she wants to seek help she's a competent adult and can do that for herself. Crucially, if she doesn't want to, for any reason at all, she won't. It's that simple.

But whatever help she could get in understanding herself better, will not change the fundamentals of your relationship.

Forget the pseudo autism diagnosis. It's actually irrelevant.

If you want to be respectful then be clear with what you say to her and go your separate ways.

The end of relationships is painful. Don't make it messy by adding an unofficial diagnosis.

Sukiandme · 29/08/2022 23:22

@StrictlyAFemaleFemale I really appreciate your lengthy response-thank you for taking time out of your day for that. Mine will be equally as long, sorry!

Well, my friend who I mentioned had issues with his wife when we first met. He'd not notice when she was upset. I'd go round for dinner/drinks and she'd have a face like she was about to cry at times. He hadn't noticed, and 9 times out of ten it’d be something he’d done that had upset her and he hadn’t realised.

He confided in me about some problems and she did as me and her grew closer.

It seemed they just didn’t understand one another. She wanted affection and felt she was being obvious about wanting it, he didn’t pick up on this, often it ws me who did, she thought he just didn’t want to give her love. (Just one example but there were many). He has improved on this now but often needs a nudge from me if I am around.

She’d try to talk to him and it took him time to process it, so didn't say much. She felt dismissed and uncared for-he expected her to understand that it wasn’t that, but she didn’t.. And he didn't know that, she'd then get very upset after days of this-things such as that. They seem to be doing a lot better now and have for a long time.

I was followed home by a random man a year or so ago and was quite shaken up. When I told her I just got ‘that’s odd. Anyway this has happened at work…’ sort of thing.

If I’ve ever had any sort of upsetting situation she’s not concerned at all. It’s happened about 4-5 times. I am usually a very happy person but life's life and I've had a few stressful situations to deal with as we all do. I guess I’m not used to that, I’d like to think a partner would care, try to ring, want to talk to their partner and make sure they were alright, if they knew something bad had happened. I definitely would and from my social life, people I'm friends with would too. I am very open and told her this. She at first said she just didn't realise I was upset. She admitted later that this was a lie, that she just 'couldn't deal with it' or 'didn't want to be shouted at' (one thing I do not do is shout, I realise I could be anybody, but I have to be very very upset before I will even be anything but nice, and I don't raise my voice at all unless It's to call someone to me or such. I have a very quiet voice in fact.

She ignores me totally if I am around her family and friends. Other than ‘Do you want another drink’ every time she gets one.

I just feel like a spare part. But then she doesn’t talk to any of them either. She sits quiet. She is very quiet generally. Only really speaks when spoken to. I am comfortable with silences and don’t feel the need to talk all the time, but on occasion I have found myself doing this because she’s just exceptionally quiet and I crave some sort of interaction at least. I’ve never met anyone who will just be on a ‘date’, travelling somewhere on a train, sitting having a drink or whatever,
and not have anything to say at all.

It’s mainly her just repeatedly doing things I’ve told her I’ve found hurtful though. I’ve stopped expecting anything involving emotional closeness from her, I know I’ll never get it.

You think the not wanting to attend the appointments/ help me with treatment is abusive? Another poster said it was selfish-I don’t think It’s selfish of me as she was (at least) 50% responsible for what happened. My friend said about this that an autistic trait is just to avoid things that have caused a problem. Hence her avoiding the thing that caused it (sex)and avoiding anything to do with it. It just makes me feel alone and worthless (and perhaps look a bit stupid in front of the people trying to help me).

I understand having had enough of socialising-I love socialising but I definitely get to the ‘I’ve had enough!’ point a lot earlier than others sometimes. However I hated learning that she’d just left me with a bunch of strangers and a couple of her friends (in the middle of the night) and gone to bed at her house down the road. I was so upset that she did that. I go to her house to see her, much as her friends are lovely and there’s nothing wrong with them, I didn’t want to be left with them without her at least asking me first. It also made me think she didn't know me at all-if she did, she'd know I would absolutely hate that.

When I confronted her about this, she said she was tired, thought I wasn’t and thought I’d just have a glass of wine and have a good time and come to hers when ready. I just felt abandoned and unwanted and had no idea where she were. I didn't even know where I were!

The self-centred thing, she says she has been accused of being selfish before in previous relationships. I am not saying of course that my suspicions of autism has all come from google. I didn’t realise before but looking at her patterns of behaviour and sense of self proven since I’ve been with her, and the similarities with my friend, hidden because she presents very differently.

If he had replaced won’t with ‘can’t’, this may have been milder. He’s not the best at explaining things himself really.

I am familiar with stonewalling due to my training/CPD and clients. I didn’t think she was doing that-I suppose because why would I want to ☹ -and another poster says the opposite to you and that I am making it all about me..
She does seem to feel bad for what happened to me, but of course I am deflated that she seems very disinterested in helping with it.

She doesn’t read at all-she’s admitted she’s never read a book in her entire life. I deal with a lot of things involving writing and reading for her (I won’t make this seem unfair, she deals with a lot of practical work for me, that she’s much better at). She’s afraid to speak to any officials generally. Doesn’t like talking to (for example) her bank on the phone. There’s only one GP she’ll see at her local surgery. Just another thing as to why she’d be reluctant to deal with it. She did say she’d speak to a counsellor but was very afraid to and I didn’t push her. Said she’d 'not understand what they meant' or would be scared to speak to a stranger.

I didn’t mention any of the more surface type symptoms as they just seemed insignificant. I mean it doesn’t affect me personally that she always orders the same meal wherever we go! But yes she’s very regimented with cleaning, the order she does things in, there are several fabrics she can’t touch
without wincing, things have to be (her version of) perfect much of the time-but none of this was hurtful toward me, a lot of people have idiosyncrasies just perhaps not quite so many. She’s a ‘germaphobe’ too. Things need to be spotless, can’t get a spot of anything on her clothes or she must go and change, things such as that. I am not sure if all of this is related.

I don’t really want to stay in it if it is going to be like this. I just wanted to know if anyone had made things work.

She’s not done that (yet?)as I’ve said we’ve only discussed the possibility briefly.

I am struggling to think of her as abusive. She's very affectionate and says she absolutely loves being with me. In fact compared to me, who likes certain things and dislikes others (I find it mind-numbingly boring just sitting around for example) she is 100% happy as long as she's with me (she says, and seems to act it) no matter what we're doing, where or who with. She often says I am too good for her looks-wise. I have been in abusive relationships before. I appreciate your input a lot, but it is still very difficult to accept that I may be in another one, albeit of a very different nature.

OP posts:
Sukiandme · 09/10/2022 18:24

I am just updating that my partner did buy a book on autism, although she's struggling to read it. I've read it, and have taken photos of the pages I feel may be of most help to her. She's also going to go to the GP about it, and she's said she'll (my suggestion) try to read the book but just one or two pages at a time to make it more 'palatable' for her. I didn't choose the book nor suggest it. She's also been speaking to my autistic friend although this is a bit of a struggle for her, she's finding it helpful.

Thanks to all who helped me on this thread. :)

OP posts:
Abcdefgh1234 · 09/10/2022 22:16

I’m married with my husband for 9 years and i found out he is autistic because both our sons does. And he seek diagnosis and he is autistic aswell. But marrying him is the best. He is the most patient and very mature. He is very understanding but also very realistic. He is very good in control his emotions but he is not too good in making friends. He doesnt even have best friend. 9 years of marriage we never been invite to a wedding or to dinner at his friends house. He doesnt have a friend but he doesn’t bother by it. He always said he have me as a wife and as a friend and its enough.

Sukiandme · 23/10/2022 22:48

That is a nice story, I am glad you're very happy together @Abcdefgh1234

OP posts:
Stravaig · 16/11/2022 16:21

Why on earth would you assign someone a diagnosis rather than end a relationship which is clearly not working for you? You seem to be the problem here - it is you who can't or won't take the appropriate action in response to her behaviour.

Sukiandme · 16/11/2022 20:45

I didn't 'assign her a diagnosis'. It was her who thought of it originally. Being in the line of work I am in and knowing people who also have autism, I looked at all of the behaviours (not just the ones put on here) that pointed toward it and I suspected she was probably correct.

OP posts:
Marzu · 16/11/2022 20:54

You want to end the relationship. Do it then.
You can't support her through a diagnosis if you don't want a relationship.
And if she is autistic and gets it formally diagnosed .... what then? Continue in a relationship you don't want to be in so you can 'support' her??! With a condition that is lifelong and generally gets more problematic in time?! Nah.
If she knew you don't want to be with her would she want your support anyway?

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