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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

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Relationships are hard when you have BPD.

72 replies

BearaSarah · 09/10/2021 10:17

Please bear with me, this might be long....

I am a 46 year old woman who was diagnosed with BPD in late 2019 after what can only be described as a rather spectacular breakdown (now known as an BPD episode) while my ex partner was on holiday, which lead me to the mental hospital, having a complete and thorough evaluation and being diagnosed. My spectacular episode included lots of irrational thoughts, perceived situations, accusations, fear of rejection/being cheated on and a few assumptions thrown in for good measure. Needless to say, it wasn't my finest moment to date... At that point we'd been together just over 2 years and it hadn't been free of triggers (which i will get onto later)..... However i am utterly grateful it happened as my whole life to that point finally FINALLY made sense.

So what is BPD/EUPD? (Borderline personality disorder/emotionally unstable personality disorder)... IT'S HELL - real description.. Borderline personality disorder is a mental health disorder that impacts the way you think and feel about yourself and others, causing problems functioning in everyday life. It includes self-image issues, difficulty managing emotions and behavior, and a pattern of unstable relationships. With borderline personality disorder, you have an intense fear of abandonment or instability, and you may have difficulty tolerating being alone. Yet inappropriate anger, impulsiveness and frequent mood swings may push others away, even though you want to have loving and lasting relationships. A sufferer has literally no ability to regulate emotions, what the brain says, they believe 100%. Its only black or white thinking. So to say to someone with BPD you know what you're doing when you're having an episode so don't do it, its NOT helpful, simply because we CANNOT control our emotions/thoughts/feelings. What i can say, is after an episode, extreme quilt sets in, as does self harming and suicidal thoughts.

BPD is usually triggered in childhood... and my childhood wasn't great...At 4 my mum and dad divorced, i was raised by a man who didn't think twice about beating me, throwing things at me (cups/plates/remote control) and did so from 4 until i was 16 and i still recall the first time like it was yesterday. It wasn't a happy house, lots of arguing, shouting... scary. Then at the age of 11 i was at home alone with my granny and i found her dead. My gran was everything to me. I was traumatised for many many years. While i was dealing with that, at 12-until i left school i was severely bullied, beaten up almost daily, ciggies put out on me, spat at (happened on the bus where i couldn't escape), have my bag stolen, called fat, ugly, tree trunks.... For 4 years i would sit in the toilets every breaktime to avoid the bullies. I literally had no friends during that time. No one dared talk to me in case the same happened to them. Age of 13 i developed an eating disorder and a desire to self harm (burn/cut), followed by being diagnosed with depression at 16. I was given prozac. Didn't help. I saw psychotherapists/psychiatrists/psychologists for almost 5 years.. Then i started noticing my interactions with others became weird. I never felt i fitted in. I never felt liked. I never felt people wanted me around, i would unintentionally push them away before they stopped being my friend. Plus....My friends were pretty, i was not. For the longest time i have been ridiculed for the way i look. I just felt wrong which made me self harm even more. Just before my 17th birthday i was on holiday and was raped. I was a virgin. This was pretty horrendous too. So that more or less sums up my childhood, wasn't the best..

Now my relationships...well, they've been 'fun'....First boyfriend, cheated (REJECTION, not good enough, worthless, ugly, self harm, suicidal), second left me to go to Australia (REJECTION, not good enough, worthless, ugly, self harm, suicidal), then i got married for the first time, i was always aware that there was a high possibility of him leaving although he never gave me any indication of that, that marriage ended after 4 years, during it i developed severe panic disorder, agoraphobia, OCD, anxiety and health anxiety. My second marriage was HELL. He resented me for having these conditions so he would get really angry and beat me and said the most repulsive things to me. This time my (undiagnosed) BPD wanted to cling onto this horrendous marriage because it was better than being rejected. I cried for most of it, self harming almost every week..... Eventually we split up after 8 years (que REJECTION, not good enough, worthless, ugly, self harm, suicidal). My boyfriend after that had an alcohol addiction, would drink 4 bottles of wine a night while pouring vodka out of a Evian bottle in the wine...(only found out he was doing it when i caught him). When he was drunk he would get really abusive, shout and ghost me. Now, to a BPD sufferer, ghosting, ignoring is like a knife to the heart.... Its one of the biggest triggers... It causes basically an emotional meltdown which isn't pretty. Again, the fear of rejection made me hold on for dear life. Then came a man who said all the right things, knew of my mental conditions and accepted me anyway, however this time, i was a little bit more nuts, i was scared of losing this one, but he cheated and it broke me. I got so mentally sick i had to move back in with my mother for 4 years and become her shadow. I couldn't be alone, the panic attacks were too much. I was single for a while until i met my last partner. I really truly thought he could be the one, but no, my mental brain decided it had other thoughts and would be hyper aware and waiting to be rejected, cheated on because i was ugly and worthless and every other man had treated me like shit, so he wouldn't be any different, but this time instead of clinging for dear life i would perceive situations and it would cause rows and he would dump me. This happened SOOOO many times. But you can imagine what the relentless dumping/rejection would do to someone with BPD, yes, it would make them worse. A vicious cycle of me thinking there was an issue, a feeling, a change in tone on text, an inconsistency with what i was being told, which lead to a trigger, which lead to a row and being dumped...... and the cycle would continue. I'm pretty sure he tried but it would always end abruptly...At one point i lost my sex drive completely, i am perimenopausual and it happens to some women. He didn't like this and understandably so, so i told him to be with someone else (BPD episode pushing away before he left situation). Anyway i didn't think he would do it, but he did sext someone else, so once again the rejection trigger, worthless, not good enough kicked in.... It was hell.. For the last year of our relationship it was pretty chilled, we didn't row, i wasn't dumped, we got engaged, it was good, or so i thought. I felt he wasn't happy and i read he wanted a 'real' relationship which was heartbreaking, he said many times he couldn't cope with me which i guess is why i was dumped so often.....The worthlessness/not good enough kicked in ONCE again after reading it...Not long after that i was tired of feeling guilty for his sadness....and we split up.

This brings me to the present day....

Single mum to a almost 23 year old who recently (May this year) tried to take his own life. That's left me with PTSD. Just after it happened i was on edge all the time .... Not as bad now, but still when i hear a siren and he's not home i will text or call him to make sure he's okay. it was only a matter of weeks after that my relationship ended....Since then i've been incredibly suicidal, self harming - i had an episode recently and i'm back under the care of the mental health team and my meds were increased. I find everyday life really challenging...Little things trigger me... and the people who the episode involves don't understand and always make it as if i do it on purpose when they don't realise i CANNOT REGULATE MY EMOTIONS.....and its never personal.. and if i could stop it, i would! 'Cause i could do without the guilt and self harming that follows an episode...

All i've ever wanted is for someone to love, support, stand by me and work with me...i know relationships are possible because i watch couples on YouTube who manage, but that's probably because the undiagnosed partner is willing to understand and learn about triggers, the illness and making them feel wanted.... I get its hard work, but its almost like saying i am so damaged i don't deserve to be loved and that in itself is a trigger......Makes me feel so worthless.... All my adult life due to my other mental health issues i've never had any direction, i have been lost, my life is so limited and it really seems a lot to go through daily for nothing.

Sorry to ramble but occasionally i need to get it off my chest...
Thank you if you got this far...

OP posts:
BearaSarah · 10/10/2021 18:34

@Shanghaisprize

Hi and thank you!

My ex husband by far was the worst.. with the physical and mental abuse. Well, none really have been any good - weak I would say and I don't mean that to be unkind - but the shit I go through on a daily basis and if i have a brain issue they automatically think I am being an arsehole - but not replying to texts, or wanting to see me, or hiding shit from me, they're ALL triggers and even my ex knew not replying would make me worry, he'd still do it and then get pissed off when I am freaking out .,, like ... what am I meant to do? I cannot help the way I see and express things .. I'm constantly on high alert ...

OP posts:
litterbird · 10/10/2021 19:08

Thank you for your insight into this disorder. I do not have this disorder but 15 years ago I dated someone with BPD and it was absolute hell. You have given me an insight into why he had this melt downs and the strange stories he would tell me that he thought I was cheating all the time and becoming manic about it. I hope you find peace one day and maybe a therapy that can support you.

InABetterPlaceNow · 10/10/2021 19:38

[quote BearaSarah]@Shanghaisprize

Hi and thank you!

My ex husband by far was the worst.. with the physical and mental abuse. Well, none really have been any good - weak I would say and I don't mean that to be unkind - but the shit I go through on a daily basis and if i have a brain issue they automatically think I am being an arsehole - but not replying to texts, or wanting to see me, or hiding shit from me, they're ALL triggers and even my ex knew not replying would make me worry, he'd still do it and then get pissed off when I am freaking out .,, like ... what am I meant to do? I cannot help the way I see and express things .. I'm constantly on high alert ... [/quote]
I just had to reply to this. As someone who absolutely has, and is going through this.

Physical and mental abuse. So not OK. Stay away from those types of people, always.

However, the high alert? Absolutely what this is. And not your fault. You're wired that way. But...

You know that's so. That means doing some work around it. And "healthy" people not reply for a while. Example. I texted a friend yesterday "Are you free to talk?". Then 5 minutes later "Nevermind I'm OK now". They didn't get in touch until today. And even if they hadn't, I'd have known it wasn't because they didn't care. They are just busy. Once upon a time I'd have went into meltdown, not sent that second text, not been OK at all.

Learning it with friends is easier. It's why it's easier I think, for me, to stay single. For better or worse I don't want to get too attached. If I do it will be very, very gradually, where I can handle it if it breaks down.

Essexmum321 · 10/10/2021 19:43

My local Mind has an amazing group program for people with BPD, might be worth seeing if there is one in your area.

BearaSarah · 10/10/2021 19:56

@litterbird

I know it's difficult to be with someone with BPD .... His strange stories were coming from a brain that isn't capable of working fact from fiction, everything is black or white. Something as small as 'why are you wearing that coat today?' as an example, could be a trigger for the rejection/cheating thoughts and we believe our brains 100% but then don't have the ability to manage those thoughts or emotions - it's really bloody difficult for both parties ...

I'm not 'easy' to be with until trigger and potential triggers are removed, like just be honest, don't act sneaky and hide stuff cause when I find out I can't deal with the deceit.. don't change up routine, if you text every day and then stop, that's a trigger. If you see me every Wednesday then stop, that's a trigger, if I find you've been dishonest, that's a trigger ...

X

OP posts:
BearaSarah · 10/10/2021 19:57

@Essexmum321

I assume you're in Essex, I am too.

OP posts:
InABetterPlaceNow · 10/10/2021 20:03

[quote BearaSarah]@litterbird

I know it's difficult to be with someone with BPD .... His strange stories were coming from a brain that isn't capable of working fact from fiction, everything is black or white. Something as small as 'why are you wearing that coat today?' as an example, could be a trigger for the rejection/cheating thoughts and we believe our brains 100% but then don't have the ability to manage those thoughts or emotions - it's really bloody difficult for both parties ...

I'm not 'easy' to be with until trigger and potential triggers are removed, like just be honest, don't act sneaky and hide stuff cause when I find out I can't deal with the deceit.. don't change up routine, if you text every day and then stop, that's a trigger. If you see me every Wednesday then stop, that's a trigger, if I find you've been dishonest, that's a trigger ...

X[/quote]
Do you think you might be able to learn something around your triggers and see you are overreacting whilst staying open to genuine threat? It's hard, for sure. However I think it gives you the best chance of connecting with someone equally.

"We" do see things in black and white. But I think we can also learn to see there's grays, genuinely. We were brought up in a world with the black and white world but grays do exist. It's quite fun once you start to see it. Things feel a little less hard Thanks

litterbird · 10/10/2021 20:07

[quote BearaSarah]@litterbird

I know it's difficult to be with someone with BPD .... His strange stories were coming from a brain that isn't capable of working fact from fiction, everything is black or white. Something as small as 'why are you wearing that coat today?' as an example, could be a trigger for the rejection/cheating thoughts and we believe our brains 100% but then don't have the ability to manage those thoughts or emotions - it's really bloody difficult for both parties ...

I'm not 'easy' to be with until trigger and potential triggers are removed, like just be honest, don't act sneaky and hide stuff cause when I find out I can't deal with the deceit.. don't change up routine, if you text every day and then stop, that's a trigger. If you see me every Wednesday then stop, that's a trigger, if I find you've been dishonest, that's a trigger ...

X[/quote]
Thank you for your insight into this, it took me a very long time to recover from this relationship as have never witnessed or experienced this reaction. Your explanation has helped me understand. To this day (actually this morning) he still contacts me now and again wanting my attention. I do not respond and haven't done for a very long time. If I block he makes up another account to contact me on. Its so sad. I now know that not responding to him is now making him trigger and causing him distress which is not what I want but I have to protect myself from the drama and chaos I went through with him.

Tal45 · 10/10/2021 20:39

Hi Op, you say your son has asd, were you aware that in women particularly asd is often misdiagnosed as bpd? Half of all women get a misdiagnosis before getting a diagnosis of asd. Just thought I'd mention it. I'm sorry for the terrible, terrible childhood you had, no one should have to go through all that x

supercali77 · 10/10/2021 20:46

OP as others have mentioned bpd appears to be an extreme particular form of cptsd, specifically abandonment issues, hypervigilance, black and white thinking, etc. Pete walkers book i second from a PP is a brilliant resource. Id also recommend all of Richard Grannons YouTube videos on the topic. The thing is right now you seem to be( in the parlance of cptsd) in a major emotional flashback. Speaking from experience of them you need to focus on all the basics now, eat, sleep, wash, function. You can worry about what all this means for your relationships later. Get to some kind of functional baseline in your life alone just now. Relationshipd and even thinking of them will trigger more. So get to the point where You can go to the shops. You're no longer needing a care team etc. You won't be thinking clearly right now about whats possible for you.

BearaSarah · 10/10/2021 22:37

@supercali77

I have never had the ability to think clearly and I'm 46Shock

OP posts:
me4real · 11/10/2021 01:05

I had to call my team, I had an emergency assessment (they actually came out to me) and I've got another meeting this week to discuss where we go from here..... because I'm not doing well....

I hope they find something that helps.

As a PP said, BPD label is effectively stigmatizing people (usually women) for the effects of trauma. Heal from the trauma and/or PTSD and a lot of the behaviours/feelings caused by trauma can improve. This gives some treatment angles you mightn'tve tried before, like EMDR.

A lot of people are diagnosed with BPD who actually have ADHD and/or ASD instead. It kind of happened to me and also to someone I know, that we were rediagnosed as being not neurotypical, which effects the emotions and the ability to cope with them. It also can be another source of trauma- bullying etc, or finding activities difficult, which can cause low self esteem so people catastrophise more etc. But that's an aside and mightn't apply to you, if it doesn't resonate with you.

Definitely look into PTSD/trauma therapies though.

BearaSarah · 11/10/2021 10:47

@me4real

During my initial diagnosis of BPD - Aspergers was also suggested...it went like this Him: "Have you ever been diagnosed with Aspergers?" Me: "No" Him: "From my evaluation today, it's highly likely that you do have Aspergers".

OP posts:
Muttly · 11/10/2021 18:30

I have never had the ability to think clearly and I'm 46

Beara the trauma you describe is acute and more or less persistent throughout your life. You don’t feel safe because from what you have described you rarely have been safe. I am not surprised given the scale of the trauma you have described that you have a persistent flight-fight state. I has two years plus of fight flight plus early childhood abuse and even with huge support i had a lot of what you have described.

It sounds so unbelievably tough what you have been out through.

Valenciaoranges · 11/10/2021 20:05

I have bipolar 2 and EUPD. I have all the feelings/thoughts you talk about. It’s horrid battling with the voices every second of every day. I am at the point where I avoid any kind of close relationship with anyone at all. I just can’t cope with the expectations, dynamics, feeling let down, not understanding- the list goes on. I work full time so I’m exhausted from long days, plus meds. I keep going, but no idea how.

BearaSarah · 11/10/2021 23:14

@Muttly

Sorry to read about your struggles....but thank you for taking time to reply to me.

OP posts:
BearaSarah · 11/10/2021 23:21

@Valenciaoranges

Sorry for your diagnosis.
Don't you just wish, pray to 'anyone' that someone, just ONE person would take time to REALLY understand what it's like... In reality our exceptions really aren't that high. Like if you text each morning, please don't skip a day ... and really, that's not asking much. To me and possibly many other sufferers, missing a morning/evening text is enough for an episode to be triggered, so my point is this.. surely it's easy just to send that text that takes 3 seconds rather than not bother... cause you don't have those 3 seconds spare when you have plenty of time with the phone in the hand other times - and that's when all the other negative thoughts of rejection, not being good enough etc etc sets in.

X

OP posts:
youvegottenminuteslynn · 12/10/2021 11:15

In reality our exceptions really aren't that high.

While I sympathise completely with how tough this is for you OP, as someone who has been the partner in the scenario I feel I must try to explain to you how much that statement minimises the effect on the other person.

Your expectations are incredibly high in that the other person is made to feel responsible for regulating your moods and behaviours.

For example, if they mean to text but forget, they are given no grace for that. They are punished with anger, or silence, or crying, or guilt tripping. And while I know you cannot help that reaction, it is completely unfair to expect a partner to abide by the rules you set without exception or be afraid of the consequences.

It is utterly exhausting and I do feel that it's something people with BPD struggle to understand at all. That what you think is reasonable is in fact a hugely stressful and anxiety inducing thing for others. Because it isn't about 'just' a quick text, or having to change plans last minute, or any other thing that you feel lets you down. It's about the constant weight of worrying about how your actions could send someone spiralling when in reality you haven't done anything that warrants the anger, guilt tripping, tears etc that you are then faced with.

I truly sympathise with how tough it is from your side but I was left a husk of a person as a partner, terrified of doing something that would make my now ex hurt themselves, scared to say what I wanted if I knew it didn't align with them, constantly having to practice what to say next in my head for fear of triggering them and being left no room at all to have my own mental health issues or difficult times.

Me needing space because I was overwhelmed by a tirade of anger was seen as something warranting more anger, but I still wasn't 'allowed' to leave or I was an awful person. Me grieving someone in my family and wanting to do that with my family for a few days was seen as rejection and my partner made it all about them. I was grieving but they were the victim in their eyes and I was being cruel.

It really fucked me up for a long time and reduced me to a husk of a person when I went in as a ballsy, bold and strong person. It took me a couple of years to get back to being those things.

I don't say any of that to hurt you, I just think it's so important you know the other side of it to try and gain empathy for a future partner.

Thanks
ArthurApples · 12/10/2021 11:34

I sympathise, understand, had various versions of same diagnosis over 20 odd years, bi polar, bpd, autism, now CPTSD after an in patient episode following birth trauma years ago, and childhood csa, which was awful, but got me access to care, support and medication, that has eventually worked, now discharged. There's alot of extreme thinking in your posts, which is understandable if you are currently in crisis, posting about the past like this is ruminating though, focussing on going over and over things you can't change, its not healthy or real, its only your perspective right now.
Also noticed like another PP that you are putting all the responsibility for your triggers onto others and this isn't true or fair, it lies with you recognise what sets you off and to learn to deal with it. You can learn to regulate, you can improve your life, but only you can do this. Let the people around you off the hook, actively engage in seeking recovery of sorts. I had EMDR in the end, for early trauma, which was awful during treatment, I got a bit worse at first, but has led me to a calmer, more stable than at any other time in my life, now mid 40's. Anti psychotics work for meme antidepressants made me worse, Ive tried all the medications, get a cpn, work with an OT, see the psychiatrist but make the effort without saying BUT I CAN'T. Y ou cand and you must. No drinking, no drugs, lots of self care and well being, eating regularly, prioritising sleep and regular exercise, learning behaviours and routines that keep you safe emotionally and physically keep you healthy and well. I had to learn all that from scratch. You've got and opportunity here, you are receiving support, stop talking and thinking about what other people are doing to you, stay out of the past and engage, start to do the hardest work of your life and things can improve, I promise.

BearaSarah · 12/10/2021 12:21

@youvegottenminuteslynn

Thank you for replying and letting me
Into your view of being with someone with BPD. It is challenging, some cases worse than others, yours sounds pretty horrendous! Hope you've found happiness now x

OP posts:
BearaSarah · 12/10/2021 12:26

@ArthurApples

Thank you!

I was managing so well with everything until my last relationship ended. I found myself in a place of peace and happiness - then the trauma of my sons suicide attempt and the ending of my relationship has basically mentally floored me. I'm waiting on the mental health team now to let me know of the next steps! I had a FOUR hour thorough psyche evaluation yesterday ... I'm really hoping that something positive comes out of it, cause I will end up dead - I cannot cope with it at the moment - it's too much. x

OP posts:
ArthurApples · 12/10/2021 12:46

You won't end up dead, you will be ok. Also see if you can do any trauma CBT, learn the different thought distortions, (that are so clear in your writing) learn to recognise them, literally I have to examine my thinking all the time, I still over react, but I ask myself why, what's going on, is this real or this just the usual path my body and brain leaps onto? You can intervene and even though the strong feelings and the adrenaline still happens, it wears off sooner. You can do it.
You can teach yourself to get in there sooner with critical thinking skills. So much of what you are saying isn't true, I dont mean that rudely, its part of the way you think, but you 100% can change, you can make choices, you have to ask yourself every time is this real, am I being reasonable, am I respecting and keeping safe the other person before you start off on a huge spiral of me me me and my feelings. Can't, never, untreatable, always been like this, all things you can change. Coping mechanisms, risk assessment before acting, consequences to your actions, start thinking about other people and their feelings, cultivate empathy and stay out of relationships until you have learnt to look after yourself.
You can't always avoid triggers out in the real world, avoidance reinforces your disfunction and controls the lives of your friends and loved ones, same as all the other negative behaviours, but you can do the harder work of learning new ways. If there's been trauma then get treatment for that.
Be careful about posting about it all, for support sure, but writing down all the bad stuff is the same as not being able to stop thinking about it, which might set you off too, a negative reinforcement keeping unwanted stuff going. Think of it as stopping trying and start doing. Take care. Xx

CandyLeBonBon · 12/10/2021 12:48

Fellow diagnosee here op. Thanks

changedmynameforthisagain · 12/10/2021 14:20

This reply has been deleted

Message withdrawn at poster's request.

BearaSarah · 12/10/2021 14:30

@changedmynameforthisagain

I'm assuming you're not in that relationship anymore - so it's all good :-)

OP posts:
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