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Primary education

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Permanent exclusion - autistic child

111 replies

Mayalamadingdong · 13/07/2025 14:51

Hi,
I'm hoping for some advice from SEND mums in a similar position.
My son, 9, has just been permanently excluded from primary school, 2 weeks before the summer holidays.
He is autistic and has ADHD. He is very clever, amongst top 1% in SATS, but has severe behavioural, communication and sensory issues which means he's been struggling a lot at his mainstream school.
He's been studying in isolation with a 1 to 1 for 2 years now. Mostly he's been doing OK, but occasionally he has violent outbursts and he would hurt staff or damage property. He's been excluded for a few days at a time frequently for years now, and now they've decided to permanently exclude after he's attacked a teacher.
I understand where they're coming from and I know they've been trying to support him.
He is in the process of getting an EHCP (we've been in the queue for 2 years, our council is shocking). The Local Authority now says they'll rush it through given his circumstances.
However, we are now stuck without a school, and we were told it's unlikely he'll have a school place for at least a few months of the next academic year.
My questions are, to those who have gone through similar issues:

  1. What are you meant to do while waiting for a place? Just educating them at home yourself? We are nowhere near qualified to meet his educational needs, and work full time. How are we meant to do this?
  2. What kind of school would accept a child that isn't behind academically but has a history of violence and erratic behaviour?
  3. How do we keep him 'socialising' while he's at home? He has no friends and our friends' kids don't really spend much time around us as it can be risky.
Is there a way to seek out other families in similar situations? I don't want him staring at 4 walls on his own for 6 hours a day :(

Any advice would be much appreciated.

(PS in the 5 minutes it took me to write this, he's managed to threaten a stranger he would kill her, and try to choke his brother... it's endless 🫩)

OP posts:
deadpan · 17/07/2025 09:23

Sadly education authorities are reluctant to provide appropriate settings for kids who need them. It might be cheaper for them to keep kids in mainstream school but we all know ms isn't suitable for a lot of kids.
A friend of mine had to go through the process of taking our EA to court for her autistic son with learning difficulties - they wanted him to go to the ms high school his siblings went to. They were a couple of weeks away from the hearing and the EA suddenly realised there was a place at a local SEND school after all 🤔

perpetualplatespinning · 17/07/2025 09:42

@JasmineIndigo it isn’t naive to say parents don’t have to accept unlawful behaviour. I do this day in, day out. Sadly, DC whose parents know the system, can advocate for their DC and enforce their DC’s rights get better support. It shouldn’t be like that and fails many vulnerable DC, but it isn’t going to change in the foreseeable future. Therefore, it is important parents know the system and are supported to enforce their DC’s rights.

It doesn’t take years to enforce provision from OP’s position.

For s19 provision, if the LA has refused provision, ignored them or delayed, they can threaten JR. Sometimes the threat is enough. If it isn’t, they should look at a pre-action letter. That mostly works. In the minority of cases where it doesn’t work, JR proceedings will resolve the situation.

For provision via the EHCP, the timescales can be enforced like s19 provision can. Then, for an appeal to SENDIST, for those out of school, parents can request an expedited hearing.

Mayalamadingdong · 20/07/2025 19:21

Internaut · 16/07/2025 09:22

I do think the school failed your son by leaving him working on his own and in a queue for an EHCP for so long. They must have known that the time limit for processing an EHCP is 20 weeks, and if they didn't know that that could be relatively easily enforced then they should have found out. Even if you don't challenge the exclusion, you might want to think about a formal complaint, if only for the sake of educating that school better.

We did put in a formal complaint for discrimination and it was rejected, we appealed and it was rejected again.
They did advise on EHCP etc but they couldn't make it happen any quicker. They were consulting many different stakeholders about my son but couldn't get the right support and advice.
We made our case at the Pex hearing but we know it's not going to go our way.

OP posts:
Mayalamadingdong · 20/07/2025 19:25

Katrinawaves · 16/07/2025 12:27

If the current school wasn’t working, they have probably done you a favour by the permanent exclusion though I know it doesn’t feel like this at the moment in that it pushes through the ECHP and puts extra pressure on the local authority to find a suitable place.

I know you say there isn’t anywhere which meets his combination of high academic ability but very challenging behaviour but there will be even though they may not be on your doorstep. You might have some really hard choices coming up such as whether to let him be a weekly boarder somewhere or in full time residential education or for the family to relocate somewhere with better educational provision.

I faced all this 8 years ago now with my child with autism who had been in a special school since she was 2 and also had learning difficulties. It wouldn’t have been our choice at all but the best provision for her turned out to be a residential school about 3 hours from where we live. It was a huge decision and very distressing for us but it did turn out to be the best thing we could ever have done for her and for the family. If this is what you end up doing remember they aren’t going to prison - you can visit as often as you like and they can come home for holidays or have days out with you whenever and as often as you like but sometimes the routine and having a framework and set up completely geared up for minimising the stimuli they find very triggering is absolutely the most selfless thing you can do for them.

Thanks for your perspective. I did look at a couple of residential places. My son overheard me mention this and went ballistics. He's very afraid of being away from home and I don't blame him. I can see him hating every minute of it!
We will definitely consider moving anywhere commutable to London if it means we can find the right school. My problem is how are we meant to know what school is right? There's no advice out there and school sites are so vague...

Glad you found the right solution for your girl x

OP posts:
Mayalamadingdong · 20/07/2025 19:25

Thanks for your perspective. I did look at a couple of residential places. My son overheard me mention this and went ballistics. He's very afraid of being away from home and I don't blame him. I can see him hating every minute of it!
We will definitely consider moving anywhere commutable to London if it means we can find the right school. My problem is how are we meant to know what school is right? There's no advice out there and school sites are so vague...

Glad you found the right solution for your girl x

OP posts:
Mayalamadingdong · 20/07/2025 19:32

autumn1638 · 16/07/2025 20:46

I’m sorry that you are experiencing this. He has been let down.

It sounds like he might be suited to an autism resource base attached to a mainstream school. Lots of the children on the bases can be physical with staff but the staff manage it.

County are now response for providing a suitable education and an educational psychologist will make an assessment around what his needs are. But you as parents have a lot of influence over schools. You will need to name somewhere on the EHCP so start looking in your area. Go and visit some schools. Most specialist provisions can cope with a child who lashes out when overloaded. They shouldn’t have told you that he would likely be out of school- is there not a place in a pupil referral unit available for the start of next term so that you can both continue to work? I would ask that question and it is their responsibility to offer somewhere.

He was actually at an alternative provision within a mainstream school, they're the best one around for SEN, but they couldn't cope with his aggression, even though it wasn't a regular issue, but maybe because of this- he was acting very unpredictably and could have calm days then suddenly attack.
We're really unsure of what's the right environment for him. We think they could have been more tolerant given his issues but it's a health and safety issue.
We're trying him on higher meds dosage and it seems to be working so hoping perhaps he could tolerate school better if given a chance somewhere else.

OP posts:
IShouldNotCoco · 20/07/2025 19:40

Mayalamadingdong · 20/07/2025 19:25

Thanks for your perspective. I did look at a couple of residential places. My son overheard me mention this and went ballistics. He's very afraid of being away from home and I don't blame him. I can see him hating every minute of it!
We will definitely consider moving anywhere commutable to London if it means we can find the right school. My problem is how are we meant to know what school is right? There's no advice out there and school sites are so vague...

Glad you found the right solution for your girl x

My (complex PDA) daughter attended Jasmine House School in Derby which I found to be excellent and incredibly nurturing. The care manager is very good there and that’s the crux of how good a placement is. I think they have several different homes / schools now.

You really do have to visit places to know if they are any good.

I would advise anyone to avoid Orbis placements - we had a dreadful experience with them.

IShouldNotCoco · 20/07/2025 19:43

Also, I’d advise you to look on Facebook for groups which are for parents of autistic / ND children in your town. People often talk about local placements there.

Secretsquirels · 20/07/2025 19:58

You don’t need to reply here but I’m wondering how well off you are financially?

My gut feeling reading your post is that ds would benefit from a year or two out of school with a lot of focus on strategy to manage pda before considering potential partial reintegration.

Would you be in a position to afford a private tutor for a couple of hours a day. This, plus the LA out-of-school tutoring plus some sort of online school or local home Ed groups could maybe work better than school?

It doesn’t sound like it would deal with the worries about you both trying to manage working and supporting him, but might be an angle to consider…

perpetualplatespinning · 20/07/2025 20:30

They did advise on EHCP etc but they couldn't make it happen any quicker.

They could have advised you on how to force the LA to act once they were in breach of the timescales.

If school is inappropriate for OP’s DS, either for now or long term, she doesn’t have to fund it, EOTAS/EOTIS is possible.

Katrinawaves · 20/07/2025 20:47

Mayalamadingdong · 20/07/2025 19:25

Thanks for your perspective. I did look at a couple of residential places. My son overheard me mention this and went ballistics. He's very afraid of being away from home and I don't blame him. I can see him hating every minute of it!
We will definitely consider moving anywhere commutable to London if it means we can find the right school. My problem is how are we meant to know what school is right? There's no advice out there and school sites are so vague...

Glad you found the right solution for your girl x

You are right. It is very hard and there is very little support.

We had to tap into our network and speak to other parents with kids with similar needs and the Headteacher of the existing school. Then visit and look at a school, if not quite suitable talk to the Head at that school and explain what we are looking for and ask for their recommendations for alternatives and rinse and repeat. Then once we found some potential options, they came to assess my child to see if she was suitable for them and some said no. Once we had whittled it down to the only 2 possibles then it was working with the LEA to get the funding.

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