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Primary education

Join our Primary Education forum to discuss starting school and helping your child get the most out of it.

9yo DS with reading difficulties

55 replies

Sunburnt · 18/06/2012 21:53

9yo DS is in Y4 and has always struggled with his reading and has never enjoyed it (despite loving stories and being read to). In Y1 he needed some additional support in class (as part of a small group) to work on phonics and general understanding and, although he has obviously improved since then, he still finds reading difficult. Now in Y4, he regularly skips lines and small words when reading, eg it, an, of, as, etc. He also struggles to read longer words if he doesn?t recognise them immediately and will make no attempt to break the word down into chunks. He just makes up a word that begins with the same letter (even if it isn?t a real word). He has been to see a behavioural optometrist who prescribed glasses for close work but nothing else out of the ordinary was noted.

Tonight, he was reading and was skipping words again, reading in a very halting way and clearly struggling. I asked him what the words looked like on the page and he told me that they were fuzzy. This was with his glasses on and the book VERY close to his face. I put the book on his knee, pointed to a word, and asked him to read it to me. He couldn?t. I asked him to tell me what he thought the letters were and he got quite a few of the letters wrong. I then asked him if the words were doing anything and he told me that the words in italic (a few lines on the page) were jumping about a bit. I also asked him why he skipped the small words and he said it was because he didn?t see them.

Over the years, we have had concerns about his general literacy levels. He is in the bottom group at school and struggles to complete tasks in class, his spelling is poor and he finds it difficult to structure his writing (punctuation, order of sentences, etc). However, in CAT tests over the past two years he has scored well above average in all three tests. We have tried to raise our concerns with teachers but are always told that he is doing OK and there is no need to worry, he just needs to work on xyz. At the last parent evening, his teacher asked if we had noticed that he struggles with two-step instructions. When I asked her if we should be concerned about it, she said no.

I?m not so sure. My gut feeling is that it is part of a wider problem. DS struggles to stay on task and focussed with lots of things, whether it?s getting dressed for school, at swimming lessons or doing homework. He lacks confidence and thinks he is stupid, it?s heart-breaking to hear him say this and he is such a lovely, caring and bright boy. I feel we are letting him down and should be pushing more to really get to the bottom of whatever the problem is. I just don?t know where to start or who to push, the school just bat away our concerns.

Sorry again for the long post, thanks for getting to the end. Any advice would really be appreciated.

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morethanpotatoprints · 18/06/2012 23:07

Sunburnt.
I too have issues relating to sounds, unfortunately I have found that unless your dc is is below/well below average in tests schools will say they have no worries and try to placate you with their level being good. Funding is for the below average as yours aren't as needy as them. Sorry to be blunt but your school sounds just like my dds. Its not necessarily the schools fault your LEA only has a limited amount of funding available. My advice is to find out what you can from the good teachers on here and support your dc yourself.

IndigoBell · 19/06/2012 06:17

This sounds like vision issues.

The skipping words and looking at the first letters and guessing is an eye tracking problem.

The words being fuzzy is a convergence problem.

Get him checked out by a Behaviour Optometrist - a normal optician / optometrist doesn't check for these kind of problems.

A BO can prescribe vision therapy which will fix these vision problems.

lostinpants · 19/06/2012 06:23

I wonder if your son may have dyslexia. We had a inset recently at school talking about it and spotting children who may have it - and one of indicators was 'words jumping around the page' as your DS describes. Using coloured paper instead of white is supposed to help.

mummytime · 19/06/2012 06:42

You could try getting a set of reading rulers here is a good source. If you are close to Reading or Oxford you could contact dyslexia research trust. He sounds as if he has a visual problem, my DS had no dominant eye, which explained why words jumped around and he missed the words in the middle of the page. This is often linked with dyslexia.

IndigoBell · 19/06/2012 07:19

lost - the reason coloured paper sometimes helps is because it is a vision problem.

It is very common for vision problems to be labelled as dyslexia.

IndigoBell · 19/06/2012 07:20

Sorry, I worded that wrong.

If coloured paper helps then it is always a vision problem.

Coloured paper helps some people with 'dysleixa' (there are other causes of dyslexia besides vision problems)

Sunburnt · 19/06/2012 08:33

Thanks for all your replies. He has seen a behavioural optometrist twice, because I also thought it might be related to eyetracking Indigo, and he is due to go back for a check up so I will book that today and discuss it with him. Lost, the jumping words thing has only just been mentioned yesterday, he's never said that before and it only seemed to be with italic print but that made me think maybe there was more to it. I'm just worried that we are not really getting to the bottom of the problem, we seem to just skirt around it and it doesn't get resolved. As you say, morethan, I think because he just about manages to stay above the range where difficulties might get flagged (with a lot of additional work with me at home) he doesn't get any additional support. I will have a look at the rulers mummy, thanks for the links.

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learnandsay · 19/06/2012 09:23

Can he do picture puzzles where you have to follow a curly string to join two pictures together and the strings all cross in the middle? Can he spot the differences in spot the difference children's picture puzzles, without the glasses?

Sunburnt · 19/06/2012 09:53

Hi learnandsay, I haven't done string puzzles, not sure what they are. We have done spot the difference picture puzzles in the past and he seems OK with those. He much prefers pictures generally, and always looks to pictures in a reading book, loves drawing, etc. He is also very good at non-verbal reasoning games/questions (you know the ones that are pictures and shapes). It really does seem to come down to reading, spellings and grammar/structure.

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IndigoBell · 19/06/2012 11:18

Sunburnt - BOs are complicated. Some of them are brilliant and some are rubbish. There's only a very few I've heard good things about.

The one I took my DD to was a total waste of money.

However my DD did have severe vision problems which had to be sorted.

There probably is a lot more to your DSs problems then vision. I was just suggesting that is the place to start.

You need to sort his vision problems, then you also need to sort his other problems.

Brain fog is caused by leaky gut, which is solved by gluten free / dairy free and probiotics

Not 'getting' phonics is due to auditory problems, which is solved by one of the many listening therapies.

You should also research supplements and neurodevelopment therapies.

Then you will get to the bottom of his problems.

Sunburnt · 19/06/2012 11:48

Thanks Indigo, I have booked an appointment with the BO for tomorrow afternoon so will discuss the vision problems with him then. I've never heard of Brain Fog before, and haven't really thought that there might be dietary intolerances that could affect him. Do you think we should get him checked out for intolerances or sensitivities to foods?

The thing about researching it is that I don't really know what it is I'm researching. Lack of concentration, difficulties with literacy, low self-esteem, etc, seem to 'fit' with many things and, at the same time, are a bit vague to identify what might be going on. What I would like is for someone to say 'Oh yes, this is the problem, we need to do xyz to resolve it' but I know it doesn't work like that. Smile

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IndigoBell · 19/06/2012 12:35

All of those symptoms fit exactly with dyslexia.

What else do you think it fits with?

Getting proper nutritionist tests cost a fortune, (we're going through them with DD at the moment). I would start by going gluten free and dairy free for a few weeks and see if you think it helps or not.

Sunburnt · 19/06/2012 12:46

Well, I've thought about the possibility of dyslexia, ADHD (inattention bit, he's not hyperactive), and also possibly some sort of auditory or processing issue. But when I look at the symptoms, he doesn't seem to have the more specific 'obvious' symptoms which would make you say 'Aha!'. Until he said yesterday about the words jumping around a bit, that makes me think of dyslexia.

I will try going gluten and dairy free and see if there are any improvements. Did you do them both together, or one first and then add the other?

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mrsbaffled · 19/06/2012 12:50

Tell me more about brain fog, please.....

IndigoBell · 19/06/2012 14:09

Sunburnt - I subscribe to the view that ADHD, Dyspraxia and dyslexia are all symptoms of the same underlying cause. And it doesn't matter at all which label you get.

I tried both together, and DD hated it :)

It definitely helped her brain. But she complained so much I stupidly took her off it, and am only now a year later paying far too much money to a nutritionist to be told she needs to go gluten free / dairy free :)

Another huge indicator that you should try GF would be any kind of bowel problems, constipation, diarrhoea, bloating, wind.....

IndigoBell · 19/06/2012 14:23

There's loads on the web about brain fog. here's one site.

I'm sure the original cause of all 3 of my kids problems is leaky gut, which has then gone on to cause the neurodevelopment problems, which has then gone on to cause vision and hearing problems, which has then gone on for them to be diagnosed with Aspergers / Dyspraxia / Dyslexia

Google leaky gut and candida as well.

As well as going gluten free a probiotic has made a huge difference to her cognitive state. This is the one she takes.

This theory comes from The GAPS diet

Sunburnt · 19/06/2012 14:29

Yes, I can see that my DS won't be keen on it, he loves his cereal and toast. Smile

It's interesting that you talk about bowel problems, he does seem to get 'loose bowels' quite regularly and at other times spends forever on the loo (sorry if that's TMI). Hmmm, I think you could be onto something there, I will definitely look into it. I think I will have to start it in the summer holidays though. He is booked to have hot school lunches til the end of term (all paid for) and I'm not sure if they will adapt the menu for him.

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IndigoBell · 19/06/2012 14:32

You can buy gluten free practically everything now in the big supermarkets.

Pasta, fish fingers, chicken nuggets, sausages, bread and cereals.

They don't taste exactly the same though :)

With DS once we cut out gluten it was obvious that it had been a problem, so it was easy to keep him off it. It started to hurt him to have it again, so he was happy to stick to the diet.

Whereas with DD it was a bit less obvious that it was helping, and she did complain more, and....... and in the end we gave in and let her have it again Blush

Sunburnt · 19/06/2012 14:41

Thanks Indigo, I will have a look at the gluten-free bit at my next big shop.

"They don't taste exactly the same though" - is that a euphemism for "cardboard"? Grin

I think we will try and do it as a family so that he doesn't feel quite so hard done by. I anticipate a lot of complaining too.

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IndigoBell · 19/06/2012 14:44

The pasta and fish fingers are fine.

The bread isn't. And we just cut it out off his diet totally.

We're also trying to increase protein (which I also recommend) so switched breakfast cereals for a cooked breakfast.

Sunburnt · 19/06/2012 15:51

Great, I'll look out for those and probiotic dinks. I think we do have quite a protein-rich diet anyway but I'll have a look at that again.

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IndigoBell · 20/06/2012 09:09

Also try glucose (barley sugars) every 2 hours for brain fog.

23balloons · 20/06/2012 10:12

sunburnt my ds has very similar eye problems to yours, he is now in y6 and can't read fluently. He has never read a book but somehow he has managed to get good results on comprehension tests and so is classed as an above average reader by his school? It is so frustrating, he excels at maths but now his reading issues (skipping & words moving) are causing him to misread maths questions. Last year his teacher advised a vision test. I paid >£300 & was told he had focus, tracking & processing problems but the BO refused to give a written report. He was accredited by the British Association of Behavioural Optometrists & I have found out you just need to do 9 hrs training to get accreditation - I have made a complaint.

I now work in a HE institute and I am so shocked at the number of 18, 19 year olds being diagnosed as dyslexic (some severely) & they have never been picked up in primary or secondary schools. I decided to get ds tested at Easter just to satisfy myself as all his teachers have said he is not dyslexic. He has been diagnosed as dyslexic, he has very slow processing skills & working memory as well as the vision problems. I have been to my doctors & asked to be referred through the NHS for another vision test, I first had to take him to an optician who had to write to the doctor and ask for this referal. His sight test is fine but the optician did ask for a referral & he has a test in August before he starts secondary school.

Unfortunately there is no solution to being dyslexic but he now has a report and got extra time in his SATS which enabled him to complete the reading test. He should also be allowed to use a computer for long writing tasks in secondary & I am going to keep pushing for help based on the report I have. To me it sounds like your ds has vision problems but could also be dyslexic too. To find out you will need to pay for an Ed Sych or a PATOSS registed Spld teacher to assess him.

Sunburnt · 20/06/2012 11:09

Hi 23balloons, your situation sounds very similar to mine, but you are a couple of years further ahead. I'm not surprised you complained about your BO, what's the point of giving that assessment and then not providing the report? My worry too is that it never gets properly addressed and instead poor DS has to keep struggling through, thinking he is just stupid. Sad It's so sad that so many children are going through their school years without the problems being picked up.

I've had some really good pointers on here with regards to what's possibly going on with DS and what I can do about it. Lots of reading material too. I'm really interested in the idea of improving DS's diet, cutting out gluten, etc. I'm going to do some more research in that area. I spoke to DS about maybe cutting out gluten for a few weeks as a trial and he seemed happy to give it a go, so that's positive.

DS has got an appointment with the BO later today so I am going to ask more specific questions this time around about DS's reading problems. I am going to follow that up with a meeting at the school to get there view on it as well. After that, I'm not sure yet. I need to get my head around what it will mean for DS and the rest of us in the family. I feel I've had my head stuck in the sand for too long. Sad

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Sunburnt · 20/06/2012 11:17

Thanks Indigo for the tip about barley sugars, will pick some up. I've got a Holland & Barrett across the road from my office so I will stop off in there at lunch time.

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