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Primary education

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9yo DS with reading difficulties

55 replies

Sunburnt · 18/06/2012 21:53

9yo DS is in Y4 and has always struggled with his reading and has never enjoyed it (despite loving stories and being read to). In Y1 he needed some additional support in class (as part of a small group) to work on phonics and general understanding and, although he has obviously improved since then, he still finds reading difficult. Now in Y4, he regularly skips lines and small words when reading, eg it, an, of, as, etc. He also struggles to read longer words if he doesn?t recognise them immediately and will make no attempt to break the word down into chunks. He just makes up a word that begins with the same letter (even if it isn?t a real word). He has been to see a behavioural optometrist who prescribed glasses for close work but nothing else out of the ordinary was noted.

Tonight, he was reading and was skipping words again, reading in a very halting way and clearly struggling. I asked him what the words looked like on the page and he told me that they were fuzzy. This was with his glasses on and the book VERY close to his face. I put the book on his knee, pointed to a word, and asked him to read it to me. He couldn?t. I asked him to tell me what he thought the letters were and he got quite a few of the letters wrong. I then asked him if the words were doing anything and he told me that the words in italic (a few lines on the page) were jumping about a bit. I also asked him why he skipped the small words and he said it was because he didn?t see them.

Over the years, we have had concerns about his general literacy levels. He is in the bottom group at school and struggles to complete tasks in class, his spelling is poor and he finds it difficult to structure his writing (punctuation, order of sentences, etc). However, in CAT tests over the past two years he has scored well above average in all three tests. We have tried to raise our concerns with teachers but are always told that he is doing OK and there is no need to worry, he just needs to work on xyz. At the last parent evening, his teacher asked if we had noticed that he struggles with two-step instructions. When I asked her if we should be concerned about it, she said no.

I?m not so sure. My gut feeling is that it is part of a wider problem. DS struggles to stay on task and focussed with lots of things, whether it?s getting dressed for school, at swimming lessons or doing homework. He lacks confidence and thinks he is stupid, it?s heart-breaking to hear him say this and he is such a lovely, caring and bright boy. I feel we are letting him down and should be pushing more to really get to the bottom of whatever the problem is. I just don?t know where to start or who to push, the school just bat away our concerns.

Sorry again for the long post, thanks for getting to the end. Any advice would really be appreciated.

OP posts:
IndigoBell · 20/06/2012 12:33

It's not true there is no cure for dyslexia. Dyslexia is caused by a number of underlying problems, like vision problems, all of which can be cured.

Foggy brain, poor working memory, slow processing can all be cured.

But it does take an enormous amount of time effort and money to do so.

Re Behaviour Optometrists. There are 3 different ways to treat these vision problems:

  1. Prism glasses
  2. Manual vision therapy (brock string, pencil push-ups etc)
  3. Computer vision therapy (HTS etc)

Computer vision therapy is far and away the most effective treatment. But most BOs do either prism glasses or manual therapy.

mummytime · 20/06/2012 13:33

IndigoBell you are WRONG! There is no cure for Dyslexia, it is caused before birth by the migration of certain cells, it has genetic causes.
I would not even want Dyslexia to be CURED as it tends to be linked to creativity and different ways of thinking.

However there are lots and lots of things which can help. Diet for some, vision therapy or overlays/glasses, auditory traing for others, multi-sensory methods and so on.

IndigoBell · 20/06/2012 14:13

I'm not aware of any research that has proved a genetic cause of dyslexia. Can you link to it?

How on earth could you prove that dyslexia was caused by something that happened before birth? Confused I'm intrigued by how on earth it would be possible to design a study to prove that.

It is not possible to assert that there is no cure for dyslexia. The most you could ever truthfully say is that nothing you have tried has cured child X.

Whereas if 1 child (like my DD) is cured of dyslexia then it is true that there is a cure for dyslexia.

23balloons · 20/06/2012 20:47

Hi, my son is just about coping now so his primary school aren't concerned but as dyslexics get older it gets more difficult to keep up with the amount of reading & written work they need to do.

My HE institute is creative which is why so many dyslexics are there, quite often dyslexics are creative & good at IT. Some manage scrape through 1st year but they cannot cope by 2nd year. Is is so sad & I always think if this was picked up when they were younger it would have been so much better. HE offers a lot of support & funding but obviously only a few get that far.

I am determined to get my son as much help as I can now that I know he is dyslexic. I have followed a few other threads & have bought him some of the vegepa omega 3 & 6 vits & he thinks they are helping his eyes a bit. Interestingly I was reading about convergence in eyes and I asked ds to cover one eye & read then cover the other eye & read & we discovered it is only one eye he has the problem with. When the bad eye is covered the words don't jump. I am hoping he may be a candidate for a coloured lens as a coloured overlay did help initially but then he got headaches.

Good luck I hope some of the things on this thread start to help your son. My ds really needs to be taught to read again from scratch. I am going to try Toe by Toe with him over the summer.

Sunburnt · 20/06/2012 22:09

Thanks 23balloons, I hope you can find all the help you need for your DS too.

I took DS to see the BO today who reassessed DS. He still needs glasses for close work and the BO said his vision was OK (so he can see well enough with glasses). BO said that the tests he had done didn't highlight anything obvious although DS had struggled with a couple of the tests and was a bit below average in them. He agrees that there is clearly something else going on and thinks it's possible that DS is able to mask some of the difficulties with effort. But when he is in a more stressful or demanding environment, eg school, it's harder for him to do that (noise, distractions, time limits for work, etc).

Upshot is that he wants him to attend a vision therapy session/assessment to track his eye movements when reading. That's booked for the end of the week. I'll see what happens with that. In the meantime, I've been on a shopping spree in Holland and Barratt! Smile

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mummytime · 20/06/2012 22:41

One source of research if the work of John Stein's team in Oxford here is a ppt presentation of some of their ideas. One of the many papers on a genetic link is referred to in this press release.
I also found this very interesting paper on the brain. Or this is an easier to understand paper.

IndigoBell · 21/06/2012 07:52

Well, I'm rushing off to school now so don't have time to read all of what you've said - but the 'easier paper to understand' says nothing about it being genetic in origin Confused

It says It is neurobiological in origin and In summary, the brain of a person with dyslexia has a different distribution of metabolic activation than the brain of a person without reading problems when accomplishing the same language task. There is a failure of the left hemisphere rear brain systems to function properly during reading.

Which is exactly what I believe, and exactly why I say it can be cured. It is a neurodevelopment problem which can be cured by neurodevelopment therapy.

Those bits of the brain mentioned in the article are exactly what we've been working on with DD (via Tinsley House therapy) - and that is why her dyslexia is getting cured.

We're only 6 months into a 12 month therapy, so she isn't cured yet. But the differences in her brain between now and 6 months ago are absolutely amazing. In particular her slow processing, working memory, word finding and reading fluency have improved by an astonishing amount.

IndigoBell · 21/06/2012 08:23

Ok, the power point produces an unproved hypothesis that dyslexia may have a genetic origin.

But all of the other points it talks about are what I'm saying. Dyslexics have omega defeciency - which is fixed by omega 3 supplements. They have vision problems - which is fixed by vision therapy. (not blue and yellow filters like he mentions) They have auditory problems - which are fixed by listening therapies.

DD has had all of those problems (and leaky gut). And they're all curable. And we're curing them all.

I'm not changing her DNA. And I don't need to in order to cure her dyslexia.

What I need to do is:

  • cure her leaky gut
  • cure her neurodevelopment problems
  • cure her vision problems
  • cure her auditory problems.

All of this can be done in 1 to 2 years, for 1 to 2k - if you're lucky enough to choose the therapies that work first time round.

mummytime · 21/06/2012 09:03

Sorry Indigo I totally disagree with you, but I'll just avoid threads with you on in future.
But there is another story. I am glad what you are doing is working for your daughter.

IndigoBell · 21/06/2012 09:59

I forgot to say I've also cured my DSs dyslexia. He had more mild dyslexia, eg was slow to learn to read (Y2/Y3 before he could read properly) and his writing and spelling was always very bad. Couldn't write coherently.

But he no longer has any dyslexic symptoms at all. This year (Y6) he has gone from a level 3a in writing to a level 5a. (Which is 4 years progress) Purely because we've got rid of all his dyslexic symptoms and he is now able to spell and organise his thoughts and say what he wants to say when writing.

At the start of this year I was worried about how he would cope with SATs and, more importantly with secondary school, his dyslexia was having a huge impact in his ability. Now it doesn't.

It's just DDs dyslexia, which is really very severe, is taking a bit longer.

You really have nothing to lose (besides time and money) and everything to gain by trying the stuff I've been doing.

mrsbaffled · 21/06/2012 13:00

DS's eyes were fixed in just 4 months of vision therapy. It was amazingly quick progress. :) Our BO says between 4 and 12 months is to be expected. It was really worth doing...
Good luck!

Sunburnt · 21/06/2012 13:21

Thanks mrsbaffled Smile

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oliverreed · 22/06/2012 09:51

Hello Sunburnt, my ds is a couple of years younger than your son but we have exactly the same problem! We have seen a behavioural optometrist and ds also wears glasses for close work. However, he can not multi task, has difficulty with things like learning to ride a bike and is an extremely slow writer. Teachers not concerned as he is a very able reader and quite able at maths. We are now going down the Ed Psych route (privately) as I think it may be some kind of processing issue.

Sunburnt · 23/06/2012 17:07

Hi oliverreed, thanks for your post. Hope you are able to sort things for your DS. It sounds like you are more on the case than I have been. Is it expensive to do the Ed Psych privately? Is there a reason why the school didn't refer him?

I took my DS to collect his new glasses and had another chat with the BO. It was interesting because, despite the new glasses, DS struggled to read their test passage (with his new glasses on, he said it was fuzzy and the words were moving, but not so much that he couldn't make out what it said). The BO explained that correcting his long-sightedness was only one part of the problem, they now have to look at how he interprets what he sees.

I asked my DS if numbers moved around and were fuzzy too, he said that they were a bit fuzzy sometimes but didn't move around. Is that usually the case? I assumed that whatever you read would look the same.

OP posts:
IndigoBell · 23/06/2012 17:13

Are you sure he's a behaviour optometrist and not a normal optometrist?

He's telling you very odd things.

Sunburnt · 23/06/2012 17:18

Yes, I think so. Confused They offer vision therapy.

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RandomMess · 23/06/2012 17:24

If you live nearish Windsor I know and excellent therapist who treats neurodevelopment delay and auditory processing problems and he is (relatively) inexpensive.

The extensive research into neurodevelopment delay treated by working on retained reflexes has shown successful treatment of duslexia and processing issues as well as other things.

Sunburnt · 23/06/2012 17:30

Just double-checked their website, definitely Behavioural Optometrists. Had a moment of doubt there Grin

Thanks RandomMess I'm not a million miles from Windsor so could get there. Could you let me know the details?

OP posts:
IndigoBell · 23/06/2012 17:30

So why aren't they recommending VT for your DS?

With the symptoms you describe he should benefit from it.

Sunburnt · 23/06/2012 17:33

They recommended a VT assessment which was due to be yesterday but had to be postponed. I need to rearrange it next week.

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Sunburnt · 23/06/2012 17:38

On Wednesday, DS had some other tests, some of which was a general eye test but also things like following with his eyes a ball on a stick moving around and red/green backgrounds, shapes, identifying misspelt words, etc. The optometrist said he did OK (a bit below average).

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RandomMess · 23/06/2012 17:41

It's probably a mixture of problems such as vision and auditory processing and other stuff, the BO is only testing one area of it, so if he is under average in all areas then he's going to struggle Sad

Sunburnt · 23/06/2012 17:47

I think I'm going to go into his school too, to have a chat with his teacher and see what her opinion is.

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Sunburnt · 26/06/2012 13:24

Hi all, thought I'd give you a quick update. I'm due to go into the school tomorrow to have a chat to the teacher. Not sure what I should say beyond explaining my concerns about his reading, general literacy and lack of concentration and getting her views. Should I be pushing to see if they will refer him for an assessment or just see what they say (this doesn't seem to have worked previously, though DS has a different teacher now)? Any pointers would be gratefully received. Smile

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Sunburnt · 29/06/2012 13:47

DS has had his assessment for vision therapy. They have recommended a blue/turqouise overlay but no exercises. Is that right?

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