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Premature birth

Connect with others and find premature birth support.

Born at 24 weeks 3 days

253 replies

johnworf · 02/06/2008 20:29

Katherine is now 5 days old and tiny. Really scared about every day and even every hour.

Any one out there experienced anything like this? Would appreciate any advice/support.

Thanks.

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expatmom2be · 05/06/2008 14:33

Johnwork - another due in September mom here who just wanted to add my congratulations on Katherine's arrival and all the milestones she's already hit. What a beautiful and amazing little fighter. I can only imagine how hard this must be for you, but you seem incredibly strong. Please know we are all thinking of you!

StarlightMcKenzie · 05/06/2008 17:12

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Angie77 · 05/06/2008 20:58

Keep strong. My son was born at 27 weeks - not quite as prem but was in scbu for 3 months. Actually I had not thought about it all until I saw your pictures and the memories came flooding back.

Everything with us worked out fine and he is now a healthy active 9 year old. The best thing is to stay positive

kel83 · 06/06/2008 08:54

Hi. I had my girl at 32 weeks weighing 4lb 1oz and even though she didnt need help with breathing she had to have a feeding tube and help with regulating her temperature.
It was really hard leaving hospital without her and having to go to the hospital every day to see her. She didnt feel like ours until she came home at 3 weeks.

She is now nearly 1 and weighs 17lb and doing fine.

Congratulations on the birth of Katherine and stay positive.

emsamess · 06/06/2008 08:59

My son was born at 31 weeks and weighed just 2lb 4oz and like you, I was 41 when Sam was born.

Sam amazed everyone by not needing oxygen and for something so tiny, he soon developed a temper. We were only in SCBU for 6 weeks and Sam weighed just 3lb 15oz when he came home.

The 6 weeks in SCBU seemed to last forever. One lady in there coped by telling herself that she had chosen to leave her baby in there, that it was some kind of nursery.

Sam had a long line and antiboitics. At one point he had splints on both arms and looked so funny waving them about. It was heartbreaking to see my precious baby with wires everywhere, but they have to be there and the feeling of joy when they are removed is so great. Sam did not have CPAP in SCBU but had to have a couple of months ago when he caught broncolities. It looks as scary as hell, but it really is just two very short tubes that go into the nose. Sam also had TPN.

I was not able to breastfeed Sam as he was just too small to suck. However I used to express milk and this was put into his NG tube. Then one day a nurse suggested trying him on a bottle, as it does not take as much effort as breastfeeding. After that there was no stopping Sam, he had the feeding bug.

The SCBU nurses used to say that it went against all of the rules that something so small could knock back a bottle and then demand seconds! Three days after his first bottle, he pulled his own NG tube out and it never went back in.

When you come home you will gets a whole raft of new smells. There is Nuriprem baby milk, which smells like Stilton cheese. There is Dalivit the vitimin drops that are marmite smelling. Then there is Cytrone the iron supliment which does not come out of clothes!

Then there is the struggle for clothes. Buy them from the web. However Mammas and Pappas do a petite petite range which start at around 3lb and they were so helpful. A lady in Mothercare upset me so much. She said 'oh no, we don't do clothes that small, suggest you buy dolls clothes'! I wanted to hang her from a clothes rail and tell her he's not a doll, he's a real boy!

So lets fast forward. Sam is now 35 weeks old, or 26 corrected. He has a stiff valve in his heart and only has 50% hearing in one ear. However don't think for one moment that this causes him any problems. When it's sleep time he can hear a bird sneeze three miles away and he may or may not grow out of the heart problem. Yet it stops him doing nothing. He is now a strapping 16lb 13oz and has almost caught up with the weight for his age group. In terms of development in somethings he is ahead of 'normal' babies, in somethings he is behind. He will get there in the end.

Sorry for the war and peace, but I wanted to write everything I could remember. You will get there in the end, just take each step and hurdle as it comes. Celebrate the highs and share the lows. For Katherine to be on air at only 24 weeks is amazing, she is going to surprise you with how well she can do.

Lots of love to you all.

Em & Sam xxx

maggiemoggins · 06/06/2008 10:26

My son was born just under 29 weeks. He was in hospital till he was able to suck from the bottle (gave up the breastpump after three weeks, felt too much like a cow and the milk was drying up) and was around 5 pounds in weight. He's had no problems apart from being prone to ear infections till he was about 3, but he might have been anyway. He's now 13 years old, small for his age but absolutely fine in every way. The whole time he was in hospital was a nightmare, the worry of it all was horrendous. The health visitor wasn't very experienced with premature babies at home and I found that the check ups we had at the hospital for up to 2 years after the most reassuring. Its really really hard, but the best thing to do once baby is home is to relax and not rush anything and just ignore other babies born at the same time who are now walking etc, yours will too, just a bit later maybe,Once they're at school no one is interested when they first talked etc. I wish I had enjoyed the baby years a bit more, also wish I had joined a premature baby and mothers group - that would have been great. You are so lucky having the internet with its resources for clothes and advice etc, it wasn't there 13 years ago.

johnworf · 07/06/2008 23:54

Hi all, sorry I haven't been around for a couple of days. Thanks for your stories - they are always an inspiration to me

Katherine is doing as well as can be expected. She lost weight (went down to 600gms) but is now back up to her fighting weight of 1 lb 6 oz (in old money).

Nurses are happy with her progress.

I had my first hold with her yesterday on my chest and let me tell you....scared the hell outta me! But she loved it!

She's off everything apart from the antibiotics and the ventilator and the usual b/p, heart monitor stuff. I've got some more cute pics now she's filling out so I'll post some pics tomorrow.

Yep, I'm still on that rollercoaster of emotions at the mo but it does get a bit easier as the days wear on.

She's taking 2.5 ml of milk per hour but that's going up 1/2 ml each 12 hours. And guess what? She had her first big poo today all black and green and stuck to her legs and back. So glad the nurse saw to THAT one

I know I am lucky. There is a baby in there born to a gestational diabetes mum (like I was) and weighed in at a mighty 10lbs. Cord wrapped around it's neck and inhaled meconium and is more poorly at the mo than my scrap of a baby...so sad...

Will check in tomorrow hopefully if I'm not snoozing on the sofa :d

OP posts:
BoysAreLikeDogs · 08/06/2008 00:17

JW, thank you for the upday, I am sure that you are very busy [understatement]

Katherine sounds a feisty one

johnworf · 08/06/2008 01:41

She is indeed a feisty one. She keep kicking off the sensors and monitors! Little bugger already

Keep looking at all her clothes I bought and realise she'd fill just one leg. Not long though now and she'll be eating her way around the fridge - like my others do!

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mumonthenet · 08/06/2008 01:45

just caught up with this johnwolf.

congratulations on Katherine's arrival even if it was a little earlier than planned. She looks and sounds like a little toughie.

But what a rollercoaster for you. Hope you can start to relax and enjoy her soon!

rascal1979 · 08/06/2008 08:55

Hi Johnworf

My DD was born at 30+6 but was IUGR so only weiged 2lb 1oz. She was born at St Mary's in Manchester (is that where Katherine is?) and the staff were amazing. We were transeferred after 10 days to a local hospital and missed St Mary's soooo much. We were in for 9 weeks and a day altogether.

The best advice I can give is to talk to the other parents in the unit and through your experiences you will offer eachother the best support. Unless you have /are going through the SCBU experience you can not understand how it feels. Other SCBU parents do and I found talking to them reallyhelped me. I've kept in touch withmany of the mums - actually going to the christening of one baby today!

Take each day at a time and don't get hung up on the progress of others - difficult not to but it wil send you mad! - I spent many a day in tears because someone elses baby had done something minute but it seemed monumental at the time.

DD is now coming up to 6mths and at just over 9lb is still tiny - even SCBU say she is tiny and they are used to small babies! But you know what? she is just PERFECT and size isn't everything.

Katherine sounds like a little fighter and I wish you all the very best xxx

johnworf · 08/06/2008 16:20

Hi rascal1979. Yep, she's in St Marys at the mo and they are amazing in there. I've made a couple of friends with the mummies and daddies in there (afterall, we're all in the same boat of a muchness). It's good to chat and see how their little ones are doing.

Couple more pics from today for you all.

Btw, she's doing just fine and stepped up to 3mls of milk today!

Huzzah xxxxx

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KashaSarrasin · 08/06/2008 17:07

So glad to hear she's doing well Johnworf. The pictures are amazing, thank you for sharing them with us!

Personanna · 08/06/2008 18:14

Sounds like she is doing amazingly well - so pleased for you that you have been able to hold her so soon (although it probably felt like an age!!) Great to see the pics too! x

rascal1979 · 08/06/2008 18:27

Hi Johnworf - St Mary's is THE best! I was up there on Friday to visit with my little one. Unfortunately we were transferred after only 10 days as babyrascal was 'too well' and her incubator was needed for a more poorly baby.

Hope Katherine continues to go from strength to strength. I remember when babyrascal was on the 1/2 ml increases - soon she was on 60ml per feed!!

zippitippitoes · 08/06/2008 18:31

congratulations..what a little treasure

hope katherine continues to do so very well

you will certainly have your hands fuill with teen boys and a tiny baby

AngeG · 08/06/2008 22:10

Sounds like she's doing really well. Fantastic that you've been able to have you first hold. I still remember that first cuddle with DS in SCBU.

Loving the pictures of her with her Daddy. Thanks for sharing them.

How are you doing? How are things with DH now?

mummylight · 08/06/2008 22:46

im new on here but im lost!!my beautiful son has died he was 21 weeks+3. Weighed one pound nd was 29 cm. I apparently caught an infection that caused me to go into prem labour. Because i had 2 c sections before i had to give birth to him vaginally , only to be taken to theatre under a general anaesthetic for him to be taken out as they thought i had scar rupture, traumatic experience nearly had laparotomy and hysterectomy nd blood transfusion, nearly died. I cannot believe that no one could do anything to save him! i miss him so very much, the only thing that keeps me going is my husband and my son and daughter.His name is Henry and all the tests they done on me and him are inconclusive. he was free from infection so i was apparently carrying it.! but i also have an underactive thyroid that just 3 weeks ago my bloods were normal but the doc put me back on thyroxine 50mg, why i ask myself . i reckon my body went to overactive thats why this happened!has this happened to anyone else?XXX

bluejelly · 08/06/2008 23:04

So sorry to hear of your experience mummylight. I have no experience of these things but just wanted to respond and say how sorry I am to hear of your loss.

bluejelly · 08/06/2008 23:07

PS Mummylight, it might be a good idea to start a new thread if you can so that people can advise and support you AND support the original poster without confusing things. I hope that makes sense, it is confusing when you are new here!

justjules · 08/06/2008 23:09

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Message withdrawn at poster's request.

emsamess · 09/06/2008 08:42

Wow Johnwolf, Katherine really is doing well. I checked Sam's dischage papers from the 1st hospital (he was in 3 different Neonatal's due to lack of beds locally) and at 32 weeks correct (5 days old) he was only taking 2ml every 2 hours. So for Katherine to be taking more than that at her gestation is amazing. It won't be long before she fits those clothes.

johnworf · 09/06/2008 09:53

hehe@emsamess I do hope that the clothes will fit her very soon and she's now guzzling 3.5 mls an hour so hopefully my breast milk will convert into liquid lard on her

mummylight my heart really goes out to you and your family. What a horrendous time you and your DP have had. I really do not know what to say......they questioned me having an infection which irritated my uterus, causing premature labour. Nothing conclusive and had no symptoms.

What I'm trying to say, very clumbsily, is it's easy to blame yourself. God knows, as a mum, we all do it, but don't beat yourself up and take the guilt laden route...

I've had a few traumas with DH over the weekend and I think we're both feeling the strain; tiredness, travelling, juggling DSS and work. Still, other people do it and I'm sure we'll master it...eventually. We've drawn a truce for the time being and agreed to focus on Katherine and Peter who need us united and not apart...so for the time being, that's the state of play.

On a lighter note, the tickets for Radiohead gig came on Thursday for end of June and I'm really looking forward to a night out. It's not for another 3 weeks but it's going to be our little treat (for my b'day and our wedding anniversary beginning of july)

ROCK ON!

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mummylight · 09/06/2008 21:08

thank you bluejelly and johnworf for your kind messages! words cannot describe my loss, and i am just trying to find an explanation for what happened!but i have to face facts i might never know. I feel a failure as a mum!

johnworf · 09/06/2008 21:26

mummylight you haven't failed Please don't feel you have. You've already had a tough enough time without giving yourself a flogging.

JW xxxxxxxxx

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