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Premature birth

Connect with others and find premature birth support.

Reduced growth - told to give birth any day to under 3lb baby. Anxious

64 replies

AnxiousKeziah · 04/03/2015 13:03

Hi,
Name changed but am a regular. Have a 3yr old ds and expecting ds2 in mid May. But due to reduced growth and uterine artery issues I have had steroids and told be prepared to deliver any day I go to hospital, or if I concerned about movement to go in. Baby estimated at 2lb 7oz currently at 29 weeks.

Very anxious.
No idea what to expect. See anaesthetist next week and scan next with consultant. Not had a your of NICU offered yet.
Am very worried about going home 2/3 nights after a section with a GA ( which had last time and home after that timescale) and not being near the baby. And not feeling great.They are always so short of beds on post natal ward and they do not have accommodation for parents like other hospitals. But it is my nearest - so 30mins away.

Really want to feed baby. Had delayed lactation with first dc so was already a concern. Do they promote this or offer practical help? Thanks.

Really hope can get a few more weeks. If results on scan stay same or improve told will have to deliver at 34 weeks latest, if any decrease in growth or worse PI function will deliver next week.

OP posts:
YouAreMyRain · 13/03/2015 09:41

I didn't like the hospital breast pumps that they loaned out. Our NICU and SCBU had lovely professional quality Medela ones that cost ££££, over £1000! The best option for me was to hire an identical one from Medela I think it was about £30 a month, I got a discount using a code from the NICU.

AnxiousKeziah · 13/03/2015 12:50

Thanks. Just lots of waiting yesterday, no results and scan ( at least) the same. Going back this afternoon for Amnio results and their re formulated plan based on that. The baby is apparently doing too well for the results of Doppler scan ( normal movement and liquid) so suspected chromosome abnormality - which may delay birth. But if no abnormality need a new plan as placenta is insufficient now. Not had growth measured since Tue.

I hope to have a tour of NICU on Monday if we get that far by a specialist feeding midwife. Met her yesterday and felt more reassured about feeding at least - or expressing anyway as baby too small to bf!

Now more anxious than before and just keep crying.

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sebashocked · 14/03/2015 11:47

Oh you poor thing. Hope you get some answers and the awful anxiety lessens.

AnxiousKeziah · 14/03/2015 19:43

Worst results for me T21. Got told news, given a quick scan which shows she same, and told no need to see community midwife as will have weekly scans now. Was on scans every 2/3 days. No need now. Placenta is causing stalled growth and he is not getting enough from placenta but they will not deliver as early now.
Devastated.
No tour of NICU needed even though he likely to go there it is treated differently. Got told you chose not to have an early Amnio so that is your problem in politer terms. We paid for NIPD/Harmony tests that gave us a 1 in about 3000 answer. That is why.
Paediatrician will see us after birth but only to rule out heart or kidney problems. They will not so any checks until birth.

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Crazyqueenofthecatladies · 14/03/2015 22:38

Kes I'm so sorry. You're about to embark on a totally different journey from the one both we and you anticipated. You must feel utterly at sea. But given the friends I know who have buried children because of more utterly devastating (and always fatal) trisomies, Downs is not the worst possible news. Sending you strength and blessings amid your pain and the utter upheaval of everything x

sebashocked · 15/03/2015 11:50

So sorry that the results weren't better. Hope you can find some support from other Downs mums in the coming weeks. Sending a very un-Mumsnet hug.

Kelly1814 · 15/03/2015 11:54

i was just logging onto to try to give some support having had IUGR, then I saw your news. i'm so sorry to hear this, it must be a big shock.

there's a huge aount of lovely ladies on MN who i'm sure can offer support. thinking of you x

AnxiousKeziah · 15/03/2015 12:18

Sorry should have said am devastated as this one has both T21 and IUGR. Growth stalled, all Doppler scans this week show the same: edf in some loops,PI high ( creepily higher in tiny increments) and other things I cannot remember.
Been told will still be premature it is just they will not deliver as soon as they suggested unlike to survive both conditions.
Next growth/Doppler scan is Monday. Agree much worse conditions it is the shocking news of IUGR and T21 in one week that has devastated me.

OP posts:
Crazyqueenofthecatladies · 15/03/2015 19:44

You poor thing, such a huge amount to process and deal with. I hope they're wrong and it's survivable. Thoughts and strength go out to you x x

AnxiousKeziah · 16/03/2015 20:05

Thank you. Scan today.
Delivery this week is an option. Baby under 3lb still. Had a long meeting about risks of delivery versus waiting. Decision likely to be made this week. Had team of 3 in the meeting. It will be an induced labour like my previous one ( that took days). Latest likely to go will be next week.

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Crazyqueenofthecatladies · 18/03/2015 20:10

How are you Keziah?

AnxiousKeziah · 19/03/2015 00:43

Waiting for induction slot. Took long time to deliver my first dc from induction sadly.

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Kelly1814 · 19/03/2015 08:10

i've been thinking of you, please keep us updated, we are all here with you.

AnxiousKeziah · 26/03/2015 01:08

Thank you. Sadly our precious baby son, much longed and waited for was too poorly and we left hospital a few days ago with empty arms, heartbreakingly aching heart and a void that can never be filled.

After years of infertility, failed iVF, a natural miracle was a precious gift. 31 weeks of love, hope, anxiety, longing. The news of how poorly he might be and of a necessary premature birth shocked me so much these past weeks. I went theough every emotion, but I never imagined this outcome though or need to plan a funeral for such a little one. He just made it into 3lb with IUGR after all estimates being a 2lb something little one.

So sorry for this news. Feel free to ask for the post to be removed once read.

OP posts:
saffronwblue · 26/03/2015 01:16

I am so sorry for the loss of your beautiful son. You and your family are in my thoughts.

fairgroundsnack · 26/03/2015 01:26

I am so terribly sorry to hear the sad news about your little boy. Take care of yourselves. We are thinking of you.

QOD · 26/03/2015 01:40

I'm so sorry, terribly sad

icclemunchy · 26/03/2015 01:59

I'm so so sorry for your news xxxx

Dutchoma · 26/03/2015 06:55

Such sad news, prayers.

Trumpton · 26/03/2015 07:10

So sad for you and your little boy.

pushmepullyou · 26/03/2015 07:19

I'm so sorry for your loss xxx

sebashocked · 26/03/2015 09:48

So, so sorry for your loss xx

GunShotResidue · 26/03/2015 10:50

So, so sorry [Flowers]

sparky28 · 26/03/2015 13:39

My deepest sympathy for you and your family x

homeaway · 26/03/2015 13:46

I am so sorry .

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