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Premature birth

Tips/Advice on how to cope please.

365 replies

MultipleMama · 29/09/2013 13:43

I'm having a ELC on 4th October, I'll be 31+3. This pregnancy has been high risk from the start due to being twins but due to more complications; me and one baby, it's been stressful and heartbreaking. I won't go into too much detail and ramble on.

Here's the facts:
T1's has Oligohydramnios, started at 9 weeks. Always up and down.
T1's has SUA and severe IUGR diagnosed at 20 weeks.
T2 is healthy and estimated at 3lbs.
T1 is estimated at 1lb 5oz.
I had an Iron IV at 24 weeks.
Went into preterm labor on Monday. Had magnesium until Friday afternoon and steriods.
I have 4 other DC who are thankfully in school/nursery all week.

I'm struggling to deal with it all and have no idea what I should pack in my bag seeing as I won't be bringing them home. We've had a tour of the wards but it's not really helped.

What should I expect involvement wise. I want to use cloth diapers but no idea where to start for babies that small or even if they're allowed. I plan on calling the NICU but was hoping you lovelies with experience could lend me some tips and advice.

Sorry for the long post! Stuck in a hospital bed has left me nothing to do but think.

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Poppet45 · 01/10/2013 16:55

Sweetheart congratulations! Soak them in because one day, when they're running riot at playgroup, you'll have to pinch yourself to remember them so small and shockingly frail... and it is a real shock. Be kind to yourself. Sending you all strength and a fair wind x x x

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plentyofsoap · 01/10/2013 18:02

Congratulations! It is alot to take in. Remember they are getting the best care and look after yourself too x

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NewToAllThis11 · 01/10/2013 18:07

Have just read this thread, multiple. Congratulations on the birth of your twins. Hope they're doing well and you're having a rest. DS was an IUGR baby but born at 27 weeks due to rubbish placenta. I agree with what pp said about IUGR babies - they are fighters because they've had to be. The consultant who saw me the night before DS was born said that tiny babies are often the toughest. Was certainly the case with DS who was 1lb 7ozs. Good luck and ask any questions about NICU that you want x

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MultipleMama · 01/10/2013 18:16

Thank you all. Apollo was born 1lb 9oz. The most overwhelming thing is his size and how everything just surrounds him. I can't even stroke his hand, I have to pat it. Artemis is a little mover and loves to make faces, I got to hold her :) I never knew how much care and time it took to move her from incubator to my chest.

Is it silly of me to bring a book to read to them? X

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Aldwick · 01/10/2013 18:19

Congratulations - what a lovely update. Best of luck for the next little while - it's sure to be a bit of a rollercoaster but there are lots of people on mn who have been where you are and can offer good advice or just a hand to hold.

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Mama1980 · 01/10/2013 18:28

Congratulations Thanks
My ds2 was born last December at 24 weeks weighing barely 1lb. My pregnancy was extremely high risk and he had thankfully had steroids and mag in utero. He was ventilated, sedated, transfused etc but he came home a few days before he his due date. At 9 months he's now happy and healthy.
Definitely read to them, I read to Alex it was the one thing I could actually do if that makes sense. I read Jane Austen to him Grin
Are you able to have kangaroo care?
Mothercare also sell micro preemie nappies. I use cloth ones now but they were too much hassle in nicu.
Take care of yourself x

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MultipleMama · 01/10/2013 18:46

I've had Kangaroo care with Artemis but Apollo is just too small and fragile to be moving and unsettling him. I've done both nappy changes, well Apollo's is just a weird cloth thing under his butt and draped over his bits...

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TheGirlOnTheLanding · 01/10/2013 18:51

Congratulations! Lovely news. It's so hard when they're in the incubator and you can't hold them. Sending you lots of good vibes and fervently hoping it won't be long before you get to snuggle Apollo too.

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Poppet45 · 01/10/2013 19:55

Beautiful, beautiful names! It is so hard when u cant just cuddle them. I waited 11 days to hold my girl but absolutely read to them. Yours is the voice they know best of all they'll find it such a comfort. Dh read wind in the willows to dd who's called Willow.

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Preciousbabies · 01/10/2013 22:07

Congratulations. Hope mum and babies are doing well.

I had twins at 30 +3 due to twin 2 having severe iugr last December. Their birth weights were 1.3kg (just under 3lb) and 800g (just under 2lb). We were in hospital for 55 days and both went home at the same time. I'd just like to remind you to be patient and reassure you that you will go home at some point. I found that everyone was going home before me and it can be very frustrating. You have reached a good gestation and so they just need to grow and learn to do the basics. The advice given re button up tops for kangaroo care is v sensible. It makes it much easier.

Best wishes

Xx

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ballroomblitz · 02/10/2013 15:00

Congratulations and beautiful names.

Just keep looking at every little achievement or pound put on as a step closer to taking them home. Everyone here understand how it can feel like forever but one day you'll look back at the photos and wonder how they've grown so big and bad.

Best of luck to you and the babies. Hope you're keeping ok too and look after yourself.

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Katekate77 · 02/10/2013 17:12

Congratulations!!!!

In April I had twin girls at 31+3 weeks Via Csection. Do not worry, they will be just fine. Don't pack anything for them at first, just yourself. The neonatal unit will provide the basics for their first couple of days and they will be in snuggly warm incubators with just a nappy on :) mine were 2lb 10 and 3lb 7oz. The little one has Down's syndrome which we discovered may have been the reason for the slow down in her growth. It's all good though Grin after the initial shock of course.

They like you to provide your own nappies eventually so get yourself down to tesco and buy the tiny baby ones ...I don't shop at tesco usually but looked EVERYWHERE and tesco do the tinyest nappies in the land, and they're really cheap.

I'm so excited for you. I know it is scary but although they will be tiny, they are absolutely brilliant on the neonatal units. I had the steroids and mine didn't need any help breathing at all, but if yours do it's usually only for a day or so at this gestation.

I expressed every time I was around them to stimulate production and it came in buckets eventually. They will put your booby milk in their tummy through tubes until they learn to feed but you can also wipe a bit on their lips, they love it! The unit my girls were on provided me with a fantastic pump (I'm sure yours will too) and they'll keep what you express in their fridge so you can go home and rest at night.

You can see them whenever you want! 24-7 and the more skin on skin you have the better! It regulates their breathing, keeps them warm, stimulates your milk, increases their oxygen saturation...etc.

I could bang on all day but I won't Smile if you want a chat or any advice (as I've been in the same boat) I could give you my number...if there is a way on here??

All the best! Xx

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MultipleMama · 02/10/2013 20:25

Thank you, Kate.

All the advice and stories are wonderful to here. Gives me a little hope. I'm getting discharged tomorrow and I'm dreading going home without them. I can't wait to see my DC and spend time with them but I don't want to leave A&A.

Had a little cry this morning, I just felt down that the nurses are doing my job. One nurse told me Artemis was crying last night and it broke me that I wasn't there to comfort her because I was sleeping. Now I just feel useless, and it doesn't help that a few friends sent "thinking of you" cards like I've lost them instead of congratulations. I'm happy and I want them to be happy for me too, just feeling down.

DH is brilliant so upbeat, he's keeping me sane. He's already decorated the outside of the incubators with Halloween stuff. Artemis is such a daddy's girl. She's now on low flow oxygen and we trying her on b/m tomorrow to see if her stomach can handle it, then we'll try latching :)

Apollo dislodge his tube last night (no idea how!) and set the alarm, and freaked me out, I was hysterical until the nurse told me he's fine. And for the first time opened his eyes, and tried to cry! :)

DH brought in homemade Origami Cranes and placed one on every incubator with a little tag saying, "Hi, hope we can be friends. Love, Artemis & Apollo (my dad is the culprit of the squeaky shoes).

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ballroomblitz · 02/10/2013 21:10

Fantastic news about Artemis. Already making strides, good girl. Really good that Apollo opened his eyes for the first time too. Those machines are terrifying when they go off, yet the nurses are so calm. I still get a bit emotional if I hear them on the tv.

Bless you. Of course you're feeling down and most of us get a touch of the baby blues, even if we are able to take the baby home straight away. When you know you they are staying in hospital it makes it worse. I hated returning home to a quiet house with all these 'new baby' cards and no baby. I'm sure your other dc will be thrilled to have you home though.

Honestly I cried my eyes out over the exact same thing. It was like ds didn't feel like he was properly mine and the doctors and nurses were doing the jobs I should have been doing.

Your dh sounds lovely :)

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plentyofsoap · 02/10/2013 21:39

Hope you and the twins are well. Its understandable that you feel tearful it would be strange if you didn't! I can remember feeling really angry/jealous with a nurse over something minor as that was my job to do with my baby,but I was not able to. I cannot even remember what it was now, but I felt like I had failed him in some way. They know you are there for them and my ds and I have a very close bond so the early start did not change that x

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MultipleMama · 02/10/2013 22:37

We're well. Artemis is currently having Kangeroo care with DH while I'm on the loo expressing and typing this!... I swear it's the only place I have a few minutes to myself.

Apollo keeps doing this weird thing with his lips, like he's smacking and pursing his lips. It's only when you touch his chin that he does it and he's yawning, I think, is that a good sign?

Glad to know, I'm not the only one who felt like this. It's really surreal, I'm already a mum but I feel like I know nothing when it comes to caring for them.

Better go, DH will start wondering what I'm doing so long in the bathroom!

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Katekate77 · 02/10/2013 22:52

I didn't realise you'd already had them! Stupid me! Congratulations!!!

How are you all doing? So small but they will be just fine!

It is so hard having someone else care for them but they are getting such good care and you get to mend yourself before they come home, they need you to be strong because they are so little. I had photos of them and looked at them every night and their clothes that smelled of them. I also would leave vest tops that of been wearing and put them in with them to snuggle. They remember and are comforted by your smell Smile

Yes, read to them! Talk to them all the time and touch them if you can't have kangaroo care. I read somewhere that high pitched noises are clearer for them so use your silliest voice Grin

If the unit will let you, take something musical in, we used the "tranquil turtle" from Amazon and play it every evening before you go home, you can continue this when you get them home and they'll find it familiar in their new surroundings- x

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plentyofsoap · 02/10/2013 22:56

Make sure you get some rest though. I over did it after my section so be careful. Give it a few days and you have a routine going, but it sounds like you and dh are doing great!

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YouAreMyRain · 03/10/2013 00:10

Congratulations!! My little one appeared at 30 weeks and is in SCBU too. It can be hard feeling like they are not really "ours" yet.
I saw that you wanted to use cloth nappies, mothercare do some teeny prem nappy wraps. I saw them today. I want to do cloth too but our baby is part of the "dove" research where stool samples are analysed to develop early tests for NEC. I think using cloth might over-complicate this so I am waiting til he is home.

We have just received a TLC bundle of prem clothes for him from "pop n grow". It's a charity that sends clothes direct to the SCBU for your baby(ies) on request. You can google their website and email them (can't do link sorry) or send a facebook message.

Xx

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Poppet45 · 03/10/2013 19:50

Hows the A-Team getting on Multiplemama? And yr DS Youaremyrain?

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MultipleMama · 03/10/2013 20:59

Artemis is doing brilliant. She's now being fed b/m along with the IV. We tried latching. She's licking and mouthing but gets distressed after a few tries. They're having it where I do Kangaroo care and fed her so she can start to associate being fed with breast. She's also in cloth diapers :)

Apollo became unresponsive this morning and his alarm went off twice. He's yet to open his eyes again but he's responding to touch and sound :)

I was discharged this morning so we've set up a routine for As' and other DC. DH still works so giving him the early morning shift :)

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plentyofsoap · 03/10/2013 21:27

Thats great to hear. How are you? My dh continued to work while ds was in and although he became quite zombie like it was a big help that he had the time off once we had baby home. Hope you are starting to feel more confident with them now x

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MultipleMama · 03/10/2013 22:40

I'm okay. Still a little sore downstairs but already back to normal. Currently on our way to visit the A-team (love that nn!)

How's your DS, rain?

Was talking to Artemis' nurse and she said they're hoping to move her to SCBU soon and if she continues to improve she could come home earlier than predicted. It's great news but I don't wanna split them up and have to divide my time even more :(

Brought more milk and a book with me to read. DH wanted to bring Stephen King but I settled with Patrick Rothfuss haha. :)

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MultipleMama · 08/10/2013 16:30

Update:
Apollo has a large PDA but because he's being treated for an eye infection and has a grade 2 bleed they're not risking treating him with iburofen so it's a case of waiting for the bleed and infection to clear up and try then but will pull back his progress as he's loosing weight and having longer periods of apena or do the ligation but that's risky as he's not stable enough. They're in talks about it. And still no diapers just a thing under his bum and over his bits.

Artemis is doing great although now she needs high flow nasal oxgyen on a night and still struggling with her temp. She's now latching and feeding but only for a few minutes due to her lack of patience and short temper! Also we're using cloth diapers with her as I found her with another nasty diaper rash. We can also dress her mainly vest tops but dresses for cute photos :)

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plentyofsoap · 09/10/2013 08:42

Hi multi thanks for the update I have been thinking about how the twins are getting on. Hope you and your dh are managing. It must be a worry with so much going on! They are getting the bedt care. Hope you are looking after yourself.

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