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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Group B Strep/GBS - has your midwife told you about this yet?

51 replies

GBSbaby · 21/04/2005 22:22

What is Group B Streptococcus?
Most of us will not have heard of Group B Streptococcus (Group B Strep or GBS), yet it is a common type of bacteria carried by about one third of us without us usually knowing. It is one of a number of bacteria that normally live in our bodies.

Occasionally, however, GBS causes life threatening infections in 1 in every 1,000 babies born in the UK. Each year, 700 babies develop GBS infections (Septicaemia, Pneumonia, or Meningitis, 100 of these babies die, and 20 babies suffer long-term mental and/or physical handicaps, from mild learning disabilities to severe mental retardation, loss of sight, loss of hearing and lung damage. GBS is also a recognised cause of preterm delivery, maternal infections, stillbirths and late miscarriages.

BUT GBS CAN BE TESTED FOR AND INFECTIONS PREVENTED IN MOST CASES. Medical research estimates that testing, offering intravenous antibiotics to known GBS carriers and women in premature labour would prevent 80-90% of GBS infections in newborn babies in the UK. Testing for GBS saves lives!

How do I know if I carry GBS?
GBS does not make you feel unwell and there are no symptoms (there is no smelly discharge as some midwives claim). The only way to find out if you carry the GBS bacteria is to be tested for it.

The GBS test sometimes used by the NHS (often called an HVS) is not reliable. It give a false negative result half the time (it says you don?t carry GBS when you do!), although if you get a positive result from the HVS test this is accurate.

A reliable Enriched Culture Method (ECM) test is available privately. This test is much more sensitive and has been specifically designed to detect GBS. But the ECM test has only been available in the UK since May 2003 so many health professionals may not yet know of it, particularly as GBS testing is not standard procedure. The test is simply a swab.

There is only one laboratory in the UK that carries out the ECM test at this time, The Doctors Laboratory www.tdlplc.co.uk. You (or your health professional) can ask for a free GBS Screening Pack by calling 020 7460 4800 or e-mail them at [email protected]. There is a £28.00 fee when you return the test for analysis (some health professionals may also charge you for specimen collection). The results take 3 working days and will be sent to your health professional. For more details of the ECM go to ?How Can I Get an ECM Test? on the Group B Strep Support website www.gbss.org.uk. Because the swabs and the results are sent through the post, the test can be done anywhere in the country.

The ECM test is best done between 35-37 weeks. This is because the GBS bacteria comes and goes in your body. Any earlier, you might test negative only to have the bacteria appear nearer your due date. Any later and you might give birth before the result is back!

What if I test positive for GBS?
A positive test for GBS means the GBS bacteria was present at the swab was taken - NOT that you or your baby will become ill. Roughly 230,000 babies are born each year to women who carry GBS and, of these, only 700 develop GBS infection. Carrying GBS is perfectly natural and normal ? you just need to take precautions when giving birth. You should be offered intravenous antibiotics as soon as you go into labour or when your waters break, and then 4-hourly until delivery. A detailed leaflet ?For Women Who Carry GBS? can be downloaded from The Group B Strep Support website for you to hand to your midwife and/or obstetrician.

A negative ECM test result means you do not need to be offered intravenous antibiotics.

What if I can?t be tested?
Testing is not essential. If you have not managed to be tested (or the result is not available), or the less reliable NHS test has come back negative you should discuss with your midwife or obstetrician about your birth plan and being offered intravenous antibiotics if one or more risk factors is present. These risk factors are explained in the short ?GBS & Pregnancy 2 page summary? and more detailed ?GBS: The Facts? can be downloaded from The Group B Strep Support website for you to hand to your midwife and/or obstetrician.

If GBS is so rare, why should I be tested?
Many midwives, doctors, and obstetricians will tell you there is no need to have a test for GBS as it is so rare. Serious GBS infections in newborns are very rare, but testing for GBS will make the chances of your baby being affected even more unlikely IF you find out you are a carrier BEFORE you give birth. Pregnant women are routinely tested for several rare conditions ? HIV, syphilis, spina bifida, Hepatitis B. You are not being paranoid asking for a test ? just taking precautions for the healthy delivery of your baby. Not testing for GBS currently contributes to 120 babies dying or being disabled each year. Around 90 of which might have fully recovered had their mothers been tested for GBS in late pregnancy and given intravenous antibiotics before birth. As there is a simple, cheap test (that doesn?t cost the NHS a penny) that can prevent GBS infections why not take it?

Elective Caesarean sections
Elective Caesarean sections are not recommended as a method of preventing GBS infection in babies as a) they do not eliminate the risk of GBS to the baby as GBS can cross amniotic membranes (although they do reduce the risk), b) the recommended intravenous antibiotics in labour are highly effective and c) there are significant risks associated with Caesarean sections.

If you are having a caesarean there is no evidence to show intravenous antibiotics are beneficial against GBS when a woman known to carry GBS is having an elective Caesarean unless she is in labour OR her membranes have ruptured. And your baby would only need intravenous antibiotics if born prematurely or if there were signs of possible infection in either you or the baby.

If you are having an elective Caesarean AND you are also in labour or your waters have broken, you should be offered the recommended intravenous antibiotics, ideally for at least 4 hours before delivery. Again, your baby would only need intravenous antibiotics if born prematurely or if there are signs of possible infection in either you or the baby. If you feel particularly anxious and want intravenous antibiotics 4 hours before the operation, discuss this with your obstetrician. He/she may be prepared to give them to you.

Oral Antibiotics
There's no evidence that oral antibiotics during pregnancy, including late pregnancy, affect the likelihood or otherwise of a baby developing GBS infection. The only time when antibiotics have been proven to be effective at preventing early-onset GBS infection in babies is when they're given intravenously to the mother as soon as possible after the onset of labour or waters breaking at intervals until delivery.

Don?t have nightmares
Reading about GBS can be pretty worrying and can make you think ?what if ...? (and what ifs can drive us all to distraction). Do please remember that GBS are just one of a number of types of bacteria which normally live in our bodies without causing any symptoms and most babies are not affected by exposure to them. In the UK, approximately 700,000 babies are born each year, of these, 230,000 to mothers who carry GBS and, of which only 700 develop GBS infection. If you are found to carry GBS, this perfectly natural and normal ? you should just take the best possible protection for your baby, should they be susceptible, by having intravenous antibiotics during labour and delivery

My own story?
Two years ago our first baby was diagnosed with meningitis at only 18 hours old. The first time we?d ever heard of GBS was in Group B Strep Support leaflet handed to us by the midwife when our newborn daughter was on a ventilator fighting for her life in intensive care. Isabel survived, but the infection caused permanent brain damage leaving her blind with severe cerebral palsy. At 2 years of age she cannot roll, sit, crawl, stand, walk or even hold her own toys. To read in this leaflet that not only could I have been tested for GBS in the last month of pregnancy but, as an identified GBS carrier, that intravenous antibiotics during labour might have reduced the severity or even prevented her infection was, and remains, simply devastating.

I don?t want to frighten anyone, just reach the parents of that 1 in 1000 baby and spare them the heartbreak we went through with our baby daughter. I would gladly have paid £28 for her not be disabled.

OP posts:
Cristina7 · 21/04/2005 22:26

Sorry to hear about your and Isabel's suffering.

handlemecarefully · 21/04/2005 22:29

A friend of mine had a group B strep baby who spent a week in High Dependency but fortunately made a full recovery without any long term ill effects.

I had the enriched culture method done at the Doctors laboratory for this very reason.

butterflymum · 21/04/2005 23:18

Hello GBSbaby

It is good of you to share your experiences of GBS and provide so much useful info for others.

It is, as ever, tragic that your daughter faced such trauma after the birth and that only then did you learn of GBS. I hope you are able to enjoy sharing with your daughter the things she can do, no matter how basic they seem, for it is these times that you will treasure as she grows and develops into her own person.

I am always saddened that even in 2005, people still have to share such a story as you have to 'raise awareness'. When, oh when, will things change....how many more children will be put at risk and families left to pick up the pieces?

GBS has been highlighted many times in the past on mumsnet as a number of mums have been touched by the issues. Here is a link to a thread with more info (and within it, links to other threads):

other Mumsnet threads on GBS

I hope your post is read by many and that it helps others to understand the issues better.

Take care.

butterfly

alexsmum · 21/04/2005 23:24

just wanted to add a reassuring word...I had gbs in both my pregnancies . I had no drugs in the first pg and intravenous anti-biotics in the second.Both my boys were fit and healthy and continue to be so. Please don't think that if you have gbs , it will automatically result in a worse case scenario.

sparklymieow · 21/04/2005 23:24

I am sure I carry this bug, all my babies have been born premature (35,31,and 33 weeks) Dd1 had Septicaemia at one week old while in SCBU (found out at 13 months when she was diagnosed with CP) we discovered, when she was 2 years old, she was diagnosed with GBS while in SCBU. I was given no antibotics and had no idea about GBS when I had dd2 (when Dd1 was 15 months old).

sparklymieow · 21/04/2005 23:25

also DS has Cerebral palsy

GBSbaby · 22/04/2005 09:20

I want to reassure mums that GBS does only affect a few babies - but even those few might be prevented by a simple swab. Even if you test positive it does not mean that either you or your baby are ill, just that you should be offered antibiotics in labour or waters break just in case.

I'm now pregnant with my second baby and the doctors and midwives are taking my GBS seriously. Although it angers me that testing is not taken so seriously. Why did my daughter have to be disabled to prove that I carry GBS?

Leesa

PS. Glad to hear there are more campaigning mums out there. It's proving to be quite a job raising awareness then reassuring mums on these messageboards. But if I can just reach that 1 in 1000 baby...

OP posts:
GBSbaby · 22/04/2005 09:20

I want to reassure mums that GBS does only affect a few babies - but even those few might be prevented by a simple swab. Even if you test positive it does not mean that either you or your baby are ill, just that you should be offered antibiotics in labour or waters break just in case.

I'm now pregnant with my second baby and the doctors and midwives are taking my GBS seriously. Although it angers me that testing is not taken so seriously. Why did my daughter have to be disabled to prove that I carry GBS?

Leesa

PS. Glad to hear there are more campaigning mums out there. It's proving to be quite a job raising awareness then reassuring mums on these messageboards. But if I can just reach that 1 in 1000 baby...

OP posts:
GBSbaby · 22/04/2005 09:20

I want to reassure mums that GBS does only affect a few babies - but even those few might be prevented by a simple swab. Even if you test positive it does not mean that either you or your baby are ill, just that you should be offered antibiotics in labour or waters break just in case.

I'm now pregnant with my second baby and the doctors and midwives are taking my GBS seriously. Although it angers me that testing is not taken so seriously. Why did my daughter have to be disabled to prove that I carry GBS?

Leesa

PS. Glad to hear there are more campaigning mums out there. It's proving to be quite a job raising awareness then reassuring mums on these messageboards. But if I can just reach that 1 in 1000 baby...

OP posts:
butterflymum · 22/04/2005 09:41

You've hit the nail on the head, GBSbaby. Yes, it only has an effect on a few (relatively speaking), but almost all of these could be avoidable.

It is this knowledge of 'how to avoid' that is not being put to proper/best/appropriate use and why some people do indeed still end up in the 'worst case scenario' - it is for these people that many, like you GBSbaby (and myself), campaign to raise awareness.

Trusting your 2nd pregnancy goes well.

butterfly

claudi2 · 27/04/2005 12:48

Having just come over from another GBSthread, I must admit how shocked I am at the lack of awareness even with doctors. I have had thrush throughout my pregnancy and finally around 20 weeks got fed up with it and went to a doctor in our health center to ask for a swab ... for some reason the midwives couldnt do it. I chose to see this particular doctor, 'cause I knew she had a 6 month old baby, so I thought well versed in pregnancy. I couldnt see her when the results came out, but she told me between 2 doors that I had bacterial vaginitis, not to worry, and here take the antibiotics.

The antib. contained penecilin, so phone friend and doctor in France to ask was it safe and why these. She was the first one to mention Strep B ... so I took it up with the maternity unit the next time I went for an appointment, and they looked up my test results on the computer and then put a sticker in my notes.

What gets me is that they may not have picked it up, had I not insisted that they check my results.

I'm sorry to rant, but I find this lackadaisical attitude unacceptable when I read some of the stories on various threads. I know the chances are staistically small, but still ...

Lolasmum · 27/04/2005 13:02

Thank you for posting GBS baby. I'm sorry to hear about your daughter. I hope your 2nd pregnancy goes well.

I was detected of having Group B Strep at 14 weeks pregnant. The doctor gave me a course of anti-biotics and told me that I would need to have them again whilst in labour. She didn't explain why and I had forgotten about it. Your post will ensure that I don't forget it again! I'm also going to raise it next time I see one of the midwives / doctors.

Thank you.

sparkle · 30/04/2005 20:41

My sister who is pregnant with twins has just found out she is a Group B Strep carrier at 12 weeks and has been given a course of antibiotics to take now as well as planning to have IV antibiotics during labour. Is it necessary to take antibiotics now? I thought that there was no risk to the babies until labour starts or is this wrong?

mears · 30/04/2005 20:45

She only needs antibiotics now if it is in her urine.

sparkle · 30/04/2005 20:52

she saw her GP as she was having quite a lot of discharge and the GP gave her a swab to get a sample. The GP didn't think it would be anything and said to send in a swab if she wanted too. After waiting a couple of days and the discharge almost clearing up, she just swabbed some discharge that was on her loo paper. A bit of an unusual way to get a sample but it did show up positive for Group B Strep.

mears · 30/04/2005 20:56

Doctor might suspect it is in her urine. However, it is most likely just there in the lower rectum and vagina which would be picked up on loo paper. If she does not have symptoms of urine infection, she does not need antibiotics just now.

sparkle · 30/04/2005 20:57

sorry meant to ask why only if it is in her urine?

mears · 30/04/2005 21:02

Because it would then be a urine infection rather than group B strep being detected where is usually is. It is not meant to be in the bladder.

mears · 30/04/2005 21:05

Info from GBS website

(If GBS is found in the urine, this should be treated at the time of diagnosis with oral antibiotics and the treatment repeated if necessary until urine tests come back clear. This is also an indication that the pregnant woman should be offered intravenous antibiotics once labour starts or her waters break.)

sparkle · 30/04/2005 21:05

thanks mears. So there is no risk to the babies even if it is detected in her urine? Sorry for all the questions, I think I am becoming more nervous than she during this pregnancy

sparkle · 30/04/2005 21:06

crossed posts there.

I will get her to contact the GBS support group next week so she can gather all the info for herself.

tammybear · 30/04/2005 21:10

I had GBS when I had dd. I was only tested for it 3 hours before I gave birth, and the results didnt come through til the next day! Luckily though, dd had nothing wrong with her, but definetly think pregnant women should be made more aware of it. It is definetly worth having the test done, just in case. I do feel lucky that I had nothing wrong with dd, as I didnt have the antibiotics or anything as we werent aware that I had it.

butterflymum · 01/06/2005 10:39

Hello

In the past, many of you have asked how to help make others aware of the facts surrounding Group B Strep. Well, for the first time ever, Group B Strep Support Group plan to run a national Awareness Week campaign. This will run from Monday, 26 September to Sunday 2 October 2005.

How can you help? If you visit their site at Group B Strep Support you can click on the Red coloured 'Awareness Week' link in the menu. This will take you to a page with all the details and further links to download posters/forms.

I will post about this on a couple of the Health/Childbirth threads too, as I know some mums there may not read this thread. If you are seeing it for the 2nd/3rd time I apologise, but I want to encourage as many interested mums as possible to help.

Thanks for taking the time to read this...hopefully many of you will feel able to help in some small way.

butterfly

dyzzidi · 01/06/2005 18:03

I saw my midwife yesterday and she automatically ticked the box NO for GBS without asking me. I had to pull her up and make her change is as sadly nothing to do with GBS I m/c last baby and this will be my first child. I had one swab over eight years ago unrelated to PG which showed posititve for GBS. Last time they went through the facts of antibiotics etc but this time it would have been so easily missed as she didn't even ask me the right questions.

I would ask anyone to have the test Mine has not shown up for 8 years but I am still a carrier.

A well informed woman is a well woman IYKWIM

butterflymum · 02/06/2005 13:45

Hello dyzzidi, glad to hear that you were able to correct the midwife...it is such a shame though that you had to in the first place.

Perhaps you could download some info forms/leaflets from the GBSS site and take them along to your next clinic visit - the staff may be willing to display them for you and it would also act as a reminder to them (you may also feel happier having GBS stickers on your notes - you can also get these from the website).

Hope your pregnancy goes well.