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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Group B Strep/GBS - has your midwife told you about this yet?

51 replies

GBSbaby · 21/04/2005 22:22

What is Group B Streptococcus?
Most of us will not have heard of Group B Streptococcus (Group B Strep or GBS), yet it is a common type of bacteria carried by about one third of us without us usually knowing. It is one of a number of bacteria that normally live in our bodies.

Occasionally, however, GBS causes life threatening infections in 1 in every 1,000 babies born in the UK. Each year, 700 babies develop GBS infections (Septicaemia, Pneumonia, or Meningitis, 100 of these babies die, and 20 babies suffer long-term mental and/or physical handicaps, from mild learning disabilities to severe mental retardation, loss of sight, loss of hearing and lung damage. GBS is also a recognised cause of preterm delivery, maternal infections, stillbirths and late miscarriages.

BUT GBS CAN BE TESTED FOR AND INFECTIONS PREVENTED IN MOST CASES. Medical research estimates that testing, offering intravenous antibiotics to known GBS carriers and women in premature labour would prevent 80-90% of GBS infections in newborn babies in the UK. Testing for GBS saves lives!

How do I know if I carry GBS?
GBS does not make you feel unwell and there are no symptoms (there is no smelly discharge as some midwives claim). The only way to find out if you carry the GBS bacteria is to be tested for it.

The GBS test sometimes used by the NHS (often called an HVS) is not reliable. It give a false negative result half the time (it says you don?t carry GBS when you do!), although if you get a positive result from the HVS test this is accurate.

A reliable Enriched Culture Method (ECM) test is available privately. This test is much more sensitive and has been specifically designed to detect GBS. But the ECM test has only been available in the UK since May 2003 so many health professionals may not yet know of it, particularly as GBS testing is not standard procedure. The test is simply a swab.

There is only one laboratory in the UK that carries out the ECM test at this time, The Doctors Laboratory www.tdlplc.co.uk. You (or your health professional) can ask for a free GBS Screening Pack by calling 020 7460 4800 or e-mail them at [email protected]. There is a £28.00 fee when you return the test for analysis (some health professionals may also charge you for specimen collection). The results take 3 working days and will be sent to your health professional. For more details of the ECM go to ?How Can I Get an ECM Test? on the Group B Strep Support website www.gbss.org.uk. Because the swabs and the results are sent through the post, the test can be done anywhere in the country.

The ECM test is best done between 35-37 weeks. This is because the GBS bacteria comes and goes in your body. Any earlier, you might test negative only to have the bacteria appear nearer your due date. Any later and you might give birth before the result is back!

What if I test positive for GBS?
A positive test for GBS means the GBS bacteria was present at the swab was taken - NOT that you or your baby will become ill. Roughly 230,000 babies are born each year to women who carry GBS and, of these, only 700 develop GBS infection. Carrying GBS is perfectly natural and normal ? you just need to take precautions when giving birth. You should be offered intravenous antibiotics as soon as you go into labour or when your waters break, and then 4-hourly until delivery. A detailed leaflet ?For Women Who Carry GBS? can be downloaded from The Group B Strep Support website for you to hand to your midwife and/or obstetrician.

A negative ECM test result means you do not need to be offered intravenous antibiotics.

What if I can?t be tested?
Testing is not essential. If you have not managed to be tested (or the result is not available), or the less reliable NHS test has come back negative you should discuss with your midwife or obstetrician about your birth plan and being offered intravenous antibiotics if one or more risk factors is present. These risk factors are explained in the short ?GBS & Pregnancy 2 page summary? and more detailed ?GBS: The Facts? can be downloaded from The Group B Strep Support website for you to hand to your midwife and/or obstetrician.

If GBS is so rare, why should I be tested?
Many midwives, doctors, and obstetricians will tell you there is no need to have a test for GBS as it is so rare. Serious GBS infections in newborns are very rare, but testing for GBS will make the chances of your baby being affected even more unlikely IF you find out you are a carrier BEFORE you give birth. Pregnant women are routinely tested for several rare conditions ? HIV, syphilis, spina bifida, Hepatitis B. You are not being paranoid asking for a test ? just taking precautions for the healthy delivery of your baby. Not testing for GBS currently contributes to 120 babies dying or being disabled each year. Around 90 of which might have fully recovered had their mothers been tested for GBS in late pregnancy and given intravenous antibiotics before birth. As there is a simple, cheap test (that doesn?t cost the NHS a penny) that can prevent GBS infections why not take it?

Elective Caesarean sections
Elective Caesarean sections are not recommended as a method of preventing GBS infection in babies as a) they do not eliminate the risk of GBS to the baby as GBS can cross amniotic membranes (although they do reduce the risk), b) the recommended intravenous antibiotics in labour are highly effective and c) there are significant risks associated with Caesarean sections.

If you are having a caesarean there is no evidence to show intravenous antibiotics are beneficial against GBS when a woman known to carry GBS is having an elective Caesarean unless she is in labour OR her membranes have ruptured. And your baby would only need intravenous antibiotics if born prematurely or if there were signs of possible infection in either you or the baby.

If you are having an elective Caesarean AND you are also in labour or your waters have broken, you should be offered the recommended intravenous antibiotics, ideally for at least 4 hours before delivery. Again, your baby would only need intravenous antibiotics if born prematurely or if there are signs of possible infection in either you or the baby. If you feel particularly anxious and want intravenous antibiotics 4 hours before the operation, discuss this with your obstetrician. He/she may be prepared to give them to you.

Oral Antibiotics
There's no evidence that oral antibiotics during pregnancy, including late pregnancy, affect the likelihood or otherwise of a baby developing GBS infection. The only time when antibiotics have been proven to be effective at preventing early-onset GBS infection in babies is when they're given intravenously to the mother as soon as possible after the onset of labour or waters breaking at intervals until delivery.

Don?t have nightmares
Reading about GBS can be pretty worrying and can make you think ?what if ...? (and what ifs can drive us all to distraction). Do please remember that GBS are just one of a number of types of bacteria which normally live in our bodies without causing any symptoms and most babies are not affected by exposure to them. In the UK, approximately 700,000 babies are born each year, of these, 230,000 to mothers who carry GBS and, of which only 700 develop GBS infection. If you are found to carry GBS, this perfectly natural and normal ? you should just take the best possible protection for your baby, should they be susceptible, by having intravenous antibiotics during labour and delivery

My own story?
Two years ago our first baby was diagnosed with meningitis at only 18 hours old. The first time we?d ever heard of GBS was in Group B Strep Support leaflet handed to us by the midwife when our newborn daughter was on a ventilator fighting for her life in intensive care. Isabel survived, but the infection caused permanent brain damage leaving her blind with severe cerebral palsy. At 2 years of age she cannot roll, sit, crawl, stand, walk or even hold her own toys. To read in this leaflet that not only could I have been tested for GBS in the last month of pregnancy but, as an identified GBS carrier, that intravenous antibiotics during labour might have reduced the severity or even prevented her infection was, and remains, simply devastating.

I don?t want to frighten anyone, just reach the parents of that 1 in 1000 baby and spare them the heartbreak we went through with our baby daughter. I would gladly have paid £28 for her not be disabled.

OP posts:
butterflymum · 01/07/2005 11:35

Just thought I would post to remind everyone about the forthcoming awareness week. I am sure GBSS would welcome some Mumsnet mums helping raise awareness.

butterfly

butterflymum · 25/07/2005 12:25

I hear from GBS Support that they have been receiving a good number of enquiries from people offering to help support their forthcoming awareness campaign and so thought I would post a big 'Thank You' to any mumsnetters who have contacted them.

If anyone else thinks they would like to help, I am sure they would gladly welcome whatever input you can give - why not contact them and find out how you could help raise awareness in your own Ante-Natal Clinic or Local Hospital.

butterfly

butterflymum · 25/07/2005 12:28

Important

Oops, forgot to say, they really need completed forms returned today so maybe a phonecall to them to check what is needed would be best then send in the form (available on their website) by email.

butterflymum · 31/08/2005 16:26

Hello

Awareness week is almost here and I have just heard that Group B Strep Support has launched a petition calling for the Government to ensure sensitive testing for Group B Streptococcus carriage is routinely and freely available for all pregnant women in the UK and that relevant health professionals should be fully informed about GBS so they can advise expectant parents in their care.

I think this is excellent. Routinely and freely available testing and fully informed health professionals - what could be better.

If you agree, please sign their petition . Also, why not forward this link on to others who might be interested, the more signatures the better ! Please note, when signing this petition you must give your FULL address - Downing Street accepts e-petitions, but won't accept names with partial or no postal address.

It would be great if any interested mumsnetters felt able to support the issue/s in this way - I certainly intend adding my signature.

butterfly

Mirage · 31/08/2005 18:05

Thabks Buterflymum-I've signed.

butterflymum · 01/09/2005 10:09

Thank you, mirage, that's great .

hunkermunker · 01/09/2005 10:32

I've signed too.

faeriemum · 03/09/2005 20:43

i signed, as i was only told i had gbs when i was rushed to hospital with bleed....but ds born healthy....they wouldnt have told me if i hadnt of had a scare though...tsk tsk

moimoog · 06/09/2005 20:22

hi, i'm 23 weeks pregnant with my 3rd baby. I went into my midwife unit over the weekend with a small spot of browny blood in some discharge, the midewife took a urine sample and said it was clear, but shae also took a swap aswell to get tested, I got a phone call from the hospital saying I was to collect these antibiotics for GBS, and now I am worried what effects this will have on my baby, will I need to get more antibiotics when I go into labour?

butterflymum · 09/09/2005 12:14

Thanks, faeriemum, and glad that everything went well in the end.

Moimoog, please do not worry yourself. I have copied a bit of another poster's paragraph from further down this thread for you:

"Oral Antibiotics
There's no evidence that oral antibiotics during pregnancy, including late pregnancy, affect the likelihood or otherwise of a baby developing GBS infection."

You can be checked again for GBS at 35-37 weeks (a private test is available - see earlier in post) and, if necessary, be given antibiotics during the labour. Why not have a look at the GBS suport website and also, as there is a national awareness week about to start on Monday 26th September, why not ask your midwife what the hospital policy is on treatment etc.

butterfly

21stcenturygirl · 09/09/2005 17:08

Bump - for the petition We need as many signatures as possible. Please sign it now. Thanks.

beckybrastraps · 09/09/2005 18:21

moimoog - it seems scary when you read all this stuff, but really, those of us who find out about it are the lucky ones. Loads of women carry it without knowing. I had GBS detected on a swab at 5 weeks, which left me a long time to worry! I had antibiotics then, IV antibiotics during labour - really straightforward, every 4 hours - stayed in for 48 hours for observation of dd, and it was all fine. I did however have a huge GBS alert sticker on my hand held notes, along with my rhesus negative alert sticker, and ended up feeling a bit like Typhoid Mary. Still, better that than not getting the treatment.
Just remember - you're in a much better position than all those women (and their babies) who haven't had the test yet carry GBS.

pacinofan · 09/09/2005 18:54

I found out I had GBS 12 hours after dd was born. I had no idea how serious it was, but quickly got a pretty good idea when I realised how concerned the consultants were to ensure dd had not acquired it also. Thankfully she was fine, but I do feel quite angry that women are not routinely tested for this (or if they are, I wasn't). I, too, am rhesus negative and currently 7+4. Not sure how this affects things really but hopefully my midwife can clarify things for me at my booking in appointment.

beckybrastraps · 09/09/2005 19:29

The rhesus negative thing was completely unrelated. I was just moaning at the number of warnings I had to carry around. Please don't worry about the rh-, and this time, now you know about the GBS, you'll have the antibiotics during labour and that will be fine too!

pacinofan · 09/09/2005 20:21

Thanks Becks, feel a bit more reassured reading your post. There's seems to be so much to worry about when you're pregnant, but I AM a natural worrier and keep having to tell myself to relax a bit! Thanks again,

goldenoldie · 16/09/2005 13:04

I asked midwife about this and she said that all women are screened for this with a urine test? Does that sound right to you?

butterflymum · 25/09/2005 17:10

Awareness Week starts tomorrow (Monday 26th September). Watch out for articles in the press/on TV or have a read at this one on the BBC Health page .

Goldenoldie, I understand that whilst GBS can be detected in urine tests, in the latter stage of Pregnancy (best at 35-37 weeks) the privately available enriched culture method (using swabs) or the NHS testing (again using swabs) would be the more usual method. Why not have a read at the info available on the GBS Support website for more information. Hope this helps.

butterfly

whoozit · 28/09/2005 15:06

my ds is now 7 months old, he's perfectly healthy thankfully. Now starting to think about having another. However, I went into hospital at 36 weeks as I thought my waters had broken. They monitored me and took a swab to ascertain if it was my waters that had broken. I was due to be induced that very night anyway. All went ahead and my ds was born after 21 hours!!! but worth it. It wasn't until two days after he was born that a midwife passed over an information leaflet and advised me that I was positive for Strep B infection but no fuss was made and neither me or my ds were given any antibiotics. I had never heard of it before. I received a call from GP about 4 weeks after urgently telling me I had to come in as he had results of the swab and was very shocked when i told him that i had already had my ds!!! About 2 months later a friend of friend was telling me she had lost 2 babies to this infection. And only after reading the GBS support group website today I've realised how serious this seems to be and I'm now worried about the possibility of having a second child. Being allergic to penicillin as well i wonder has anyone heard of another antibiotic and the likely hood of crossover in a second pregnancy. I'm quite scared and not sure I really understand everything about Strep B....

butterflymum · 29/09/2005 00:02

whoozit, please don't be scared. The postings on various boards about GBS are intended to educate people and give them more informed choice. You should be tested again in any subsequent pregnancy (optimum time seems to be 35 - 37 weeks). It is my understanding that the NHS test can produce false negatives but that more accurate private testing is available. If Strep B is present then and taking into account any other relevant factors/risk assessment, you should be given antibiotics during labour (I understand, from what I have read, that clindamycin can be used for those allergic to penicillin).

Please do consider giving Group B Strep Support a call to discuss these various issues and your fears, that is part of what they do. They will hopefully reasure you.

butterfly

whoozit · 03/10/2005 09:58

butterflymum....many thanks for your reply. think I was a bit freaked out by what I had read!! spent hours trawling the web for more info and feel a bit better now xx

MummyToToby · 08/06/2006 16:17

thought id give this thread a new lease of life as i had not heard of GBS until yesterday. can someone tell me if having thick discharge is a symptom or not, there seems to be a bit of debate over this.

xmelx · 08/03/2010 18:00

Hi, i know this is an old thread but was hoping someone could could give me some advice, my first DC i had GBS (wasn't aware untill he was born) he was very ill in intensive care, thankfully he made a full recovery.

I am pregnany with DC2 and im so worried as the urine infection has already started im only 5 weeks and i heard that is a sign, i knew i was a carrier but was hoping it wasnt going to be as bad.

please anyone with advice im so scared and upset.

x

ArthurPewty · 08/03/2010 18:07

This reply has been deleted

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first1 · 08/03/2010 18:08

I've heard of this but only in passing, not really sure what it is or how I would know if I have it? I'm 30 weeks and have had numerous vaginal swabs throughout this pregnancy, but no mention of GBS in any of my results. Is there a specific test?

xmelx · 08/03/2010 18:08

i have a swab due tommorow :-(