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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

IVF pregnancy measuring 3 weeks behind.

56 replies

RoseWinter · 21/02/2025 10:14

Hello all,

Sorry this may be a long one. Not only have a grieved the entire week but now I'm being left in limbo and don't know what to do.

After going through my first IVF cycle ever and actually getting a positive pregnancy test, I had a viability scan at 6 weeks 4 days and unfortunately it was bad news. There was a gestational sac there and a tiny yolk sac but the IVF clinic said at this stage they would expect to see a fetal pole forming and a flicker of a heartbeat. There wasn't anything detected. They told me to prepare for the worst. They then referred me on to my EPU 2 days later and they confirmed exactly what the IVF clinic said. They could see degeneration of the pregnancy tissue and pockets of blood, though I haven't bled yet and I feel no pain. However, due to their strict policies and procedures, I was told by EPU I have to come back in a weeks time for another scan because they need to rule out any life before they can give me options for a medicated or surgical miscarriage management, if I haven't miscarried myself by then.

A week later, so yesterday, I had my 2nd scan at the EPU by different people. The nurses were both confused by IVF date calculations and because they could see a clear yolk sac and the forming of a fetal pole in the gestational sac they calculated me to 5 weeks pregnant as what they saw on the scan was exactly what they'd expect to see for a 5 week pregnancy. I kept mentioning that the IVF clinics dates can't be wrong because it's such a controlled process and they know the exact dates I've had the embreyo transferred so really yesterday I should be around 8 weeks, but they kept saying they're calculating me to 5 weeks according to the growth they've seen on the scan and they can't offer me anything and I have to wait another 2 weeks for another scan and remain on my cyclogest pessaries.

I then went back to the IVF clinic and spoke to them about everything I'd been told by EPU. They are concerned that EPU just don't understand IVF processes and dates and the language they're using during my scan is potentially giving me false hope because measuring 3 weeks behind an IVF pregnancy is too small and too slow progress. IVF clinic remained confident that I do need to prepare for a miscarriage, but EPU were telling me they're not concerned because they've seen what they'd expect to see in a 5 week pregnancy. But I'm not 5 weeks, I'm 8 weeks!!! I really don't know what to do here. I'm worried that there are abnormalities with this pregnancy and I'm being made to wait whilenit lingers on and I potentially miscarry later on in my pregnancy. We desperately want a baby but IVF clinic are telling me this is a loss and will result in a loss I've come to terms with that, but EPU are telling me to wait and it looks fine. I'm also being kept on cyclogest pessaries but I think this is delaying the miscarriage process. IVF clinic and EPU aren't talking to each other and I'm having to go back and forth to them both.

Has this happened to anyone else? What did you do?

I had eggs collected on 10th Jan, 5 day fresh embreyo transfer on 15th Jan and then positive pregnancy test on 27th Jan. Viability scan was 11th Feb, then rescan yesterday 20th Feb, next rescan is 6th March xx

OP posts:
JC03745 · 25/02/2025 13:25

OP- I'm so sorry to read your update. Sorry if TMI. There normally is a fleshy part of a different colour, even at this gestation. If you soak it in saline or salty water, clots will eventually dissolve into the water, whereas products won't.

As I said in my earlier post, if you take the loss to the EPU, they will do testing on it. You can get sterile pots from a pharmacy. They won't do genetic testing, unless its a 3rd loss, but at least do histology to check its not a molar pregnancy and to clarify there was a foetus there. Obviously, is a personal choice what you do though. This site has some very useful advice, along with a phone line if you'd like to speak to someone Flowers

www.miscarriageassociation.org.uk/

RoseWinter · 25/02/2025 14:27

Feliciacat · 25/02/2025 11:44

Hi Rosewinter. I’ve read all your posts and I’m so sorry for what you’ve been through. Especially with the false hope from EPU. I went through almost exactly the same thing a few months ago where EPU said I’d be ok but I just knew I wasn’t. I was measuring at just under five weeks but I was six weeks. As you say, with IVF you should know the exact dates.

When I miscarried, I did already have a scan booked with the EPU for reassurance after having gone to them already. I let them know I’d miscarried and they kept the reassurance scan in the diary but it was to check I'd passed all the tissue. So if you’ve not already, I’d let EPU know so they can still scan you on 6th March (I think that’s when you said your scan was) but they’ll know it’s to check for tissue rather than to check for growth.

I hope you don’t need pills or d and c to clear any tissue but it’s really important to access that help if you do need it. Good luck and I’m really sorry for your sad loss xxx

Hey love,

Thank you for reaching out and sharing your experience, I really appreciate it.

I rang the EPAU first thing this morning and they've said to keep the appointment in the diary to check all the tissue has left my system. I'll need to do a pregnancy test a week after that too, to be sure I'm negative.

Today I've woken up calm but feeling very lost and empty. Not sure when I'm supposed to start feeling better really, in my mood abd emotions. I'm just so clingy with my partner right now and hoping for better days to come.

I hope you're ok and you were able to overcome your loss and experience. It's such a difficult thing to go through.

I think I may have past a decidual cast yesterday along with the pregnancy itself.

OP posts:
RoseWinter · 25/02/2025 14:32

Thank you for reaching out @JC03745 Unfortunately, I didn't keep the loss. The first few clots happened while I was sat on the loo so went straight into the loo. The final big mass that came out, I took a photo of it and I believe it was quite possibly a decidual cast. I researched it and the shape of it was quite a triangle, it was big and fleshy. I took a photo of it incase the hospital want to see. Spoke to EPAU today and they're keeping my appointment to check all of the loss is gone now.

OP posts:
Goodday4789 · 25/02/2025 15:57

@RoseWinter I was bleeding heavily and had two large clots when I went to hospital, the stay over was to monitor me because of the amount of blood. I've had 3 sets of bloods now and my Hcg has reduced significantly, however EPU won't discharge me until it's below 5 so need to go back in a week.

Yes definitely, the emotional side is torturous, my ivf clinic have been amazing though and so supportive, hope you've had the same x

RoseWinter · 25/02/2025 20:02

Oh love, I hope you're over the worst of it now and able to look forward. Hoping your HCG bloods go down to the right levels needed.

I feel like utter sh*t today. I want to be me again and want to smile and have hope but I can't help feeling so empty and low. We'll not be doing IVF again so I'm praying with everything in me that the natural way works. IVF clinic have been brilliant and I've had counselling through them too but think it may have been too soon as I can't shake how sad I feel about it all.

OP posts:
Feliciacat · 25/02/2025 21:27

It’s terrible what you’ve gone through. It’s probably sensible to take a break from ivf and ttc so you can have space to grieve your loss.

Did you get told that there was a particular reason why you needed ivf? Maybe you can use the time between now and when you next ttc to get treatment for whatever it is (such as surgery for endometriosis). If it’s infertility of unknown causes then yes, hopefully the natural way will eventually work.

For now though, take one step at a time. Also, just a warning I wish I’d had; I found that going for my scan to check everything was gone was really really upsetting. So book a few days off for that and get your partner to as well. I’m very sorry you’re going through all this pain xx

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