Well where do I start..
at a 10 week scan (I went as I had symptoms of miscarriage) I have learnt that there is too much fluid behind my babies neck (NT) and abdomen. Approximately 3.6mm behind neck (3.5 is cut off) and 0.8mm around tummy (0 tolerance).
I was whisked off to a room after my scan where I was told that this could indicate a chromosome abnormality or a heart defect or some other type of problem. My world shattered. I feel completely broken after 3 miscarriages already.. this is the furthest I had got since them. This baby is so desperately wanted and I feel so heartbroken that there could be something wrong. I feel so guilty.
I have been rushed through to see foetal medicine in 3 days to have further scans and a NIPT test. I know this is not 100% accurate and I know that I may have to have the amnio test, which I know has a risk of miscarriage, another worry to add into the mix.
I dunno, my gut feeling is telling me something is wrong. If it was just the neck fluid I think I could be more positive - but around the abdomen too is not filling me with confidence.
I am a huge worrier anyway by nature, and I know that if there was something wrong with my baby, the guilt would eat away at me but I don’t think I could go ahead with the pregnancy. I don’t feel it would be fair on the baby. My mind is racing with these types of thoughts.
has anyone at all had a positive outcome with this type of thing? Even if your outcome was negative, I would rather have all the facts.
from one very worried Mommy xx
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Chronicworrier23 · 21/07/2023 11:30
Chronicworrier23 · 21/07/2023 11:51
@craigth162 im sorry to hear that and I hope your little boy is ok.
I’ve heard that they can be quite negative and I’ve read that on these forums too. I guess they don’t want to give you false hope but I have read that consultants encourage termination and then mothers didn’t choose to and the baby came out fine!!!
craigth162 · 21/07/2023 12:00
Thats exactly my experience qnd my friends. She was told at 12 weeks her baby definitely had major chromosome issues possible edwards or pataus. He is 100% fine.
My boy has hydrocephalus but again i was told chromosome issues etc and there are none.
Im not saying dont listen to them but try to have balance. I asked to speak to neonatal dr to ask more about the baby than the fetus if that makes sense.
Even if you say no to termination they will keep asking right up till birth. Make the decision you feel is right for you and stick to it.
Chronicworrier23 · 21/07/2023 11:51
@craigth162 im sorry to hear that and I hope your little boy is ok.
I’ve heard that they can be quite negative and I’ve read that on these forums too. I guess they don’t want to give you false hope but I have read that consultants encourage termination and then mothers didn’t choose to and the baby came out fine!!!
shieldmaiden7 · 21/07/2023 12:24
My son was diagnosed with club foot at 20 weeks scan. We were sent to fetal medicine who couldn't be 100% sure how bad it was as he was crossed legged in my pelvis and suggest a termination. I refused so they kept scanning me to monitor it, at 28 weeks he had turned and the discovered his feet were actually perfect but they wouldn't admit it directly then decided he was to small so scanned me fortnightly to monitor that as well, checking his feet every time. Due to his possible foot and small birth weight they tried pushing C-Section on me. I had had multiple natural births before hand so refused.
He was born with perfect feet weighing 8lb 13oz so was they were incorrect for me.
I hope you have a more positive experience.
caffelattetogo · 21/07/2023 16:43
Yes, I had similar from a combined screening. Consultant in fetal medicine pushed me to terminate before we had the amniocentesis. We refused. Baby was fine.
caffelattetogo · 22/07/2023 10:03
Even that can only tell you so much, not how severe any conditions might be. It made me really wary of their judgement, to be honest. I told them at the start that it was an IVF pregnancy, likely my only chance to have a baby, and they were still incredibly negative. As it is she's 100% healthy.
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Valwithhope · 07/09/2023 08:18
@Unexpectedlysinglemum that's so fantastic I'm so happy for you! I really hope and pray our baby will be fine too. I'm so much more reassured after our consultation and the CVS. I just didn't feel the consultant being negative about this and he already booked me.in for 20 weeks scan so I'm really trying to be positive the CVS will come back clear 🙏🙏
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