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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

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Original poster

CVS hand hold / experiences

32 replies

Jaggedbubble · 02/04/2021 22:39

Hi everyone

I'm here really for some support, or if people are willing to share their experiences.
I don't have much support in real life as we are keeping this pregnancy secret until hopefully a happy outcome.

So a brief history, my DD1 was born in 2016, she was very poorly but this was not picked up on her scans, only came to light after she was born. She had a fair few problems caused by a very rare genetic condition and she died at 10.5 months old. I miss her terribly.

We had further genetic counseling and after she died we discovered both me and DH are carriers of this condition and we had a 1/4 chance of a future baby being effected.

We tried for another baby and in 2019 DD2 was born, thankfully thriving, unaffected and very healthy.

I am now 9 weeks pregnant and am booked for a CVS in 3 weeks. If this baby tests positive for the condition, we will terminate. Please be kind on this, I just cannot bring another child into the world to suffer, and then lose again 😭

I'm so scared about the CVS, we chose not to have one with DD2, but feel this is the right thing to do for our family. This baby will be my last (praying this baby comes home) it's a very wanted baby, this is just a shitty hand to be given and I just want everything to be okay. But whether it will be or not has already been decided, as it would have happened at conception. I just need to wait it out.

I've been suffering terribly with morning sickness and feel really awful, I just want this to be worth it and to get to take this baby home and keep her. The odds are in our favour but they are still crappy odds.

So sorry this has been long, just wondered if anyone can share experience or if anyone can hand hold in the mean time xx

OP posts:

Willowfalls · 02/04/2021 23:40

I’m sorry I can’t offer any advice but wanted to say how sorry I am about the loss of your little girl. I am thinking of you and sending lots of love & positive thoughts xxx

Shamoo · 03/04/2021 00:27

Gosh that sounds so very, very tough OP. I am so sorry for the loss of your first little one, and what you are going through now. I have no experience of what you are enduring, currently waiting with nerves for genetic testing results on ivf embryos which is difficult but not even close to comparable to what you are experiencing. Sending you a million positive vibes, and will be thinking of you.

And please be sure nobody will judge you for your decisions. Xxx

Original poster

Jaggedbubble · 03/04/2021 07:16

Thank you both so much 💓
@Shamoo we were actually offered IVF with genetic testing before Dd2 was conceived. It was a really tough decision but in the end we decided to try naturally and hope on our odds.
But we did very seriously consider it, so I'm sending love as I know it's not an easy process xx

OP posts:

RunnerGirl123 · 03/04/2021 07:49

I'm so sorry for the loss of your daughter. I can only imagine the heartbreak and grief you've been through and just want to say you're such a strong mama!

I had a CVS in my previous pregnancy, which unfortunately ended in TFMR so I feel I can offer some advice on this. Everywhere says there's a risk of miscarriage, but this is apparently based on old research numbers and the chances are very high the doctor who performs your CVS will be able to perform this successfully. The doctor also said to me that if the odds of your baby having a genetic issue that could lead to miscarriage/stillbirth/neonatal death is higher than the risk of miscarriage following CVS, the risk is already negated (if that makes sense).

The process was simple and all conducted during a scan, antiseptic liquid poured / wiped over your belly, a little local anaesthetic injection (this was the more painful part for me), then they insert the needle and you'll feel movement or tugging as the procedure takes place. It was over in a few moments for me and probably felt longer than it actually was - I had my eyes shut tight as suggested by my doctor. You then move to another bed to rest for 15-20mins. Head home and rest some more. Our first results cane back within 3 days, and the rest within a week. Our results didn't pick up our baby's condition, but they'll be able to be more specific with your test as they know the genetic issue they're looking for.

I'm happy to answer any questions you may have, or clarify any of the above. I hope this gives you some reassurance, I hope the CVS goes well and i wish you all the best for this pregnancy x

Original poster

Jaggedbubble · 03/04/2021 08:50

@RunnerGirl123 thank you so much for sharing your experience, I am so sorry the outcome was a TFMR.
Thank you for the CVS description, I know of noone that has had one so I think it's a big fear of the unknown for me.
I cannot thank you enough for offering to answer questions, I will be sure to if anything comes to mind.
I'm not actually sure if my DH is allowed to be there for the procedure, (cos Covid) I'm waiting on my midwife to let me know. My hospital doesn't allow companions for the 12 week scan but I didn't know if this would have different rules. The idea of going it alone is really scary.

OP posts:

RunnerGirl123 · 03/04/2021 08:58

@Jaggedbubble Not a problem at all. I completely get the fear of the unknown, as I was the same before mine. If I had been advised to have one in my current pregnancy, then I would have definitely felt more comfortable having one now.

My partner was allowed to come in with me (mine was June / July time last year), and it helped me feel more relaxed. I hope yours is allowed too, I would think this is more exceptional circumstances and the midwife / doctor can make arrangements for this (even if they have to sneak him in the back entrance).

Shamoo · 03/04/2021 17:12

Thank you @Jaggedbubble, I really appreciate your thoughts.

I have been thinking about you today, hope you are doing ok. Really hope things go well for you. xx

Original poster

Jaggedbubble · 07/04/2021 10:43

Hello ladies, I was so appreciative of your kind words, just a little update.
I called the hospital today and they advised DH will be allowed in with me, just won't be allowed to wait in the waiting room and they will call him in. But that's a huge relief x

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Absc · 07/04/2021 12:03

Good luck I couldn’t have a cvs due to the position of the baby, I had an amniocentesis yesterday. I was allowed two people in the room with me and in the waiting area - however one of them was a consultant from my local hospital so think that’s why. It’s a shame you can’t have anyone in the waiting room.

RunnerGirl123 · 07/04/2021 12:29

Hi @Jaggedbubble, that's good news he can join you. They'll just start the scan to have a look over baby as he makes his way up, and you'll have consent forms to sign anyway so they won't start without him there. Then he'll be able to stay with you until you leave.

positivebex · 07/04/2021 14:31

Hi just to jump on after seeing this thread.
Just at home resting after a CVS this morning, unfortunately my husband wasn’t allowed in with me as the room is so small at our hospital. I didn’t feel much at all, a little uncomfortable if anything and since then I’ve had a few cramps. Had to have an anti-d injection due to being rhesus negative and that actually stung more.
Now the agonising wait for results.

Original poster

Jaggedbubble · 07/04/2021 15:38

Hi @positivebex and @Absc thank you for sharing your experience. I'm sorry to see you have had to had invasive testing.
How long were you advised for the results? I hope it is good news for you both 🤞 xx

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Original poster

Jaggedbubble · 07/04/2021 15:39

Thanks for the reassurance @RunnerGirl123 you're very kind xx

OP posts:

positivebex · 07/04/2021 16:06

They have said we should get a call Friday afternoon, so not too long to wait thankfully.

Absc · 07/04/2021 16:09

I got told 3-5 days from the test for first three results then rest take up to 3 weeks.

Louisa4987 · 07/04/2021 16:25

I had one for twins last year so it was done twice in a very small area at the same time so wasn't the most comfortable but I think it would have been fine if it was just the one! The worst bit is waiting for the results. Fingers crossed it all works out for you

Original poster

Jaggedbubble · 09/04/2021 14:23

@positivebex I have been thinking about you today I hope you get good news and can relax and enjoy your pregnancy xx

OP posts:

positivebex · 10/04/2021 12:46

@Jaggedbubble aww bless you lovely. I actually got the call Thursday afternoon at 4pm, I was so shocked it was so quick. And we have thankfully been given the all clear. I just hope the rest of the pregnancy goes smoothly. And we found out we are having another boy. I have every single thing crossed for you lovely xxx

Original poster

Jaggedbubble · 10/04/2021 20:23

Oh @positivebex I am overjoyed for you, I'm so pleased ❤️ and a little boy how exciting 💙 best of luck with the rest of your pregnancy xx

OP posts:

positivebex · 11/04/2021 13:04

@Jaggedbubble thank you so much, I’m keeping you in my thoughts and fingers are crossed. Please keep us updated. I find pregnancy such a blooming anxiety inducing time xxx

Original poster

Jaggedbubble · 12/04/2021 08:56

Thanks @positivebex, yes I absolutely agree anxiety is never worse than when pregnant!

A week and a half til my CVS now so hopefully the time will pass fairly quickly. Ive been feeling absolutely rotten this pregnancy (vomiting, nausea, pure exhaustion) far worse than my other two. It's hard when there is a chance that it could all be for nothing. I have to just hold out hope that the odds are in our favour.

@Absc how are you, have you had your first set of results back yet?xx

OP posts:

Absc · 12/04/2021 09:17

@Jaggedbubble just got call back 5 mins ago all clear and I’m having a boy 😊

Original poster

Jaggedbubble · 12/04/2021 13:02

Ah amazing news @Absc huge congratulations 💙💙 xx

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otterbaby · 12/04/2021 13:12

@Jaggedbubble I had a CVS in 2019. I just thought I should add to the above experiences - what shocked me the most was how clinical it was. The doctors and nurses were in full surgical scrubs/masks and they taped off the section of my stomach where they were going to insert the needle. I wasn't expecting it to be so 'operation-like' if that makes sense, just something to keep in mind!

I had some cramping afterwards but was fine with some paracetamol.

Best wishes x

Original poster

Jaggedbubble · 12/04/2021 21:06

@otterbaby I hadn't actually thought of that, guess it's probably going to be even worse with Covid! Thank you for sharing that, it's a big fear of the unknown and that's definitely altered my mental image on what to expect a bit ❤️ thank you xx

OP posts:

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