CVS hand hold / experiences

[Jaggedbubble]

Hi everyone

I'm here really for some support, or if people are willing to share their experiences.
I don't have much support in real life as we are keeping this pregnancy secret until hopefully a happy outcome.

So a brief history, my DD1 was born in 2016, she was very poorly but this was not picked up on her scans, only came to light after she was born. She had a fair few problems caused by a very rare genetic condition and she died at 10.5 months old. I miss her terribly.

We had further genetic counseling and after she died we discovered both me and DH are carriers of this condition and we had a 1/4 chance of a future baby being effected.

We tried for another baby and in 2019 DD2 was born, thankfully thriving, unaffected and very healthy.

I am now 9 weeks pregnant and am booked for a CVS in 3 weeks. If this baby tests positive for the condition, we will terminate. Please be kind on this, I just cannot bring another child into the world to suffer, and then lose again 😭

I'm so scared about the CVS, we chose not to have one with DD2, but feel this is the right thing to do for our family. This baby will be my last (praying this baby comes home) it's a very wanted baby, this is just a shitty hand to be given and I just want everything to be okay. But whether it will be or not has already been decided, as it would have happened at conception. I just need to wait it out.

I've been suffering terribly with morning sickness and feel really awful, I just want this to be worth it and to get to take this baby home and keep her. The odds are in our favour but they are still crappy odds.

So sorry this has been long, just wondered if anyone can share experience or if anyone can hand hold in the mean time xx

@otterbaby yes that’s such a good point. They made an effort to tell me beforehand that this is going to look really clinical but we do it to minimise infection for yourself so it will look scary but please don’t worry. I’m glad they said that though before they gowned up and taped off my tummy.

Hello. If anyone is still around I thought I would post an update.
Had the CVS results today, it's bad news. Having an induction of labour/TFMR Saturday.
Thank you for all the support provided. I'm devastated and terrified of what comes next 💔

@Jaggedbubble I’m so sorry for your news. Sending love ❤️

I'm so sorry to hear this. Sending lots of love your way xx

I am so sorry.

Oh, Jagged, I am so sorry. I don't even have any words to console you. The world can be such a cruel place at times. Sending love and strength to you, your husband and DD

Thank you so much ladies. We haven't told anyone in the real world, here makes me feel less alone. I do feel so alone.

For anyone who has sadly been there, can you offer any advice? The cut off at my hospital for a surgical has just passed, although the consultant did say she would do this for me if this is what I wanted. I felt at the time quite strongly that I wanted a medical. The idea of the surgical is pretty barbaric and I don't think I could live with it.

Now I'm terrified of actually giving birth to this tiny baby. I don't know whether I want to see or ask the staff to take him/her away.

I'm just so scared.