Having a baby after losing one.

[Mummyto6kids]

Last year I lost a baby to Edwards syndrome, has anyone experienced this and also went on to have an healthy baby?

So sorry to hear that. I haven't personally but lots of people have. Good luck

They have midwives with extra training who can support you, sands also are really good

Thank you, I've found out I'm pregnant again and so nervous/stressed don't want to go through all that again :(

The NHS say it's very unlikely OP.

Congratulations on your pregnancy. I had a similar loss last year and am pregnant again now. I was terrified at all my scans, I couldn't even IMAGINE it being it healthy pregnancy. But it is! I'm ok and baby is ok 🙂

Fingers crossed for you x

To clarify, very unlikely that you will have a second pregnancy affected by Edwards.

VERY likely that your new pregnancy will be fine xx

Thank you, I feel same at the moment time will tell with scans etc, congratulations to you :)

I haven't op, but I'm on a support group for Edwards as DS has mosaic t18. Lots of people on our group have gone on to have healthy babies, the risk really isn't any higher.

How far along are you?

Xx

I've only just found out so only about 6 weeks, x

Sorry for your loss. No experience of Edwai but did loose a baby to a heart defect. The next pregnancy is scary and no one can for sure but highly likely every thing will be ok.

SANDS have a next pregnancy group that got me through my next pregnancy.

It will feel like the longest time ever but you will get through it.

I’m sorry

I’ve had a baby die neonatally and the NHS does offer additional scans and support for those whose babies were stillborn/neonatal deaths and usually a late miscarriage or TFMR will also put you on the same pathway. You might also be eligible for the Harmony Test (or similar) to your mind at rest about chromosome abnormalities.

I really hope everything goes smoothly for you this time. Do see if you have a maternity mh support at your hospital.

ah so still a while for your screenings. Stats are on your side OP XX

And congratulations OP xx

Sorry for your loss. Different situation (not comparing mine to yours) but I had 2 losses last year at 7 and 14 weeks and when I was pregnant again the EPU were amazing with me. I bled from 7-17 weeks and they said they would scan me every week if I needed reassurance and peace of mind. I now have a gorgeous 11 week old girl. My midwife also made sure I had the support I needed. Please reach out if you need support. Take care xx

Thanks everyone, it's hard keeping it from kids this time as don't want them to get hopes up, I will look into the support suggested, and keep you all posted the further I get on :)

Sorry for all your loses, it's such a worry but good that support is out there, xx

I had a baby who died neonatally from Edwards and went on to have a healthy baby not long after. Was told the risk was 1/100 but declined any invasive tests. The healthy pregnancy was horrendously difficult emotionally but I had amazing support from midwives etc. Where are you based op, could you phone and find out if any extra support available?

Sorry for your loss, gives me reassurance that you've had healthy baby :), I'm Edinburgh, I actually called my doctors and they couldn't give me an answer to anything :( x

If you have a link with a fetal medicine unit then they might be a good place to contact? As far as I know you'll get a 'level 2' anomaly scan anyway, i.e. by a consultant, because of what happened before, so you will probably be referred to them anyway?

Did you have a named consultant the last time?

Yeah fetal medicine at hospital called me for an early scan, so I'm guessing they will keep an eye on me then? Did you get alot of scans?

Yes, every few weeks, just for peace of mind, as there was nothing wrong. I was very well looked after. PM me if you want to

I had a tfmr with my first baby after diagnosis of Edward's at approximately 14 weeks. Dds1&2, aged 7 & 5 are sound asleep in their beds.

I was offered and took CVS test for dd1, tl:dr, many tests, all went slightly wrong, but scans all showed DD to be completely healthy, and so she was and is. We refused all invasive tests for dd2 as scams also showed she was fine. Even had a home birth with dd2.

Good luck with your pregnancy.

Do you mind me asking, did you have to wait to try to conceive? My sister lost her baby last year, he had pataus, and she had a section, they've told her to wait 2 years. At 33 shes terrified that she won't be able to, she tried for her wee man for 2 years. Congratulations on your pregnancy btw, I lost my first at 13w and my subsequent pregnancy was fraught with worry. I think it's just the start. My mum always said thats a Mother's job, to worry ❤

Hi @mummyto6kids - I'm so sorry for your loss, and tentative congratulations on your current pregnancy.

There's a whole thread of us over here in the same /similar boats if you want to chat. We're all getting each other through the anxiety of pregnancy after losses of various sorts - come join your penguin sisters, you'd be very welcome.

www.mumsnet.com/Talk/pregnancy/3636872-The-Graduates-of-TTC-after-pregnancy-loss-thread-2-The-Penguin-Huddle

Hi, I wasn't told to wait, I delivered my angel baby at 19 weeks, so I'm sure your sister could try any time she is ready, it's such a worrying time x