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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

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Original poster

Heterotopic pregnancy....

34 replies

Hopehope20 · 25/03/2018 18:33

Hi,

This is very rare so not expecting lots of advice but just wondered if anyone has experience of this? I got told at an early scan at 5.5 weeks that there was an egg and yolk sac in the right place (yay) but also a black mass at the top of my uterus at the narrowing from the fallopian tube. Went back for a scan at 6w3d and the baby now had a good strong heartbeat which was amazing. However black mass still there....the consultant did not think it was a fibriod and so they said that they do indeed think it is a twin ectopic pregnancy. I have to go back in a week and if it is still there they will need to operate. This of course terrifies me as it puts the healthy baby at risk (I believe there is a 50/50 chance it will survive the surgery) I am bits and going through my days at work like a zombie. It is rare in natural pregnancies....1:30,000 so hard to find anyone to talk to....x

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chequeplease · 25/03/2018 19:48

No advice but I couldn't read and run. I can't imagine what you're going through.
I hope you find someone who can help and advise you x

Original poster

Hopehope20 · 25/03/2018 20:10

Thank you xxxx

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tasmaniandevilchaser · 25/03/2018 20:18

I’m so sorry you’re going through this, is it hellish having an ectopic pregnancy and a heteroectopic is even more complicated. I’m assuming that the hospital directed you to the website of the Ectopic Pregnancy Trust?

I had an ectopic 6 yrs ago and the waiting was the worst bit. I tried to keep busy and that did help me cling on to some sanity.

Is there something you can do or any friends/family you can talk to?

Original poster

Hopehope20 · 25/03/2018 20:55

They didn't actually point me towards that website no...so thank you for that. I will check that out now. I agree...the waiting is the worst. If something bad happens then I can get on and deal with it but this feeling is horrid. I am talking to a few people I know....and bless them they are very much focusing on the positives which I know is a good thing....just sometimes you just want to hear that this is crap and it's ok to feel crappy about it! Thank you for your words

OP posts:

ilikebread · 25/03/2018 21:11

@Hopehope20 I’m so sorry you are going through this. It’s completely shit. Previous poster is right that the waiting is the worst part. I had an ectopic and lost my left tube a year ago and it was the worst thing I’ve ever been through so I can only imagine how you must be feeling. Keep us updated 💐

tasmaniandevilchaser · 25/03/2018 21:13

Glad I could help! The EPT website saved my sanity when I had mine. I hope that it is still going.

I didn't really tell anyone about my ectopic while it was happening, I was so stressed and chaotic that I just wanted to hide away. But I can imagine that people do want to try and make you feel better. At the same time it is a very crappy situation to be in, and very frightening. It's definitely normal to feel very crappy about it!

What are you going to do tonight? Try and force yourself to find something to do. I remember feeling frozen and I needed a kick up the bum to just do something to distract myself!

Original poster

Hopehope20 · 25/03/2018 21:37

Yes that is what I am like! Plus have been poorly all weekend so cabin fever is settling on. Very stressful job so that will definitely keep me occupied this week. My next scan is next Tuesday so just need to focus on getting there. Have started meditating which is helping actually. I just pray for this little one to hold on

OP posts:

Esker · 25/03/2018 22:41

My cousin had a heterotopic pregnancy and she did have to have surgery to remove the ectopic embryo. The embryo in the correct place was absolutely fine and became a healthy full term baby! And she has just recently given birth to DC2 (no complications with that pregnancy).

I know that is just one person's story, but as the situation is rare I just wanted to pass it on as a positive tale to hopefully offer some reassurance.

Good luck with your follow up appointments !

Original poster

Hopehope20 · 26/03/2018 09:35

Ah that is great to hear thank you! The internet is all doom and gloom so positive stories like this really do help xx

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Didntcomeheretofuckspiders · 26/03/2018 10:04

I know someone who had this, although she didn’t know about the surviving twin until after the ectopic twin had been surgically removed! All was fine with the pregnancy and she has a healthy child now.

Original poster

Hopehope20 · 26/03/2018 11:50

Oh wow that is amazing and what a lovely suprise after that ordeal to find out you still have one healthy baby. Another good news story - thank you

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HoldingOn2Hope · 06/06/2020 10:48

Hello,

I know this is an old thread but I've been diagnosed with a heterotopic pregnancy yday and just feel like there's limited info.
Any advice would be appreciated. I'm 6 weeks. Uterine pregnancy is measuring well and heartbeat detected. The ectopic is in left ovary and only a sac identified no fetal pole.

ivfgottostaypositive · 06/06/2020 12:44

@HoldingOn2Hope

I remember you from another thread. Sorry it was sort of bad news at your scan

I have had 2 ectopics both ruptured losing both tubes. One of those was heterotropic but the healthy baby with the heartbeat was in my tube and the non viable one was in my uterus.

I've heard of lots of people in the ectopic support groups I'm in have success with what your experiencing and the healthy baby survived the operation

With you having a healthy baby in the your uterus they won't be able to give you the drug methotrexate which is the normal treatment so I imagine your options are to wait and see but you are at risk of rupture which could put the baby at more risk or to have the tube removed straight away x

HoldingOn2Hope · 06/06/2020 13:10

@ivfgottostaypositive thank you for replying. It's so complicated isn't it. I sat here today thinking 'why me?' as if 3 losses aren't enough I'm now going through this.
Ive got bupa cover and ectopic pg is covered so I'm hoping to get a referral and get the ectopic removed ASAP. Luckily the private consultant I see in Epsom works with another consultant who is on the bupa list - that's my bit of positivity today. I'd rather be with medical professionals who are aware of what's going on from day dot. He was also in the scan yday with the other consultant.
I know there's a lot of success stories with heterotopic pregnancies but I'm just feeling awfully unlucky right now.

ivfgottostaypositive · 06/06/2020 15:12

@HoldingOn2Hope

I understand about feeling unlucky - I had 5 miscarriages and then an ectopic and then thought IVF would be the answer to our prayers only to have an another ectopic

I went via the NHS for my surgeries because I was bought in via ambulance as was already rupturing but the surgeon who did mine was also a bupa surgeon

Keeping my fingers crossed that your healthy baby makes it xxx

HoldingOn2Hope · 06/06/2020 15:24

@ivfgottostaypositive Awww I'm so sorry to hear that :( it's such a difficult journey. I've even asked myself today whether it's all worth it? I feel very deflated today, not sure I can keep going through all this time and time again.
You see that's what's making me anxious, I don't want to be rushed into hospital. I'd rather have a repeat scan early next week and have the ectopic removed and see what happens.
How are you now? What stage are you at on this painful journey? Xx

ivfgottostaypositive · 06/06/2020 15:26

@HoldingOn2Hope

How soon are they scanning you? I ruptured at around 6.5weeks both time so hopefully they will see you sooner rather than later?

I had my 5th egg collection yesterday from IVF - I've been banking embryo from rounds 3, 4 and 5 to be able to pick the best one or two to transfer which will hopefully be on Monday 🤞🤞

HoldingOn2Hope · 06/06/2020 16:01

@ivfgottostaypositive scan will be on Friday at 7 weeks however I will get a gp referral for one on Monday instead or once ive spoken to my consultant and he agrees that I can see the other consultant he works with through bupa then I'll take that route. Either way I don't think I'll wait til Friday. I think the reason he wants me to wait is because it was only an empty sac no fetal pole detected so he's hoping it won't grow to rupture. But you never know! I had a empty sac last year which grew to 9 weeks without a Fetus!

HoldingOn2Hope · 06/06/2020 16:02

@ivfgottostaypositive Awww brilliant I'll keep everything crossed for you 🤞🏽
So is Monday the day you choose and then another day for transfer? Xx

Sammyj123 · 20/03/2021 15:01

Hello I no this was a while ago but just wondering how you got on I have a suspected heterotopic pregnancy I'm 5 weeks 3 days got to go back in 4 days to see how the one in the womb is going so they can decide what to do x

dla123 · 20/03/2021 19:28

@Sammyj123 just saw this and thought I'd reply as I had a heterotopic pregnancy, found out in Jan.
I'm sorry to hear you're going this, it's such a worry, I can totally relate.
I was around 6/7 weeks when at my early viability scan the sonographer spotted one embryo in uterus and the other in Fallopian tube. Both of them were live (meaning had heartbeats). It was an IVF double embryo transfer so the risk was increased, not that I actually knew that at that time!
Anyway to cut a long story short, I am currently sitting here at 17 weeks pregnant with the baby who implanted in correct place :) I just wanted to give you some hope that you have a really good chance of things working out!
Feel free to reach out if you have any qs.
Lots of luck x

123jayne · 20/03/2021 20:02

Thankyou so much for your reply im glad your pregnancy is going well it is so scary I'm so worried incase it erupts to may I ask what they done to the one in the tube was it surgery and was you asleep xx

dla123 · 21/03/2021 10:03

They had to remove my tube unfortunately, they did this through a laparoscopic surgery, I was completely asleep so didn't feel a thing. When's your next scan?
They should be able to confirm next steps then. Try not to worry, although I know that's hard. The doctors will take care and give your other baby in the womb the best possible chance!

123jayne · 21/03/2021 12:23

Oh no sorry to hear that .. how far was you when you had the surgery and did they take you down the day they found out ..my next scan is in 3 days I will be 5 weeks 4 days as they out me back 3 days hopefully they do tell me what there going to do because I cant handle waiting around much longer.. after you had this surgery was there risks for baby in your womb and what was the recovery like for you x x x

dla123 · 21/03/2021 14:29

I was almost 7 weeks. They told me at my very first viability scan, and got me straight to hospital so I could have surgery that same day. the consultant who did my laparoscopy was very reassuring and said they said with keyhole surgery they can be very isolated, I.e only work on the affected area and not mess with the uterus.
There is always a risk of course but I was specifically told before the surgery that if I was going to miscarry the baby who was in uterus, it wouldn't necessarily be because of the surgery. Hopefully that helps to put things in perspective a bit!
Ultimately there is always a risk, but I would say the sooner they can confirm the next steps the better so great that you have a scan so soon :) obviously the longer it goes undetected, the risk increases
Hang in there! x

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