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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Amniotic band syndrome, missing both arms

110 replies

OnToTheThird · 19/01/2018 01:29

My heart is totally broken, our routine 12 weeks scan on Monday flagged up that baby was missing it's right forearm and hand.
Today we had a consultant check and it's been confirmed that it's not just the right arm that's been affected it's also it's left. Baby has a small upper arm on the right and left side stops just below/on the elbow with no digits to either.

We already have two healthy boys of 5 and 2 and this blow has just totally pulled the rug from under our feet.

I've been trying to research into babies that have been born missing arms and generally I'm only coming across one arm that's affected so quality of life isn't really affected as they still have one arm and working hand to work with, how will my baby deal with the basics without!?

We've been told it's probably been caused by amniotic band syndrome and we're just unlucky that it's happened to both arms.

We were obviously given the option of ending the pregnancy which we haven't totally ruled out but for now we've put it to the back of our minds until we know what roads best to take for baby and our boys.

If anyone had experienced this I'd be so grateful either way of experiences as right now I feel like I'm the only one going through this as I just can't find anything about it anywhere with both arms and the unknown is petrifying!!

OP posts:
Are your children’s vaccines up to date?
Brownbear84 · 22/01/2018 10:14

@tinkerbellone how insensitive!!! She's already made up her mind and going for the procedure this morning. It's none of your god dam business and posting videos is disgusting!!!! Can the previous post be deleted before the poster sees?? Any admin???

sinceyouask · 22/01/2018 10:17

@tinkerbellone, I've reported your post. The op has made her decision. It's cruel of you to post that.

thereinmadnesslies · 22/01/2018 10:18

I’ve reported tinkerbelleone

strangershoesagain · 22/01/2018 10:20
Flowers
ObiJuanKenobi · 22/01/2018 10:22

I have also reported @tinkerbellone what an awful post after the OP updated us with her heartbreaking decision which I am confident wasn't taken lightly.

Thinking of you OP.

gingerbreadmam · 22/01/2018 10:24

So sorry op sending lots of love your way.

I had a pregnancy where my sons leg didn't develop properly. They also discovered an amniotic sheet which is slightly different. I carried on with the pregnancy but my son was stillborn. I remember the turmoil at the time of what life would be like with him and kidding myself everything would be ok. I miss him every single day but I do know what happened was probably for the best.

MrsRaymondReddington · 22/01/2018 10:25

@tinkerbellone You should be ashamed of yourself!

MoseShrute · 22/01/2018 10:26

This reply has been deleted

Message withdrawn at poster's request.

strangershoesagain · 22/01/2018 10:27

Terminating is the right thing to do. Best wishes

Crusoe · 22/01/2018 10:27

What an awful awful decision to have to make OP. Thinking of you.
💐

Montypulciano · 22/01/2018 10:30

I’m so sorry OP. Thinking of you and sending you love and peace Flowers

fabulousfrumpyfeet · 22/01/2018 10:31

This reply has been deleted

Message withdrawn at poster's request.

Peanutty86 · 22/01/2018 10:31

I've just seen this and didn't want to read and leave. I'm so sorry you're going through this. You're a brave woman and I'm sure you have made the right decision for you and your family. I hope all goes well today...

fabulousfrumpyfeet · 22/01/2018 10:32

Oh gosh I'm so sorry, I'll report my own post, I didn't see the update.

Cloudhopping · 22/01/2018 10:34

Oh op, I'm so sorry that you're going through this, it must have been such a difficult decision. Sending you lots of love.

linz84 · 22/01/2018 10:34

Thinking of you ❤️

Emabrmsca · 22/01/2018 10:41

I'm so sorry. 💐

DeadButDelicious · 22/01/2018 10:47

I'm so sorry OP. Thanks

doowapwap · 22/01/2018 10:50

Thinking of you OP Flowers

Jesterstolehisthornycrown1 · 22/01/2018 11:09

So sorry opThanks

Annabelle4 · 22/01/2018 11:26

Flowers for you OP

I don't know if it's appropriate for me to say, but I think you've done the right thing, when you consider what the future would be Sad

So sorry that this happened to you and your baby Flowers

itaintmyfault · 22/01/2018 14:08

Thinking of you OP Thanksx

OnToTheThird · 22/01/2018 16:04

Thank you for all your well wishes, all went as well as can be, now to recover physically and mentally, hoping to be home soon in time to kiss my boys goodnight!

They're sending some tissue off for genetic testing just to rule out any form of genetic disorder so at least when we feel ready to try again we won't have the unknown hanging over us!

X

OP posts:
vilamoura2003 · 22/01/2018 16:07

So sorry - my thoughts and prayers are with you all 😢

chocolateorangeowls · 22/01/2018 16:12

So sorry for your loss Thanks

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