Active discussions

Are your children’s vaccines up to date?

Set a reminder

Please or to access all these features

Talk
Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Original poster

Nuchal fold scan

119 replies

Hanzym · 03/12/2013 18:38

Hi, we went for our scan yesterday and got an NT of of 5.5, we are waiting for the blood results but I can't help but think the worst, is anyone else going through this or have any stories about it?
Thank you from a very worried first time (hopefully) mum to be xxx

OP posts:
Are your children’s vaccines up to date?
Set a reminder
adaloveslace · 16/12/2013 23:22

Oh no Hanzym - that is absolutely hellish! Is there no way it can be expedited, especially given the time of year? Is there anyone you can ring and plead with on a human level? It doesn't seem to make any sense that you now have to wait a whole extra week, and go through Christmas in that horrific state of uncertainty. I really, really feel for you.

Original poster
Hanzym · 17/12/2013 11:17

Apparently because the fluid was blood stained it takes 10 days to run the culture, so it's just a waiting game for my fluid to do its thing, I am on the urgent list but even so it's still going to be next Monday at the earliest, could be Tuesday or the Friday as they will be closed Christmas and Boxing Day Xmas Hmm xx

OP posts:
ChicaMomma · 17/12/2013 11:31

Fingers crossed you hear early next week. Would be really unfair to have to wait until the 27th for eg.

adaloveslace · 19/12/2013 12:00

How are you Hanzym? Thinking of you

Original poster
Hanzym · 20/12/2013 14:52

Hi guys, I seem to be having bad luck, the amnio didn't work (which hasn't happened for 6 years, so just been for another amnio and it still blood stained so another 10 days to wait :o(, markers also looking worse xxx

OP posts:
Original poster
Hanzym · 20/12/2013 14:52

That grin was meant to be a sad face xxx

OP posts:
SaggyOldClothCatPuss · 20/12/2013 15:12

Gah! That's rubbish! Sad
Another 10 days! Sad

Have you come to any decision as to what you'll do if the results are positive?

TKKW · 20/12/2013 15:25

Hanzym, late to post but hope its all ok for you. Best wishes to you and hope you get results before christmas.

Had similar issues 2.2 as nuchal and bloods made it 1:55. We came back clear. You must be feeling awful and I hope you're ok.

Original poster
Hanzym · 20/12/2013 15:38

No idea what we'll do, I feel selfish terminating but I just don't know if I can help Sad

OP posts:
TKKW · 20/12/2013 15:58

Hamzyn, you wouldnt be alone in your thinking. You have a lot to more to deal with than most. I'll butt out now but wanted to wish you all the best over the next few days. I really feel for you.

Original poster
Hanzym · 20/12/2013 16:20

Thanks TKKW, I got struck down with a sickness bug too! feel a bit like every step forward I take someone knocks me further back!

OP posts:
SaggyOldClothCatPuss · 20/12/2013 16:27

Well if you do decide not to continue, you wont be alone. The consultant told me that 95% of Downs are terminated. Whatever you do will be best for you . Like I said before, I for one won't judge, I KNOW what you are going through. You are doing wonderfully. I would be climbing the walls if I'd had to wait as long as you have. Sad

Writerwannabe83 · 20/12/2013 16:32

95% of DS babies are terminated?
Blimey, I didn't know it was so high, it's taken me by surprise actually.

SaggyOldClothCatPuss · 20/12/2013 16:35

Thats what we were told when DP asked at UCLH. Sad

Writerwannabe83 · 20/12/2013 16:57

I would have assumed it to be more like 50%, even lower perhaps. Gosh.

catameringue · 21/12/2013 08:35

Begore I had my scan dh and I agreed parameters for what we wouldn't and would terminate for. I think that helped tbh in my situation. It's a very personal decision. We drew our line at if we believed there would be any suffering, in that as devastating as it would be, it would also be the kindest thing to do. I feel for you being at this point of not knowing because I found it so difficult to get through xx

SJBean · 21/12/2013 08:57

I just read your post op and am thinking of you. I don't have any advice but just wanted to let you know that. Please just be kind to yourself and don't listen to your MIL. Just you and your DH do what is right for you (and maybe get DH to have a word with her?) xx

fryingpantoface · 21/12/2013 20:57

Just found this OP. I don't have any answers, just wanted to offer a hand to hold if you need it x

Original poster
Hanzym · 22/12/2013 08:26

Thanks so much for all your support, I'm feeling very down in the dumps especially as you have to rest after an amnio, I'd rather go shopping and spend money! Minot organised for Christmas so this has thrown an even bigger spanner in the works, I was going to spend all weekend sorting it out! But I've cancelled it and we are going to gate crash my mums! Hope everyone is more organised than me! The clock is ticking the longer this goes on the more pregnant I get! I'll be 16 weeks on Tuesday! Xxx

OP posts:
adaloveslace · 22/12/2013 09:31

Oh Hanzym, I feel so bad for you. This has been one nightmare after another, hasn't it? I can't believe the amnio didn't work. You must feel like this will never pass but it will, and whatever happens, you'll get through this.

I second what Saggy says - it's a completely personal decision and I certainly wouldn't judge either way. We genuinely didn't know what we would do if abnormalities had been found, and I still don't know. For what it's worth,I think you seem like an incredibly strong, together person and you will find a way through this. How is your DH coping?

Original poster
Hanzym · 22/12/2013 18:45

DH is coping really well, luckily he's my rock, he's not pushing me in any direction to make a decision, he's a chef so at work constantly but has been so supportive through this whole thing, only shed a few tears, don't know what I'd do without him (even tho he isn't around much), everyone keeps telling me I'm strong and most of the time I am just sometimes I have a break down, normally when the traffic hits me on the way to work!

OP posts:
SaggyOldClothCatPuss · 22/12/2013 18:59

I really think that the breakdowns are important. As is ranting and rage.
Its almost like the 5 stages of grief, you have to go through them all. Don't keep things bottled up, let EVERYTHING out. x {{hug}}

adaloveslace · 27/12/2013 11:55

Hanzym, just thinking of you and hoping you got through Christmas ok. Everything crossed that you get the result soon and that it's a good one x

SaggyOldClothCatPuss · 27/12/2013 11:56

I was just going to post the same thing. I really hope you get some news soon. xxx

Angloamerican · 27/12/2013 22:17

I hope you're doing ok, OP. Last year we had a nuchal fold of 9.1mm. Followed by endless weeks of testing, and trauma. Our hell lasted for 10 weeks until we received a definitive diagnosis, and it was of a condition "not compatible with life." We terminated at 17 weeks. I think of our daughter every day, and as terrible as that time was, I know that we made the right decision. I wish you peace as your waiting game continues, and I hope you take comfort in knowing that whatever decision you and your husband make, it will be the right one.