T1 diabetes - bumps, births, babies & beyond!

[RueDeWakening]

New thread, form an orderly queue here please >>>

:o

I've had a years revoke, fortunately got my license back now - and equally fortunately, I live in London so got a freedom pass for the year I couldn't drive - that was great, it covered tubes buses trams and some trains, across all zones and was worth a fortune! Especially since I live out in the sticks and getting into central London costs over a tenner normally

I would be screwed if my licence got revoked....we have one bus a week where I live and are seven miles from the nearest "town"

Hi rue - nice to hear from you! Glad the lo is doing well, tho can't believe 9 weeks have passed,

Maggie - I'm with you on the hypos thing. IMO medics spend far too much time worrying about hypos when of course the real damage is done through highs. I remember being crushed when I got my first hba1c in the '5s' and rather than being congratulated on tight control warned that I must be having countless hypos (I wasn't). Of course the driving thing is important but I hope most of us are sensible enough not to take any risks there. But to me a couple if minor hypos a week are all part of good control.

Speaking of good control, mine has gone out of the window. I think it is this heat but I'm constantly rollercoastering up and down. Even when my control is less than perfect normally, I am usually able to keep relatively stable and in single figures. Right now I am hypo-ing, over correcting, waking high, the lot! Given my control pre preg and during pregnancy I'm pretty disappointed!

Meanwhile, ds is thriving. He turned 4 months last week, weighs nearly 16lbs and is very long. He smiles and giggles all day long and is far cheerier than I deserve probably. His sleeping is getting there - usually just one wake a night and that is getting later and later. Sometimes just thinking about how much I love him makes me well up. Right! Enough soppy rubbish, I feel thirsty and have to check how much I over treated my post lunch hypo.

Wow Bona ds is just 16lb at eight months!

bona ive been pinging up n down too I went to bed at 5.2 last night ellie slept till 6.30 by which point I was 11.1 last night I had a late lunch so by time I had snack/supper I was 13.7!! My dsn said to reduce my levemir but surely if im rising when I dont eat it needs to go up??

Your dsn maybe suspects that your levemir is too high causing you to drop low, hypo then bounce back up. Before changing it I would set the alarm and do a couple of 2am tests to see what is happening....

Great that dd is sleeping through already. Me and DS not there yet and he is much older!!

Wow bona T is getting big! V is only 14lbs and a few oz, although I'm having her weighed this pm, so it might be nearer 15lbs now.
I'm havjng similar morning craziness - yesterday I was 22.1!!!!!!!!!!!! I admit I had been 1.8 in the middle of the night though.

bona she is good most of the time the 6-6.30 thing is new usually its 4 or 5am but still thats great. Sorry I meant my morning levemir was thinking that if my bg is fine around a normal dinnertime but rises if I don't eat then it needs to go up? Night Time is a nightmare and it cab be fine till 5-6am then shoot up so I tend to test abd take correction when ellie is up for a feed but its not ideal

Ok having a really crappy cpl of days i just cant get stable last night I was 9.6 before bed took 2u still same at 2am another 2u still same at 6am took 3u was 6.9 by 9.30 but didnt eat and rose to 10.2 wtaf!!

Hi Hoping. I'd say you need to increase your correction doses, my boluses now seem to come in multiples of 10 - had 20g carbs snack last night with a reading of 8.3 injected 10u novo and 24u lantus, and no idea what happened next as I went to sleep but I didn't hypo so it can't have been too much - woke up 6.6 this morning so dawn phenomenon still trying to raise its ugly head (although not as bad as it was).

2 units seems a massively small correction dose to me now for a reading in the 9s, although before pregnancy it would prob be too much.

Thanks maggie its hard to gauge as I took 1u the previous night at 7.0 and was 2.2 by 6am same levemir so god knows, pre pregnancy it was a bit easier to correct but after ellie its completley tits up lol I added a 3u correction to a v late breakfast around 10.30 but by 2pm 3.4 aaahhhh!@

By 6 am your correction dose would be long gone if you took it the night before hoping (assuming you are on basal bolus) so that low would have been due to levemir not your rapid acting.

I struggle in the afternoon, I have to inject so much in the morning and I rarely hypo before lunch, it all seems to pile up in my system and hit mid afternoon, so I usually need a snack around then to stop it from crashing.

I don't know whether reducing my daytime lantus is an option, my doctor is away next week so I'm seeing the DSN but I really don't like her, she rubs me up the wrong way. When I accidentally took too much lantus one morning she said to halve my dose the next evening, which I knew would make me high the next day - may be an ok approach if not preg but not when preg I'd rather have the lows than the highs. I ignored her and was fine. My tack with her now is to just smile and nod and agree when I see her then do my own thing. the diabetes midwife is better than her! I should be switching back to my regular hospital for diabetes care after the birth but couldn't have my baby at that hospital as didn't live in the catchment area, so I only have to put up with her for a little while longer. I don't think half of the diabetes HCPs know what they're talking about when it comes to diabetes and pregnancy, it's so complicated I just end up trying to figure it all out on my own usually.

Sorry little rant there but you really do feel like you're on your own sometimes with this - well I do at least.

Sorry i did not explain myself well yeah my cirrection dose would have been gone what I meant was usually if id gone to bed at 6.9 by 6am id be high but for some reason I was low?! your right alot of them just dont seem to grasp how frustrating it is at all. Im so fecked off by the highs but all my dsn seemed bothered by was the lows!! I honestly dont mind if I have even one mild hypo a day if it means the rest of my nos are good, I got told off for taking large doses then snacking for hypos I quote "you are just feeding tge insulin then" grrr I cant win right now. Maybe it will get better as it gets cooler??

I agree hoping, all they care about is lows, but the highs make me feel really ill. Both should be focussed on.

Have you heard that Theresa May's got T1? I dislike her immensely, but maybe her diagnosis with raise T1's profile and educate people. I'm fed up of being confused with old/overweight/unhealthy T2s and being asked daft Qs, like 'have you got the high sugar type or the low sugar type?'wtf.

Hi Hoping - to avoid getting told off you have to censor what you tell them sometimes. They expect us all to be like little machines and just take the perfect dose for the perfectly timed and counted meals and snacks. I for one will over inject for my evening meal to buy some 'snacking carbs' although my dsn doesn't seem to mind. I have told my doctor that I see it as a trade off, I'd rather have some hypos and less highs and that is my choice to make etc. As I am quite assertive they tend to leave me alone now, but I do down play my hypos and try and test on my other meter that they don't know about if I know I am having one. My strategy is to just go along with whatever they tell me at consultation and then decide for myself which advice I will implement and which I won't. Luckily at the mo I'm not having too much trouble - a little bit of dawn phenomenon but I'm not putting my basal up anymore as it will send me low all day so hopefully so long as I catch it fairly early in the morning and do a correction dose it'll be ok.
Dreading seeing the DSN tomorrow, she does my head in but luckily I will not be staying with her after the birth as it is not my normal hospital (I couldn't give birth at the hospital I get my usual diabetes care from) so will only see her a few more times.
Just remember, sad but true but you are on your own with diabetes most of the time, I get more help from websites like these than the medics.

I drew the short straw and got the horrible DSN today, she started arguing with me straight away said she couldn't possibly advise me on whether my nightime basal was right or not as I had not done reading in middle of night (even though I'd done one at 3 am that was not good enough), so at one point I said 'don't worry I'll just work it all out myself ', at which point I think she realised she'd overstepped the mark and mellowed a bit. Anyway she has reduced my basal nightime and day but she was about as much use as a chocolate tea pot.
Luckily the doctor is back from holidays next time and then only a few more appointments until D-day which will probably (all being well) be 27th September now as that's when I'll be 39+0.
Apart from that all was well with the bebe and my hba1c is 36/5.4. She said the morning highish readings were not too high to worry about as I couldn't take any more basal, so I'm not going to fret about those.
Getting fed up of these hospital appointments now and being treated like I'm some sort of machine - will be glad to go back to six monthly appointments after the baby is born.

Hi all. Haven't been on here for a while. Hope you're all doing ok.

I have a question. Did you all test for ketones every morning during pregnancy? I've seen some recommendations to do this with type 1. As my morning sugars have been good throughout the pg (under 7.0 every morning) I've only tested when sugars have gone over 10.0. Is this right? I've just hit the 36 week mark, have been fairly relaxed recently and now I've found a new thing to worry about. Isn't it typical??

Ginger I always had ketones first thing even if my levels were perfect (only know from when the mw checked wee fortnightly) they were never worried and I never had them at any other time of the day

Thanks spotty x

Wow maggie, nice 5.4

ginger I tested for ketones twice in my whole 8 months of pregnancy!

I had my 3rd post-natal diabetes appointment today - my Hba1C is 6.8 and the dr has told me to treat my 1u of CHO to 2u of Novorapid ratio as 1.5u of Novorapid. Hard without a demipen. Anyone else do this?

Ginger, I did what you do, only tested for ketones if my blood sugar was above 9 or 10. Hope your pregnancy continues to go well, not too long to go!

Diec, I haven't even been contacted by my diabetic team post pregnancy! They are pretty useless and I've had bad hypos but just managing it myself.....bit like my pregnancy!

The joys of so called diabetic specialists. I even asked my doctor 8 weeks post baby if I could book in to test my hba1c to be told no! So much for preventative care, it's a joke!

Hope everyone is doing well!

X

Thanks diec and newbie. I am going to stop worrying about ketones now.

Hopefully I will find out my induction date tomorrow. I do need this baby out soon as pelvic girdle pain is becoming agony!

ginger much the same as the others I was told to test after 2 readings of 10 in a row and that ketones on a morning r related most likely to needing to eat, not long now weeks?

newbie its terrible isnt it I had to call the dsn at my hospital alot to get an appt and found out that im on a waiting list for consultant clinic could be a 12 week wait!!

diec forgive my ignorance but what is CHO? Is it your insulin/carb ratio? Ive just got a novopen echo that the dsn sent to me in post (they were waiting on a delivery) it does half units and renembers your last dose plus how long ago it was taken. Does everyone get new meters/pens from dsn?

*2 weeks

Hi hopingfor! :) I think the ketone thing I read about testing every morning was from an American site. They're always the worst for getting me in a panic! I emailed my DSN and she has now officially banned me from Google! :D

No, not long now. I'm getting nervous!

Novopen echo sounds good. I have a Demipen but haven't had a new one for ages. I'm also toying with the idea of a pump...