Any pregnant Type 1 diabetics?

[dieciocho]

Hi,
I'm looking for other pregnant Type 1 diabetics in London, just to have someone to keep in contact with and share advice/horror stories/support each other etc.
I don't actually know anyone at all with Type 1, despite having had it myself since 1989

Carbs and Cals app reckons 40g carbs for the chow mein and didn't have crispy beef in there, but 31g for a portion of spare ribs (figured that was the same sort of sauce?).

Worth getting the app, it's very good and shows a photo of the food on a dinner plate so you can judge the size of each portion.

Thanks Rue I had a look on My Fitness Pal and it reckoned no carbs for the beef but that made me I'm really not as knowledgeable about this stuff as I should be

Sorry to crash in, but feel for you ladies with sore fingers. My son has t1 and we pay for continuous glucose monitoring using a dexcom monitor - wonder if any of you have clinics which could loan you one. We buy the sensors ourselves and whilst they're not cheap, we restart them after a week and get 2-3 weeks out of each one.

www.dexcom.com/en-gb

Looks freaky, but isnt really and so worth it!

Spotty, when I started to test more often (10 times a day) when TTC, I asked my GP to increase my test strip prescription to 8 boxes each time.
The pharmacists don't like it because I clear them out, but at least I only have to get a repeat prescription every 6-8 weeks or so...

Re: breakfast - I normally eat a packet of oatcakes (nice slow release) with butter, which is my one weakness. I blame my mother; she adores the stuff!

Oh God I'm running out of strips all of the time. I get four boxes of 50 a month - and I'm on CGM! And sometimes I still run out! Luckily my pharmacy is lovely and knows what I'm like. I have come across pharmacists though who hate it! And I've had plenty of run ins with nurses who think I test too much. My lovely nurse now is amazing and thinks the more the better.

I'm on toast for brekkie cos it's all I've been able to stomach :-( Also go through stages of porridge but despite it apparently being slow release I find it still rockets my levels! Anyone else find this?

Thanks Brambles :-) a couple of us here are on CGM. I love it - would imagine it has changed your life in terms of giving you some peace of mind for your son.

That's awesome that you're on cgm. I hope you are funded for it. My boy is on a combined pump, animas vibe. It is fabulous and given us all back some peace of mind.

He's struggling with breakfasts, actually. We've just had a discussion about him going back onto shredders - he has been trying out different weetqbix. Bless him, he's been going high mid morning no matter how we tweak timings of insulin, basals and ratios. Fortunately we're off to the families of kids with diabetes conference in a few weeks, so if we're not sorted by then, we can ask other families and world experts.

Weetabix absolutely rocket my BGs - I don't know why but a few diabetics I know say the same thing! It's a shame as I'm craving the chocolate ones as we speak.

No not funded...had a PCT request turned down so we are appealing. It costs us a small fortune but I wouldn't be without it. It's by no means a precise art but just gives me extra reassurance.

Spotty If you want to learn more about it, I've heard good things about the BDEC course (Bournemouth centre's online learning, but anyone can register and complete it). It's here - one day I'll get round to it too!

I guess I'm lucky, I was brought up in the days of exchanges being 10g carbs, and having a prescribed number of them that I had to eat every day so the whole family got pretty good and working out what was what.

That's helpful, puds. I'll tell him as he's getting so fed up with it. Back to shreddies in the morning! Yep to cost, but so worth it.

Thanks Rue I've looked at a DAFNE course but I couldn't do it when it was available and now there's a massive wait apparently as in years

I have registered with the Bournemouth website...it's a bit basic IMO. However, if you don't know how to count carbohydrates in the "old" 10g exchange way, then maybe it would be good for you.

5.6 before dinner...... 5.6 an hour after dinner! Think it will be low in another hour?

I would be Spotty - massively so! This is the thing with me though - even if it was 7.8 an hour and a half after it would take me too low. Would it with you generally?

Well if it's 1 or 2 higher then I'm usually OK, I'm thinking it will go low as I only had salad and a pitta for dinner, maybe I'll go and eat another pitta now then test in a hour because I can't be dealing with hypos and have nothing yummy enough in the house to make it worthwhile!

I've had a white chocolate Magnum and several coconut macaroons for dinner...

Mmm yum! Dp saved me a banana and a piece of fudge from his pick n mix. Just tested again was 7.0 maybe I shouldn't have had the extra pitta?!

How annoying is it when people say 'oh no sorry, I forgot, you can't have a biscuit/piece if cake/nice thing...you're diabetic'.

I just can't be arsed to explain sometimes and so nod along.

Also 'Oh I know a girl who has diabetes...she's got it really bad. Have you got it bad?'.

More annoying things please!

Also I've been having a weird double vision thing going on the last couple of days but the doctor couldn't find anything. I'm having my retinal screening done Thurs but he said as I've never had any issues before its unlikely I'd go from having no problems to severe problems. I'm not sure if its just my anxiety (I suffer severe anxiety) but it's worrying me regardless. Any advice?

Also have any of you developed anxiety as a result of diabetes?

Oh type 1 is that the bad one? Is one I get quite often!

No anxiety but my eyes go really bad when pregnant. Make sure you go to a regular opticians. I had to get glasses last time and still have them now. Apparently your lenses can change shape when pregnant. Anyway the optician says my eyes are fine but my brain can't cope with the changes straight after I had dd I literally couldn't focus on anything but it did get better. Now at 29 weeks I can't see a thing without my glasses!

That's really interesting Spotty - thank you. It does seem like it's focus. You might have cracked it! It does give me a headache though (I don't generally get them) and is worse when staring at screens/am tired. It's hard sometimes not to blame EVERYTHING on diabetes.

Other annoying things? - told someone the other day that I had diabetes and she asked if that was the low sugar type or the high sugar type - wtf?

Also, it annoys me MASSIVELY the way the media never differentiates between us and Type 2s - they're such different conditions and I just envisage the public tut-tutting about how all diabetics have bad diets/lead sedentary lives/are over-weight/it's self-inflicted whenever there's news story about how those things are increasing the levels of Type 2 in the UK and squeezing £ out of the NHS.

I work bl00dy hard to be healthy and have a condition that I had no control over developing.

Sorry.

Apologies to anyone reading this who has Type 2, but leads a wonderfully healthy lifestyle!

Those things annoy me too!