Hi Juelgaz -- These decisions are so difficult, aren't they??? I'm 36. They said my baseline risk was 1:191, with the "good" nuchal fold result (2.1mm) bringing that down to 1:505. Are you sure they said 1:54? I ask because I found this link which says you have 3x the risk of Downs' this time, given you had a Downs' fetus previously. So I would have thought at 37 your risk would be around 1:162 if mine is 1:191 at age 36... divide 1:162 by 3 makes 1:54, which might reduce to 1:439 depending how thick the nuchal fold was...?
My hospital said anything below 1:200 was a "good" result. Said their amnio or CVS miscarriage rate was 1%. I discussed amnio at length with them, anyway. They asked why I was so interested and I said "Because the risk of Downs is so unacceptable to me", which shut them up....I mean, how do you put a statistic on how badly you think you would cope with a disabled child for life?
I believe the Fetal Medicine Centre in London are quoting a miscarriage risk of 1:300 if you get the amnio there. No idea about cost, but I was guessing the £300 mark. What price do you put on piece of mind, though?
I think I worked out once that the risk of any particular child dying or having a crippling accident before 18yo was about 1:400. On that basis, I was thinking today that I wouldn't terminate this baby even if I knew they would have an accident by age 18 that turned them into a vegetable, and that was more likely than severe chromosone defect... so...
TBH, the fetus today looked too active to have anything severely wrong with it. May not be rational, but sometimes you have to go with intuition.
Found this which is also interesting.