IUGR

[hsmom]

Hi,
I dont know if any of you guys are or have been in a similar spot. I am 23+1 and at my 20 week scan was told baby was measuring 2 weeks too small. I have since been to fetal medicine locally who diagnosed Symetrical IUGR + low amniotic fluid and a reverse flow on ductus venous.
I am v anxious as I lost my last baby at 21 weeks due to congenital heart disease and cant shake this permonition that it is all happening again.
Any advice, thoughts? I have booked an appointment at FMC to see Prof Nicolaides and hope he can give me some answers. At my midwife appt on monday she found a heartbeat.
Thanks for any advice or similar situations,
hsmom x

Hi all,

hsmom, so sorry to hear your news, as if you need anything else to be worrying about! :( Thinking of you & baby. Hope the move went / is going well?

Well, 30 weeks today & hopefully still going strong?! Growth scan, doppler & Consultant on Wednesday so hoping to find out their plan of action. Saw my Midwife today for my twice-weekly bp check, bp is holding steady in 'normal' levels and protein was 1+ which is normal for me.

FH was measuring 29 weeks but as we all know, measurements can be quite crude. Got myself rather excited and optimistic that baby's growth may have miraculously caught up though, guess we'll find out Wednesday!

On a lighter note, I had a lovely card from my colleagues (currently signed off because of high bp) which cheered me up lots!

Milly, I too will be going arnica shopping if they mention c-section on Wednesday so will be watching intently for advice re dosage.

Hi ladies,

Thought I would pop in & update you all, went for my growth scan & doppler yesterday at 30+2, baby's growth in terms of abdominal circumference has caught up & then some!? HC is normal (as it was), AC is actually above where it should be now and FL is still measuring a couple of weeks behind but the Consultant was v.happy & is now going to see me at 34 weeks where we will "take things one step at a time" :) Estimated fetal weight is now 1.65kg

Hope you're all doing well.
xx

hi hsmom - any update? hope you and baby are well.

sparklies - how are you - not long now! hope you get fab treatment at the c & w. let me know how it goes.

x

Hi all, just a quick one- typing from phone as still no Internet at new house until may 18 th. Bloody BT.
Last weeks final growth scan at 36 estimated weight at 4lb 10oz so that's quite respectable! I got date for c sec of may 3rd ( so next tues). Still major concern is for heart issues, particularly the narrowing of aorta (they seem less concerned about VSD's). They will take her away after birth to scan.
Starting to feel really fearful that there is something more fundamentally wrong, and that fear seems to be building as DDay approaches.
Will post via phone from hospital if I can. May be tail end of next week though.
Take care all, hsxx

My thoughts are with you, hoping things are not as bad as feared, x

Will def be thinking of you and your baby. I can understand the anxiety will get stronger as you get closer due to not knowing. But always remember you have a fighter in her. Your thread will be one that I remember of true hope.

Did you get everything for your hospital bag?

Best of luck hsmom, thinking of you & hoping things won't be as bad as they are fearing. Just remember you're in the best place possible & your LO is a little fighter.x

Hi hsmom, have been thinking of you, please try not to get into a state, your little one is clearly a fighter. You are nearly there now, try and focus on getting both of you through the birth and then worry about everything else later. Keep us posted. x

Hi all- quickest of updates. My daughter was born today by c sec at 12.04.
She weighed just 4lbs, so way off what the scan had predicted (4lb 10 2 weeks ago!).
She is doing fine but is in neonatal as is on drip to keep the ductus open to see if the aorta narrowing is really a problem. We are waiting for the cardiac scan - they might do it tonight or tomorrow. If she needs surgery they will want to get her to 2.5kg which might take a month or so.
Otherwise she looks just fine. I tried feeding her and she tried to suckle.
Will update when I know more,
Hs xxx

Hello hsmum I am so glad to hear that your wee girl was born and getting the required care. I hope she grows stronger every minute. Lots of love and thoughts with you.

Oh this is amazing news! Was thinking of you yesterday and hoping for a happy update. So glad she made a safe entrance into the world. Do keep us updated x

hsmom congratulations, that is lovely news! DS2 was below his predicted weight too, about the same estimate and actual as your DD. Good luck for the scan, I hope everything is ok, keep us posted and enjoy her! xxx

Congratulations hsmom, hoping your LO goes from strength to strength! :)

Hope baby is getting stronger and that your recovery is straightforward. How are you?

hello everyone.
Firstly - thanks so much for all of your lovely wishes, and apologies for taking so long to post another update; we eventually got broadband just yesterday!
As for me and my lovely daughter - we are doing fine. We have had nothing but good news since she was born.
After being put in neonatal intensive care and scanned repeatedly, they found a small VSD (not big enough to need surgery), and the coarctation of the aorta wasn't there in the end, so we moved to low dependancy SCBU to establish feeding and we were allowed home after just 6 days! What a result. DD is doing well - she regained her birth weight after 10 days and has gained a further 5oz in the last week. She is now 17 days old and doing really well. Still very small of course, but seemingly fine. My community midwife is fab, and has told me in no uncertain terms I need to start treating her like a normal baby because thats what she is!!
So - after this enormously difficult roller-coaster over the past 6 months, it seems our problems are starting to fade. My fetal medicine consultant says we might never know why she was so little as the placenta and cord looks normal and healthy at delivery. No real clues but I am not going to sweat it!
I hope that our little story gives hope to anyone who is now going through what we have been through.
Good luck to everyone who may come across this thread in a similar situation. Feel free to DM me - i know how amazingly supportive this means of communication is.
With love and huge thanks again,
hsmom and gorgeous, tiny DD xxxx

just sent you a pm before reading this. i am so pleased for you and dd!! a truly amazing story. miracle baby.x

Wow, great news hsmom, I'm so pleased for you! You deserve some good luck!!! What an amazing little hero you have! :) Wishing you all the best! x

hsmom,
Just wanted to say thank you for posting this thread, it has given me some comfort in the last few days. I am 25 weeks and our LO has this week just been diagnosed with asymetrical IUGR due to placental insufficiency. Weekly check ups and kick count madness for me from now on! Hearing that things can go from bad to better is hugely comforting and without people like you posting their stories I would never know them. Best of luck for you and DD. I am holding my breath til my doppler scan on Wednesday at UCH. Wish us luck!

Very best of luck, clabsyqueen!
It may be a rocky road ahead and I wish you all the best and the comfort to know that good things can and do happen! My gorgeous DD is 3 weeks and 2 days now, and is thriving. She broke the 2kilo mark when she was weighed on Sunday! She is very noisy and hungry. Its a joy (even at 3am!).
If in doubt at all or you ever want a second opinion (and as you are in/close to london), I would recommend going to see prof Nicolaides at the fetal medicine centre. He really was my saviour - even though his prognosis wasn't great at the start, he was absolutely correct at 25 weeks when he told me there was no reason this pregnancy couldn't progress to term. While the medical team who looked after me in Birmingham were superb, they were never as lucid as the Prof, and his diagnosis at that point was hugely influential on maintaining a positive mental attitude and simply getting through the days and weeks. He's such a straight talker (!sometimes a bit blunt!)and the one of the very best in the world at this stuff.
If you ever want to DM me - feel free - and stay positive!
love hs xx

hi I really need some reassurance I am 33 weeks pregnant with igur baby and chromosome's I am so worried I am going to lose my baby by miscarriage or still birth

newmummy2014 - I have no expertise in this area, but didn't want to leave your post unanswered.

You won't get many replies from posting at the end of a very old thread. People just won't notice. Please do consider starting your own thread (there's a link called 'Start new thread in this topic' immediately above this thread) and you will get many more replies.

Very best wishes to you and your baby.

ok sorry bout that im new to this but thankyou for your comment

Good luck with everything.