Are your children’s vaccines up to date?

Set a reminder

Please or to access all these features

Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Can I ask what was your down's risk ratio?

94 replies

babynelly2010 · 05/08/2010 14:25

Does anyone know what is the lowest risk ration one can get?

OP posts:
Are your children’s vaccines up to date?
DuelingFanjo · 05/08/2010 15:36

My walk in risk for the Nuchal test was 1/77. I am 40.

my final risk was 1 in 80.

I had the Amnio and there were no problems.

lostinwales · 05/08/2010 15:37

Oh, and I believe the excellent journalist for the Times Simon Barnes' son was a 1:2 risk (IIRC). He wrote very movingly about his wife's decision not to have amnio and how much love they have for their fabulous little boy who does have DS.

NorkyButNice · 05/08/2010 15:38

1:1200 at 29. Was told this put us as low risk.

I'm surprised at some of these numbers - 1 in 1.5 million? How do they arrive at that number - doesn't it become a bit meaningless over a certain point?

Antidote · 05/08/2010 15:38

I was 1 in 400. I'm 35, and was told the risk for my age was 1 in 250, so the scan and blood test had reduced the risk substantially.

Our decision was if the tests increased the age adjusted risk we would go for amnio.

saintlydamemrsturnip · 05/08/2010 15:38

yep lostin - ds2 and ds3's autism risk was about 1 in 10 or something daft, so I didn't pay much attention to the DS risk because whatever they were they were a lot lower.

lostinwales · 05/08/2010 15:48

saintly how did they calculate the autism risk? That's quite fascinating! (and if it's not to rude do either of your children have autistic traits?)

saintlydamemrsturnip · 05/08/2010 15:55

They didn't - that's just the risk I was given because of having severely autistic ds1 - I can't remember exactly what it was- and there was another risk for some sort of other problem

Neither have traits, although ds3 shares lots of biomed markers and we kept both gluten free for 2 or 3 years, put ds3 on goats milk and have been very careful with their immune system. DS3's guts are very like ds1's and I suspect he has the same underlying condition that led to ds1 regressing. I suspect unlike ds1 he has avoided the triggers though. DS3 is 5 now though, is doing fine at school, absolutely no ASD type signs at all.

Alicetheinvisible · 05/08/2010 15:56

Mine was 1:5426 and considered very low risk.

I have a half sister with DS and a half brother with Autism although my mother was an 'older' mother for them.

Interestingly, a friend who has a son with DS said that the risk you get from the tests does not take into account any genetic links.

msboogie · 05/08/2010 16:05

at age 40 my Downs risk was 1:25,000 with a nuchal and blood test combined

lostinwales · 05/08/2010 16:05

Thank you saintly, as DS1 has more issues with DCD and his hypermobility we obviously don't have (or need) the input you have. Very interesting about the familial link, we've had a lot of bowel/food intolerance issues with DS2 (seriously unwell as a baby) I wonder if there is a link. To be honest DS3 being so normal has been a bit of a shock!

NorbertDentressangle · 05/08/2010 16:09

I had a Nuchal Fold test when I was pregnant with my second at age 37.

I can't remember the figures but I remember them saying that it was the same risk as for the 'average' 21 year old ie. very low risk

Cosmosis · 05/08/2010 16:09

1 in 12000, will be 36 when baby is here (assuming it doesn't arrive before Monday!)

hmmSleep · 05/08/2010 16:14

1 in 32000, I'm 35.

slimyak · 05/08/2010 16:14

I'm 38 and have a 1:773 risk after the NT combined test. I was told I walked through the door with a 1:130 risk.

Answering someone elses query about not being given a exact number. I had NT test privately. When I had DD I just got a letter saying that my risk was over 1:250 therefore low risk and no further tests would be offered.

CityChildminder · 05/08/2010 16:42

i had less than 1 in 100:000 for dc1 and dc2 (19 and 23) and 1 in 4000 for dc3 (29) felt like a massive jump at the time.
have my bloods for dc4 next week, hopefully for a good result as it is a worry, isn't it?

Muggle1978 · 05/08/2010 16:46

This reply has been deleted

Message withdrawn

Mam2Be · 05/08/2010 16:48

25 years old with 1:1 million - Thought it was wrong at first and questioned it but apparently quite common.

mousymouse · 05/08/2010 16:50

1:3000 with ds (when I was 29)
1:2000 with dd (32)

a friend had 1:2000 and her dd has down syndrom (not picked up before birth), she was 25.

Chynah · 05/08/2010 17:34

Risk with DS was somewhere in the 1000s (can't remember exactly but very low risk) - I was 39.
DD was 1:12 - I was 40 (had CVS and she is fine).

JustOneMorePlease · 05/08/2010 17:48

I didn't get a stat with first preg. at 26. Prob would have been at least 1:2500.

I was the 1. Ds1 had downs diagnosed at birth. Occasionally someone is the 1.

But despite how devestating it may be at the time, life goes on and shock fades and normality with a twist happens!!!!!

asdx2 · 05/08/2010 18:01

For ds now 15 it was 1 in 5950 which the midwife commented was the lowest chance she had ever seen (I was 27) He didn't have Downs but he has autism

applecharlotte · 05/08/2010 19:21

Just got mine through and its 1:17666. Such a specific number!

applecharlotte · 05/08/2010 19:22

oops. I'm 30.

Doozie · 05/08/2010 19:24

Last time was 1:2000 aged 34

I'm having the tests done tomorrow for no.2.

My sister had a very low score (can't remember what it was), went through the stress of the amnio and was told the baby would almost certainly have DS. So they spent the rest of the pregnancy adjusting to the idea and learning as much as they could about raising a child with DS. Her DD was born without DS or any other problems.

I had thought the amnio test was definitive. It's not. Someone else in their situation may have aborted a perfectly healthy baby in their situation.

Doozie · 05/08/2010 19:25

Oops, too many situations...