Please or to access all these features

Add post

Watch this thread

Save thread

Start a new thread

Flip thread

Hide thread

My feed

Active Unanswered threads

Getting started FAQ's

Unanswered threads Acronyms Talk guidelines

Hide shortcut buttons

Talk

Postnatal health

As with all health-related issues, please seek advice from a RL health professional if you're worried about anything.

Flip

1 2 3

Original poster

17 days old - reflux - at my wits end!!

53 replies

Halleberry · 01/06/2015 20:10

My baby girl is only 17 days old. She has been diagnosed with reflux. All she does is cry I am living in literally no sleep because when I try to put her down she screams blue murder. We just got infant gaviscon and we were on SMA gold and switched to aptimal then was told to go back which we done but today has been a nightmare. She is in constant pain and I don't know what to do. Anyone any advice on what worked for them and can I use infacol Aswell to help with wind? I'm at my wits end xx

OP posts:

Are your children’s vaccines up to date?

Set a reminder

Original poster

Halleberry · 02/06/2015 14:35

That's the thing I took her to a n e the other night (well 4am) because she was in a terrible state. The car journey soothed her and low and behold, she was more settled when doc seen her and sent us home. Doctor said he could see her if I took her down but won't come out and j should wait and see my HV tomorrow. I'd have went down if he sounded like he was going to help but I asked him what he would do and he said just have a look, check her temp (which I've done) and said he would give the gaviscon a few days to start working. What's the point in seeing him if he is going to tell me the exact same thing I already know. I struggle with the night feeds and I feel really guilty. But I'm so so tired j can barely keep my eyes open so I don't wind her for as long or keep her sitting up for the full half hour because I physically cannot do it. I tried once, dozed off for a few minutes and woke up and she was squashed against my chest. Luckily nothing bad happened. But it could have. So
I know I can't sit up and try that again. He said not to change to much to quickly. I wanted to reach down the phone and strangle him. Basically ive to try one thing at a time for a few days and if it don't work, try one thing else, for a few days and keep going. Well I don't know if I have a few days strength left in me to listen to the crying, watch her in pain, and keep
My sanity. I'm already under the care of a specialist psychiatrist who deals with prehnancy. Due to my ongoing MH im more vulnerable than the "norm" and more likely to get PND. I'm to exhausted to even feel depressed tbh. Doctors are assholes sometimes. Pardon my
French, but
I'm so angry. I'm struggling immensely and they won't help xx

OP posts:

Original poster

Halleberry · 02/06/2015 14:35

And there's my head so picked im forgetting her age. She will actually be 3 weeks old on Thursday. So she is 19 days not 17 now I feel guilty for forgetting her age xx

OP posts:

Newtobecomingamum · 02/06/2015 15:01

Halle - is there no way your partner can come home? You sound extremely exhausted (understandably) and need to have an urgent rest and sleep by the sounds of things.

Your lack of sleep is making you feel even more unwell and you bravely state that you have mental health problems. You need support for your health and that of the baby's.

Do not feel guilty forgetting age etc.. Totally normal. I did it all time! Don't over worth about these things, your sleep deprived and exhausted! X

Although frustrating what the doctor said and I was in exact same situation.., when I first turned up at A&E car ride sent my little one to sleep and he was fine. I had video recordings of his episodes and woke him up and fed him in the A&E reception, waited for him to kick off like he did and walked straight to A&E reception and got taken straight through. Maybe frustrating arriving and little one is all settled, but if it's that bad won't be long until she has an episode then walk her straight to the desk and they can see what's going on.

You know your baby (MH problems or not doesn't matter), if baby is in that much distress take her to A&E and wait there all day if you have to until they can see. Unfortunately, GPs are not always right and in my case fobbed me off with bloody gaviscon every time! Wasn't until I saw a specialist that I got the correct medication and formula which worked.

Original poster

Halleberry · 02/06/2015 15:28

What was the medication and formula if you don't mind me asking xx

OP posts:

Newtobecomingamum · 02/06/2015 15:38

Nocate was the formula and I cannot remember for the life of me remember what the medication was as was nearly 1.5years ago and had long funny medical names (not ones you would remember). It was two types.. one I had to put into his feeds and the other give via syringe into his mouth. Kicking myself I can't remember their names!!!

Although, when you see a specialist they will help prescribe the right meds. X

gallicgirl · 02/06/2015 15:38

Do talk to your HV about how you're feeling. She may be able to organise some help, I think it's called home start?

Push the GP for a paediatric appointment. I found gaviscon helped for a bit but ultimately only domperidone and ranitidine really changed the situation.

Newtobecomingamum · 02/06/2015 15:43

That was the names of the medication listed above Halle!!

Newtobecomingamum · 02/06/2015 15:44

We had those meds and Neocate milk and it was a game changer for us!! x

Newtobecomingamum · 02/06/2015 15:44

Neocate formula (not milk!) X

Original poster

Halleberry · 02/06/2015 16:32

Mind made up. Other half on way home. Going to AnE and demanding she is seen by a specialist and not leaving until it's sorted. I'm sick of the docs fobbing me off with all this trial and error nonsense. I don't have the energy to keep trying different things and they don't work. Thinking back, my wee nephew was very similar. My brother and his GF were at the docs all the time until they'd had enough. They took him to AnE and demanded he was seen and they done all tests and turns out he was allergic to milk. Put on special formula and within 2 days he was like a different baby. It's not good for me or for my baby girl to go on like this. We have tried most things with no luck and all this waiting to see HV etc is a waste of time. I want my baby girl to be happy and pain free and right now she isn't wish me luck that I get answers tonight xx

OP posts:

Newtobecomingamum · 02/06/2015 16:39

Wow you go girl!! I honestly think that's the best way to go!

Good luck and let us know how you get on!! Xx

FreeButtonBee · 02/06/2015 16:43

take a video of her at her worst if you can - just so you don't have the same "car journey soothing" thing going on! Good luck!

ApplesTheHare · 02/06/2015 16:50

Sorry I have to had time to read the whole thread so somebody might have suggested this but have you tried a dummy already? I was totally against them but my dd's reflux was so bad after we'd tried loads of things that the doctor told us to give it a go as sucking soothes pain and it really helped. I felt guilty I hadn't given her one before! In the longer term though they do grow out of it but I really really feel for you as it's terrible. Hope you get some help/sleep soon

ShootTheMoon · 02/06/2015 17:57

Good luck OP!

Brightonmumtoatoddler · 02/06/2015 19:36

For what it's worth, don't feel robbed that you aren't having 'fun' with a three weeks old baby. Nobody does and nobody would ever describe the first few months as 'fun'.
CAN I GET A HELL YEAH LADIES?!
It can be fleetingly lovely, but mostly just a sleep deprived haze of hard work!!
DON'T beat yourself up about that whatever you do that's the least of your problems.

ApplesTheHare · 02/06/2015 22:06

Brightonmum HELL YEAH!

Also I wish this was said more, all the time in fact, to new mums. I remember really struggling but not being able to put it into those words. The 'fun' bit of having a baby is from about 6 months up, especially if they've got reflux.

Original poster

Halleberry · 03/06/2015 00:05

Thanks everyone for your kind words. That's is just back from the hospital. Been there for hours. I couldn't believe it. My baby girl drank the most she ever has since ahe was even born, and was so settled over there. I cried to the doctor and promised her she wasn't normally like that. Luckily she was lovely and said it happens all the time. People bring their babies in and for some weird ironic coincidence, they suddenly "appear" better but she believed me 100%. We've been there since I last posted and by done all other checks and ruled out everything else inusinf tongue tie and the other syndrome (sorry brain can't remember the name) and said its definitely severe reflux (luckily she took one of her extreme crying and painful spells in front of the doctor so she seen at one point tnag she really was in pain). They have told us to stick with our formula, keep going with gaviscon and have given us rinitadine to take with it. I guess that's an added bonus for extra meds but still have to wait aNd see if it works. I had a melt down in there and cried the whole time and my DP really got some stick from me and I made him feel alike crap in front of the doctor (which I sort of feel bad about but also don't becauSe I feel like although he is good with her it's taken for me to literally crumble to pieces in front of a doctor for him to see that I need his help more) am I bad???? Anyway, we are going to try and get her to sleep in her pram tonight instead of Moses basket. She seems cosier in her pram. I just need sleep so badly. I'm at the point now I'm actually so tired, I'm over tired and can't function. Thankyou all for your replies and if anyone has anynore advice Id happily take it xxx

OP posts:

Roseybee10 · 03/06/2015 02:43

Glad you've got some meds to try.
It really is awful. I struggled to bond with dd because feeding was so stressful and she just screamed all the time. I spent most of the first 8 weeks crying and then feeling guilty because I should be loving having a newborn etc.
Once she got past the 12 weeks and her system matured a bit then I saw such a huge difference. I know it seems like forever away but it won't last forever I promise.
Xx

Newtobecomingamum · 03/06/2015 06:51

That's great you have new meds to try and the specialist had confirmed that's it's just severe reflux and nothing else. Has also reassured you to carry out with the formula you are using and gaviscon etc.

I really hope the new meds help and that you also are able to get some better sleep!!

Try not to be too hard on DP, he came straight from work when you called to help and sounds like he's been supportive.

Wish you the best of luck and hope things improve! Xx

momtothree · 03/06/2015 09:45

Sometimes the boys just dont get it!! Maybe you need to pop out sometimes and leave him too it - hopefully things will settle and a few decent hours sleep will help. Let us know and keep talking.

Original poster

Halleberry · 03/06/2015 18:17

Well I slept last night and my DP took our little girl out for the whole day. I slept most of it and feel soooo much better. I've totally re charged my batteries. And to top it off, when I came down stairs for dinner, baby girl seemed sooo much more content. She actually sat in her wee chair wide awake just looking around her and not a peep. Not saying we are out the woods yet and don't want to speak to soon but she was definitely a lot happier today xx

OP posts:

momtothree · 03/06/2015 18:36

Newtobecomingamum · 03/06/2015 19:00

That's great!! I'm so pleased you got some decent sleep! Makes a world of difference when you have a good sleep!!

Things are def looking on the up!!

Lovemylittlebear · 03/06/2015 19:10

keep going you are doing a great job ! :)

Roseybee10 · 03/06/2015 19:54

That's fab. Sleep can make such a difference. I find when I'm tired I struggle to stay patient and calm when the feeding is bad xx

Flip

1 2 3