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Jan 2009 - molars, movers and shakers

926 replies

stripeywoollenhat · 02/08/2010 22:21

there you go

OP posts:
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Lenni · 04/09/2010 23:22

Moose - on the academies, this was a slight concern, which is why I asked. The academies act was amended from the original bill and academies are required to behave in the same manner as maintained schools in respect to SEN on admissions/funding/provision. How it plays out in practice won't be known until spring when places are offered for the first time. They are entitled to be academically selective, but they can't then reject academically able students on basis of SEN status iyswim. For parents of children with any SN this is a concern, for you it is not so much of an issue.

In my limited experience of statementing (being secondary most children arrive with statements, I generally only dealt with BESD cases) childen with ASD did usually obtain statements, simply because their needs were not curriculum access related and were difficult to meet within the normal operation of the school. However, whether you would get a statement now would be dependent on how your LA is operating at present - any SENCO in any local school should be able to give you an idea on this.

Being realistic, and I'm sorry if this isn't what you want to hear, the 'sweeping under the carpet' approach (sorry for generalistic term, couldn't think of a better one) to transition isn't going to be effective, and most likely could be counter-productive. Transfer documents would also have to highlight existing SEN status to the high school so they will be aware of his tentative AS diagnosis, although the detail depends to a certain extent on the efficiency of the primary school in providing information. However, it wasn't uncommon for me to get transfer documents detailing food preferences, incidence of family term-time holidays and various other bits of information so do expect there to be some detail passed on. It is pretty important for the high school, they need to be prepared to meet a child's needs. And if they don't have the relevant information it is the child who suffers. The reason I would aim to get a statement in place before transition is that children with ASD usually present in Year 7 as high functioning but slightly distant socially, however by Year 9 the difference in development can be quite marked however. Puberty is a complex time for any child as we all know, having been there ourselves, but the social side of things tends to take children with ASD a LOT longer to grasp and it can make those last 2-3 years at high school quite difficult to negotiate.

TBH, I think I would apply for the statement if your LA situation is favourable. If not, the decision is more difficult as there would probably be more fight involved and I can understand you not being willing to go through that process. I never mind giving you my opinion on your DS1, but it's hard to know where to draw the line since I've never met him and don't as result have an accurate picture of where he is on the spectrum. It's also hard to balance being supportive - which is the purpose of this thread - with the more straightforward approach I tend to have with parents/colleagues. I'm always slightly concious that I might just offend you, which isn't the intention!

Dog - Good to hear from you. Swimming at 40 weeks, you are fab.

MissJ - Thank you for your rice post, will be using that tomorrow. You are obviously a pro cook, sure you don't want that catering job when your ILs retire? Grin Wink

Lenni · 04/09/2010 23:24

That should read 'children with Aspergers usually present in Year 7...'

treedelivery · 04/09/2010 23:35

See now there is someone who knows what they are on about, has experience and has a right to an opinion Grin Wow, it's an amazingly indepth comlicated thing. With politics as big as my bum I bet.

Sleep well Dog.

moosemama · 04/09/2010 23:36

Thanks Tree. Yep £33 is pricey, but we only need one roll.

I love the Belle and Boo stuff. So cute over the fireplace like that as well. Actually that fireplace is quite similar to the one in dd's room.

Ds2 wants a big hot air balloon in his room and clouds on the ceiling, but ds1 won't let us redecorate. Hmm

I'm not sure, but I think ABA programmes are really aimed at lower functioning children and from what I've seen its very intensive and I'm not sure I have it in me to commit to something that huge. I don't really know enough about it though.

treedelivery · 04/09/2010 23:42

complicated

re the Aba - I see. Yes, they probably are. See, I have no idea, but will natter about it if it's at all helpful. Probably just painful though, having to explain everything all the time.

I bet we all haunt you for advice and opinions through the oncoming years Lenni Grin

It's good you only need one roll of paper, you can get one you really really want. Will that company send you a sample?

moosemama · 04/09/2010 23:54

Thank you Lenni. You never offend me and I totally understand that discussing this on our thread puts you in a awkward position re professional/personal relationships etc. I am always grateful for your insight and experience in this area. As Tree said, it can get so complex and political it makes my brain ache.

Our last SENCO who had been the SENCO for 13 years said that in her experience our LA never give statements for ASD children on the basis of social/communication difficulties alone. If was been dx with several comorbid conditions he would stand a better chance, but it would be touch and go. Headmaster seemed of a similar opinion at our last meeting, but then you are always suspicious of whether or not its in their interests for you to go for a Statement. Anecdotally from the sn boards it seems there are a lot of primary schools that stand in the way of parents who want to go down that route.

I guess from what I've heard that they would automatically refuse the initial request for SA, then we would have to appeal and on it goes through SENDIST etc. I have been trying to work out what's the longest time the whole thing could take - I think the longest one on the SN board at present has taken 18 months and is just coming to a close! Shock

It just seems such a huge undertaking, when you are almost guaranteed a refusal. So demoralising when all you want to do is get the right help and support for your child.

Another problem is, that until we have the assessment/dx, I don't actually know exactly what sort of help/support I would want included on a statement. His needs and problems seem very complex at the moment and its not easy to separate them out to see the wood for the trees, we really need professional help with this.

With regards to secondary school, I thought that ds would almost definitely be staying on SA or moving up to SA+ by the time he leaves primary, so his secondary school would be aware of him having 'issues'. I wondered whether him not having a statement would be favourable from their point of view though - but maybe I'm wrong there then?

moosemama · 05/09/2010 00:01

Tree, it always helps to chat about it. It helps to get it all straight in my head. Its incredibly lonely having a sn child sometimes, especially as its not the done thing to talk to other rl parents about it. Even ds's best friend's mum doesn't know about his dx and she is really lovely, but she's also a governor and has fingers in lots of pies, so it would be round the whole school like wildfire if we did tell her. I am sure there are a couple of other asd or similar children in his year, but its never discussed, even though everyone knows iyswim. I'm sure a lot of them know about ds1 as well, but they all tend to skirt the subject and/or give me horrible knowing looks and sympathetic smiles and shrugs. Sad Other people who have 'told' other parents have then had trouble with them complaining about their dcs taking up all the teacher's time and attention and saying they shouldn't be in a mainstream school if they have sn. Sad

I have already sent for a sample of the wallpaper. The first two are free, the rest cost 50p each - so sent for 6 - just to be on the safe side. Grin

treedelivery · 05/09/2010 00:16
  1. Good number Grin

Lonely. Yes, I can imagine that. Fwiw, I am willing to bet there are 2 childen in our class with something going on, and I don't for one minute want them anywhere other than where they should be. Where ever is best for them.

I can't see any reason why my perfectly able child would in anyway have her no doubt illustrious* Grin school years affected by the extra needs of another. She has huge^ margins for improvement/regression. If she has a less than stellar term because all her teachers spend every working hour with one SN child [a daft idea in it's self] she will soon catch up. And besides, by virtue of being NT and also fairly able, she is surely unlikey to suffer anyway, she will fill her time and find oppurtunities to learn. Any shortfall will be picked up and worked on at some point.
That's how I see it at anyrate, but I may be odd. As usual.

It's such a shame about the cloak and dagger stuff regarding these issues. It's isolating.

H is up and in our bed. She woke, sprang up, and had to hold herself upright on her cot. Her har was at a 90. angle. Too cute. I'd say she has wind, she wants to lie on my lap like a banana, I have no idea how anyone sleeps bent back like that.

moosemama · 05/09/2010 00:29

You are indeed 'odd' Mrs Tree. In the nicest possible way of course. Many, many parents truly believe that having even one child with mild sn in the class is taking the teacher away from their child's education and therefore detrimental. I have even had to sit and listen to my PILs and S and BIL ranting on about this recently. (We can't tell them about ds1 as they are so scathing about sn and when we tentatively started talking about it once they were so vile I had to leave.)

H sounds so cute. E does that sometimes, stands up in her cot while she is still essentially asleep. She also says 'Hallo Mommee' automatically as soon as she stands up - even though she's not awake, which is sooo sweet. Her favourite sleeping position is on her tummy, hands tucked under her chin and bottom in the air. Looks mighty uncomfortable to me, but she rarely sleeps any other way these days. Smile I have a dog that sleeps like a banana - arched back, all four legs in the air, maybe she has wind too! Grin

moosemama · 05/09/2010 00:31

OMG, just looked at the time. I'd better get off to bed, they are delivering the tumble drier sometime between 8.00 and 12.00 tomorrow morning - what's the betting it'll be 8.00?

Night Tree x

Thanks for listening to my ds1 related ramblings by the way, I really do appreciate it. Smile

treedelivery · 05/09/2010 00:34

Night Moose. Looking at my typos I'd say I'm ready for bed. Shame the H-bomb is thowing the bear she got in hospital about, and insisting on taking her clothes off.

Enjoy new drier!

teaandcakeplease · 05/09/2010 07:52

The Autumn song is now on CBeebies, it's definitely my favourite. I love Autumn. DCs woke at 6am today

D0G · 05/09/2010 09:03

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teaandcakeplease · 05/09/2010 09:09

I'm mean and am picky on what Bella watches as Jakes is often in the room as well and is sensitive soul. Numberjacks makes him cry with spooky spoon Sad

Bella is watching Rosie and Jim on video right now. Takes me back Wink

D0G · 05/09/2010 09:10

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D0G · 05/09/2010 09:13

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teaandcakeplease · 05/09/2010 09:22

Jakes won't play with any toys if the tv is on. Tunnel vision he has, especially if the program is musical. He loves songs and can watch programs like show me show me with total 100% focus. Good for me to sneak on mumsnet or do a few chores Shock Blush

treedelivery · 05/09/2010 10:23

Dog - yes Grin

Love the crib. I remember looking at one when dd1 was a bump, and wanting one sooooo bad. Ended up with an ebay mamas and pappas. WHich dd2 is still in.

H has just hurtled down the stairs and shouted 'bop-bops' at the telly, and got sat on the couch ShockBlush
Sadly for her I just whisked her off for a nap. Had all the girls in bed with me last night. Dh ended up in spare room.

Impetigo has spread despite antibiotcs. I'm pissde off. It's sore and ugly and itchy, hot and burning. I had resolved to take dd's to mass today, I have asked dh to take dd1 as I can't go like this. He has said yes bless him.

H is lying on my chest with her arms through and wrapped around my vest straps. She loves skin. She is headbutting me to stay awake HmmGrin

Autumn? Noooooo. I don't want summer to end, I hate the oncoming threat of winter. Dark dreary days, freezing school runs, freezin work runs, and poverty due to birthdays and christmas!

Barrel of laughs aren't I? Grin I'll cheer up in March.

D0G · 05/09/2010 10:33

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treedelivery · 05/09/2010 10:40

Oooo I got cramp when I was pregnant with H and the pain after lasted abot 5 days! I felt like I had a big ball in my leg. Blimey doesn't it hurt!

lol at my typo, I'm sure I was never so bad at typing. This keyboard is passed it though, it actually moves and the i is beyond help.

Winter is cosy isn't it, it's when we have to go places we don't want to go. That's when it bugs me. All those hats and scrves, they adda bout 10 mns to the school run! I hate having central heating on too, I hate that dry feeling. I also hate to freeze so we must get the boiler fixed Hmm

Poor dh. He looks mutinous at me sending him to church. I'm in bed with seeping baby and laptop Blush That's bad isn't it?

D0G · 05/09/2010 10:47

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treedelivery · 05/09/2010 10:54

No I am trying to get us into the habit of going. We were in the habit of my mum taking them to her local one, but it has just worked out that she doesn't see dd so much at her own house anymore. So we need to get going to our own, we are at a faith school and need to put oursleves into it.

I can take her next week, but then I'm working most of the weekends I think. Shifts drive me insane. If I had one wish [apart from perfect health me and everyone I know] it would be to be a SAHM. Oh well.

There is no food in the house. Bummer.

D0G · 05/09/2010 11:11

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treedelivery · 05/09/2010 11:15

50 mins. So not a huge thing really.

Tried to put the bomb down so I could mop floors and look into making a shopping list - she bawled Sad

Trapped in a dark room with a whiney toddler who has gad 10 mins nap, needs more, but is wired after waking.

Truly, I'd go mad if it wasn't for the internet and mumsnet and others.

D0G · 05/09/2010 12:09

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