I know that feeling very well unfortunately.
I had a rhumatologist overrule professor Grahames diagnosis of my EDS (world specialist in EDS until he retired) - he literally sat in the appointment and told me prof Grahame made it all up to make a name for himself and I was just a fat lazy girl who needed to get down the gym, go to weightwatchers and get a job and it'd all go away 
. The diagnosis he changed to fibromalygia which he said meant all of those things(!), he also said I was a drug addict and needed to go to NA and to bin my painkillers as I couldn't possibly be in the pain I claimed as it was impossible and should try mindfulness instead as it had been proven pain killers don't work and mindfulness does
I left in tears. I saw my GP straight after (just so happened to be my regular appointment) and told them and they said not to worry. It's true when the letter arrived they said to me that it was "an opinion" (in icy tones), I was not to return to see him and the rhumatologist lost their job soon after starting. Though my GP agrees with the specialist other Drs I've seen have taken the view of the idiot instead over ruling my EDS diagnosis.
The point of that is even when diagnosed you still get people overruling it.
My notes are a bloody mess because of a serious lack of professionalism and people wonder why I say I'm confused - I'm constantly bullied to believe different opinions (everyone says they're right) and it's really effecting my mental health.
When I was first diagnosed I was so grateful to have a name to put to it all, not only the EDS but the other stuff as well and the other professor said to me, and I'll never forget it, "The dr who wrote to me is still determined you are fine. You'll still be called liar/lazy/stupid - there are assholes in every profession, especially mine, and you need to prepare youself for these diagnoses not changing a thing" - I didn't believe him, but he was right.