Prayers for Aillidh part 2

[Sirzy]

As the other thread is nearing its limit, hopefully this is the thread with lots of positive news.

Old thread www.mumsnet.com/Talk/philosophy_religion_spirituality/1470444-Prayers-for-Aillidh?msgid=32590675#32590675

Candle lit and praying hard. Sending lots of love and strength.

Keep fighting Aillidh, keep fighting. X

Heavenly Father, watch with us over your child Aillidh and grant that she may be restored to that perfect health which it is yours alone to give. Relieve her pain, guard her from all danger, restore to her your gifts of gladness and strength, and raise her up to a life of service to you.
Through Jesus Christ our Lord. Amen.

Lord,
We pray for A and ExP, your dear children.
We hold them close to our hearts as you do.
In your mercy, hear our prayer.

Still praying, and willing aillidh to improve xx

Continuing to think of you all x

Have just got my mum to light a candle in the shrine of our lady in walsingham.
I know its not much but I feel like its something.
My mum is a deeply religious lady who lives her life as a nun. She has said she will pray for her tonight.
xx

Aillidh, we're thinking of you x

Dh and I both thinking of you. Sending you love and strength.

Thinking, hoping and praying.

Praying for strength for you little A x

'Have just got my mum to light a candle in the shrine of our lady in walsingham.
I know its not much but I feel like its something.
My mum is a deeply religious lady who lives her life as a nun. She has said she will pray for her tonight.'

What a lovely thing to do.

Praying and thinking of you all x

Adding my prayers and thoughts. Keep fighting little one x

Giraffes updated the other thread with the news that Aillidh is very ill but stable atm.
So let us stand tall (even if we're short like me) and keep on praying. Keep on believing.

I believe in miracles. I believe in answered prayer. I believe that nothing is impossible with God. I posted this verse from Jeremiah on the first prayer thread and I'm repeating it now because more than anything it sums up what I feel about this situation and it shows the promise I hold on to:

For I know the plans I have for you,? says the Lord. ?They are plans for good and not for disaster, to give you a future and a hope. In those days when you pray, I will listen

c&p from the otyher thread i just did this post - :)

Its ok I need to sort of write about today anoyway, both as a wee update but also its cathartic. At ChildLine when we are on calls we do case notes after (so write them up) and then at end of shift we have a debrief where we can talk about anything that is sticking in our minds, so its sometimes helpful to write/type stuff.

So when I went in she was happy to see me, I like that, she always is pleased to see me. I will worry when she shows no reaction to me being there. Expat went away for a break and her dh and I stayed with Aillidh. She was vomiting lots of bloody/clots every 10min ish, horrid for her And she had vommed in to her BIPAP machine tubes so was just on oxygen mask (although high levels of it) and so was getting exhausted.

Tubes got changed. And after sickness calmed down went back on BIPAP. She sometimes gets very panicy on it though - if anyone has any experience of it/tips for it then they welcome? She tolerates it well on the hole and she very much needs it but when she panics she claws it off and heart rate shoots up to 185ish. (sits about 160 normally atm)

Then Drs (oncology and PICU) had a big meeting, then took expat and dh away for a meeting to discuss the plans/strategy, so I stayed with her. And she had an xray too. Plans from meeting = continue with same meds atm, and on BIPAP as much as possible, they were considering changing meds and may still do so but xrays dictated their decision.

She has surgical emphysema (spelling?) and so this is causing pain in her neck so they were planning on increasing pain meds.

Someone asked if siblings allowed in - no. She is in strict isolation, so only parents. They are allowed to see her through a window. Only reason I am allowed in is because when dh was at home with kids then expat on her own so they let me in and I have just stayed being allowed in. Also the families home is a long long way from hosp (ferry ride away) Although they are currently with family in edinburgh. Expats parents have been contacted on their cruise ship and expat has asked them to come so they are making travel arrangements to come.

Any other questions feel free to ask. I keep getting asked if need anything - tbh all Aillidh is doing jsut now is watching DVDS. She has asked for high school musical, if anyone has a copy of that they dont need? She is not able to hold anything really, too shakey and weak so colouring etc is out for now. The only think I can think of to help is maybe M&S or sainsbos vouchers - living off ready meals/salads. And the cost of these mount. Today I bought food for expat and dh and it was £12, that was just 2 meals each. (It was M&S, but I wanted to buy them something nice, tempting, expat has lost a load of weight. and I wanted to buy nice and nutricious food - if you aint getting sleep you at least need good nutrients right?) (do I sound all american saying "right?" I have been with expat too much!!!!!!)

She bought me dinner tonight in the canteen, it wasn't too bad actually!

I have held you in my thoughts all day, Ailidh, Expatriates and family. Willing and hoping for you to be strong and pull through this.

Xx

THIS IS IN CAPS - NOT BECAUSE I AM SHOUTING AT YOU BUT BECAUSE I WANT YOU ALL TO READ THIS!!!!!

Expat does mention frequently how many people are behind Aillidh, how many people are with her/praying for her. I am not religious myself but I know expat is and she is really grateful for all the support/wishes prayers.

Her time on net right now is limited because she used to be on when in room with Aillifh but cant have it in her icu room. So only gets on when she is away from Aillidh. She has seen all the messages, and she doesn't have the time to reply to every single one but she is very very encouraged by all the thoughts and they are keeping her going to think of the hopeful positive outcome we all want.

So if you are the prayiing type, keep doing it because it is very very helpful to her. :)

NorthernLurker - what a beautiful verse. Thank you for sharing again. I will read it over and hold Expat and Aillidh up to God in prayer.

I have been thinking of them and lurking during today but not sure I can find the words to express my feelings & support. I believe that God can perform miracles though and I also believe in the strength & power of MN. I also know from the FB posts that Aillidh is a fighter. I pray that all of these factors will come together to help her pull through and restore her health.

Please tell her no one expects her to reply at all never mind to all of them. We can't do anything so this is what we are doing. We are all thinking of them.

Tell expat we don't mind that there are nonreplies form her. Aillidh wants her to be there. We cant do anything other than pray and think of them 24/7.

yes i concur not bothered at all that there is no reply from here, i wouldnt expect one! she is where she needs to be, with Aillidh and we are all holding them both in our thoughts xxxxx

hoping for a peaceful night for Aillidh that gives her strength for tomorrow xxx

Keeping praying. Keeping believing. Please God.

Thank you for your updates Giraffe - I'm sure that no one is expecting anything written down from Expat.

I hope that Aillidh has a restful night - and that Expat gets some rest too.

I would love to send a voucher or some money. There seem to be several people on here who know the family- is there one who has the time and the emotional energy to be a collecting point? Then we could all send to her and she could forward to expat or giraffe?

Sorry- that should be on the other thread, really. ignore it.