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Original poster

UnlikelyAmazonian's DS is gravely ill

507 replies

PiranhaMorgana · 17/05/2012 20:40

Please pray for UA's son,4yo ,who has just been diagnosed with Leukaemia and is on his way to Bristol Children's Hospital this evening.
UA is currently banned from MN after an altercation on Relationships,but she has continued lurking and really misses the support which helped keep her strong for her DS since her very abusive xh disappeared 4 years ago.
She is a very dear friend of mine and her DS is her entire life.She is absolutely devastated and has no family.

OP posts:

Thumbwitch · 19/05/2012 08:35

So glad you're back online UA and back on here, more to the point. (((((hugs)))) for you and your boy - sounds like a mad thing to say but I'm "glad" it's ALL and not any other variety, and better he should have it earlier than later (seeing as how he has it anyway - obviously not to have it would be far better) as that gives him better chances.

Hope that everything goes as smoothly as it can and as you know, being in Oz means that I am online at the oddest hours, so if you have a need in the middle of the night, let me know (PMs work best) and I'll almost certainly be here. xxx

gingercurl · 19/05/2012 10:05

Praying for you both.

Doobydoo · 19/05/2012 10:28

Sending you both strongest positive vibes.Am very pleased you are back on.xx

lisad123 · 19/05/2012 10:46

UA, we had the same with dh, it all was within 12 hours. We are now 3 years post dx, and it takes months but you do settle into a new kind of "normal". You won't feel like this for the whole three years, I promise you, but do take time, take offers of help, look after yourself too and do your research.
If you need anything we are all here, sadly a few of us have been where you are but please do ask for help.
There is a children's cancer thread on health when your feeling up to posting they are a great support. X

MsIngaFewmarbles · 19/05/2012 10:58

UA I remember you well from your posts. I am so sorry your son is unwell especially after all you have already been through. Sending love and strength to you both.

I live 15 minutes from the hospital so if you need anything, coffee, laundry done, anything please just shout x

ThatVikRinA22 · 19/05/2012 11:07

hi UA - so glad HQ did the right thing here - keep posting as and when you need to - and best of luck with everything.

best of luck lovely. x

roguepixie · 19/05/2012 12:44

I am adding both you and your DS to my prayers and will light a candle at Mass tomorrow.

I do not know you or your story but wish you and your DS every hope, prayer and support on this journey. All these prayers and good wishes are winging their way to you, giving you every possible good vibe going. I am so glad that you are back on MN.

It seems such an odd thing to say but I am glad that his condition is one that is more easily treatable, responds well to treatment and has such a high success rate.

Thank you MNHQ for reversing the ban.

PacificDogwood · 19/05/2012 13:07

Glad to 'see' you back, UA .

Your little boys sounds like a reslient wee soul. I have in the past worked with children with various cancers and they humbled all of us adults all the time with their bravery, dignity and just plain ability to get on with things in the face of horrible treatment.

I really hope he and you will have as smooth a journey through this all as is possible.

PavlovtheCat · 19/05/2012 13:17

I am thinking of you and your little boy. Strength and love to you both.
Pavlov x

Suedonim · 19/05/2012 15:03

UA, I don't know you but I saw a link to this thread on FB. If good wishes were deeds then your wee boy would be cured already. Thinking of you both.

CiderwithBuda · 19/05/2012 16:46

Hi UA. Glad to see you back but not the circumstances.

Poor DS.

If you need anything just shout. I am about an hour south of Bristol.

Solo · 19/05/2012 19:11

Excellent news that UA is back on, thank you MNHQ and glad you can post again UA :) I hope you are as strong as you have always been on here...such awful news, but I hope things will be sorted well for you both.x

tribpot · 19/05/2012 19:15

No words, UA, just deep sympathy and sorrow.

FriskyMare · 19/05/2012 19:25

UA my heart goes out to you, we were in your situation 12 years ago when dd then aged 2.6 was diagnosed with ALL. You will soon find yourself in a little bubble of you, DS and doctors/nurses. Has he had bone marrow taken yet? DD was in remission within days but still had 2 years of treatment (longer I know for boys), fingers crossed it will be the same for him. It will be hard and you have a long road ahead of you but once you are informed of treatment you will start feeling more in control.
Much love to you bothxxx

DD is now a beautiful happy healthy 14 year old who has just taken part int the Manchester junior run in aid of Leukaemia and LYmphoma Research and I am so proud of her.

UnlikelyAmazonian · 19/05/2012 19:54

Thanks everyone. Means such a lot. My friend is still here which has been a godsend. Chemo starts next week. Its ging to be awful I know. I looked at cancer in children thread but found it too dificult right now. Not really sure what to expect of it all. Dreading ds looking ill, which he ill. I am going to be so strong as strong for him though. Thanks.

UnlikelyAmazonian · 19/05/2012 19:56

btw very encouraging to hear stories from those who have children who have come through and are now older happy and healthy.

FriskyMare · 19/05/2012 20:40

Keep us posted about how his treatment is progressing, it's amazing how they can perk up once they have had platelet/blood tranfusions. Once your ds is feeling well again it will be much easier for you.

I'm sure I speak for many when I hope to offer you advice and support especially over the next few weeks.

BelleDameSansMerci · 19/05/2012 20:49

Lots of love to you both, UA. x

simpson · 19/05/2012 21:02

Thinking of you and your DS.....

BertieBotts · 19/05/2012 21:48

UA, your posts were such a source of support to me all those years ago (has it really only been 3, because it feels like a lifetime ago) in recognising XP's behaviour as narcissistic and giving me the courage to leave. Those were long threads and the small core of regulars on them (of which you were one) really and truly changed my life. I will never ever forget the kindness and support of MNers at that time. I know it can't compare, but I hope that you can access some of that kindness and support now when you really need it.

I am really devastated to hear your news and I hope that things go well with the treatment.

Rindercella · 19/05/2012 23:07

So pleased MNHQ have done the right thing. I the support and advice from fellow MNers can be an absolute Godsend in times such as these.

UA, I hope that DS is as comfortable as he can be. Thank God he is now in hospital and is being treated. It really is the best place for him and actually, as awful and terrible as the news of the diagnosis is, I am sure that knowledge is power and now you know what the devil is you're dealing with, you can equip yourselves with everything you can to beat the fucker.

You are an amazingly intelligent, strong and resourceful woman and you really need to make sure you use every available resource and offer of help. There are sadly so many who have been in the same situation as you and your DS so although this is all new and bewildering for you, there are some amazing people around who have been there and who can help you through this.

My thoughts are with you both and I have everything crossed for your DS .

ledkr · 20/05/2012 19:04

Good decision mnhq, welcome back AU now behave yourself

Hope you can get some support here I have a friend whos's dd had lukeamia and is now 24,sending you good vibes.

Seabright · 20/05/2012 21:18

So glad you are back & am hoping we can be of support to you. Shout whenever you want something, someone on here will hear you and try & help.

Love & hugs!

giraffesCantGoPotholing · 21/05/2012 00:35

Thinking of you. Would advise some good lipbalm - this is the one expat and her dd been using - helps with dried up chemo lips. And get some good hand cream for you for all the washing/antibacterial gel, I like that norwegian formula stuff as its not all greasy.

LadySybilDeChocolate · 21/05/2012 12:32

I'm so very sorry to hear your news. Sending you some good vibes and a huge bottle of hope and strength. xx

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