UnlikelyAmazonian's DS is gravely ill

[PiranhaMorgana]

Please pray for UA's son,4yo ,who has just been diagnosed with Leukaemia and is on his way to Bristol Children's Hospital this evening.
UA is currently banned from MN after an altercation on Relationships,but she has continued lurking and really misses the support which helped keep her strong for her DS since her very abusive xh disappeared 4 years ago.
She is a very dear friend of mine and her DS is her entire life.She is absolutely devastated and has no family.

UA My cousins little girl was diagnosed with ALL almost 3yrs ago. They're in the States so I daresay the treatment is slightly different but she has just finished the bulk of treatment and is now a thriving 6yo. IIRC it was 12-18 months of the most intense treatment then maintenance. I think they have fortnightly clinic visits now, but she's at kindergarten, swimming and able to do everything all her friends do.

Thinking of you and your DS.

UA my thought are with you and your ds. Stay strong xx

Ua I don't know you or your story but I am glad you have been allowed back on. My ds had to endure the most brutal year of treatment following complications from
His premature birth. Doctors are amazing. I have a friend near Bristol who would be happy to drop anything in if you are in need. Stay strong xxx

UA - I know your story from WAYYY back.

Can't believe you are faced with this and wishing you every bit of strength, and good luck and faith that I can muster.

xx

Prayers from me. If you need anything just say. I'm at BCH a fair bit.

Thinking of UA and her son. Will lit a figurative candle for them.

I hope she gets unbanned.

Light a candle, that is.

Jux, she has been unbanned - messages from MNHQ and UA herself on this thread. :)

That'll teach me to post without refreshing!

Good news re the unbanning.

UA, I'll be thinking of you both.

Hello. Ds is now two days into chemo/steroids etc. It's a blizzard of drugs and syringes, IVs, drips and god knows what. He has had a lumbar puncture and a portacath fitted. He has been in good spirits. But then the syringes arrive with does of thisaxethamine and thatallopinol and god it's horrendous. He had three to take at the same time tonight and he did so well, brave little man, then vomited the lot a few minutes later. And I don't blame him either.

Spent two and a half hours trying to persuade him to take two syringes this morning, but eventually had to pin him down with help of the nurse. Hideous.

The ward is so hot. I am so knackered and we are only two days in. Another MNetter met me outside for a smoke this afternoon which was wonderful.

My lovely friend arrived from Yorkshire for a couple of hours this afternoon and sat with DS while I went and raided shops for food, more tee-shirts etc.

It's a horrible journey. I am shit scared. Ds is such a trooper and even covered in sick he managed to keep half an eye on the ninja turtles dvd. He has more bloody strength and stamina than me.

btw Ds is finally asleep which is why I can get away to computer room and write. Thanks for supportive messages again. They help.

Thinking of you both

hello, I remember you (own name has changed about seventy times though)

don't know how I missed this thread until now but am so glad you are back and want to add my love and best wishes, thank goodness you have some support in real life too x

Kids are amazing aren't they. Wishing you both the best and praying for you too.

(((hugs))) UA and DS. Much strength to you both - it's a foul time but it will, all things willing, be worth it afterwards.
Spout all you like on here - it's what we're here for. xxx

Computer room? Have you not got your own laptop? I was trying to find you one and then op posted to say you had one?

I'm in Bristol please let me know if I can be of any help to you. I've been thinking of you both it must be horrible in this heat :(

SO sorry to read this UA. Bloody hell.

My dear friend had leukaemia when she was a teenager, and she is now a beautiful sporty woman in her late 30s.

Will keep you and DS in my thoughts xx

((((((hugs)))))) to you both from all of us xxxxxxxxxxxxxxxxxxxxx

I've been thinking of you and your DS a lot. Poor little chap but he really does sound a tough little nut if he's still managing to keep up with his DVD.

Can't imagine how horrible it must be for you to see him go through it. Wishing you both well

UA - I work in a second hand DVD shop and can get all sorts of things really cheaply. If you let me know what kind of things your DS likes I'll keep an eye out for you and post some down xx

UA - I am so glad that Mumsnet has lifted it's ridiculous ban. I am sending positive vibes to you and your beautiful son (seriously, he is beyond gorgeous). Xxx

Aw bless him, poor little mite. So impressed with your ds being so brave. You sound like you're being incredibly strong. Big hugs to you both xx

Ds been so good today. Had needle re-insterted into his portacath as he yanked it out. 'I hate you mummy'. Ouch ouch ouch for him.

So hot on this ward. I am very tired as another little boy is having a really rough time and cries loudly a lot so not getting much sleep.

Going to make a cup of tea now. Not something I thought I would ever write. ha

thinking of you.

I will keep praying for you and DS. I'm in Australia so I'll be awake if you want to PM or chat.
You are so brave x