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Prayers for Aillidh.

939 replies

chipmonkey · 11/05/2012 12:24

Just wanted to start a prayer thread for expat's little girl, Ailidh, who has been very ill with leukaemia. Just wanted to show our support and pray that her treatment works and that she is back in action very, very soon!

OP posts:
KristinaM · 19/06/2012 11:18

Surely she could pee for either the US or Scotland? Assuming she has both nationalities Grin

mummylin2495 · 19/06/2012 11:35

A very very happy birthday Aillidh , what time will you be having your party.I will join in with a cup of tea and a cake to celebrate with you.Enjoy opening all your cards and presents.x

mistlethrush · 19/06/2012 12:07

Happy Birthday Aillidh

Furball · 19/06/2012 16:24

Happy Birthday Aillidh!

strictlycomedancingdiva · 19/06/2012 18:42

Thinking of you on your special day, happy birthday Aillidh x

Chubfuddler · 19/06/2012 18:43

I hope she's had a peaceful, pain free day and is resting now.

AbigailAdams · 19/06/2012 19:27

Happy Birthday Aillidh!

StealthPolarBear · 19/06/2012 22:22

Hope ailidh has had a good 9th birthday xx

Elephantscantdothemoonwalk · 20/06/2012 16:48

Hope ailldh is ok. And she had a wonderful birthday!

expatinscotland · 20/06/2012 19:10

Her sats are slowly improving because she is actually blowing into her ball thingy! She's been coughing up gunk, too.

I refused two CT scans because she can't do what they want: lie flat, not cough and hold her breath. If they're not going to get a cracking picture because she can't do these things, then there's no point in her having it anymore.

Ditto another xray.

Enough is enough! Her CRP is down to 18 from 66 yesterday. Let's get physio going and get her MOVING again so her body has a chance to heal itself.

This didn't make me popular. I had busybody auxilliary tell me, 'You know they won't find out what's wrong if they don't do the scan'. Well, they won't find out anyway because she can't lie flat and not cough or hold her breath, and sorry, but I don't care how long you've worked here or what you've seen, you have NEVER been in this position, you don't even have kids, so piss off.

I'm not here to make friends, I'm here to do what my husband, A's father, and I feel is best for our child and her siblings.

expatinscotland · 20/06/2012 19:13

I'm sick of the fact that nurses stand witness every time a doctor comes to speak to you. I go to the GP all the time on my own. Imagine that? I can't think with people hovering over me. I told the transplant doc that. I said, 'My husband and I need time to think about this ALONE, for Pete's sake!'

I'm so fed up of this, I leave the room when they come in a lot.

expatinscotland · 20/06/2012 19:13

99% of the ridiculous comments come from people who have no children themselves. I roll my eyes at them.

Desperatelywantingadvice · 20/06/2012 19:16

So glad that things are on the up Grin. Thinking of you all.

smokinaces · 20/06/2012 19:27

Expat, I'm in awe of you. Keep on sticking to your guns

sassytheFIRST · 20/06/2012 19:56

Go expat! Great news about the crp. Hope A had a happy day yesterday.

Elephantscantdothemoonwalk · 20/06/2012 22:06

Great news about the crp. Do stick to your guns expat, your her mum. You know what she needs to do, the doctors do as well but somehow I feel parents always have that instinct.

expatinscotland · 21/06/2012 01:55

Had long talks with two young docs tonight. Stop dehumanising and depersonalising people. Don't ever do it. If you start, leave the profession. You do no service to anyone. How can I trust you, with the life of my child, when you don't even bother to know my name? If you don't have space to handle people and your duties then you are in the wrong profession, nurses and other healthcare professionals do it all the time.

One of them, he told me tonight that he became a doctor because of A's consultant.

I told him, her failings are but one, yet significant, for even the great have feet of clay. And that hers what that she would never stand listening to him like that. She doesn't know this because she's not the sort he's been able to approach. That he told that to me instead. I asked him why. He said, and I took it as a great compliment, no offense, but you seem like a friendly mum.

This man is young enough to be my son. This young man I would burst with pride to have as a son.

I told the other that I had been sent to the consultant's colleague, a professor himself, and that when asked how it had gone, by others, I had replied that it was a great kindness to have known him, that he is a role model for all in his profession, and as a human being.

What have we now?

Every day I write a quote on the white board, where you go to wash your hands.

One asked me, where I got such things, was it online? I said sometimes, but it was mostly stuff from my own trivial memory.

'I should have had her when I was well,' is today's. From John Keats.

How can I stop feeling we trusted the wrong ones? We can't.

We put our faith in them and not God and in our child herself.

We bought into the scare.

I told the transplant doc, 'Have I not told you all, what I am, because you asked? You take trust for granted. Why? I'd never do that, and I've held the life of professors, famous authors and hotel cleaners alike in my hands, and mine in theirs. We all bleed red. What is wrong with you? You think you're impervious to it all? What planet is that, because I want to go live there? Your boss is afraid of me. Why? Her colleague is afraid of my friend. I can tell you now, she's one of the cleverest people I've ever met, but all you people hear is East end of Glasgow. What a stupid waste on your part! Why do you waste your life like this?'

Oh, who fucking cares? They obviously don't.

We bet on the wrong horse, is what it boils down to.

Chubfuddler · 21/06/2012 05:55

Expat Sad. Please stop blaming yourself for this. How would aillidh be now if she hadn't had the transplant? You can't know. There's no way of knowing it would have been better.

ripsishere · 21/06/2012 06:23

You don't yet know that you bet on the wrong horse.

Elephantscantdothemoonwalk · 21/06/2012 06:44

Expat :( you haven't bet on the wrong horse.
It sounds like the doctors don't care about you. Your there with ailldh all the time the least they can do is learn your name

ripsishere · 21/06/2012 06:51

Elephants puts it so much better than I did. There will be prayers again involving my DDs class and the new school she is visiting. 900 children + around 70 staff.

Elephantscantdothemoonwalk · 21/06/2012 07:50

Thank you ripshere. Hopefully aillidh will be better soon!

Northernlurker · 21/06/2012 08:02

Your decision about the CT is perfectly sensible. You're right - if she can't lie still they won't get a decent picture - why subject her to the radiation for no useful purpose? I am 100% certain that I would say exactly the same. The drop in CRP is fantastic.
Hang in there - I think you were in a one horse race tbh. It may feel like there was another horse lurking beside you, waiting for a chance to be a Derby winner - but everybody dreams of that. The Shire horse in front of you is the one you got.
Expat you are walking out of the hospital one day with your beautiful girl and resuming your lives. I have faith.

mistlethrush · 21/06/2012 09:11

Its so sad that there aren't a bunch of health care professionals that actually realise that being decent human beings is part of the job Expat. They do exist - I've experienced a team of highly professional yet amazingly caring nurses and Drs but they do seem to be rare to be that good, The young Dr you talked to sounds fantastic,

Sats and CRP news must be positive - I hope there are more steps in the right direction again today.

NoComet · 21/06/2012 13:04

Hugs, Expat.

I think the whole way medics work is geared to stop them caring too much. If they did they wouldn't survive.
Sadly, time, money and procedures mean they now appear to care too little.

Also being an A* scientist doesn't guarantee any social skills. It does encourage them to look down on the rest of us as thick.

Many medics also appear to be utterly hopeless with children, very brisk as if they are scared of them. They utterly fail to understand that small children are people too! I think they feel the quicker they are the less chance there is of tears and tantrums. Of course the opposite is true, DCs get scared and parents are left floundering because they vanished before we can ask any questions.

Good luck and love to your beautiful Aillidh .

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