Page 7 | 3 year old excessive thirst

ShallWeGoToTheFirepit · 2024-07-07T19:18:12+00:00

Hi everyone. My 3 year old DD has always been a big drinker. She guzzled her bottles and milk as a baby and always drank lots of water and milk. I never thought anything of it until preschool mentioned it to me recently. Since then (on Friday) I have kept a tally of how many drinks she has. She mostly drinks water or milk, with the occasional squash or diluted fresh juice. She has had 14 drinks today in total, she has a large munchkin cup if you know the one I mean, so it's quite a big cup rather than a small beaker. When she does drink each drink, she will more often or not guzzle them down. She does pee very often and her pee is clear. I honestly thought it was just good hydration! Is this normal? Or anything to worry about? No other symptoms of anything, otherwise a very strapping healthy preschooler. She is slightly on the smaller side, but I am petite and she's plotting on her charts correctly. I'm now worried about over hydration. Thank you!

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TheShellBeach · 16/08/2024 10:09

That's really good news, OP.

HeartandSeoul · 16/08/2024 13:49

I’ve been lurking in the background, but your update is fantastic news! I was thinking of you the other day, as my 13yr had an MRI the same day your daughter did, and I was thinking how it’s hard to watch your child having to go through these tests/be ill. As a parent, you would take it all from them in a heartbeat, and go through it yourself if you could ♥️ (just to add, it was slightly easier for me, as my son quite enjoyed the MRIs he has had recently 😳😊!).

jannier · 16/08/2024 15:58

Brilliant hope she has a great day

Bells3032 · 16/08/2024 18:37

ShallWeGoToTheFirepit · 16/08/2024 09:57

Hello all!

Just a quick update for anyone still around, DDs MRI is clear thank the Lord. I was most worried about that, as with seizures we can deal with that, but if they were caused by anything growing on her brain or structural problems then that's a whole new kettle of fish. EEG has shown seizure like activity, she will probably have to have another one over a longer period of time as both EEGs she's had have been quite short. But her MRI is normal. Had a big cry of relief yesterday when they told me the results.

We're heading down the epilepsy / petit mal pathway now. Her drinking has been a bit of a mystery and perhaps maybe a way of regulation or soothing. I have ADHD so it wouldn't surprise me if DD had some sort of ND and maybe it could be linked to that, who knows. But I've been scaling her drinks back very slowly (a beaker a day) and she's been doing amazing. She's back at the childminders today for the first time in a while so she can see her friends and I can get some work done.

A huge sigh of relief and can breathe a bit now for sure.

Ah phew that's a relief. Thanks for the update. Have been thinking of you. Fingers crossed the meds will sort of the seizures. Good luck to both of you!!

abbs1 · 17/08/2024 17:10

OP this is fantastic news and such a relief. I've lurking to wait to hear an update and so pleased it's positive

Lovemybunnies · 19/08/2024 07:55

Thanks for the update OP. I have been thinking of you both.

EliflurtleAndTheInfiniteMadness · 19/08/2024 08:30

That's great news. The drinking could be a self soothing behaviour or she could be mistaking a different feeling for thirst. If can be hard for young kids fo know what they're actually feeling and even more so if ND. My DC are all Autistic and one mixes up feeling cold and hot, he thinks he's burning hot in winter and won't wear warm clothes. Used to scream he was burning as a toddler if the sun was on him in the car. I don't mean if the sun was actually hot on him, just if he could see sunlight on his arms or legs. Made for a fun couple years in the car.

You mentioned speech regression earlier, my brother had seizures as a kid and they'd often effect his speech, there's potentially a link there.
We found the best way to get him back to speaking properly was to keep him talking, ask him things, chat to him, it came back each time. A friends LO had epilepsy following what they think was a traumatic brain injury during birth. It took them a few goes and a while to get the meds right, which waa really tough and scary, but once they got them right the seizures reduced massively and she was able to come off them after about 2.5 years.

I hope you can get some answers soon and something like medication that helps her. You're going through so much I hope things get easier for you real soon. Thinking of you and your precious DD.

Original poster

ShallWeGoToTheFirepit · 23/09/2024 21:08

Hi everyone.
Just an update if anyone is still around. DD has been diagnosed with reflective and absence epilepsy. She's not on meds (yet) as they're being very careful not to over or under treat her but there is a big possibility she'll need to be medicated. They are confident she may grow out of it, but she may not and it may turn into tonic clonics. She's doing amazingly well. She's averaging on 1-2 seizures a month. We think a trigger may be heat and exertion in head. They are definitely not febrile seizures and aren't trigger by flashes and noises.

WRT her drinking, she still drinks a lot bur I've whittled it down to a more of a normal range. I have ADHD and there's a chance DD may have so it could be a soothing / regulation type thing. But she's doing good, it's all much less scary now. :)

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Original poster

ShallWeGoToTheFirepit · 23/09/2024 21:12

EliflurtleAndTheInfiniteMadness · 19/08/2024 08:30

That's great news. The drinking could be a self soothing behaviour or she could be mistaking a different feeling for thirst. If can be hard for young kids fo know what they're actually feeling and even more so if ND. My DC are all Autistic and one mixes up feeling cold and hot, he thinks he's burning hot in winter and won't wear warm clothes. Used to scream he was burning as a toddler if the sun was on him in the car. I don't mean if the sun was actually hot on him, just if he could see sunlight on his arms or legs. Made for a fun couple years in the car.

You mentioned speech regression earlier, my brother had seizures as a kid and they'd often effect his speech, there's potentially a link there.
We found the best way to get him back to speaking properly was to keep him talking, ask him things, chat to him, it came back each time. A friends LO had epilepsy following what they think was a traumatic brain injury during birth. It took them a few goes and a while to get the meds right, which waa really tough and scary, but once they got them right the seizures reduced massively and she was able to come off them after about 2.5 years.

I hope you can get some answers soon and something like medication that helps her. You're going through so much I hope things get easier for you real soon. Thinking of you and your precious DD.

Edited

I'm so sorry I didn't get back to this sooner. This is such a lovely, reassuring message to read.

Yes there's high chance DD is ND. One of my parents is autistic and ADHD and I was dx with ADHD many moons ago. If it is down to a regulation or soothing thing, then I'm glad she drinks lots of water. Her speech has come back to normal, but after every seizure she will stammer and stutter letters and words for a few hours, sometimes a day, so I think you're right that there is a link. Thank you again for taking the time to check in, it means a lot

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3 year old excessive thirst

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