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*Trigger Warning* Poorly baby, long post

61 replies

ELBlack · 08/09/2021 05:48

I'm really not okay. I've had a complete breakdown it feels like I can't even open my eyes they're so swollen from the crying. My daughter was born at 37+4 after a long, exhausting and traumatising induction process due to a series of reduced movements. My daughter was born via emergency forceps delivery after an hour of pushing. I wasn't having contractions so she was yanked out as a she was so low and a c section wouldn't have been quick enough apparently, however the cord was wrapped very tightly around her neck and they spent 15 minutes trying to revive her before whisking her off to NICU.

She is currently ventilated, sedated and going through a 3 day 'cooling period' before they can warm her up again in a couple of days and try and address her state.

It's killing me because when they say she is doing well, they really only mean that she's not showing any concerning abnormalities at that moment in time whilst she's so sedated. There's absolutely no idea in seeing how her life is going to be impacted until we get the results back from her MRI. Which they won't do until she's 7 days old, and they can take a couple of weeks to come back. Brains are so complicated that it could be she's got some sort of damage which initially might not seem that severe and when she comes out of her cooling period and off the ventilator she may even be able to start feeding, crying, putting on weight and go to the toilet etc, doing things a baby would, and if that's the case we can take her home, but it won't indicate what any long term damage may look like her for (assuming of course she will have some, I know there's every chance she could make a full recovery and have a normal life), so that's what the MRI results will tell us.

I'm so terrified she's going to get warmed up and just suddenly not cope and go downhill and have to be ventilated again, or that she's going to show positive signs and then we get the results back and it turns out she's going to be a very poorly child needing so much help and not being able to live a normal life.

I know there's so many variables and outcomes to this, but my mind is racing and my heart is broken. I feel like the shock has worn off a bit and I'm realising that I'm without my baby, and I just can't take it. I've not even held her and she's nearly 48 hours.

I don't know what I expect from this post, but I'm hoping for some support and words of encouragement.

Thank you for reading x

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FrancescaContini · 11/09/2021 07:33

I’m so very very sorry for you, OP. My heart ❤️ truly goes out to you and your baby girl. I hope very soon you can hold her in your arms.

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ELBlack · 11/09/2021 17:53

Hi everyone, I'm overwhelmed by your kind messages and support. Thank you so much ❤️

Yesterday was a whirlwind! DD is so amazingly strong I am in complete awe of her. She went from being ventilated, with her skull wires, belly lines and catheter in intensive care, to having all wires apart from her feeding tube and canula taken out, and not only moving out of intensive care in nursery one, totally skipping nursery two, which is for high dependency bubs, and going straight into nursery three, which is parent led care ❤️. We got to hold our baby for the first time, and change her nappy, which was a huge meconium 😂

Holding her was the best most surreal feeling in the entire world. I can't believe how amazing she is. I love her so much.

She is currently under LED lights as her jaundice is getting worse, but we are waiting on the blood gas to see if it has come down at all. We turned the lights off for a few minutes and she certainly looks a much healthier colour, but who knows.

We have also consented to an independent investigation into her delivery, which should get underway in a couple of weeks.

Thank you all so much again, me and DH are so grateful xx

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JuneOsborne · 11/09/2021 17:59

Ah, a really lovely update. Glad she's doing so well.

How are you? Did you get that transfusion? Are you eating, drinking and resting?

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UtterlyUnimaginativeUsername · 11/09/2021 18:01

I'm so happy for you all! And well done MiniBlack for doing a giant poo Grin She sounds like an absolute trooper!

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staffieslobber · 11/09/2021 18:31

Really pleased to hear your update OP Smile xxx

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DifficultPifcultLemonDifficult · 11/09/2021 18:44

What an amazing update.

Baby @ELBlack clearly just likes a fuss and wants to be centre of attention at all times.

This is your life now, she is in charge and you and dh are her minions 🤣🤣

Keeping everything crossed that she continues to surprise you daily ❤

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gabbygabbygabby · 11/09/2021 18:44

Absolutely incredible OP, so pleased for you xx

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mommybear1 · 11/09/2021 18:58

Brilliant news OP I have everything crossed for you all Thanks

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rolyisntittimefor · 11/09/2021 19:04

All the best to you and your special girl OP xxxx

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Mummaganoush · 11/09/2021 19:28

Im offering second / third hand info here but...

My own daughter was born prem had some interventions. She is now reasonably healthy physically. She is awaiting diagnosis for an asd condition, amoungst other things.
I got through the nicu period one day at a time. That was all I could focus on. One day, each day. My daughter had a brain scan and although we were told she was fine, she has been left with some impact.

My friend had the same / similar situation, her son was turned in utero as she didnt want a secriin, he was then born naturally but in distress and swallowed meconium. He didnt breathe for 9 minutes and was cooled then revived.

She was told he was fine on his initial scan, however he was a really hard work baby,and it was later discovered he was significantly brain damaged. He cannot walk and uses a wheelchair, he has limited verbal communication, however he is healthy and has some quality of life.

The truth is you wont know what the future holds until you get there, all you can do is your best.

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Kitkat05 · 11/09/2021 19:52

Hi OP.
Glad baby is doing better.
I was in hospital 15 days with baby because of jaundice.
It does get better!
It was up and down! One dah high next session low then high again etc.

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Brollypackedforscottishholiday · 11/09/2021 19:58

Wishing all good luck your way op...
And congratulations on your gorgeous baby!

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custardbear · 11/09/2021 20:08

So glad things are getting better. I hope you're ok x

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DontBuyANewMumCashmere · 11/09/2021 20:08

I'm almost in tears reading your update. Best wishes for you and your wonderful DD. FlowersCakeGin

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Motnight · 11/09/2021 21:53

What a fantastic update, Op. You have a warrior daughter!

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RandomMess · 11/09/2021 21:59

So lovely to read how well she is doing Thanks

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Musicgrrl · 11/09/2021 22:41

@ELBlack I'm so pleased to hear that the re-warming went well! We were in your shoes 7 months ago. Our son was born by emergency c-section under GA after I had a placental abruption.

Those first few days and weeks were so incredibly hard. I sometimes wonder how we got through them. The 'wait and see' thing can be all consuming.

Don't expect the MRI to tell you too much as they aren't a very good indicator of prognosis. Very bad MRI results can still come from unaffected children and severely affected children can have normal looking MRIs. It's so helpful Hmm

There is a Facebook group for parents of children with HIE. I found it incredibly useful as a place to share my thoughts and ask my questions in those first few months. I would happily send you an invite.

Thinking of you xx

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VictoriaBun · 14/09/2021 08:21

@ELBlack
How's everything going ? Hope you and your daughter are doing well.

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ELBlack · 19/09/2021 01:53

Hi everyone, so sorry for the delayed update but DD came home on Thursday 😭🙌❤️ she is feeding well, gaining weight, and just being a newborn. Her enhanced hearing test went well and came back 'normal' which indicates how the back of her brain breaks down sound, which was a relief.

We won't have her MRI results for a few weeks yet, but the consultant said that immediately he could see some bleeding in her skull, it looked to be a direct physical impact of the forceps, rather than a bleed in her brain- although they can't rule it out. They said she may be a bit irritable as babies with head injuries can be, but other than not wanting to be put in her Moses in the night, she just sleeps, feeds and stares around at us. She's doing so well!!

My husband and I are starting with a private counsellor on Tuesday, and although I'm still in pain, I feel much better than I did. The transfusion helped wonders, and I'm managing my iron deficiency through diet at the moment. I am still really sore down below, but my midwife said the episiotomy is healing well so far, just really hoping it continues.

Breastfeeding is going well, we give her one bottle a day too so I can get a bit more sleep.

Thank you all again so much for your messages of love and support, it really has been a lifeline during these incredibly challenging two weeks.

I'll update more as the weeks go on and we get a better idea of her condition 🥰 xx

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CornishTiger · 19/09/2021 02:02

Such a lovely update. Enjoy as much as you can and good move to get counselling. Sounds like a very traumatic experience for you all

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50ShadesOfCatholic · 19/09/2021 02:38

Good lord you poor thing, what a terrifying and emotional rollercoaster for you and your husband.

Prioritise your well-being, grab whatever rest you can, take supplements to help regain your physical strength, and allow yourself to feel whatever comes your way. This will help you to process the trauma and transition into a calmer space for parenting.

What a terrifying birth and what an extraordinary little girl you have. Congratulations, I bet she's gorgeous.

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spicedappledonuts · 19/09/2021 02:49

Reading your thread brought back my dd's birth and the aftermath.

I just wanted to say that she is a super healthy teen and the only after effect now is DH and I feeling tearful if we talk about her birth.
She is absolutely fine.

Hoping everything continues well for you.

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DifficultPifcultLemonDifficult · 19/09/2021 02:50

Op I'm just delighted to read your update.

It sounds like everything is going pretty smoothly after a really rough start for you all.

Enjoy your little girl Flowers

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TerriblyNaice · 19/09/2021 02:58

What a lovely update. Thank you OP Flowers

Welcome home little one Bear

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user1471439310 · 19/09/2021 03:33

May God watch over your beautiful girl and keep her safe.

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