Would you call doctor?

[brokengate]

Baby is 13 weeks old.

Combined fed. Now on comfort milk and gaviscon before every BF.

This was due to silent reflux, colic type pain from about 1 week.

She no longer seems in pain. Nappies fine, not thrashing about, not holding knees up, is occasionally sick but more sicky burp than sick sick. Sleeps 10pm to 4am. Naps in pram.

BUT she cries all the god damn day. I'm actually beginning to feel unwell with it. If she is awake, she is crying.

I've read about purple crying, which should peak 12 weeks, we are getting worse by the day.

Nothing works. Holding, rocking, swing, pram, bouncer, white noise, lying down, lying on front, nothing. So every awake window is hysterical yelling until the next nap.

I also have a two year old. I'm crying myself writing this. She is so bloody miserable.

I don't know what else to do. There's no enjoyment left. It's just screaming.

I wondered if I should speak to doctor again and look back at feeding. We were about to move to ranitidine but stopped as she is feeding well now and sleeping ok.

Thank you for any help.

@sunnytimes83 is aptimel pepti the same as nutramigen?

From what i see both contain Cow milk but broken down.

Like some kind of nightmare she only gave me one small nutramigen. I'm going to run out maybe tomorrow, certainly Saturday. She is off till Monday, can't get a repeat till I see her

Call around chemists and see if they have that or pepti 1 in, we only have one chemist that’s 6 miles away that stocks it so have to order online or go get it, last week we had none and they only had one 400g tub, I was too tired to organise myself I feel awful.

In my experience GPs will say anything to rule out CMPA

Echoing this again, I don’t know why GPS are so bad with it. I’m so glad you’ve finally got a diagnosis.

As other PPs say it could be soy aperçu alongside CMPA so it maybe worth cutting both for the foreseeable then trying to add in later when better.

I can get pepti on prime delivered tomorrow. So is that ok? To switch?

I hate even running low, tiny tub!! With stupid design

Another one who had a baby with cmpi and with the milk being sooooo expensive drs will do anything to avoid giving it to you.

Please don't worry about weaning it's really not that bad. Seems daunting at first but avoiding dairy these days is so much easier than it used to be. Lots of alternatives available.

One thing I will say is that 50 percent of babies allergic to the milk protein also react to soya. So I'd avoid that too.

We also rang several chemists to see of they had more formula in and thankfully 1 not too far away did. If in doubt definitely order the tub from Amazon to get you through. Any formula is better than normal formula.

Also echoing others that I was absolutely dreading weaning but when the time arrived DS was fine. He's now able to drink cows milk like any other toddler and to look at him you honestly wouldn't know about the traumatic stressful months we endured.

Yeah just order from prime so you can have something for the top ups until you get the prescription.
Pepti is hydrolysed and saved our bacon. We actually have a nice life now.

@Whatwouldscullydo I had a suspicion that was the case, I had to go back to the docs 6 bloody times crying showing them my baby’s leaking face and they wouldn’t do anything at all. Not one even mentioned CMPA or would acknowledge it, we wouldn’t have even asked for them to prescribe it, he’s not on much a day and only 2.5 months left, it makes me so angry at the amount of parents that just be out there struggling thinking this is what babies are like but they’re not! It’s just an intolerance.

FTE once you finally get it tok there's always bloody mix ups with the prescription. Computer updates that somehow erase the one milk you were given off the drop down list. Or suddenly no ones available to speak to when you call. Repeats are a nightmare..probably in the hope you give up asking for them. I swear they think you are just after free formula. I'm.sure anyone who's had been through this would give anything to walk into any supermarket or corner shop and pick up any formula and be done with it. Even at 10 pound a tub, the stress of delayed repeats, and all the obstacles drs throw in the way of keeping you supplied is just not worth it to save a tenner.

Go to a&e or phone out of hours GP they will prescribe it for you.
You should also get a dietitian referral for weaning advice
My first had CMPA and screamed for months no one would do anything I realised after posting on mumsnet. My second just kept losing weight after she was born and the children’s ward were great at getting us sorted. The GPs are dreadful they really don’t want to prescribe the formula.

Does she have a dummy?

If not could be worth a try? Maybe she's overtired and then they struggle to get off to sleep.

So sorry you're going through this I know how tough it can be. I currently have a 6 month old and 3 year old and I remember crying every day in the early weeks because it was just relentless!

Well absolutely, it's certainly been a mumsnet diagnosis here, backed by a doctor, but guided by you.

Pepti ordered amazon. Will try doctor again today but suspect will have to wait till Monday. Might just see if she will prescribe pepti if we get on with it ok and then I'm not chopping and changing every time I run low.

Chemist here is only one in very large rural area and OMG very difficult. I did raise a small smile on Tuesday when after waiting for half an hour she told me it would be a forty five minute wait for the formula. I live nearly an hour away. Right on cue DD cried to a lovely level and it was quickly found and I was sent on my way in moments....

Right on cue DD cried to a lovely level and it was quickly found and I was sent on my way in moments....

Well done DD.

Hopefully you're now on the right track and things begin to improve.

@brokengate

Well absolutely, it's certainly been a mumsnet diagnosis here, backed by a doctor, but guided by you.

Pepti ordered amazon. Will try doctor again today but suspect will have to wait till Monday. Might just see if she will prescribe pepti if we get on with it ok and then I'm not chopping and changing every time I run low.

Chemist here is only one in very large rural area and OMG very difficult. I did raise a small smile on Tuesday when after waiting for half an hour she told me it would be a forty five minute wait for the formula. I live nearly an hour away. Right on cue DD cried to a lovely level and it was quickly found and I was sent on my way in moments....

Just a word of warning (we have pepti) it's much thinner than the usual milk and it doesn't taste the same so we had to make up the bottles and switch an ounce of old formula to pepti one ounce at a time. Took about a week to switch over, within days her symptoms cleared up (including her skin rashes that I didn't even know were symptoms!) also the dietician is great with weaning help and advice and apparently most babies really do grow out of it. Good luck OP

So doctor called at 2pm.....was a little anxious as it was the older male doctor I have never dealt with. I absolutely should have seen him straight away. Absolutely wonderful. Did a repeat prescription for 8 nutramigen and took it to chemist for me so it was ready for when I got there.

Spent ages talking to me about weaning, his own children having suffered from same issues but 30 plus years ago so very hard going.

He tried to reassure me to come back to the moment, that often the symptoms can be CMPA or reflux and that often you are never sure. To try and enjoy her and see what happens when we get to weaning rather than rushing ahead.

So basically what you have all been writing but in verbal form. And shame on me for assuming (in my head) he would tell me to go away.

She has not been particularly settled today but I'm assuming it could take a few days to calm down if we are on the right track. Yesterday was certainly better. See how we go. She is pooping much more and taking it no bother.

Thank you all again.

So pleased to see your update. Hopefully you can get the help you need now

So glad you are getting support.

My sister had the same thing and I was going to post suggesting CMPA.

Her baby slept at night too - think it was just so bloody exhausted by then!

Grew out of the intolerance to dairy very early years.

Also had a slightly tied lip and tongue which needed sorted to fully settle.

She says Booja Booja chocolates are excellent and dairy free if you need them!

Sorry, not read the full thread but DS had bloody bowel movements at around 6 weeks and was suspected of dairy intolerance/allergy. We were given 6 weeks of nutrmigen and then told to try normal formula again. He was absolutely fine by the time he went back to normal formula so I wouldn't worry too much about weaning just yet.

We have food allergies and our main symptoms are continuous crying and having to be held continuously.

I've had to cut loads out of our diet. I'm weaning and waiting on a dietician appointment. Our paediatrician has said we can start the milk ladder (slowly introduce dairy) once she's 1.

If you are still breastfeeding and have cut dairy out of your diet be careful about your soya intake. About 50% of cmpa babies also react to soya. For most people there's no need to cut both out at once but don't replace dairy with soya alternatives.

@brokengate

So doctor called at 2pm.....was a little anxious as it was the older male doctor I have never dealt with. I absolutely should have seen him straight away. Absolutely wonderful. Did a repeat prescription for 8 nutramigen and took it to chemist for me so it was ready for when I got there.

Spent ages talking to me about weaning, his own children having suffered from same issues but 30 plus years ago so very hard going.

He tried to reassure me to come back to the moment, that often the symptoms can be CMPA or reflux and that often you are never sure. To try and enjoy her and see what happens when we get to weaning rather than rushing ahead.

So basically what you have all been writing but in verbal form. And shame on me for assuming (in my head) he would tell me to go away.

She has not been particularly settled today but I'm assuming it could take a few days to calm down if we are on the right track. Yesterday was certainly better. See how we go. She is pooping much more and taking it no bother.

Thank you all again.

That is so lush to read! Can we copy and paste him into all the GP surgeries across the country please?!

Well things took a bad turn over weekend and I'm back to square one. Friday she started screaming again, that's continued till this morning. Yesterday she started throwing up the nutramigen and then clear liquid for hours after feed. Chronic nappy rash, just miserable. I was up all night with her and at four this morning gave her first infant milk and gaviscon. She's been settled since. Ish.

Spoken to doctor at nine and she's prescribed neocate as thinks I should conclude CMPA trial.

However, from what I have read she should have stayed the same or got better on nutramigen not worse. By last night she was on hunger strike and it took me a great deal of persuading and a spoon to get her to take the milk at four. She also fed off me which she has been refusing since last week.

I said to the doctor perhaps just colic but she said that would stop at 12 weeks. So I'm really no further forward, just more tired and confused if that's even possible.

Tempted to leave her be for a few days and see if she settles. Was on comfort milk pre nutramigen.

I could have written this - cmpa, reflux, colic. Swapped her to soy formula and she was a different baby. All prescriptions made her worse, especially gaviscon.

How are you getting on OP with the neonate?