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Original poster

M.E. CHRONIC FATIGUE SYNDROME PARENTS

179 replies

lonewolf · 20/04/2007 18:16

ARE THER IN ANY PARENTS OUT THERE WITH M.E. OR FIBROMYALGIA.

OP posts:
solo · 03/09/2008 19:09

Oh and I too am a bit of a witch!

AvenaLife · 03/09/2008 19:13

Yeah, I'm a witch too.
I know what you mean about not being able to get on top of it. It's an endless battle sometimes. Children don't help either.

solo · 03/09/2008 20:59

I know! do you practise a bit of witch craft then? I cast spells now and again and have books and crystals etc.
I love Feng Shui, but since being ill I just don't do it properly.

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AvenaLife · 03/09/2008 21:09

I used to do tarot but I have not done them for years. I did join a coven but have not been to meet them yet. I've done a few clensing spells on my house, they helped. I've been told by a few people that dark souls can hide in clutter and dark corners of your house and they feed off your energy. I have no idea if it's true though.

solo · 03/09/2008 22:20

It does sound feasible really although I'm very sensitive to spirits and get feelings about people that are living. I think I'd feel it if there were dark souls in my house. It wouldn't hurt to have a good clean and clear up though.
I took to Tarot less well than I did to normal playing cards and crystal balls and tbh, I stopped doing it so much earlier on in my illness because it just completely knackered me out.

AvenaLife · 03/09/2008 22:34

My lights sometimes flicker in my kitchen and I've seen a light in my living room from the corner of my eye. I told it to go away. I do feel alot better now though. Or it may have something to do with ds going back to school.

How are you?

solo · 03/09/2008 23:23

I'm exhausted AL. Ds went back to school today too. I've actually enjoyed having him at home tbh. I'd have been happy for another month with him at home .

I was fortunate to be invited with the Dc's to a place on the sea front in Kent for a week in August with my friend and her two boys which was lovely. I took some photos of the kids in bed one night as Dd had climbed into Ds's bed with him. I put them onto my pc and you can quite clearly see an Orb above their heads...have a look on my profile, you can see it there.
IME, I've always had spirits around me and it doesn't worry me at all.

I hope you are ok tonight.

AvenaLife · 03/09/2008 23:29

I'm OK. I had a nap this morning because I was tired and now I'm wide awake. I never seem to learn! I've just done my profile, what do you think?

AvenaLife · 03/09/2008 23:32

Ahh, your pictures are lovely . Interesting orb. My neighbour has some pictures with loads around her. They are really creepy.

solo · 03/09/2008 23:50

It's a good profile! You and Ds look lovely!

I often consider having a sleep when Dd goes down, but I never do.

I have lots of pictures with Orbs in. They often appear in photos I'm taking. My brother says I'm a(can't think of the word! Don't be rude now )basically, I enable the spirits.

AvenaLife · 03/09/2008 23:56

Thanks. I think he's cute. He gets away with all sorts because people think he's sweet. I know what the little monkey's up to!

I shouldn't do it because I can't sleep at night. It's a bit of a cycle, tired when I wake, drop ds off at school, come home and nap for a couple of hours then feel loads better but can't get to sleep or keep waking up. It's really annoying.

Medium? clairvoyant?

solo · 04/09/2008 00:05

I haven't been caught in that type of cycle for ages now(touch wood!), but I do sooooo remember it. Mind you, I sit here on MN for far too long and late and I think I really shouldn't, however, if that is what's keeping the awful, awkward cycles at bay, then fine!
The only consolation for you is that they don't last forever, though you never know just how long they will stick around. I'm really sorry for you though.

solo · 04/09/2008 00:16

I have to go now. Got to iron school trousers as Ds fell over and made a hole in the knee of his new ones!
Take care and I hope you sleep well.

EdieMcredie · 09/09/2008 09:41

Thanks AvenaLife

Will catch up shortly...

Hi everyone

solo · 09/09/2008 20:41

Hey EMc

AvenaLife · 09/09/2008 22:23

Hi Edie .

mou · 13/09/2008 22:04

Joined this thread at invitation of AvenaLife, will try to keep my situation brief.

In an accident long time ago and suffered severe spinal trauma. VERY lucky to not be in a wheel chair and i value that every day . But i am in regular pain and four years ago was diagnosed with Fibro, but they said i had probably suffered for years. Two years ago I found it in me to get some control back of my body and through diet and small changes started to do an exercise plan that culminated in my being able to cycle and run again. Have also conquerred my depression and after having being on ad and having counselling learned to manage it on my own.

Fairly pleased with myself but started to notice things are slipping and feeling like i am moving through treacle again, physically and mentally.
Having to sit down after climbing the stairs. Still managing to run and cycle but oh god, everything hurts and the winter is such a bad time for the pain in my spine as well. Feeling so sorry for myself. Headaches, lethargy, insomnia, but by nature i'm prone to being a bit hyper so body is in conflict with mind!!!!

Sitting trying to knit, can't do a full row without stopping to flex fingers, elbows propped with cushions. So tired but it all hurts more when I try to relax.....

I want my Mum!!!!

I will read more of this thread tomorrow but sorry for the rant

avenanap · 14/09/2008 19:23

You are allowed to rant. This is the ranting thread, everyone is allowed. I'm so sorry you are feeling like this. It's horrid. Just see it as a period where your body is telling you it wants you to take it easy. It will pass. Maybe you need to pop back to the gp for some ad's for a little while? It's a bit like ME, it comes and goes in waves, you've done so well to get your control back. At least you know that it can be done. Just take this time and work through things. It will pass and you will be stronger when you have overcome it.

I'm here for you if you need some sympathy and a moan.

mou · 15/09/2008 00:55

Thanks avenanap. So much else in my life is falling apart... on a different thread. Meant to say thanks for inviting me to join......

I suppose i've gotten so used to having control of my body it is a bit of a shock that it is going into decline. The exerise helps so so much with other areas of my life that if I lose that at the moment i think I couldn't cope. Perhaps if I cut down a bit without stopping altogether that would help.

I might go to the Doctors for some painkillers for my spine, at least for a while. Not sure about ad's.

Ought to try and get some sleep.

Thanks again.

avenanap · 15/09/2008 01:00

You are so very welcome. Painkillers will help. Just remember that pain's there for a reason, it's telling us to slow down. For a while anyway, it doesn't mean forever.

Night.

KatyMac · 21/09/2008 12:22

I looked in the mirror this morning and I was white - absolutely white

I seem to remember ME pallor does that ring a bell with anyone?

noonki · 21/09/2008 13:02

Hi eveyone,

I had ME for two years before kids, got much better, then disappeared whilst pregnant/nursing. My cousin also is a recovered person

Thought i would tell you about what made me feel better.

I went on a very strict anti-candida diet for about 2 months, and hugely improved. The biggest benefits came I believe from no sugar/alcohol/wheat and caffine. (boring I know but worth it)

My cousin had ME for about 3 years then tried mickeltherapy and improved beyond recognition.
Link herewww.mickeltherapy.com/.

I think my ME is back but on a low level.I have been ill for about 3 months with different symptoms than last time but ones that my GP keep saying is ME. I have given up gluten (wheat for about 2 months then two weeks of gluten) and feel like a new woman.

I know that different things work for different people, but thought I would pass on what has worked for me.

I have so much respect for anyone that looks after kids with this bloody awful illness x

solo · 23/09/2008 17:34

Hi ladies,
No energy to write this late afternoon, but just thought I'd check in. Welcome new ranters!.

Catch up soon.

Coro · 01/10/2008 16:13

Hi all.

Hi new people.

I'll read back and catch up in a bit. I just wanted to say hi, while I'm fairly lucid.

bacon · 11/10/2008 18:55

Yeh, but mine has become infrequent. Now that the nights are drawing in I find myself useless after 6pm.

I dont get the pains like I used to but the general exhaustion, its hopeless after a brilliant nights sleep I still feel tired after lunch and then my put son to bed I just want to sleep.

Its very difficult to go out in the evenings as I start yawning and cant wait to get home.

I have tried all sorts of things, wheatfree, caffine free, vits and everything else under the sun but I think its something damaged in the brain so unless a brilliant new drug comes along I just have to ride the waves.