Any MS mums out there?

[MWH]

First time mum with MS, just wondering if there are any others online. Have only met older folks with MS.

Hello all - I am new on Mumsnet - not sure if this thread is still going but just wanted to make contact.

I do not have MS but my husband does. We have two children.

He is very brave and I am very proud of him. We're practical people so he would be embarrassed if I said that to him so I am saying it to you instead.

He can't walk very far at all now. It's hard for him because of the two of us he was always the sporty one. Any racquet sport, football, cricket, skiing, mountain biking. He doesn't do any of that now. The thing he misses is being able to do that with the children.

Took my little boy to his first football practice tonight. It meant standing around for 90 minutes so I went rather than my husband. But I think that he would rather have gone.

anyone still reading this thread?

I've got MS. had it for 11 years.

I have 1 DS a DH and a walking stick

I saw my MS nurse yesterday and she's amazed at the recovery I have made from my last relapse 18 mths ago.

Good to know there are other MSers out there. It's awful to feel on yr own

Hi I have finally managed to admit that I do have MS and that I am also a mum, but I dont seem to fit into any specific category for discussions. I am 43 and have 3 grownup kids as well as a girl aged 10 and a boy age 3.5, both born after I had MS for 7yrs so I have experienced motherhood as a healthy mum as well as with MS. I would love to talk to someone in a similar situation to help keep my sanity as it is slowly dissapearing. You are not alone Grouchyoscar take care xx

Hello there Scotdiz

I had a 2nd relapse just after seeing the nurse. We damped it down with steroids and I've recovered a few other bits I thought were lost. Then again, having DS for 2 weeks and me wanting to be supermum didn't help matters

I find it so hard not slotting into any particular box for what constitues living with a disability. As I can more or less walk and function normally, there seems to be nothing to help you when your illness pulls the rug from under you. It was OK when it was just me but DS still needs watching/entertaining/taking to and from school. That causes stress and anxiety and that fuels the symptoms

Mustn't grumble tho, today is a good day in Grouchy land so I must be happy for that.

Know this thread is old just seeing if any of you are still out there! am a 30 year old mum of 2 under 2's have had RR MS since I was 21. Happy to chat to anyone who wants to!!

Hi girlsyearapart, i was diagnosed with rr ms in april this year. Only started with symptoms last oct so very fast on set!! I am 31 and mum to 4 children, 3 girls aged 9, 4 and 3 and 1 boy aged 16 mths. been crazy few weeks gettin head round it, its made harder by my youngest having additional needs.But i guess this stuff sent to try us!! How are you with the ms? are you on any dmd treatments? Im waiting to hear on funding for tysabri as my ms highly active at the moment.Anyway im going on now, take care... xx

Hello! MWH here! long time, no post! (I changed my nickname and MN won't let me have MWH back)

Comforting to know there are so many other MS mums. Met one in my area recently!

notsosure, my DD is 3 now. She's fabulous. Feel very lucky. DD is very helpful and cooperative (thank you God!)
Friend's DS runs off in park. DD says 'That's naughty!' so glad she doesn't decide to run off, too, I'd never catch her.
Asks sometimes, 'Mummy who do you have this stick?'
'Because Mummy can't walk so well' seems to make her happy. All her play group buddies LOVE my stick and grab at it try to use it as a sword.

How is everyone else getting on?

Hi, just joined mumsnet today so I'm brand new. I have RR MS and was diagnosed 5 years ago after I'd had my children. I am currently recovering from a relapse and have had to change my DMD, so life is a bit of a challenge at the moment. I try to stay positive I think a positive attitude helps but it can be hardwork at times. It's really good to know there are people going through the same problems because you can feel quite isolated at times. My son and daughter are great when mummy has her wobbly days (too many...unfortunately, at moment)
I hope I can make some new friends on here it would be great to have some friends who really understand what's going on, I don't think you can really appreciate MS without experiencing it.
Byeeee.

I am a 45 yr old mum with aggressive rr ms, dx 5 yrs ago. I have two young teenagers and our family life is as chaotic as when they were toddlers! Used to take a beterferon and now on Tysabri. Still walking, although with difficulty. Also have some cognitive issues...
It's a pain, but I tell myself that it could be far worse!

Hello piglet

I'm a mum with MS - diagnosed 8 years ago - have a 3 year old son - do find it hard as my DH is abroad for work a lot (6 months last year) I would love another child but I do find it knackering and worry if I could cope. So don't want him to be an only child... Mostly I have sensory tingles etc but fatigue is my worst problem - am on modafanil which helps but I find it too 'druggy' for every day so only take it when I really need it. Am off betaferon as we are still trying to decide about a second child - could manage but only with an au pair so it's down to money. Agree that you have to stay positive - was looking at a really old post from Izzymum - who was talking about vitamins etc - is she still around? I find seeing an osteopath who does cranial work really helps with energy but do have 'stoned' moments when go a little vacant until I have a rest. Thank god my toddler still takes a nap!

Hello,
just stumbled across this thread.. I was diagnosed earlier this year with RR MS, am injecting copaxone daily, bit of a pain literally! Would be much less painful if I still had the numbness in my stomach - although I am still perfecting my technique, so hopefuly when I do, wont be so bad.

I too started with ON in my left eye, was very scarey, wondering if my sight was going to return, as it went completley, thankfuly after about 3 weeks it did start to return.

Anyway wont bore you all too much, as not sure anyone even reads it. Would be nice to get this thread moving again!

Hello - been a mumsnetter for a while but also never found this thread. Diagnosed 2005, DD born 2008.

Nice to know you're there

Yeah,I have had R/R MS since 91 (DX 95). I am 38 and have a 3.5 year old.

I'm 27, I have RRMS DXJan2009 my DD was born August 08 & I relapsed when she was 3 months old which is when I was subsequently DX. My MS is fairly aggressive but I am putting off infusion treatment until after I have had another baby (hopefully next year). Good to know I'm not alone!

I had a flare up about 12 months ago which just wont remit. I think after 13 years my disease may have gone progressive

How do I deal with not recovering while still having parental duties and still wanting to feel well?

any advice?

Not sure if this is the right place to post, but i am worried that i have ms. I have had funny sensations for about 6 months now. Started with pins and needles in my little fingers, then that went and i now have one numb big toe and today i got prickling sensations in my left hand little fingers again. i sometimes feel off balance, i thought i was preg this month as have a wierd sickness feeling,i had a strange taste in my mouth a couple of months ago too,and shooting pains down my legs..... I have googled ms loads and am really scared. My gp said the pins and needles were probably just a trapped nerve but i'm thinking its all sounding like ms. Do any of these symptoms sound like ms to any of you? How do you go about getting diagnosed?

LittleGreenie - Go back to your GP. They need to send you to a neurologist to diagnose you. Don't panic, it might be a trapped nerve somewhere, but best to get them to check you out again.

I have MS and am a first time mum as well. Diagnosed 8 years ago and was doing pretty well until the birth of my son 16 months ago. Trying to wean him so I can see my neuro and get back on treatment :)

aitchandm - Did you have to stop drug treatment to have your DS? I've just stopped mine & I'm really nervous that I'll end up relapsing before I am PG! (I didn't know I had MS when I was PG last time!)

I used to be on Rebif and was told to go off it 3 months before TTC to get it out of my system. We were lucky and got pregnant our first month, but that still means that I've been off for nearly 2.5 years. Eek!

Good luck to you, Bebe!

I was on Avonex, but stopped nearly 3 months ago. TTC might get put back & I am worried that the longer I leave it the more chance I have of relapsing!

Hope you get it weaning sorted soon & can go back on your meds. I didn't notice much of a difference on mine, but maybe I wasn't on them long enough!

Hello ladies :)

I've been a lurker for a while, only just come across this section! I'm a mum of one, DS 3.8, diagnosed a week after the pg test in July 2006! Currently on Rebif, no relapses for yonks although the niggles of numbness/pain do piss me off a bit... Can see this is an old thread, but hope everyone is doing well :)