Spoonies... friendly support for anyone with chronic pain & fatigue

[Grockle]

A lovely, supportive thread for those of us suffering with a range of illnesses & syndromes that cause chronic pain & fatigue, amongst many other things.

Lots of advice shared but also a place to chat & laugh with people who understand.

Spoon Theory Here

Old thread

Just going to say hello...my current diagnoses are, on top of the epilepsy I already had: HMS, POTS and fibro, and awaiting confirmation that my thyroid is buggered too now.

My GP will not prescribe me slow release tramadol, only the normal one, and only enough for 2 some days and 3 on others, which means choosing between doing the second school run in agony or not sleeping because in in agony.

My Rheumy had better agree when I see her again in May...!

Anybody here?

Hi Couthy. Sounds like you've got a ton on your plate. Hope you can get something to better manage your pain.

I've gone and gotten 'flex time' at work. I'm still working full time, but slightly longer hours on 4 days to get one afternoon off. I hope this can help me manage full time. Also have a bunch of meetings with occupational health next week. Not quite sure what will happen there.

Hi there am new on here...am a mum to two lads 18 and 13 the 13 is autistic..I have fybromyalgia arthritis and suffer severe anxiety..use a mobility scooter to get around.. Moved house twelve weeks ago to an adapted house but it's a way away from friends etc. My partner left me four weeks ago too!! My anxiety has gone thru the roof tnh and am lonely and feel overwhelmed by everything..have no family just my dad who lives a while away and tbh am so frightened of my future!! Its keeping me awake at night need some help with it all so thought would write on here xxxx

Hello fellow spoonies. Old timer here under a new name.

Started a thread in chat about low effort meals which many of you will relate to!

Just struggling with my reactions to a very very dear friend who keeps telling me how tired she is. While I'm on my mobility scooter. I just want to say, 'If you are tired maybe don't take an intense evening class at the same time as lots of freelance work, or maybe get some childcare! You have a lot of choices! I don't!' I am biting my tongue though. I'm sure a lot of you can relate.

Hi guys - I have a chronic pain diagnosis, HMS and PTSD (which can be tiring in itself). I have my very nearly 4 yo DSS living with me and my partner who I adore but I do find it really hard at times as I'm trying to do everything I can to get to a stage where I can come off or dramatically reduce meds and do a masters course. I have someone on my course who also has a pain condition who had a go at me having a cleaner when their are days when I can't even wash my hair let alone clean the house. I find it hard when people start comparing especially when they can't feel how much you hurt!

Hope all are well!

Hi everyone I just wondered if this thread is still active or if it's been moved somewhere else? Really struggling at the moment

I don't think it is very active, there's an ME thread on health which is more active

Just found this thread having just been diagnosed with fibro and endometria