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Meningits

29 replies

ariel · 13/09/2002 11:16

After reading Bobbins devastating loss of her beutifull son to menigitis i thought i would start a thread on this awfull illness.I have posted before about my dd who is now 4 1/2 when she was born 8 wks prem she was very healthy infact she was ready to come home at 13 days old.On day 14 i arrived to see her , her nurse said she had refused her last two feeds but they wernt to worried, i held her for a while, at this point she was not attatched to any monitors as she didnt need them, but i noticed she was breathing normally the nurse looked at her and said she was fine.I then changed her nappy and noticed she didnt look "right" she looked really yellow, but not jaundiced yellow a really strange colour i asked for a doctor to see her and one came straight away and the look on her face said it all.My little girl was rushed into icu and withen 10 minutes was attatced to a life support machine and was hanging on to her life by a thread.I was told they thought it was meningitis but as dd was so ill they could not do a lumber puncture untill she was stable.That night we were woken up and told my darling dd had meningitis and it was unlikly she would make it through the night.We had her babtised and spent the night holding her hand and willing her to live. She did get stronger and she did pull through but this awfull illness has scared her for life, she now has hydrocephalus, cp, she is blind in one eye and her development is severly delayed, . The one thing that scares me so much is that if she was at home i would have not have known, she had no apparant symptoms no rash no raging temp , the one thing i have learnt though is a a mother i know my child best and if im worried about anything however small it seems i see a doctor, i mean thats what their there for, thats why they get paid, I hope i havent upset Bobbin by writing this i just thought this illness needs to be discussed and parents need to know all the facts.

OP posts:
Bobbins · 19/04/2003 12:49

Bagpipes...the.....dots...aren't...because...I'm....breaking..up

my
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doesn't
work.

I
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fine..but....missing,,,him...incredibly....but...time...as...the...cliche...goes...is...a...great...healer...and..it...does..get...easier...kind..of.

donnie · 19/04/2003 14:17

Bobbins, I just read your account of losing Harvey and I am in tears for you. You are an amazing mother to be able to help others by sharing something so difficult and I really want you to know how much I feel for you. God bless you and little Harvey.

Gilli · 19/04/2003 23:05

Bobbins - please read this post: I am so so sorry to hear about Harvey, not least because our son (now 12) had meningococal meningitis at 9 months old, but also because a very dear friend of mine has a story almost identical to yours. Her baby son Sammy, 10 months old, contracted pneumonococcal meningitis in Nov 2001 following an ear infection, and presented to various doctors over a week with symptoms just like Harvey's. However, when he eventually reached ITC at St Mary's Paddington, and they found that his higher brain function had gone, the doctors were still able to save his life. My friend's life has changed for ever, as Sam will never walk, talk, hear or see, but otherwise is alive. His 3 year old brother doesn't understand what's happened to family life, and my friend's world is one of constant round the clock care without end. I never want again to try and comfort a friend who feels her "baby has died but is still her baby". I hope I don't upset anyone by saying this but I feel I have to say it for her: had Sammy died she could have begun to grieve for him, and I know that nothing can ease the pain of losing Harvey, but perhaps just sometimes saving life at all costs is the wrong thing to do. I really do apologise if I upset anyone by saying that, but I feel so strongly for my friend's pain.

Bobbin - my thoughts are with you and your family - that could so easily have been our son.

Mocha · 20/04/2003 00:01

I have just found this thread. Bobbins my heart goes out to you.
Why I was about 15 months old I suffered from meningitis. I had convulsions and high temps but the doctors did not listen to my mum then (am now 33). As a result the left side of my brain closed down completely and left me paralysed down my right side. I needed speech and physio therapy for about 10 years and was on phenobarbitone until I was 14. Because of this history I was worried when I got pregnant that I may not be allowed a normal delivery with gas and air as I was never allowed gas at the dentist. Thankfully I was allowed to deliver normally and I now have a beautiful & perfect 8 month old daughter. I could not bear it if anything happened to her and think you are very brave posting your experience here. You are in my prayers.

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