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Stop arguing blah blah again and instead

58 replies

Jimjamskeepingoffvaxthreads · 20/05/2006 22:02

\link{http://www.mumsnet.com/Talk?topicid=1373&threadid=175289\watch the link in this thread}

It's like watching my life in 13 minutes.

And probably explains why sometimes I can have a sense of humour failure when being told I am selfish blah blah. Just trying to avoid this, exactly this, 2nd time round.

We (ds1 and myself) re-enacted the first scene only this morning. He was even dressed in a red coat.

It also explains why I am propping up a large glass of red wine at this very moment.

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LadyTophamHatt · 21/05/2006 14:52

Jimjams....I found it, and watched it.

I just don't know what to say without sound patronising.

Blandmum · 21/05/2006 15:00

I have also had a chance to watch it. To my great shame, I had to pause it half way through. WTF, I can't watch it without a break, and you have to live it. Makes me feel I'm a coward. You otoh are anything but selfish.

Jimjamskeepingoffvaxthreads · 21/05/2006 15:42

I like the film because it shows how physical dealing with autism is. The constant outstretched arms and attempts to drag you off in the other direction, the dropping to the floor (that's hard as they get older) and the chasing. All of that can happen every day, and is pretty much guaranteed if you set foot outside the house.

What it doesn't show is that the children get too big to deal with physically in the end (we're getting to this stage now) so somehow you have to find ways to deal with that, because the behaviours don't go away.

DS3 is a nightmare at the moment, throws himself around etc, but I'm fairly sure that it'll all be gone by the time he can talk more, it's a stage. Ds1's behaviours go and are then replaced by something equally hideous.

All the stuff on the film just stays and remains, just the "child" gets bigger. It's why working on reinforcement and life skills and behaviour management is sooooo important.

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Blandmum · 21/05/2006 15:45

I just wish that I knew what so say.

Jimjamskeepingoffvaxthreads · 21/05/2006 19:13

I don't think you need to say anything! But seeing it is different to hearing about it. A long time ago on here I caused offence by saying that we didn't really meet up with NT families, and surely this film shows why. We can't. If we go out as a group we need both of us, and then we have to take it in turns to follow ds1 around whilst the other one takes the other 2 off with the group. If we go to someone's house it's the same. One to follow ds1 around and make sure he doesn't escape or break something and one to stay with the group. It makes meeting people and forming friendships incredibly difficult because we just can't meet up and join in.

Not said to dig for sympathy, we don't need that, but if people understand it does make life easier. It will always be like this as well, it's never going to go away, and watching the film it's that that makes me sad.

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Blandmum · 21/05/2006 19:20

There was a father of a 12 year old boy with Fragile X on Home Truths. He was very moving, very down to earth etc , he also said that his sone was his greatest teacher....something that one of those mothers said. Very interetsting.

VeniVidiVickiQV · 21/05/2006 22:37

Ive finally managed to watch this.

Its a very moving film. I dont know what else to say that isnt patronising either.

Jimjamskeepingoffvaxthreads · 22/05/2006 12:09

No need to say anything vvv. My friend (with an autistic dd) watched it yesterday and rang me afterwards to say- wow- wasn't that excellent.

It's still online as well, so can't be disappearing yesterday (!)

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