Anyone else feeling sick waiting to see what the PIP cuts will be?

[Somethingthecatdraggedin7]

Wondering if I will still be able to pay for the numerous services and things my disabilities necessitate.
I think, given I have such severe issues, that I may be one of the “lucky” ones as from what I have read so far I would still have enough pip points plus I am older and have stage 4 cancer (separate to my other significant disability) but who knows.
Even if I escape the cull I am sad and scared for others who may lose their award.

But if not in education or training? As like I say I'm not aware of anything he'd be able to access

I feel sick about it for everyone affected. Me and my DC are disabled. I am on ESA contributions based in support group. I’m lucky because I have a DH in work. I had to abandon the timelimited PIP application because I went past the deadline before I could complete it and I literally can’t look at a screen for more than a few minutes without getting a migraine and/or throwing up. So not even an applicant yet.

The government is now going to take away ESA by merging it into UC. Therefore my husband’s income will be taken into account when assessing my own eligibility. This doesn’t make sense- the benefit is apparently about my previous contribution via my work. not our previous contribution via our work as two people who happen to be married (and one of us had to stop working after becoming disabled).

DH has a job but the money he earns is already supporting me and our disabled child in all the ways that the NHS and the local authority SEND support don’t do, but which DC really needs. These include paying for education and physical therapies. If our household income becomes the criteria for eligibility for my contribution based benefit, I feel sure this won’t take into account the incredibly high costs that we need to spend on supporting our child, plus me and DH on just one person’s income.

Also I feel very anxious about becoming a disabled woman completely reliant on a man’s income. Things don’t always work out. It’s terrifying that Labour are making things even more punitive on disabled people of all ages. This endless crap about how it’s too easy to get PIP. It’s not easy at all and it requires loads of evidence and assessment. Same with ESA, having been through that process. I don’t know how much more we can give up to help pay for our child’s needs. I can see how lucky we are compared to loads of other families.

It is not possible for PIP fraud to be truly detected without 24 hr surveillance of claimants.

And yet most of Mumsnet posters know at least 200 people each who are claiming fraudulently. Must be doing 24 hour surveillance then. It's a wonder they continue to have time to bash disabled people on here with all that effort they put into saving the taxpayers money.

I agree with this. I want to see money targeted towards those who really need it, and for them to get more.

I have a friend who doesn't work and gets PIP. She has a health condition which is not currently being treated but could get worse. She does not need assistance with anything. She goes swimming every morning and twice a week does a yoga class as well. She then goes for coffee with other swimmers and pops into M&S to buy her lunch.

She is married and her DH earns a good salary. She shouldn't get PIP. That money should be going to someone who needs it.

Soonerthanlater
Hope you can get some help with your claim. This is awful that people are being made to feel like this.

Fair enough. I wasn't talking about your child or mine, but the principle that young people of this age with lifelong severe disabilities should not leave school at 18 and have no further support but just be placed on benefits.

Also I feel very anxious about becoming a disabled woman completely reliant on a man’s income.

I wonder if the Equality Impact Assessment for these proposals addresses the greater risk of financial abuse for disabled women whose disability benefits are stopped?

The problem is there can be a huge disparity in the quality of the assessments too. My son receive 0 points on transfer to PIP after having a lifetime award largely because he could subtract 7 from 100 and nobody read any of the evidence supplied. DWP got a telling off at Tribunal and enhanced rates of both elements reinstated. In contrast dd's was decided on the papers when there was probably less evidence than there was for ds.

You need to look at his EHCP. What hasn't been achieved? What are his aims or goals? Has he been able to communicate these? It might be that he needs a residential college placement with life skills built in, or could train further eg in a supported internship looking at, say horticulture, portering, catering, animal care. You need to take a look at what is available locally and request it.

My DC did a supported internship looking at digital skills.

Not all DC have parents such as care leavers in this predicament.

So train the people who tell them to apply to understand the system! I'm not sure what your point is.

This talk of £5billion is a target TOTAL to be reached by 2030. So only £1billion per year, That is not a dramatic figure IMO.

DWP removed the automatic entitlement to those in education receiving income support/UC if in receipt of DLA/PIP. Parents were then advised by disability charities to make a credits only ESA claim for their child at 16 so as to establish LCWRA so that they would be able to claim UC at 18/19 even if still in education. If they remove the LCWRA then I'm pretty certain that will remove that pathway.

My previous foster son who is now over 18 goes to college but still has to claim UC to live on and got LCWRA. Now he will lose that. He has 29 points on PIP for daily living. Taking this allowance away won't make him more able to work and he already goes to college. He just doesn't have parents to subsadise him for 4 years.

So wouldn't be able to get UC at all?

I think that being a care leaver should be added to the Equality Act as a protected characteristic because this is a class of people who haven't had, nor ever will have, parental support.

I'm sorry to hear this.

I had thought that had been how it worked but now doubting my understanding. I know you can't count on anything for the future but I had looked up how much I thought my son would be eligible for in the future as it affects decisions we make now. We always had the potential that I or my husband would need to give up work to care for him if there was mo provision but it seems there would be no additional money in that scenario.

The same here

They aren’t removing LCWRA for those who already have it. I think the 22 years thing will be ignored for those with permanent conditions after the consultation

I hope so but didn't see that stated anywhere in the coverage I read

I’m not claiming it, the Department of Work and Pensions is!
They state that amount of fraud is 0.01%. They are hardly likely to understate the facts are they as it is against their interest?
Feel free to report anyone you know for definite is claiming fraudulently
By the way, this is a thread for worried disabled mumsnetters so please take this sort of comment elsewhere.
There are plenty of benefit bashing threads available where you can complain amongst friends.

This wasn’t what was announced today though?

Not sure about the ‘brand of politics’ line either, charities have been scathing.

A huge number of disabled people are poor.
Yes, you can work whilst receiving pip but that doesn’t mean we are rich as a group.
Taxing the richest ensures a fairer distribution of resources and opportunities in society.
Whilst the government administer the benefit it is not simply money out of their (your) pocket as your wording makes it sound.
Many disabled people, myself included, worked and paid into society.
I have never had children but I don’t take against people who do have children because my contributions are partly used for education, transport etc.
Anyone can become disabled at any time in their lives. It could happen to you tomorrow.
Those who can pay in, pay in to help everyone in need and this should be proportional to their wealth.
That is called humanity. A forgotten concept for many it seems these days.

How disgusting of your 'friend' (she might consider you a bit less of a friend if she knew how you really feel about her BTW ) to meet up with others for coffee and pop into M and S for a sandwich. All disabled people should stay at home writhing in agony and not blight the wider public by being seen out and about. Shocking behaviour.