Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

Mumsnetters with disabilities

Please see our webguide of suggested organisations for parents to support children with learning difficulties.

See all MNHQ comments on this thread

Anyone else feeling sick waiting to see what the PIP cuts will be?

370 replies

Somethingthecatdraggedin7 · 18/03/2025 12:42

Wondering if I will still be able to pay for the numerous services and things my disabilities necessitate.
I think, given I have such severe issues, that I may be one of the “lucky” ones as from what I have read so far I would still have enough pip points plus I am older and have stage 4 cancer (separate to my other significant disability) but who knows.
Even if I escape the cull I am sad and scared for others who may lose their award.

OP posts:
Thread gallery
10
JenniferBooth · 18/03/2025 14:15

cramptramp · 18/03/2025 13:04

I assume it’s only people who are fraudulently claiming it who need to be worried.

Thats what they said in 2011

Canaryhead · 18/03/2025 14:17

They’re also apparently stopping the LCWRA element on universal credit? Are they stopping benefits for particular conditions like autism, or are they just tightening the criteria eg you can’t get points for promoting

lifeturnsonadime · 18/03/2025 14:18

Mumsday · 18/03/2025 14:14

I think there might be a lot of people claiming in this age bracket who don’t need it.

My daughter has autism and ADHD. I was told by my UC work coach that she should claim PIP. I explained that she doesn’t need it, as she manages day to day fine. Her mental health isn’t great as she struggles to make friends, but she certainly doesn’t need extra money to help with that. He said I should claim it anyway, as she is ‘entitled’.

She hasn’t.

I wonder how many other 18-25 year-olds are claiming when they don’t really need it.

I don't think your daughter would qualify. It's on need not diagnosis. She wouldn't meet the current criteria.

Newfoundzestforlife · 18/03/2025 14:19

Allmarbleslost · 18/03/2025 13:12

I feel sick with worry at the moment. If my dd loses her PIP I lose my carers allowance. I honestly don't know what we would do.

I could have written that...So scared, we'd have to move, I won't be able to afford the rent 😢

ExtraDecluttering · 18/03/2025 14:23

Mumsday · 18/03/2025 14:14

I think there might be a lot of people claiming in this age bracket who don’t need it.

My daughter has autism and ADHD. I was told by my UC work coach that she should claim PIP. I explained that she doesn’t need it, as she manages day to day fine. Her mental health isn’t great as she struggles to make friends, but she certainly doesn’t need extra money to help with that. He said I should claim it anyway, as she is ‘entitled’.

She hasn’t.

I wonder how many other 18-25 year-olds are claiming when they don’t really need it.

If you don't need it you won't get it, unless you lie. It is based on need not diagnosis.

Whoarethoseguys · 18/03/2025 14:24

People need to remember that the proposals are not policy yet. They are a Green Paper which is in effect a consultation document.
The policy could change before it becomes law. The proposals will come into effect at different times depending on the legislative programme but the earliest are not until 26/27.

businessflop25 · 18/03/2025 14:28

Lifestooshort71 · 18/03/2025 13:47

If your business is making a loss then you're probably right to be worried. Does your reduced work ability mean that you're unable to get any job just to tide you over until you decide whether your business is worth rescuing? Difficult times and choices x

My business is making a loss because it’s a new startup. I’ve been running since mid January. Most businesses make a loss in their first year.
Yes I have reduced capacity to work. I have ADHD, Post Cancer chronic fatigue and arthritis. I have been self employed for years but since shortly before my cancer diagnosis I have had to work part time. My new business will hopefully in the long run mean I can work increased hours from home and take me off any UC.

PocketSand · 18/03/2025 14:28

Indeed, assessors always downplay need, even with reams of evidence, and award a fictional 0 or 2 when the score should have been higher. With one ‘4’ in the bag and sufficient points overall I have been willing to let this go in the past - lots of hassle for no financial gain even if it’s annoying.

But now, what’s the betting that assessors will have a target or be otherwise pressured to award less than 4 (when legitimate) to force people off PIP/save money.

How many people, especially existing claimants who may have migrated from DLA when aged out or their advocates will just accept this and not do mandatory reconsideration or progress to tribunal? Because PIP and CA are essential. Has this been costed in?

And no recognition of current backlog to review. Will they be taking on more staff? Is this costed?

Also lot of talk about UC and NS ESA but what about legacy benefits. Do they expect all PIP recipients to meaningfully engage with work coaches? Even the autistic ones with selective mutism who have not communicated with anyone but mum and brother for the last decade? (But reassessed regularly in case of miracle). What happens to ESA if they can’t?

PocketSand · 18/03/2025 14:34

@Whoarethoseguys some things are proposals but others will come into force without consultation. Like PIP new rules on eligibility as far as I am aware.

Emanresuunknown · 18/03/2025 14:37

Somethingthecatdraggedin7 · 18/03/2025 13:08

If only that was true!
Pip fraud was 0.01% last year according to the DWP’s own figures so fraud is not an issue.

It is not possible for PIP fraud to be truly detected without 24 hr surveillance of claimants. We all know there is not zero fraud in pip claims, you honestly sound silly keeping claiming this.

GreatAuntMaude · 18/03/2025 14:37

I have seen a decent summary on FB and it looks more ok than I feared (Screenshots attached).
My DC is 24 and gets high level PIP. It's their only source of income as they don't spend anything and live at home and so built up "savings" that were too high - part of their condition is a refusal to use a mobile phone or have online banking or online shopping which is a big barrier when they don't go out independently.

I feel like it did need reform. The most difficult thing for us wrt universal credit when we were getting that, is that for a person with significant autism and mental health needs, in recovery from a breakdown, like my DC, there was no mechanism to give work a try to see if you can cope, within the system, or try supported work schemes or part time or voluntary work opportunities to just get a toe in. My DC enormously benefitted from the small responsibility of helping a neighbour with their cat while they were away on holiday, unpaid, but we had to source this opportunity ourselves and after the week long holiday they needed a break, but are a little more confident to take that sort of thing on again, and we are looking at other volunteering opportunities locally, such as helping out at a pets corner. I hope in the very long term DC would be able to work part time in paid employment...but there's not sufficiently bespoke support that finds these very small short term "steps in the right direction". It's all geared up for proper full time work and no acknowledgement that some people will always need support from society but can still contribute a little time to work. It would be great if part of Pip could enable long term supportive career coaches who could accompany and facilitate people in taking their anxious first steps into moving outside their safe space, if they are able to, and maybe some mechanism whereby UC and a disabled person having a go at work to see what they can manage could work together somehow.

Anyone else feeling sick waiting to see what the PIP cuts will be?
Anyone else feeling sick waiting to see what the PIP cuts will be?
ByQuaintAzureWasp · 18/03/2025 14:39

People with real disabilities need more support not less. However, there are people getting PIP who are not disabled and this needs to end, now.

GreatAuntMaude · 18/03/2025 14:45

"Do they expect all PIP recipients to meaningfully engage with work coaches? Even the autistic ones with selective mutism who have not communicated with anyone but mum and brother for the last decade? (But reassessed regularly in case of miracle)."

This is my DC. I actually do expect that my dc could engage with a work coach, IF that person was specialist in this area, a long term supportive presence, and properly understood autism and SM. I don't want my DC to be handed benefits and written off because helping them isn't easy. And changes in autism/SM presentation ARE possible, WITH support. Example - my DC has gone from 99 percent in bed, in pjs, for 2 years to getting dressed every day, looking after a small patch of garden and going cycling twice a week with carer from social care. They are a long way from full or even part time paid work, but with specialist support from trained people it's possible to make a difference. If social care and pip/universal credit could get their acts together wrt supporting this population - many of whom don't have intrinsic learning disabilities - it would make a huge difference.

Baconmaple · 18/03/2025 14:49

So this means now that severely disabled children who will never be able to work will get standard rate universal credit+ pip between 18 and 22. And only receive the extra £400 after age 22 is that correct? So parents will be continuing to bare the brunt of the costs for 4 more years than under current rules?

GreatAuntMaude · 18/03/2025 15:05

Baconmaple · 18/03/2025 14:49

So this means now that severely disabled children who will never be able to work will get standard rate universal credit+ pip between 18 and 22. And only receive the extra £400 after age 22 is that correct? So parents will be continuing to bare the brunt of the costs for 4 more years than under current rules?

Severely disabled children from 18-22 should not be NEET though. They shouldn't be available for work, they should be in education or training.

thankyounextplease · 18/03/2025 15:09

lifeturnsonadime · 18/03/2025 14:18

I don't think your daughter would qualify. It's on need not diagnosis. She wouldn't meet the current criteria.

It still costs the taxpayer money for the application process. Times that by however many people have been told to apply when they know they don't need it and wouldn't qualify, that's a lot of salaries and paperwork and delays.

Baconmaple · 18/03/2025 15:28

GreatAuntMaude · 18/03/2025 15:05

Severely disabled children from 18-22 should not be NEET though. They shouldn't be available for work, they should be in education or training.

I've never heard this? All disabled children are provided with education or training until 22?
I thought it was until 18. My sons special school goes to age 18. I was under the impression most pupils went on to day services. I'll see if there are any stats on the school website

GreatAuntMaude · 18/03/2025 15:32

Not all disabled children - but those who have severe LD or PMLD and will always need full care and never work, they are usually entitled to support from education, often jointly with social care, up to age 25.

GreatAuntMaude · 18/03/2025 15:35

Like many will go on to specialist FE, supported living or supported internships etc

They shouldn't just be sat at home on benefits.

Baconmaple · 18/03/2025 15:35

My son would fall under this banner but I don't know anything about further education providers in the area. I know an EHCP can be in place until 25 though.
So those in education aren't eligible for LCWRA anyway? So parent is funding shortfall still?
I'm just trying to understand for the future

GreatAuntMaude · 18/03/2025 15:38

Not at 18, no. Like any other young person who is still in education or training they wouldn't get out of work benefits if they are at college, like they wouldn't if they were at ordinary college or uni.

Edited to add they can still get pip and possibly a social care package I assume

PhilippaGeorgiou · 18/03/2025 15:39

Labour have said that the reforms will be in line with their brand of politics.

Can somebody direct me to their "brand of politics", because it certainly doesn't include socialism or championing the working class any more?

Secretmeetings · 18/03/2025 15:39

Somethingthecatdraggedin7 · 18/03/2025 13:54

I’ve just dug out my last award letter with my points and I do have 4 points in more than one section so thinking that means my award will stand.

The thing is though that the assessors always downplay the difficulty anybody faces and without any supporting evidence will simply state what they believe you can do, even if you know and have shown you actually can’t.
This means many people who really should score the necessary 4 points are only given 2 or 3 so you could be quite significantly disabled but now not qualify for the daily living part of Pip.
Madness!

Tax the richest, not the poorest.
What is KS thinking??

It is not taxing the poor as it is a benefit not a low wage. It is reducing a payment you receive from the Government.

Baconmaple · 18/03/2025 15:39

Your wording is quite horrible by the way. He wouldn't just be sat at home on benefits.

Swipe left for the next trending thread