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Support thread for women with suspected/diagnosed/self-diagnosed ASD or ADHD

999 replies

EauRouge · 18/02/2015 09:12

Previous thread here.

Hello all, I know I'm new but the old thread was full, so here's a shiny new one. This is a thread for adult women who have ASD or ADHD, or suspect they do, to support each other.

Here are some resources that might be useful:

Links

List of female AS traits by Tania Marshall.

Article about women and girls on the spectrum by NAS.

List of female traits by Everyday Aspergers

Musings of an Aspie- Cynthia Kim's blog (one of the few sources I have found about being a parent with Aspergers)

Autistic Women's Collective

Recognising ADHD in women from ADDitude Magazine

Resources for women with ADHD from ADDitude Magazine

Adult ADHD support (coming soon by the looks of things)

Books

Aspergirls by Rudy Simone

The Complete Guide to Aspergers Syndrome by Tony Attwood

You Mean I'm Not Lazy, Stupid or Crazy?!: The Classic Self-help Book for Adults with Attention Deficit Disorder by Kate Kelly (I haven't read this one but I have heard it recommended many times- apologies if it's no good!)

Online tests

(Online tests are not 100% certain but can give you a very good idea and a starting point for talking to your GP if you're seeking diagnosis)

RDOS Aspergers quiz (the best one IMO)

AQ test

ADHD test

ADHD questionnaire for women

Info dump complete Grin

Please come and join in!

OP posts:
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BuffyEpistemiwhatsit · 24/03/2015 09:45

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PolterGoose · 24/03/2015 09:53

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BertieBotts · 24/03/2015 10:40

Oh good luck later PolterGoose. I might pick your brains about something later if that's okay? I'll let you get your supervision over and PM you about it. I always find your advice and posts really measured and useful :)

PolterGoose · 24/03/2015 11:00

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Allofaflumble · 24/03/2015 12:52

I struggle with allowing myself to have AS. Even though I got the diagnosis. Even nthough I fit the profile massively. I struggle with thoughts that I don't have that reason to be the way I am. Instead it is because I am uniquely and inherently bad.

Not helped by the You dont seem as if you have it comments.

As time goes on from being diagnosed I feel less reassured by it and anting another one which is expensive. I'm not sure the NHS would do it for a 60 year old?

I also avoid Doctors like the plague and would be upset to be dismissed again.

CrohnicallyInflexible · 24/03/2015 13:50

Well it's official, I have Asperger's. Got the diagnosis today.

Allofaflumble · 24/03/2015 15:09

Congratulations! How do you feel?

TheArchchancellorsHat · 24/03/2015 15:36

Thank you for the article EauRouge. Some of it certainly resonates with me.

I can also very much identify with the "do I really have this, or am I just a bad / defective person?" self-questioning. I am undiagnosed, and cannot imagine walking into a doctor's office and speaking about this. I've done so much reading about this over the last six months or so, and it fits, and it explains so very many things, but I still think: am I wrong? Do I just want to believe this? Is it an excuse for my many failures, for my inability to think, speak and act the way other people do?

I mentioned it to my mother, when we were discussing the child of a relative who has traits of ASD. I just dropped it in there - "I wonder, actually, if I have it." - expecting surprise or denial, maybe. Instead she did a head-tilt and went "Hmmmmm." Shock She then pointed out that I am weird about eye contact and don't retain information unless it pertains directly to me. The eye contact thing I am aware of - it's weird and uncomfortable, I have to make a conscious effort to do it an appropriate amount, and I never really know if I'm doing it correctly or not.

As a child - I learned to read aged two, when my mum was teaching my older brother, by pottering around in the same room. I read a lot, constantly, and have pretty much always been able to spell perfectly. The only words I can remember ever actually needing to learn how to spell were "hieroglyphic" and "necessary". At school I remember being gently told off because I had started deliberately misspelling easy words in an attempt to emulate the other children. I had a series of "monogamous" best-friend-ships; I think I was quite well-liked and vaguely remember "allowing" the other girls to have a turn at being my best friend Hmm which sounds a bit awful, actually, but I don't remember any unpleasantness.

I had the ability to write poems with perfect metre and rhyme. It still jars me if I read a line of verse that doesn't quite scan.

However, I could and did tell lies. As an adult I dislike lying and feel very uncomfortable with it. But as a small child I was almost known for it for a time. Not creative lies, more flat denial of things that were known.

At seconday school I was much less of a ringleader - I made two close friends and we were a gang of three, very uncool but happy enough, and stayed on good terms with everybody else. Academically I did very well with little effort.

My DC are home now so I'm going to stop writing. I hope it is OK to use this space like this...I am sort of ordering my thoughts. I need to write a bit more, I think, about university - which I loved, but which brought out my issues, whatever they are, in quite striking ways - and afterwards, when I drifted and floundered and began to wonder why I was failing.

CrohnicallyInflexible · 24/03/2015 17:31

I'm relieved I guess- I'm not making it up, i'm not attention seeking, I'm not a bad person, I have AS. And I'm not depressed or anxious either- the psych said I'm very resilient and mentally healthy. It's just the way the AS was presenting itself that lead to those diagnoses.

hat so much of what you said applies to me too!

CrohnicallyInflexible · 24/03/2015 17:34

Oh, I do feel like I want to shout it from the rooftops. Particularly to people from school, there was one girl in particular I became obsessed with and must have hurt her quite a bit, I'd like the chance to explain!

But I'm going to tell people on a need to know basis for the moment- starting with my boss tomorrow.

EauRouge · 24/03/2015 17:38

Chrohnically, glad you finally got your answer, hope you are feeling OK about it.

I'm trying to catch up on everyone's posts but I'm really wiped out so probably can't manage to say much.

Re: ASD symptoms and other disorders. There are several ASD symptoms that can also be seen with certain personality disorders. It's also relatively common for undiagnosed people with ASD to develop a personality disorder or other mental health issue as a result of their struggles. If you google 'borderline personality or ASD' then you get a lot of results about misdiagnosis and co-morbidity (is that a word?).

There are also a lot of overlapping symptoms of ASD and ADHD. I thought I had ADHD to begin with because of my attention and short-term memory problems, but I am not even remotely spontaneous or reckless, I am a very careful planner (but that doesn't mean that it always goes right!). My counsellor thinks my executive functioning issues have been made worse by sensory overload and the resulting anxiety. It's also pretty common to have both ADHD and ASD, so it's not necessarily one or the other.

Thanks for all your good wishes for our Leicester trip. We made it in the end and it was brilliant. The queues were nowhere near as bad as the media is making out (we were told there was a 4 hr wait but it was only 2 in the end). DD1 is a bit of a history buff so she was so excited to be there. There were cameras everywhere, I really hope I don't end up on telly or in the paper.

I've done two day trips in a row with the DDs and I am totally exhausted now.

Archchancellor, please feel free to use this thread to think out loud, as it were. Finding out what we all struggle with is going to be a big help in supporting each other.

OP posts:
PolterGoose · 24/03/2015 19:31

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PolterGoose · 24/03/2015 19:31

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Allofaflumble · 24/03/2015 20:21

Hope you can advise me someone. I am obsessing about my diagnosis of Asperger from Tania Marshall. I felt like Chronically when I first got it, relieved that there was a reason for the way I am.

Now I cannot get out of my head that I need a second assessment. So today I found myself booking another private assessment which is fairly expensive. It is with a local lady to me who appears to have excellent credentials.

The trouble is, am I then going to think that it still is not true or valid because it has not been done by the NHS? This appears to be the crème de la crème of diagnosis. At my age I think they will be reluctant to use the resources. I don't know what to do.

Maybe I should ask my doctor to go on the list no matter how long it takes?

Sorry to go on about it, but it has taken over my brain and I am feeling very anxious about it all! I don't know who I am trying to prove it to really because the few people I have told seem to think I cannot have it as I don't seem as if I do, or are not really that interested or think I am attention seeking in some way. Arrgh!

PolterGoose · 24/03/2015 20:24

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Allofaflumble · 24/03/2015 20:30

Thank you Polter you are a sweetheart. I will end up being a bit Munchausen and going for endless assessments if I am not careful! ;)

PolterGoose · 24/03/2015 20:39

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Allofaflumble · 24/03/2015 20:44

That's true. I am going to find out if this lady does referrals from the NHS. She did work for them for 20 years apparently.

Allofaflumble · 24/03/2015 20:58

I have looked at the National Autistic Society and the ladies name does come up for my area but it is self referral only for a private diagnosis.

She sounds very experienced in the field.

Am going to try and put it out of my mind now!

BertieBotts · 24/03/2015 22:07

Something I am finding very, very, fascinating is watching my DS with my new knowledge of what ADHD is all about.

Today we had this conversation

"10 x 10 is 100 isn't it Mummy?"
"Yes love, how do you know that?"
"I don't know, it just came into my head."
(DH) "Did somebody tell you that, DS?"
"No, it's easy, it's just like, 10, 20, 30, 40, 50, 60, 70, ... oh, you know. I can't explain it properly, but it's like ten times."

He is six and has never been to school. Doesn't even really know how to add up except he's gone and worked it out for himself Confused (We are not home educating, we're in Germany, so he's at kindergarten where they mostly learn Uno and paper aeroplanes, clearly SHOULD be at school, but his language wasn't good enough last year.)

And then seeing him totally lose track of conversations and activities right in the middle and launch into something else, totally unrelated to anybody else but perfectly logical to him. DH says "He's you!" Grin

I find it really really fascinating. I don't know if he does have ADHD but I would not be surprised and for now it's really interesting to watch him.

Allofaflumble · 24/03/2015 22:19

Bertie he sounds fascinating. Please do share any more things he comes out with in future. Would love to read them. :)

BertieBotts · 24/03/2015 22:28

He is bloody infuriating as well Grin We went to the library after Kiga the other day and something set him into silly mode. In the tram on the way back for some reason he was fine on the first one and on the second one he couldn't decide whether to sit on the seat or flop on the floor and also repeatedly tried to lick me. Confused also dithering in the aisle which lead to me grabbing and plopping him on a seat. In fact it was winding me up so much (people were staring as I kept trying to hold his face out of reach) that I marched him off the tram Blush and made him walk for half a mile three stops down. Even then he was borderline - I thought he'd be knackered and begging to get back on one, but he didn't really seem that bothered despite a mega tantrum between stops 1 and 2. We were going to be late home though and I had work so I tried to make do with some dire threats and keep my fingers crossed instead!

I don't know what it is about trams. I made a video of him on one once because I had just got to saturation point. I don't have any other children, so I don't know if other six year olds are this full on. Although he's much more independent now and actually doesn't want constant attention quite as much any more.

BertieBotts · 24/03/2015 22:29

And this is probably my fault, I have always encouraged him to walk. I took him on a feminist march when he was three and he walked the whole way and refused all offers of lifts near the end :)

Allofaflumble · 24/03/2015 23:39

Hmmm, you have me remembering my son who I suspect is an Aspie. He was a total nightmare at that age. Only with me though.

Good as gold at school, very shy and reserved and then at home he would let it all out. Now I realise a lot of it was probably meltdowns but was totally unaware in those days.

Funnily enough my sister used to say that he was "Just like you were"!

CrohnicallyInflexible · 26/03/2015 20:59

I don't know why, but I had a good cry on DH's shoulder tonight. It's the first emotion I've really shown since being told of the diagnosis.

I didn't tell my boss in the end. I'm undecided as to whether it could be a help or a hindrance. So while I'm settled, the team I work with are bloody fantastic and accept me quirks and all, I think I will hold off telling my boss. My direct supervisor is aware, plus a couple of my favourite colleagues, but that's all. I guess I'm just concerned that once it's out there, there's no going back. And there are a few people at work who dislike me, I don't think the diagnosis will change their opinions of me.

If things change, then I'll reassess.

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